Starting Chemo in October 2015

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  • PatRN10
    PatRN10 Member Posts: 332
    edited October 2015

    Hi Everyone, My first TC went well on Thurs. Was at Center just 11-3 or so. Just IV no port. Not doing any cold. Noticing decreased appetite, weird skin flushing and feet tingle sometimes. Other than that can't complain. My DH left Maine to come to Florida for weekend get away. My MO changed her mind and wanted to do Neulasta yesterday but we already had plane trix. Before she had said it wouldn't be needed. Anyone else doing Neulasta after TC?

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited October 2015

    i am doing neupogen (filgrastin or GCSF, think it's similar as it boosts your white cell count. I give myself injections days 3-10 after treatment. I am on AC for 4 treatments, then Taxol for 4.

    Kim

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    I am doing Neulasta after mine. They put an auto-injector on my tummy and 27 hours later it goes off over a 45-minute time-frame. The first time wasn't too bad. Some bone pain in my jaw and stuff.

    My most annoying side effect at the moment is my voice is gone. I can talk but I am all hoarse and can't yell at my kids. ;)

  • Kimmi321
    Kimmi321 Member Posts: 1
    edited October 2015

    hi everyone. I'm new to the forum and this is my first post 😊 Starting chemo the week of October 19, have my teach on Tuesday and should have my official start date after that. Pretty nervous but my mantra has been knowledge is power so I'd like follow this thread in preparation of the inevitable.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited October 2015

    strange skittlegirl but my voice has also gotten hoarse!

    Welcome kimmi

    Kim


  • MamaBexar
    MamaBexar Member Posts: 102
    edited October 2015

    Hi Kimmi321,

    I just had my #1 a few days ago. I can only hope your first is as easy as mine. This is a great group of people who are very supportive. Keep us posted.

  • jamigb
    jamigb Member Posts: 12
    edited October 2015

    This is my first post as well. I have port placed on Friday and begin chemo on the 22nd. I'm very nervous...so scared I'll be sick all the time...but also trying to remain positive. I have 4 rounds of AC and 12 of T. Neulasta on day 2.

  • jamigb
    jamigb Member Posts: 12
    edited October 2015

    Do you guys eat before your chemo treatment?

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    You have to eat before chemo or you'll be nauseated for sure. Not a lot of food, keep it bland the night before too.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    I just ate like normal the night before and the morning of. No problems with nausea.

  • PatRN10
    PatRN10 Member Posts: 332
    edited October 2015

    Welcome Kimmi, You've got this! Wish my center had the autoinjectors for neulasta but not yet. Hopefully wbc will stay stable. No plan for trip after next treatment so can go in for shot. I ate a small breakfast before treatment and had a light lunch during. treatment. No voice changes but diarrhea, and some weird pelvic, hip discomfort and head tingles. Also brain a little fuzzy

  • Cherey
    Cherey Member Posts: 12
    edited October 2015

    Hi there, I have been looking online to find out what I should have to prepare for chemo. Just curious to know if anyone had any suggestions. So far I have - two wigs, scarves, Salivasure, Biotene mouth wash and toothpaste. I got some really useful things in a care packet for cancer patients from my sweet cousin. I also bought some cute clothes and shoes for fall because I want to look nice even if I don't feel so good.;) I have heard a little about the cold caps. What are they for? Thanks!

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    ^^ ^^ Here's a thread of handy things to have. Note you won't need everything. Also check out prior month's chemo threads or post the question there. You can ask questions in other threads as the ladies are very nice and helpful.

    https://community.breastcancer.org/forum/69/topic/706846?page=56#idx_1656

  • homeschool4us
    homeschool4us Member Posts: 255
    edited October 2015

    It seems like everyone is getting neulasta. They don't want to give it to me because I'm pregnant. Now, I'm worried about getting an infection.

    Also, I've developed a seroma all across my scar line from the mastectomy. It actually burst over the weekend. My surgeon put me on prophylactic antibiotics even though it doesn't seem infected. Do you think this will delay chemo at all?

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    Unless you have an active infection, it shouldn't prolong starting chemo. But they won't start chemo with an active infection. I just got over 3 weeks of oral for 10 days, 5 days in the hospital for abx IV, then home for another 9 days self administering IV abx and now am on oral abx (Bactrim DS) prophylactically through chemo. So I'm doing what you are, taking abx prophylactically and am going to be starting chemo probably in 2 weeks after I get all my scans done.

    Neulesta isn't for infection. It's given if your wbc count is low to boost wbc production. So no worries about not getting Neulesta as you'll be having a lot of lab work and they'll monitor everything.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    I was on oral antibiotics when I started chemo. My MO gave me the choice of playing it safe and waiting until early the following week to let my wound heal more or starting the chemo that day knowing that chemo would probably slow the rate of healing, increasing the chance of infection. My chemo had already been delayed a week while waiting for additional biopsy results to properly stage the cancer, so I opted to start and not wait. I finished the antibiotics on Friday and the wound is still healing. No sign of infection.

  • AmyBeader
    AmyBeader Member Posts: 90
    edited October 2015

    I start chemo tomorrow, and have not done anything about a wig! I keep looking but can't decide. There is a boutique at the cancer center so maybe I will look there. Anyone care to show their newly purchased head coverings and/or shopping web sites? I've been looking at www.headcovers.com

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    My cancer center has tons of head scarves and hats, so I haven't bought anything.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    And wigs too, but I am not into wigs right now.

