Can we have a forum for "older" people with bc?

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Bobkat, good for you.  Do be cautious and not overdo, but then I think sometimes we well seasoned ladies make automatic adjustments for things that we barely notice.  That comes from long experience with ourselves and often yrs. of nursing others.  So glad you found your way back to us.  Hoping for you to continue to sail through really well.  I am a huge proponent of getting good sleep ( something that wasn't working so well for me for a short time with my sinus issues that are now resolving ) to work in quite good tandem with healing.  So far, I point to that ( resting well during sleep and healing very well ) as the key to my success so far in life in overcoming some of the obstacles I've encountered and bested.

    Puffin, you are clever and what fun.  That is maybe the second best antidote to healing and wellness.  Can't over-rate a good laugh and overall enjoyment.  In fact, I've read a number of times how even a somewhat fake, forced laugh ( mainly just the sound of merriment felt or not ) is enough to stimulate healing and well-being.  So good for you --- I hope it is doing wonders for any left-overs from the back spasm. 

    Going to be a good day.  I'm so happy with the Amoxicillin --- just the two doses I've taken seemed to have stopped drainage going into my throat and returned it to my nose.  Lots of those pills to take --- have ten days worth, but I'm sure it will be worth it so I can get back to my old self --- not that I was anyone else --- still had to do all the same work etc. just slower and not feeling too enthused about it.  Yay !!!!  My élan' is going to get back to high gear soon.  Can't wait.

    See you all later.

    Blessings,

    Jackie

  • lindab142
    lindab142 Member Posts: 105
    edited October 2015

    Puffin, what a great decorated bra. You did a wonderful job. I know how relaxing crafting is because I make jewelry.

    Had to go to surgeon today (1 week early) because of redness and puffiness. She put me on an antibiotic and said to keep applying the moist heat and a little ice is OK too. I'm very uncomfortable today. She replaced bandages and took some fluid out. I'm grateful she was able to fit me into her schedule.

    Working from home again today and am listening to Louise Hay's CD on cancer. It has a beautiful meditation and great music. But, I can't close my eyes because I'm working.

    Part of what she says makes sense, the our thoughts and feelings create dis-ease and cancer is from resentment and guilt. I'll tell you, I'm having a hard time with my brother-in-law, the ingrate that he is. He's not paying his end and is not keeping up with the chores I'm giving him. I want him out. My husband says he'll talk to him this weekend, but he's giving him another 30 days. I said he needs to know he has x time to be here and to make other arrangements. It's hard to be so angry and pray for him and release my BIL at the same time.

    I asked the doc about when we think radiation will start because I can do 2 craft shows in Nov.; one on Nov. 7 and on on the 15th, which fits my clients more, but is a further away. She said she thought it would be good for me to do the 1 where I'll get the most return. One can never tell with shows, can't predict sales or the amount of traffic. I'll need to ask a friend to help me load and unload, so the decision may be hers on when she can help me. The 15th, my dh can help, but he really hates it and it's the day before his birthday.

    I'll leave you with 1 positive thought from Louise Hay "Live totally in the now. Your future is bright and secure."

    Linda

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2015

    Bobkat, that's wonderful that you feel ready to go out after only two days of taking it easy. Just listen to your body and don't push yourself too much.

    Linda, your dr.'s advice seems very sensible. Do one show and pick the one you guess might be most profitable. I don't envy you the situation with your BIL. It amazes me that people can be such "mooches." We have a couple of those in my family. It's take, take, take and seldom any give back.

    I went to the gym today and was about to depart, dripping perspiration, when a good-looking guy in a white medical coat started up a conversation. He's a pharmacist with Walgreen and was giving flu and pneumonia shots. Who could ask for anything more convenient. I had one of each.

    After breakfast at home and a shower, I went out to run errands. Bought muslin fabric for backing my embroidered placemats, some items at the supermarket, and some more expensive shoes at an athletic shoe store. This brand is Yoka and has very broad and high soles. The podiatrist hopes that these shoes will relieve the pain in my toes. Most of your weight lands on the heel and the middle of the foot. I wore the shoes home. They feel a little like wearing shoe boxes! With a 15 per cent discount, they cost $150 with tax. But, hey, I got a free tee shirt! Who can complain? I won't if the shoes relieve the pain.

