newly diagnosed with invasive ductal cancer in breast

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Nancy-loves-horses
Nancy-loves-horses Member Posts: 5
edited October 2015 in Just Diagnosed

Hello

My name is Nancy. I was just diagnosed with breast cancer last Thursday, 9/23. I have two sites, one is .6 mm and the other is .8 mm. I am still waiting to see a surgeon and had an MRI. I would love to hear from anyone going through this as it is so new for me.

Thank you, Nancy

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  • plumster1
    plumster1 Member Posts: 270
    edited September 2015
    Hi Nancy-
    Welcome but sorry you have to be here at all. It's great that you had an MRI. When you meet your surgeon, you will most likely get a lot of Information. Things you probably might hear about are your tumor's specific profile (er/pr + or - and her2) and the surgeon's recommended course of tx. . It is helpful to bring a loved one or friend to the appointment to help you take it all in. I was treated at an NCI (national cancer institute) treatment center. You might google and find the closest center to you. They can offer some of the latest technologies. So you might want to look into that. Right after diagnosis is so hard!!! But, once you start having your plans fall into place it does get easier. The boards are such a great resource for asking questions and finding answers. Keep us posted on your appointment! Hugs!
  • Englishmummy
    Englishmummy Member Posts: 337
    edited September 2015


    Nancy, this is so rough in the beginning. Once you know your treatment plan things become a little clearer.

    You can do this, stay strong. We are all here for you! As Plumster said, ask questions or for support - whatever you need.

     

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2015

    Hi Nancy,

    We too are sorry you are here, but glad you found this group! Please keep us posted on any updates, and if you have questions! We're here to help you!

    Warm hugs,

    The Mods


  • shannondunlop
    shannondunlop Member Posts: 12
    edited September 2015


    Hello!  I also was just diagnosed on 9.18.  I met with a surgeon and have surgery planned for Oct. 26.  Not much else is certain except that my tumor is about 6mm to 1cm and grade one.  I know I will have radiation, but not much more.  I understand how you feel and am here for you.  We can go through this together.

  • Nancy-loves-horses
    Nancy-loves-horses Member Posts: 5
    edited October 2015

    Thank you everyone for all your kind words, advice and encouragement. I greatly appreciate it. I am so new to this board, I am still trying to navigate, so please excuse me if I don't always respond right away.

    Thank you so much!

    Nancy

  • scvmom65
    scvmom65 Member Posts: 88
    edited October 2015

    Hi Nancy,


    Welcome and sorry for your diagnosis. I had a very similiar DX at the start of my journey too. I am a month shy of my 5 year mark and life is good for me, I hope this gives you hope. Right now you are still gathering information. It does help to have someone go with you to see your surgeon, both before and after, to make sure you get all the information correctly. There is a lot to process. Best of luck to you!


    Anna

  • mvspaulding
    mvspaulding Member Posts: 446
    edited October 2015

    I was also just diagnosed on 9/21 with similar circumstances are you Nancy and Shannon. My surgery is scheduled for 10/27, I am just having a hard time deciding what surgery that will be. Mastectomy vs. Lumpectomy. My genetic testing came back negative today so I am very thankful for that. Some people think since I am stage 1 that I don't need to consider a mastectomy, but I'm afraid of just doing the lumpectomy and radiation and having it come back. This is all overwhelming and not a decision that anyone should have to make.

  • Emmiejohns
    Emmiejohns Member Posts: 15
    edited October 2015

    I was diagnosed on 10/6 and have had two surgeries (segmental mastectomy and sentinel node biopsy). I will find out next Tuesday (the 13th) whether the cancer has spread. My surgeon doctor has told me very little, other than they did find cancer on lumpectomy (previously diagnosed with atypical ductal hyperplasia). It is so hard to wait to find out what is going on. My sister died at the age of 45 of bc after fighting it, off and on, for 10 years. I am grateful I have gotten older, but it doesn't really mean it is easy. I am menopausal (at 64) and realize I have had a great life, but I am worried about treatments (radiation, possible chemo according to my doctor). Even though it seems like a lot of waiting, a lot has happened, too, since that first "suspicious" mammogram in June. I am very sore and anxious, and people keep asking me about "staging" and "type" and I don't know anything except ibc.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited October 2015

    Emmiejohns, ask your doc for a copy of the pathology report, that will have the information about grade, ER, PR, and HER2 status. Your doc should be explaining all this to you. You should also have them do the Oncotype test which helps determine whether you need chemo or not

  • Emmiejohns
    Emmiejohns Member Posts: 15
    edited October 2015

    Thanks for your reply. I will certainly be asking more questions on my appointment in two days. Seems like all my questions just went out of my head, when he said "cancer". I will ask for copies of the path reports, as well.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited October 2015

    Hi Nancy & Emmie! Just take your time, in deciding what course is best for each of you.... I mean listen to your Doc.... they will arrange everything for you.... And yes, take notes, write everything down you want to know.... just keep a little notebook, or something you can refer to.

