Possible liver mets...so tired of this

Options
Deblc
Deblc Member Posts: 479
edited October 2015 in Not Diagnosed With a Recurrence or Metastases but Concerned

Not even two years since first diagnosis, and CT shows possible liver mets. Waiting for biopsy. I feel so defeated and TIRED. I really feel like I cannot make any more decisions, don't want to suffer treatments to eke out a few months....just want to lay down and die.

Has anybody had biopsy of liver that turned out NOT to be mets?

Anybody else choose not to do anything with a diagnosis of liver mets ?

How do people deal with this (mentally) ???????

· Share on FacebookShare on Twitter

Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2015

    Hi deblc,

    I have no experience with liver mets, but just wanted to say that I'm thinking of you. Difficult as it may be, try to take it one step at a time.

    Caryn

    · Share on FacebookShare on Twitter
  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2015

    deblc ((hugs)))

    I have no experience either but I wanted to lend some support. I can feel your pain in your post and sense how overwhelmed you are. Please try to take it one step at a time. As impossible as that seems right now the reality is that all we can do. Do you have any anti-anxiety meds you could take? When is your biopsy?

    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    Thanks Tang. No biopsy scheduled as yet, which is adding to my stress

    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    thanks Caryn. As you know I follow your posts a lot, although I haven't been on here much recently. Just cannot cope with this again. Especially liver, which , as we know, progresses very fast

    · Share on FacebookShare on Twitter
  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2015

    Can I ask what brought about the CT that shows this? Were you having symptoms and MO ordered it?

    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    Tang, I did not get any scans after treatment was finished in February (that's the protocol, I understand). But for the past three months I've been having stomach problems, I.e. Feeling of fullness so can't eat much, nausea, diarrhea, abdominal pain that actually went away (no pain now) and I was totally not prepared that it could be cancer. Thought it was IBS or something like that. I also have recently gotten a new MO as I have migrated to another country (which is also why I thought that stress brought on the stomach stuff)so she ordered all the usual follow up tests, just in case.

    · Share on FacebookShare on Twitter
  • diana50
    diana50 Member Posts: 2,134
    edited October 2015

    Deblc

    I have had liver mets since January 2015. One big one. Had a biopsy (easy for me b/c tumor on top of one lobe). Biopsy may be important in your case to check pathology. It can change and may offer other treatment options.

    It is scary but check out liver mets thread too. Some people doing well. There are different interventions for liver mets; chemo , but also procedures done by intervention radiologist or surgery. There is a guy I know who is getting radiation directly to the lesion. Depends on extent of disease and size. Chemo may also knock them down. I'm 4 years into mets. My side effects are mostly from chemo. My blood enzymes are still in normal range.

    Don't give up. If you trust your one let them do their stuff. I googled "interventions for liver mets" and found good info. I am positive but also realistic.

    Sending you calming vibes.

    Diana

    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    Thanks Diana. Right now I can't seem to cope with what I know would be coming if tested positive. : evaluating and making decisions as whether or not to do treatment, what kind of treatment etc. etc etc . I keep thinking, couldn't I have gotten a longer reprieve ????? I just don't know how I would go through this again, knowing that this timeit's not for a cure, it would be just buying some time.

    · Share on FacebookShare on Twitter
  • Tomboy
    Tomboy Member Posts: 3,945
    edited October 2015

    O fk, Deblc. I am very sorry to hear this. Just not right...Last scan I had showed all kinds of "incidentalomas", that were never mentioned before in the very same tests, calcifications on liver, something over by my spleen, no one has said anything to me about further testing to see... But all I am saying, is maybe it is nothing. The medicine you were all ready treated with, sometimes I just wonder if it doesn't just "fry" little bitty edges of things on us... That is what I am telling myself, till they tell me different. Big and gentle hug, and I will be holding you in my thoughts. I am so sorry you have to go through the mentalness part of this... hug

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited October 2015

    Dorry to hear you recreating with this. Press for getting the biopsy soon. Keep us posted. (((Hugs))

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited October 2015

    Diane, thanks for reminding us that people can do OK even with liver mets. Deblc, it is so important to find a way to take it day by day. I know it is easier said than done and I have had some really bad days when I let my mind free range on the "what ifs". But I can tell you I feel 100% better when I make myself stay positive and calm and take it a day at a time. I too have liver mets and am waiting for my first scan since starting Tx. It is not until November 19th which is awhile. I can't let myself stress too much or I would never make it until then. Of course I am praying hard for good news. In the meantime I am trying to enjoy things.

    · Share on FacebookShare on Twitter
  • Kjones13
    Kjones13 Member Posts: 1,520
    edited October 2015

    just popping in to say I know it's scary but it's doable if it is positive. I started treatment October 17, 2012. 3 mets to my liver. Treatment was weekly taxol (18 weeks total--another country may have different standard) and herceptin and perjeta every 3 weeks. Which I see you have had taxol and herceptin, but there are other combos too. I guess my question is why did treatment stop in February or whenever? Seems odd to me but I'm not the dr. Anyway, the point I initially started to make was I am here 3 years later. Almost Ned and very stable since finishing taxol in February 2013. I plan on continuing this treatment for as long as possible. My fatigue is quite debilitating but could be worse. Hang in there

    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    Thanks for all the supportive responses, trying very hard not to succumb to despair.

    Kjones, my last Herceptin treatment ended in February, that was after a year of Herceptin, as well as chemo and rads, as at the time it was for curative intent. I believe I received very standard treatment for the diagnosis at the time. Hence I really did not expect this, only 7 months after "finishing." Neither did my MO!


    · Share on FacebookShare on Twitter
  • soscaredhubby
    soscaredhubby Member Posts: 45
    edited October 2015

    Deblc

    I don't know if you've received results of the biopsy yet, but in case you are still waiting I just wanted to say: Yes, my wife's supposed liver Mets turned out to be not cancer after biopsy. All of our doctors believed it was mets. I posted on the "husband's of stage 4" thread and they told me to wait for the results. Obviously, that's easier said than done, but they were right. I hope you get the same result.

    · Share on FacebookShare on Twitter
  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2015

    Deb thinking of you ((hugs))

    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    Soscaredhubby: thank you so much for that. You don't know how that lifted my spirits. I still have not got a biopsy scheduled (I'm in Canada, nuff said!!) but I already expect the worst...Also because the doc seems to be sure it is.

    Tang: Thanks !!

    · Share on FacebookShare on Twitter
  • soscaredhubby
    soscaredhubby Member Posts: 45
    edited October 2015

    I know what you mean. Our surgeon had tears in her eyes when she told us. My wife saw the spots on the liver on the scan, and said it looked like the same she saw in her breast during the ultrasound. We were so sure we went ahead and told our families. Thankfully it turned out OK. That was the toughest 2 weeks of our lives. I'm sorry you have to wait so long to get an answer. We waited over 70 days from diagnosis to get surgery. Waiting is the worst. Like I said before, it's easier said than done, but cancer survivors told us to try not to worry until we really know we have something to worry about. I try and keep that in mind these days. Though, I admit I still wander into worry world from time to time. I wish you the best.



    · Share on FacebookShare on Twitter
  • Deblc
    Deblc Member Posts: 479
    edited October 2015

    Thanks soscaredhubby. I live in worry world, a very hard habit to break. All the best toyou and your wife as well, so glad to hear that she had good news.

    · Share on FacebookShare on Twitter

Categories