    I'm resting in my chair before I cook something for dinner.

  • ritajean
    ritajean Member Posts: 4,223
    edited October 2015

    Linda, I love craft shows!!! In fact, we're heading back to the Spooon River Drive tomorrow. That is just one town after another on the Spoon River that is competely filled with craft booths, flea markets, and wnderful foods. I buy alot of Chriwtmas presents on the "drive" because there are so many different things that you'd never find anywhere else. As for me,I am just not a creative person so I really admire those who are. We always go to Gordyville the weekend before Thanksgiving to a giant craft show up there that is put on by the local bank.

    Hey Puffing...pretty neat bra that you designed!!! That sounds like a fun way to earn some money fo the cause.

    This Cub fan can hardly wait for the game tonight. I hope I am as excited when the game is over as I am now....especially since I live with a Cardinal fan! Go Cubbies!!

    I probably won't be back on until Tuesday as my kids are arriving shortly for the weekend and we are going to Indiana for the Covered Bridge Festival on Monday!




  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2015

    Rita, you must have been as disappointed as we were over the Cubs' loss last night. Go, Cubs!

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2015

    Carole, I'm surprised he gave you both shots. My doctor's office said I had to wait 30 days in between my flu shot and my pneumonia vaccine so I got the flu shot and will go in the end of Oct for my pneumonia vaccine.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    If  someone
    listens or stretches out

    a hand or whispers a word of

    encouragement or attempts to

    understand a lonely person,

    extraordinary things begin to happen.

    Loretta Firzaris

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited October 2015

    Mornin all

    Puffin- that bra was adorable- what a creative way to have fun and do something good at the same time! Like Rita, I am not at all creative except for going thru a phase of making T-shirts with pictures of my grandchildren. My doctor also told me I had to wait at least a month between vaccines.

    Linda- I have a little bit of a different idea on choosing which craft fair to go to. If the money earned is not that different, or can't really been foreseen (and even if it can) pick the one you enjoy most. You are heading into a rough time, so do something good for you.

    BobKat- good for you being ready to get back out there. Your body will let you know how much activity it can handle, and I say - go for it!

    It's another gloomy day here in Atlanta. We had some beautiful weather for a couple of days, but now's it is back to gray and dreary, although I can see the sun trying to peek thru. My SIL went out and got drunk last night and my DD. got so mad, she was packing a suitcase when he got home, and there was a letter on my dresser the morning signed by her, giving me permission to get medical help for the boys, and permission to sign any school forms, etc. I don't think she would have really gone, but she had to wake him up. Going out to drink is, thankfully, rare, but getting drunk is a pretty frequent occurance. Bad part is that she, herself drinks a bottle of wine every night, but she doesn't seem affected by it where his behavior is very obvious. Needless to say, the tension here at the moment is kind of thick.

    Rita- enjoy the time wIth your family

    Anne

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2015

    DH and I are both working as volunteers at the Wooden Boat Festival today. His woodworkers' guild has a tent every year making little wooden boats for children free of charge. The men make dozens of different boat parts during the year. The children pick out the parts they want to make a boat (sailboat, power boat, gun boat, etc) and the men assemble the boats. The women volunteers attach sails and write the name the children think up. There's a huge tub of water outside the tent where the kids can sail their boats.

    It's a very popular tent and the line is long. The parents are always grateful and put money into the donation jars.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Gratefulness brings joy to my life.  How could I feel joy in what I take for granted?  So I stop taking for granted, and there is not end to the surprises I find.  A grateful attitude is a creative one, because, in the final analysis, opportunity is the gift within the gift of every moment-- the opportunity to see and hear and smell and touch and taste with pleasure.
     
    David Steindl-Rast

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Late for me to be jumping in here.  Had a really nice Sunday -- mainly due to allowing myself to be lazy.  I did cook up a good sized portion of steel-cut oatmeal to save in the fridge for our breakfasts for a few days.  I made chili-mac the night before from some left over chili.  Tomorrow we will probably finish that with some hotdogs in it.    So for a couple of days I can be a bit lazy.