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    I run hot most of the time so no wig for me, which is fine. I can deal with caps and such that's don't scream look at me, I have cancer---like baseball looking caps.

  • molliefish
    molliefish Member Posts: 723
    edited October 2015

    Re hats and scarves: WalMart is your friend in this instance. I found many scarves that I've been using there for a really good price. I got a lot of them on sale the first time for $4-7. This past week I dropped in for something else and stopped by, the prices are back to normal $9.75 probably because of the season, but I got four great hats for when the cold weather starts, a page boy, two slouchies, and a really fun red Russian type cap all for less than $12 each. Between my winter toques, my existing scarves and these, I'm hoping to be good to go for the winter.

  • pselma72
    pselma72 Member Posts: 5
    edited October 2015

    Hi. I am ER positive HER2 negative, age 54, Black and not on any medication. I was diagnosed with DCIS May 2015.I had a right breast mastectomy with breast flap reconstruction and a sentinel node biopsy on August 18, 2015.1 out of 3 nodes had positive microscopic cells.6mm invasive was found in the breast tissue that was removed.My Oncotype Score is 20 and I was told on last week that 4 rounds of chemo and Femara for 5 years would stop recurrence. However, today I was told that I have good numbers and chemo may not be necessary unless I want to. My chances of living breast cancer free would be 90 to 92% with Femara, and 92-95% with chemo and Femara.He said the side effects of the chemo may not be worth the risk.I am feeling great and have to return to work on Thursday so that I can still have a job. I like my numbers but I am worried about the microscopic stuff that was found. Any insight or feedback will be greatly appreciated and thanks for listening.

  • ncsue927
    ncsue927 Member Posts: 57
    edited October 2015

    Hi, everyone! This is my first post. I started chemo 9/30, Getting ready for my second treatment tomorrow. My white count dropped and I got my first neupogen shot today. And my hair has started to fall out today. Can this get anymore exciting? Thanks to all of you for being here...you understand as no one else can.

  • tshire
    tshire Member Posts: 239
    edited October 2015

    Hi ladies, I started my first round of TC chemo on 9/30 so I'm pretty much an October chemo club member. So far I have been doing great! My worst days were 3-5 (Day 1 being chemo day) but they weren't that bad. Mostly just low energy, queasiness, sensitivity to strong smells, diarrhea and dry mouth. I threw up 2 times on Day 4. It felt sort of like a hangover. After 1 week everything cleared up except the dry mouth. Now almost 2 weeks out I feel perfectly normal. I did not get the Neulasta shot because my blood counts were ok. I was very careful to drink LOTS of water and exercise every day. I think that helped.

    I also cold capped and so far I've had only minimal shedding. More than usual definitely but not noticeable. I'm hoping to keep it that way!

    Next treatment is 10/22.

    Pselma, I also had the 20 Oncotype. I'm doing the 4 rounds of chemo and I'm glad I did because it's really not bad at all. I was really worked up about getting it, very worried and scared, but this regimen has been... dare I say it... easy? At least so far!

  • maybeoneday
    maybeoneday Member Posts: 8
    edited October 2015

    Had my first treatment today. The process was long arrived at the clinic at 640a.m didnt leave till 1230p.m. I'm on FEC, 8 cycles. I was also given steroids, I'm given Zoladex once a month and Neupogen for 7 days. My biggest issue right now is I feel queasy. I tried to fast as I read it help with SE but the nurse told me I had to eat something before taking the steroids so that was a flop. I got home and stuff my face with every carb food I could get my hands on. I was famished by the time I got home and I was sad that I fasted for 48 hours and gained two pounds because of the stupid Zoladex. Im seriously thinking of not taking it anymore.

  • PatRN10
    PatRN10 Member Posts: 332
    edited October 2015

    Hi Everyone,

    I bought 2 wigs on sale at http://cysterwigs.com/ Heather, one of the owners is very kind and if you search her on Youtube, she does video reviews of the wigs. She is very helpful with measurements. Below is a picture of me real hair and wig. .imageimage

    I purchased the pre tied scarves from headcovers.com I am all thumbs tying scarves :0(. Tshire, I hope it continues to go well. Mine has been relatively mild for #1. The thing is TC I hear has cumulative side effects for some. Others continue to do well. I hope we all stay in the first category.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    The nurse at my infusion told me that chemo is not the time to try to lose weight.

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    Yep. They measure the chemicals based on your weight so if you lose enough weight, they will be stronger on your system.

  • jamigb
    jamigb Member Posts: 12
    edited October 2015

    I'm so confused and concerned after looking at everyone's information. It seems like most everyone who has similar diagnosis to me is getting WAY less chemo than me...anyone know why that might be? I am scheduled for 4 AC(every 2 weeks) and then 12 T(every week).

  • homeschool4us
    homeschool4us Member Posts: 255
    edited October 2015

    Jamigb, before I even knew the stage of my cancer, my surgeon told me that I would be getting 4 rounds of ac every 3 weeks and 12 weekly cycles of T. It seems like it is pretty standard from what I have heard.

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