implant reconstruction still possible after radiation?

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TNBCat37
TNBCat37 Member Posts: 24
edited September 2016 in Breast Reconstruction

Hello,

I'm asking your ladies who have experienced radiation and reconstruction before to help me make up my mind. Have anyone done implant based reconstruction after radiation? My radiologist wants to give me radiation, however I'm reluctant to do so.

I had 2.6 x 2.4 x 2.1 cm Triple Negative Cancer tumor, grade 3 in the right breast this Feb. Unfortunately, 5 months chemo didn't kill all my cancer cells. I didn't get pCR. There's 5 x 5 mm residual tumor burden at the time of surgery. The surgeon did the double mastectomy for me said I didn't need radiation. My closest margin is to the chest wall. The margin is 8mm. Clear. Also luckily, I don't have LVI lymphovascular invasion), a term means the cancer cells haven't spread to my blood vessels and/or lymphatics yet. Usually if you have LVI, the radiation will be given, because surgery can't clean them up. But I don't have it.

However, my radiologist argues to give me radiation because: 1. I'm young (38 yr. old) 2. The tumor was abut chest wall, although it didn't reached to the chest wall, and the margin at surgery is very clear, but my radiologist still worry there's chance that the cancer comes back to my chest wall 3. There's also 1.2 cm DCIS in the breast, which is close to the 2.8 IDC tumor, altogether they encompass 4 cm (actually altogether they are 5cm before I had chemo, chemo shrank the DCIS from 2.5 cm to 1.2 cm). 4. the radiologist saw my skin got thickened and red when I first came to see him in March before I started chemo. So he at once thought cancer invaded to the skin, although he put it to the back of his mind later. I could argue it's because of the biopsy. I'm allergic to adhesives. The stereo strips after the core needle biopsy made my skin itchy, red and having blisters.

I'm reluctant to get radiation because of the game plan for reconstruction will be totally changed if I have radiation. The skin will be burned. It's inevitable. My Plastic Surgeon already said he did not do any implant based reconstruction after radiation because the failure rate is so high after. The skin is burned and the blood supply is just isn't much there to make breast alive. There left only 2 choices for me: 1. get DIEP flap from my abdomen to transfer the fat tissue to my breast. But I'm skinny, I don't have much fat at my stomach. Plus, I saw people show their DIEP scars on youtube, it's horrible, horrible!! (Maybe I should ask for permission to the pic forum here to see a better case) The long and ugly scar is from one side of hip bone to the other. 2. I get a robot operated surgery that harvests my back muscle to fill into my breast, plus they put a small implant in underneath the muscle. The scar would be smaller than the DIEP flap. But it is still obvious and vertical on the back. Plus, the back muscle won't grow back again. I'm afraid that I won't be able to play tennis, badminton, golf etc... all the things I enjoyed before this cancer journey.

Besides reconstruction concerns, I'm also worried the radiation is an over treatment to my case. I don't want a over-kill if I don't need it, which makes even more troubles.

I'm only left with 2 weeks to decide whether to do radiation or not. I know we are not doctors, but I just need your input. Do you know if implant based reconstruction is still possible after radiation? Is it successful? Any complications? If not, what type of reconstruction you got after radiation?

Comments

  • Chantal10
    Chantal10 Member Posts: 105
    edited September 2015

    hi there! Shoot, I was hoping you could tell me! There's got to be someone who has done this? I had a bmx with no chemo and no radiation with expander and implant reconstruction in jan 2012, but last summer (2014) I had a recurrence in my right pectoral muscle and so I went through chemo and radiation. I finished in April. Yay! But, now I have severe capsular contraction and my (old) implant is being shoved and squeezed by capsular contraction. It is painful. It feels like a hard rock, it has traveled up about an inch, and generally is tight, like I'm constantly flexing my muscle. I am supposed to go see my ps, but I'm not sure what there is to do about it at this point. I'm so busy trying to make up for a lost year with my children. Plus, will it even work? Like you said, I don't want the additional scars and loss of strength. Good luck on your decision. Any further advice you've heard?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2015

    Chantall - I had implants in Sept 2011 after 1st BC. When BC came back, I chemo & eventually had ALND surgery. Luckily the BS was able to avoid the cutting into implant. Then I had rads. I think what has saved me is physical therapy for radiation damage & scar tissue. Have you tried that? I had quite a bit of pain and now it's mostly gone. My PS did tell me before the 2nd surgery that if the original implant had to be removed all he would agree to do after rads was a LAT flap (I didn't have enough fat for a DIEP).