    Dh seems to have the sinus issue that I'm still working on, but mine is so, so much better.  I don't seem to be good at getting the third Amoxicillin down, but am trying.  Dh seemed to have had it worse --- though I think that may have been more due to the fact that he is so highly prone to get headaches with anything like that so yesterday he was in awful shape.  We were fortunate to be  able to have the Dr. I work for write him out a prescription for penicillin so he is feeling a lot better today himself.  It seems that this is sort of going around, but I think the 'allergy' reactions can come in Spring and Fall quite easy.  As well, I think some flu for people has started too --- and I'm told these are all hard to get free of, but hoping my immune system does good for me. 

    Carole, I think I recall your talking about working on  and in the Wooden Boat Festival last yr. too.  Your husband must really enjoy working with wood.  No wonder he was able to make such a nice deck for your camper.  The Festival  does sound like a great deal of enjoyment for a whole lot of people.  Probably something you both look forward too.

    We are having ( right now anyway ) good Fall weather.  Warm enough most of the day time to be out and about w/o a sweater, and only a med one at night.  I'm fairly warm-blooded, but it sounds like we will get cooler as this week progresses.  We'll see --- if we have sun most days I don't think the cooler temps will bother me much.

    Hope you all had a great Sunday. 

    Blessings,

    Jackie

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2015

    Carole, that sounds like a fun booth, and what a unique way to raise donations.

    97 degrees yesterday, down to 53 now. Yucky day here today, wind howled all night long and will continue blowing all day today with gusts up to 60 mph, and now it started raining. Definitely won't be taking any cemetery photos today.

    At least it isn't snow. Today's my birthday (64), and I do remember birthdays with snow. We're going out to eat with friends for dinner tonight.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2015

    Jackie, the kids were really cute at the boat-building tent yesterday. Especially the smaller ones. One little girl about 4 or 5 had the most gorgeous deep blue eyes I have ever seen. The color was almost purple. Or the word "gentian" comes to mind. I smiled at her and complimented her little sailboat. I was fastening the sails to the mast with a dot of hot glue. Then putting a nail into the deck to fasten the string of the sail. A substitute for "tying off" the sail. She was watching me closely. When I spoke to her, she volunteered, "My name is Avery." I thought her response was adorable.

    For the most part, the children were appreciative. I felt sorry for one set of parents whose son, about 5 or 6, threw a fit and got down on the ground right in front of the table where I sat. I don't know what the problem was, whether the child had a mental/emotional problem or was tired or was spoiled and too indulged or some combination. They seemed like nice people.

    Today my mother has an appointment with the kidney dr. at 11 am. The office is at the end of my street. But I have to go and pick her up at her house, about 9 easy miles with minor traffic. My "problem" is that I know she will probably be hungry afterwards and I really don't want to have lunch out today. My weight was edging down and now it has jumped back up.

    Puffin, a nice bird drama has been taking place on our living room window sill. A scarlet tanager who appears every fall discovered some black oil sunflower seeds from a stick-on feeder that fell onto the sill. He has been feasting for several days and his dull mate, too. This morning there are new birds, brown, black and white. DH is already planning to go and buy the first 50 lbs of the same black seeds for the winter.

    Happy Monday to all.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. It turns problems into gifts, failures into successes, the unexpected into perfect timing, and mistakes into important events. It can turn an existence into a real life, and disconnected situations into important and beneficial lessons. Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow. Gratitude makes things right.
      Melody Beattie

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Happy Happy Birthday Puffin --- I hope it is a very memorable and enjoyable day. 

    image

    Blessings

    Jackie

  • lindab142
    lindab142 Member Posts: 105
    edited October 2015

    Hi all,

    My boss is letting me work from home again (thank G-d) and I'm taking a minute to check in with you all.

    Last week I had to go to the Dr. because of redness and sensitivity, she put me on antibiotics, drained the blood and cleaned and dressed the scars. It's a bit more comfortable. And, yesterday I went through the exercised in the breast cancer book. Yay! Since she said we could start radiation later; I think it'll be OK.