    I think a lot depends on your age, grade, and stage.... and most of this you won't know until the final path report! My Onco test was 19.... which is a low-intermediate....But because of my age, and the grade, plus stage, we decided I didn't need or want to go through that....

    Same with the other drugs offered after your finished with surgery! I tried Tamoxifen for 1 1/2 years.... but had to stop.... Side effects will sometimes drive you nuts, but at least try.... then see what happens....! I'm going on almost 6 years!

    All of us here at BC.ORG are here for you guys..... So don't feel alone.... And yes.... try and have someone with you, to not only listen, but give YOU support! You know, I am still scared to death, waiting after a diagnostic mammogram! It ain't easy, but it's something we have to do for ourselves.... take good care!

  • windingshores
    windingshores Member Posts: 704
    edited October 2015

    Just want to say that often pathology reports and other testing results are available online at patient portals. I found it really helpful to look at them carefully before talking with my doctors, honestly. I also made copies and took them to other doctors because the electronic records don't always work!!

  • doxiemom1962
    doxiemom1962 Member Posts: 3
    edited October 2015

    Hi I am Crystal just dx Oct 1 have surgery Oct 23. It does help a little have some kind plan. wish you all the best.

  • Emmiejohns
    Emmiejohns Member Posts: 15
    edited October 2015

    Hi again. Chevyboy, I am wondering about the Onco test. I have received one pathology report, but nothing says anything about this. I was told my "histological report" was not ready yet (I think that is what he called it) and now have been referred on to Radiation. The first visit they didn't schedule me for treatment, because my breast was swollen and red, with several hard lumps (blood?). I go back tomorrow, and things in my breast have calmed down a lot, so I guess they will do a scan (for positioning, they said) and take measurements? I don't know if they will do a first radiation treatment. Is the Onco test you refer to part of a "histological report"? I really don't know what to expect. Everyone says Radiation is a piece of cake, with the worst thing being maybe a "sunburn" affect. I guess I will find out soon enough. I really appreciate your helpful comments.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited October 2015

    The Oncotype DX test has to be ordered by one’s doctor (usually medical oncologist), after surgical biopsy of the excised tumor reveals it to be estrogen-and-progesterone-receptor-positive and HER2-negative, under 2cm in size, no lymph nodes involved, and had clean margins. What that test does is predict the likelihood of both recurrence and benefits of chemotherapy outweighing the risks. A score of 18 or lower indicates a low likelihood of recurrence and unlikely advantage in adding chemo to hormone-inhibiting (either SERMs like Tamoxifen or aromatase inhibitors like Arimidex) therapy. The longer past menopause, the better. Estrogen-negative or HER2-positive tumors are usually not sent out for Oncotype DX because they tend to be more aggressive, with chemo (ultimately) being more beneficial than harmful.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    Hi, Chevy is real worried about a real time friend, she may not be back here for a few days.

    Normally what happens with rads, your first visit is with the RO, then you come back for tattoos. They are just tiny ink dots, don't hurt. Then you are on the table for mapping. Then Finally you start actual tx. Seems like that all took a week or so. Then you go Every.Darn.Day. for tx. That's what makes it sooooooo tireing!!

    You will see nurse all the time, doc once a week. If your skin even looks like something is going on, Speak Up!!! They can recommend things, write Rx or give you a break.

    Best wishes.

  • jennsaro
    jennsaro Member Posts: 29
    edited October 2015

    I just received my diagnosis of the same on Monday, Oct 19. I see a surgeon tomorrow the 27th. Mine is 1cm, I think. The report says, "Maximum measured length of invasive carcinoma in a single core is 1cm. So I don't know if that is just the size of the sample they took for the biopsy. The waiting is the hardest part. I finally broke down Friday and asked my PCP for something for anxiety. I think it's starting to help.

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Dear jennsaro, Welcome to the community although we are sorry for your diagnosis. Many here will say that the waiting is the most stressful part of the diagnosis. While you are waiting for some additional thoughts here is a link to our site about Questions to ask you Surgeon. It may be helpful to review in advance of your appointment tomorrow. Please let us know how it goes. The Mods

  • rockwallgirl
    rockwallgirl Member Posts: 2
    edited October 2015

    Just out of curiosity, why is there close to a month between diagnosis and surgery?


  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    All the tests you may need, the surgeons schedule, it takes time. You want it done yesterday, another month or so is ok. Honest. You may have chemo before surgery. I did.

    Remember to breathe, try to stay occupied. If you need to, ask for some meds to help with anxiety.

  • igay1ord
    igay1ord Member Posts: 193
    edited October 2015

    Rockwallgirl -- I would love to know that also! I was called back for more mammogram shots on July 9th, biopsy on July 16th, diagnosed on July 20th, met with my breast surgeon on July 23rd...and had surgery on Aug. 25th! Met with oncologist on Sept 2nd, but didn't start chemo until Oct. 15th! I guess there comes a point in time where you just have to trust the doctors that they know what they're doing and hope for the best! I'm sure if it was a really urgent case, they would do things sooner/faster?!

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