    But check out the thread about fat grafting. There are several women who have had fat & tissue grafting after radiation who eventually were able to have implants. Can't remember the exact name but it was created by Whippetmom who started the Breast Implant sizing thread. You can probably post there is you can't find the fat grafting thread.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2015

    TNBCat - One of your diagnosis lines shows HER2+. If that's the case, my tumor board argued for two different chemos in addition to a year of Herceptin and rads since there was no option for hormone treatment. Mind you, that was after a recurrence because BS & MO agreed I didn't need chemo or rads the first time around. I expect they would argue even more strenuously if you've been re-classified TNBC instead of HER2+. That said, check out the link I just posted above, read the info and re-post your question on that thread for Whippetmom. Good luck.

  • TNBCat37
    TNBCat37 Member Posts: 24
    edited September 2015

    Thank you! Glad to know that fat & tissue grafting after radiation can help to get implant. I'll definitely ask my Plastic Surgeon on the next appointment. I'll check whippetmom's thread.

    I'm not HER2+. I have one + for HER2 expression. There needs 3 + signs, high expression to be considered HER2 positive. So I'm classified as Triple Negative. I updated my signature to clarify it.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2015

    TNB - my BS & PS were both Methodist. PS absolutely would not consider another implant if needed after rads but that was 2013. I hope you find it's being done elsewhere successfully. My MO & chemo was at Baylor and I had rads at MD Anderson Katy. Nothing like a complete group. If you don't mind my asking, where are you being treated?

  • TNBCat37
    TNBCat37 Member Posts: 24
    edited October 2015

    I am treated at MD Andrrson, the medical center campus. I have talked to my PS again, he said it again he would not perform implants based reconstruction after radiation, because failure rate is so high, such as infection, or implant poking out :-(

  • Miscraw
    Miscraw Member Posts: 45
    edited September 2015

    I am 4 weeks out from my exchange surgery. I finished radiation in February. So far, so good! I know that radiation can still cause problems in the future, but my surgeon is hopeful that everything will work out great!

  • TNBCat37
    TNBCat37 Member Posts: 24
    edited September 2015

    Glad to hear that you waited for 7 months and had a successful surgery! I'll see another plastic surgeon tomorrow, and I'll ask her if she can do it if I wait long enough

  • macb04
    macb04 Member Posts: 1,433
    edited October 2015

    Hi,

    I had reconstruction with implants OVER my pectoral on August 6th.Had all that horrific "treatment ". I had rad fibrosis, so had fatgrafting 5 times with BRAVA method. I had a TE under my pectoral after the unimx in 2012. Took out the TE's while I was doing fat grafting because I was miserable with it under my pectoral and I thought the fat grafting would really work to make me a breast. Unfortunately I had 2 severe infections after 2 of the fat grafting sessions and lost most, but not all of my fat. Finally decided togo for an implant with a new, better PS. He agreed to put a new TE over my pectoral, instead of under my pectoral as had been done before. I had asked him to do it that way because having an TE stuffed under my poor chopped up, mangled pectoral again sounded horrible. It completely robbed me of strength and comfort to have a TE under the pectoral. Who's brilliant idea was it to do that to woman who have already suffered so much.?

    Now I feel I have a breast again. Looks mostly real. Had breast lift on September 17th. Got pretty good symmetry now. Just need to get myself a nipple reconstructed. Doing that first week December 2015.

    I got rid of the radiation fibrosis almost all the way by doing Hyperbaric Oxygen therapy. That in combination with the fat that survived fat grafting has rehabilitated my skin. Even the dark, hyperpigmented areas have resolved. I healed well after getting the TE and then the silcone implant because I was getting Hyperbaric Oxygen therapy at the same time. Having had those infections in the past I am now hypervigilent when I have surgery on the rad side.

    I didn't have good sucess with the fat grafting because of infections and because I didn't have a PS who was very skilled with it. I didn't realize that PS wasn't experienced enough for someone like me who had radiation damage. Hind sight and all that. I was just desperate to do the fat grafting, and that PS was the only PS in my area willing to do fat grafting. My new PS is much more skilled altogether. I wish that the fat grafting had completely succeeeded, but it did partially, just not enough because of lack of skilled care. The grafted fat served as a cushion over my implant. I don't see or feel the edges. No ripples with flexion of my pectoral.