    Do you guys see any problem with starting radiation later?

    Ritajean: I went to a craft show this weekend; my first attending in a while. I had some pains in my right hip, not sure what that's about.

    My brother-in-law went to the hospital for pancreatitis. Isn't it nice of all of us in IL to pay for his medical expenses? Yep, pisses me off, he gets free health care from the state and we're paying for it. Plus, he's staying with us and making our lives miserable, mooching is the right term. I just called him and suggested he see a counselor/Dr. for depression. I hope he does. He's such a non-functional boy and at 47, he needs to grow up and be responsible for something. I'm going to stop ranting now so I don't get aggravated. And it's nice he's not around, so I thank G-d for that.

    My friend is able to help me for both craft shows, so I'm going for it! I'm pricing some new items I created and will also bring my Survivor breast cancer jewelry (my new collection) there.

    Carole: the making a sailboat sounds fun - hope it went well.

    Jackie, thanks for the post on gratitude. I needed to read that today.

    Puffin - Happy Birthday! wish this cake was chocolate for you. Have a great dinner out.

    image

    Hope everyone feels good, smiles and gets hugs.

    Linda


  • Anneb1149
    Anneb1149 Member Posts: 960
    edited October 2015

    Happy Birthday Puffin. Hope you are having a great day

    image

    Anne

  • bonnets
    bonnets Member Posts: 769
    edited October 2015

    Linda,

    Been reading your posts about your BIL,and it reminds me of my stepson! SS keeps equipment and much more for his landscape maint. business on our property. He started with his truck and trailer , as a temporary thing, during his divorce, 10 years ago.he has added a ton of just plain junk and becomes angry when we have asked him to get rid of what he doesn't use.He seems to think he is entitled to keep it here, rent free. When we remind him it is our property, he is in a snit and hasn't spoken to his father , except a few words in 3 years. Now I keep reminding my DH to get after his son, he tells him, nothing happens. But that is on both parts. Behaviors that are allowed are enabled and will continue! DH never follows thru with consequences. I have a feeling that may be the case with your BIL. Who allows him to stay on his terms , not yours? That is just my observation, being in the same boat. Frustrating , I know. Jean

  • Wren44
    Wren44 Member Posts: 8,585
    edited October 2015

    Happy Birthday Puffin! Make it last all week.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Jean,

    You know sometimes you just want to say --- what, you too?????  In relation to people who think since its family that entitles them somehow to take advantage.  It is likely that almost all of us at some time or other has done a similar thing --- the difference is most people recognize that they perhaps have maybe either extended a privilege over-long, or took to long to repay a loan or whatever the case may have been --- and with that gift of sight usually decide that they will forever guard against allowing themselves to get into the same kind of situation ever again if at all possible. 

    There isn't a magic wand for the malady so I guess some will be cursed with more or less abuse for some time.  I just try to hope I'm never, ever in the situation again where I'm the one abusing rather than the abused.  It is a great good deal of frustration. 

    Linda, I think you have the right attitude.  Say what you can, when you can --- but enjoy the peace and quiet that has come ( if indeed in a strange way ) as a gift.  An advantage for now. 

    Hope that antibiotic gets you rolling along.  Don't know whether I said anything but I didn't have  too hard a time with my rads.  I had 7 full weeks, with the whole last week being concentrated ( word for that, but I've forgotten it ) in one area. When you do your rads ( they were oh so boring ) use lots of the lotion they give you.  That keeps your skin moist and it should hold up ok that way.  My Dr. just had me get clear Aloe Vera from Wal-Mart, but  there are a number of them.  I think some people used Emu Oil ( that sounded somewhat exotic to me ) and some I think used Aquaphor which also can be found at Walmart's but it is rather greasy. 

