Starting Chemo September 2015; join us!

problem is the "low-line" is not what the study is defining as low. 11-25 is intermediate for the big study...with 1.9 tumor and grade 2...throwing all shit at it but--trust me--i wonder why I'm doing this some days and then look at my kiddo and remember

Annie- IMO throw the book at it. My second cousin was low too and she did chemo and rads after her lumpectomy. No guarantees that it won't come back for any of us no matter what we do, but I've seen so many people here who have in their sig skipping chemo and then coming back later with a higher stage and on chemo. I hate the regimen I"m going to be on and for 6 months of being in chemo so to speak but I"m throwing the book at it, even if I wasn't stage III. I don't want to look back and go what if and should have in the event I face this again in the future.

yes, artista! An MO put it to me this way: you need to know yourself. Will you constantly wonder if you don't do it all or will you be able to be comfortable. Then you choose. So here I am. Bleh!

Annie: get other opinions. My gyno was all about me getting prophylactic hysterectomy etc due to increased risks and then both MOs said those risks are less than 1% but--for some reason--th gynecological community has become quite hung up on it. May not be necessary per my multiple opinions

Yes but I don't want a shot every month and have menopause side effects for a decade if I can get the hysterectomy, have the menopause side effects then it's done quicker.

Annie your score is low 20 wow! Ugh idk why I chose it. Honestly it was a hard decision. I couldn't even make the call to my Dr. I had my husband do it for me. I only ended up choosing chemo because if in the end I did not do everything I possibly that I could then I would regret it. Also if it a cancer cell does end up escaping and going to liver or lungs Dr said it could turn into metastatic cancer. He said " if you were my sister I would recommend you to do chemo" What do you think?  This chemo is hard on me . Hard for my little ones to see .  I was hoping that the onco score would me super low but it was in the middle.  So that did not help at all!!  I had a reaction to Benadryl and a reaction to taxotere. Is that why u are doing adrymyacin?

best case scenario...chemopause is permanent and I don't have to decide.

so far two periods in two rounds of chemo so I see no chemopause in my future...stubborn freakin body!

Aga score 20 just put me into the gray area. My MO said 10 years ago they would have told me not to worry and chemo wasn't necessary. He said now if it were him he'd do the chemo. So I did. I had a reaction to the taxotere so they switched me to Adriamycin.

Did you get an Oncotype score?

I asked my MO about getting an ooph at my last appt. She said at my age 52 the chemo pause will likely be permanent and that we should just wait and see. I had a period last chemo cycle and I'm waiting to see if another one comes.

I had a period in September but I'm 9 days late now. I'm really hoping it's permanent. I've just had enough "procedures"

I'm 51 and in peri-meno. MO told me for sure it'll be permanent which considering it all, yay! I'm on the rag now and going to the dentist soon. Double sucks. I still get some cramps before and to have that gone for good would be a blessing for me!

I have no family reference. There are few women in my family and my mom and her mom had early hysterectomy from endometriosis which I do not have. Other women in my family died of other stuff early. I'm the first girl born in 5 generations on my dad's side so I have very little reference points.

Thanks YourOtherLeft! I think everyone's input helps the next person make thier decision.

I'm leaning toward hysterectomy if chemopause isn't permanent