    Long , miserable road, now know what I should have done differently, but implant is possible after rads, I know, because I did it.


    Good luck

  • KellyAnne13
    KellyAnne13 Member Posts: 63
    edited October 2015

    Hi TNBCat37,

    Our stories are very similar. I was diagnosed with TNBC in January at 46. Grade 3 as well. Tumor size similar. Also did 5 months of chemo. Then the plan was to do a BMX with TE prior to radiation, then exchange them for implants a few months after radiation. That all changed in surgery when there was very little blood supply to the skin on the right side. They were unable to place the TE on that side. I do have the TE on the left.

    I was left with a decision to make... do I skip radiation and continue with reconstruction on the right side (it requires a tissue transplant from elsewhere now)? Or do I do radiation and wait until afterwords to assess the condition of my skin, etc and hope for the best with reconstruction.

    I had a long talk with my radiation oncologist and my oncologist. With clear margins and no cancer cells in my lymph nodes and now I also know no cancer cells in either breast after the BMX, both doctors were comfortable with me deciding not to do radiation. HOWEVER they both told me that all thoughts of reconstruction aside the only question I should be asking myself is... there is a 1% chance that cancer cells have spread to my chest wall or intramammary nodes (where sentinel nodes are NOT checked) and can I live with that? When they put it that way my answer was no. Survival is #1 above all else. So I decided to do radiation.

    So here I sit with a nasty concave chest and surgical scar on the right and a half-inflated TE on the left. I will live like this until about 6 months after radiation is finished. Likely it will be next June before I can move forward. But in my opinion it is better than having a recurrence and kicking myself that I didn't do all that I could when I had the chance.

    Having said all this we are all individual. I am really curious what you decide but there is no right or wrong here.

    Good luck,

    Kelly

  • KellyAnne13
    KellyAnne13 Member Posts: 63
    edited October 2015

    I should also mention that I work in healthcare and also worked for several years in cosmetic medicine. I am also thin and do not have enough fat for DIEP recon, nor do I want it, but I do need to choose a donor site to get skin from. I am definitely choosing my stomach. I have seen many many tummy tuck scars over the years and although they seem large at the time they fade to next to nothing. There are also very good laser treatments out there that can reduce them even further! I would rather that then disrupt my back muscles!

  • macb04
    macb04 Member Posts: 1,433
    edited October 2015

    Hi KellyAnne13,

    WWould fat grafting work for you? Help heal the rads tissue damage. Most women have a little fat somewhere.

  • TNBCat37
    TNBCat37 Member Posts: 24
    edited October 2015

    macb04,

    Thank you for sharing your journey! I'm glad there is someone who did it! And I'm glad that it worked out for you after multiple fat grafting and Hyperbaric Oxygen therapy. It is also interesting to know that your surgeon agrees to put TE above your muscle, not underneath it, because I was told they just don't do it at this hospital where I am getting treated. The theory of putting TE under the muscle is because of the worry that the skin flap won't be able to hold the implant, while the pecto muscle is strong and elastic. It looks like there are some surgeons out there who are more flexible.

    My surgeon also mentioned to me that there are many hospitals who do implant after radiation. It is just this cancer center, MD Anderson, don't do it. Because the failure rate is so high, they don't even want to give it a try. I'm too scared to go anywhere else to get reconstructed, so the idea of changing doctors by going to another cancer center is unlikely.

    After careful consideration, I've decided not to get radiation therapy.

    Kristi

  • TNBCat37
    TNBCat37 Member Posts: 24
    edited October 2015

    Hi ladies, I have decided not to get radiation therapy. Here are some updates from the past one month:

    1. My radiation oncologist presented my case among his co-workers who specialize in breast cancer radiation therapy. 2 oppose radiation, 1 abstains, and 3 others favor radiation. The doctors here have a split view toward my case. Opinions range from strong oppose to strongly favor.

    2. Regarding whether or not the tumor once invaded into my pectoralis muscle or the skin, my radiation oncologist asked an outstanding diagnostic radiation oncologist to read all my imaging from the beginning to the end. The conclusion is that the tumor never grew into the muscle, nor the tissue in front of the muscle, nor the skin. It's fair to stage me as T2N0. So the worry that the tumor was once in my chest wall and skin is dismissed.