    Your Dr. should give full instructions, but do make sure to find out whether you need to have the area completely clear of any lotions etc. before you do your rads.  They happen really quickly  --- especially after they get you all lined up.  In fact, for things to go quicker, at the office I used they had good sized towels which I just wrapped around myself --- easier than putting on the shirt gown, and up on the table for a little over 5 minutes, then down, back into my clothes and done for the day.  The Rads Dr. will talk to you at least once a week ( if it is still done the same way and it likely is ) but otherwise, it is pretty much quick and painless.   If you think you may get tired ( I did a couple of times ) I would take a small walk and it seemed to keep me from any fatigue after the first time.  I bet you'll do fine.

    Jackie

      

  • termite
    termite Member Posts: 241
    edited October 2015

    Hi ladies,

    Happy Birthday Puffin. Hope you have a great day!

    Welcome to all the new ladies.

    Ritajean, hope you had a great time with your family this weekend.

    Carole, glad you are home safe. Vacations are nice but always good to be back home and into the regular routine.

    Lindab, I can not remember if you are the one that lives 50 miles west of Chicago. We live in Oswego, IL Is this close to you?

    Jackie, glad you are feeling better.

    We have an offer on our house. Now it is a wait and see game until everything is approved. Just when we are ready to start a new chapter we find out our one of our DIL is moving out of their house. DS and her have 3 children. Not sure of other details yet. Hopefully we will stay around here until after Xmas so we can help him with days off of school. Went to walk in clinic yesterday and ended with basically an infection in bronchial tubes. Coughing a lot and fever. I was suppose to go to conference today for work that was mandatory but couldn't go with a fever.Will what happens at work tomorrow. I texted my director last night and told her.

    Hope everyone is having a good week. Emma

  • ohiofan
    ohiofan Member Posts: 206
    edited October 2015

    Happy Birthday, Puffin!!!!! Hope you had an enjoyable day! (and thanks for the Vit K info!)

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2015

    I had a VERY nice surprise today. I was at my mother's house prior to taking her to the nephrologist and my sister drove up with her granddaughter who now lives in MS with her father. I was so happy to see my great-niece. She looked cute and healthy and was all smiles. Unfortunately, my mother and I had to go and keep the appointment.

    We're watching the Cubs/Cardinals game and so far it has been a great game for Cubs fans. DH is a long time Cubs fan.

    Puffin, I hope you had a fun birthday.

    Termite, great news on the offer on your house. Sorry to hear about the marriage problems.

    I am weary of being overweight and just as tired of being hungry when I try to cut down my food intake. Today I got out my Atkins book and started reading through it again. I've decided to follow the first phase to see if I can jump start some weight loss without feeling like I'm starving. I'm a meat eater and when I eat protein with some fat, I feel satisfied much longer than when I try to eat a balanced diet with small portions. I need to curb the desire for refined sugar carbs and abstaining is the only way to deal with addiction. Moderation doesn't work for me.

    The first phase (2 weeks) calls for no alcohol and restriction of caffeine so I have my challenge since I love having a cocktail at night and love coffee. Wish me some will power.

    Hi to everyone.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited October 2015

    Thank you everyone for the birthday wishes, (and the lovely cakes too). What a difference a year makes. A year ago I was bald and doing my radiation treatments and needed a cane to walk.

    I had a wonderful day despite the wet, cold, windy weather. We picked up a platter of cheese cake slices of various flavors to take for tonight's dessert. Good thing I'd made reservations for dinner - Taylor Swift was having a concert in town tonight, and the restaurant was filled with people eating before they went to the concert.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    The best remedy for those who are afraid, lonely, or unhappy is to go outside, somewhere where they can be quiet, alone with the heavens, nature, and God.  Because only then does one feel that all is as it should be and that God wishes to see people happy, amidst the simple beauty of nature.  As long as this exists, and it certainly always will, I know that then there will always be comfort for every sorrow, whatever the circumstances may be.  And I firmly believe that nature brings solace in all troubles.  -Anne Frank

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    Lots to do today.  My friend took a little time out and so I'm watching her house and cats -- some outdoor, some indoor.  Too much to do this morning to get on here, but at last, here I am. 

    Termite -- hope all goes well with your house offer.  It can take a bit to work out but alls well that ends well.

    Carole -- great surprise to see your niece.  I know what you mean about the wt. issues.  I've done better since my sinus issues.  Just haven't had my sometimes raging appetite and it does help.  I do know that if done correctly protein tends to make you feel satisfied ( full ) a lot longer and I think foods that pack abit of fiber also tend to help.  Most eating programs I've tried mainly did leave me hungry so I did much better with my NEXT program where we learned so much about food and exercise used together.   That is where I learned to get plenty of protein and fiber to stave off most of my hunger.  For me it seems to hit know and then for no good reason and then ( especially if I give in ) goes away again.  Does help me to be busy and most of the time I am --- it seems like if I don't have so much to do --- my mind starts to drift into food and feelings of needing some.  Vicious circle now and then.

    I did the South Beach diet plan -- not because it was any easier than Wt. Watchers, but  because it sounded like it would be easier to do after you had lost some wt.  It was --- because I mainly broke my sugar and salt addictions.  Although I like sweets now, I still don't care much for regular table sugar.  Have used Splenda for so long, table sugar just has an off taste to me.  I use a little salt but I often forget to use any and food tastes just as good to me.

    I also think one of the keys to wt. loss could be --- eating a little all the time so that your virtually NEVER hungry.  I never tried it that way as it always sounded to me like your whole day would be consumed to nibbling almost.  Anyway, I hope you can find the trick for you.

    See you all later.

    Blessings

    Jackie

  • carolehalston
    carolehalston Member Posts: 6,887
    edited October 2015

    Dr. Atkins is dead now but he would be smiling ear to ear if he were alive and knew about the radical change in medical thinking about consuming fat. I read an article in Diabetes Self Management magazine last night that discussed the current view that the years of low-fat diets have led to obesity because fats were replaced by carbs. The diet that works the best for weight loss is low carb and the big shocker has been that the cholesterol numbers for low carb weight losers is BETTER than numbers for low-fat weight losers.

    HOWEVER, medical experts in the cardiology field are reassessing the relationship between cholesterol and heart disease. When you've lived to my age, 72, you've seen health recommendations come and go. Foods like milk recommended, not recommended, recommended. Not sure what the status of milk is now but it's interesting that other adult mammals don't continue to drink the milk they drank as babies.

    The biggest challenge is weight maintenance once lbs are lost. I was doing well at weight management until 2009 when I joined the bc club. I became a little bitter that my years of discipline didn't keep me healthy.

    Today I'm biting the bullet and forcing myself to do some house cleaning. I'm hoping that the opposite of inertia will kick in.

    But first a high protein and fat breakfast!

    Have a good Wed.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited October 2015

    We never have more than we can bear.  The present hour we are always able to endure.  As is our day, so is our strength.  If the trials of many years were gathered into one, they would overwhelm us. . . but all is so wisely measured to our strength that the bruised reed is never broken.  -H. E. Manning

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2015

    Checking in after being away 10 days. I missed my friends here. Welcome to the newcomers. I had three pages of posts to read! We are still in Florida but have left the Keys after a week and are now in St. Petersburg, my home town. We'll be doing some maintenance on my mother's house. My daughter Stephanie lives there since Mother died in 08. Always thought we'd sell our house in San Antonio and move to the St. Petersburg house but you know how it is with long range plans. Sometimes they don't work out. With Mike's serious illness, we'll be tied to San Antonio for quite a while. It is the only military hospital in the world that has a bone marrow transplant unit so all active/retired military and their dependents have to come to San Antonio. Very convenient for us since it's only a few minutes away.

    Speaking of Mike, he is doing great. He's had 9 months of chemo now and continues to get by with no more transfusions. His lab results are steady...crummy but not any worse, which is all we can hope for. (Newcomers...he has bone marrow cancer... myelodysplastic syndrome MDS.) Just as the oncologist predicted, his energy level has held steady all during our trip. We even went snorkeling in Key Largo earlier this week! He was the first one back in the boat but lasted about 10 minutes. Amazing, especially since we thought in January that he might have died by now. We're hoping the chemo keeps working for a few more months at least before we have to resort to the transplant. We are encouraged by reports recently of a man with Mike's specific kind of disease who has been on the same chemo for 14 months. If his numbers stay up and we scrape the money together somehow, we might even be able to take one last cruise in January or February. If he survives the transplant, he won't be allowed to cruise again. Risk of infection will be too high. So, with the doctor's blessing, I'm looking and dreaming of cruise destinations. Maybe, just maybe, we'll be able to do it.