    3. I had a good talk with my medical oncologist on Sep 18. The results of a test I urged her to do after surgery coming back. The repeated biomarker status test on my residual tumor indicated I'm ER+ now. Even though the stains is only 15%, but 5% mark puts people into ER+ territory. I'm hence qualified for hormonal therapy. My medical oncologist is not sure tamoxifen will work for me, 'cause a typical ER+ patient has 70-80% positive stains. But she think I should give it a try. Tamoxifen works very well to lower the recurrence rate. If indeed I'm ER+, tamoxifen will greatly benefit me.

    4. I searched online and read a research paper published by a radiation oncologists at Memorial Sloan Kettering. The local recurrence rate is about 5.4% for T2N0 Triple Negative patients. I hence flew over to New York City, and went to seek a second opinion from her on Sep 21. She agrees with me that removing back muscle is an invasive surgery. She said if she was in my shoe, she wouldn't do radiation. According to her, my local recurrence risk is below 10%. Radiation can cut that half into 4-5%, but the chance will never be 1% or 0% even after radiation. She doesn't think it's worthwhile to do radiation in my case, given the reconstruction complication. In fact, she said if I asked anyone of them at MSKCC, they wouldn't give radiation treatment to patients who are T2N0 and have no LVI identified, unless the patients themselves are very anxious to do so. Years ago, there's even a radiation oncologist at MSKCC did a study arguing that T3N0 patients who doesn't have LVI (of course no lymph node involved in the first place) do NOT need radiation. She thinks my own immune system has a good chance of fighting off the cancer cells, if any, left at my original tumor site, since I have had the tumor for nearly a year and half but my lymph nodes are all negative, which indicates my immune system might be fairly robust. And the 8mm margin is a decent margin. For mastectomy, they usually look for a margin larger than 5mm. 8mm is enough. She also explained to me more about the research paper published by her. The age factor doesn't pop up for TNBC. Whether I'm 30, 40 or 50, it doesn't matter much. It may matter for other types of breast cancer, but not for TNBC. She also suggests me to take tamoxifen. In fact, tamoxifen is regularly given to breast cancer patients even if they have low or none ER stains at MSKCC.

    5. I went to see another plastic surgeon on Sep 28. She was once one of the best plastic surgeons at MDA, and went into a private practice. She confirmed that the possibility of implant based reconstruction after radiation was very low. She personally wouldn't operate on me if I had radiation. She would definitely push me to use donor site tissues and skins. I was hoping for a robot assisted LD flap surgery if I in deed undergo LD flap. That type of surgery is pioneered at MD Anderson in recent years, which leaves no scars on the back. However, she warned me that the nipple might shift position to move up higher on the chest after radiation. If that happens, the skin at the back has to be sacrificed to make a football shaped patch in the breast, hence a robot assisted muscle-only harvesting surgery is not feasible anymore.

    6. I consulted another medical oncologist in a different institute. She is the sister of a friend of mine. She thinks radiation would be considered super aggressive treatment for my case, and she wouldn't do it if it were her.

    With all of above information, I have decided not to get radiation therapy. I feel I made a informed decision. I won't regret it even if anything happens in the future. I have done enough for myself. Ladies, please wish me good luck with it!


    Kelly, thanks for sharing with me your experience! Good to know your case is so similar to mine! Now I know one more TNBC sister. I wish you a good reconstruction results next June. They sure will find ways to help you get rid of the concaved breast and restore a new one. I hear you on the DIEP flap. I agree it's probably less invasive than the LD flap. I feel different doctors have different preference of what type of reconstructions they will choose. My PS at MDA shakes his head on DIEP flap, favor robot assisted LD flap. But the other PS I saw who left for private practice favors DIEP flap. Well, one could argue that the first PS is not good at DIEP flap, and he is among the only two doctors at MDA who have the privileged training to do robot assisted LD flap, hence he opposes DIEP flap; and the 2nd surgeon isn't able to perform robot assisted LD flap, that's why she favors DIEP flap. My point is when it is time for you to do reconstruction next year, just make sure you interview at least two PS and get the one who's most skilled at DIE flap if that's the surgery type you favor. It's important to be in the right hands.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2015

    TNBCat - You've done a marvelous job of researching all the issues. Your decision makes perfect sense to me. Wishing you the best of luck

  • TNBCat37
    TNBCat37 Member Posts: 24
    edited October 2015

    MinusTwo, thank you! If wish you the best of your treatment too!

    Hugs,

    Kristi

  • Lunalin
    Lunalin Member Posts: 63
    edited September 2016

    Hi Chantal! I don't know if you remember me (Lunalin). We both had pectoral muscle involvement in 2014. Glad to see you again.

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