    Our sweet friends picked us up at the Ft. Lauderdale airport and we drove down into the Florida Keys to Marathon where they have a charming family place. It's perfectly situated in the middle of the Keys so we were able to see and do things from Key Largo in the north to Key West, which is only 45 miles away to the south. We made two trips to Key West during the week, one to buy sandals at Kino's and do a little sightseeing and again a couple of days later to experience the sunset celebration that goes on there every evening. We did a little deep sea fishing in Islamorada one day, explored Big Pine Key, Pigeon Key, and a few others around Marathon. Mostly we just talked, ate, drank wine or margaritas and relaxed. We were "unplugged" with no television or internet for a week. We played games, did puzzles and listened to music. I brought some adult coloring books and that was fun to create masterpieces in them.

    Today our friends drove us north 6 hours to St. Petersburg. (So nice of them!) Tomorrow morning we hit the beach. Can't wait...beaches in the Keys aren't very good. We're having dinner with some old friends we haven't seen in years tomorrow night. Saturday I have a lunch date with my step-sister, who just got diagnosed with invasive lobular breast cancer. Otherwise, we'll be fixing things around the house, painting the porch, etc. until we leave Sunday afternoon. It's been a good trip. So glad he got to do this. Here's a photo of a beautiful Key West sunset two days ago.

    image



  • lindab142
    lindab142 Member Posts: 105
    edited October 2015

    Hi guys, been offline at night because I'm back to work and it's very tiring.

    Jean, I don't think I can take it if my BIL is here for more than 1 yr. I want him out in Jan. somehow. DH says no way. But, I got into it with BIL 2 days ago just when he got back from hospital. He has 2 nightlights and 1 is a deoderizer and I unplugged it. Why does a 47 yr old need 2 night lights? Told him I'm paying the electric bill and I told him about it before. He comes back with $60 and I say what about the garage - that's $125 - he says he doesn't have it. I tell him to get it. He says, "what, do I get a loan from employer?" I said "I don't care" - this is during my favorite show NCIS and I say I don't want to talk about it now. He sasses back, "me neither." He doesn't argue with his wife, who is making his life miserable, but he sasses me who is giving him free rent? That pissed me off plus the fact that I've been supporting his ass from afar for 13 years because he won't get a FT job. DH stopped it and said, "enough, Linda's in pain and watching her show. Cut it out" Then DH says, you really talked to him with disgust, but I couldn't let you get too upset over it, but I think it was good, think he knows the "niceness" is over. I doubt that ... he's just doing enough to get by which is how he gives and it makes me sick. Sponge.

    Later that night he goes back to hospital because he's in pain and comes back when I've leaving for work 6am. When he got home, he drank 1/2 gal of milk and had cereal, not good things for stomach or pancreas - everything they say not to do.

    Then yesterday, it's like "how am I feeling?" (I have ice on) and it looks like he's done a few things around here, but he says he has to pay his attorney. He's probably got money hidden in his mattress. He can pay attorney who is doing nothing, but can't pay us $ he promised. I'm so done. Can't go into legal issues.

    Jackie, thanks for the Anne Frank reading. I've been trying to walk around building at work and look at beautiful grounds and say the serenity prayer.

    Emma, I live about 45+ min from Oswego. Sorry to hear about your fever and cough. I have chronic bronchitis and COPD and sadly, I still smoke. Things are a little rough right now to quit. Trying to cut down.

    Sandra, I'm jealous that you're in FL, (it's 48 degrees here) and the picture is giving me my aha moment and beauty for this morning. I hope you have a wonderful time.

    Tomorrow I see the surgeon., so we'll see what the next phase is. I got my bandages wet in the shower so had to do a new one and a tape job. I better not quit my day job to do that, it didn't turn out so hot.

    Time to leave - I wish you all blessings and a wonderful day.

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