Starting Chemo in October 2015
Comments
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Hello Everyone,
I had my port put in yesterday. Only problem was in recovery. I was ask if I was in pain. I said " Yes, it feels like tree just hit me in the chest." They gave me morphine and ask if I was still in pain. I said "YES". More morphine. This happened three times before I remembered to tell them it takes awhile for morphine to work on me. I was a MESS until the stuff wore off this morning.
I had my chemo teaching this AM. and was given a beautiful comfort package. it has a soft cuddle blanket, warm fuzzy sock, various toiletries, tee shirt, turban and lots more. I hope every one with BC gets one or something similar.
First chemo tomorrow. I will check in after. Luv to you all.
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Hello everyone, Had port put in last week. It really wasn't bad. Its still a little sore but on the mend. I
will be starting October 15 my so called "cocktail" will be taxol once a week with herceptin for 12 weeks ,then just Herceptin.
Hope I handle it well. Also FYI, if I need a wig, my health insurance will cover it 100%
make sure you check out all of your options.
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Andraxo, glad to hear it went well. Makes me more confident for tomorrow :0) MamaBexar good luck!
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I had my port put in yesterday. It is pretty sore today, and the skin around the scar is red. My husband thinks it is just bruising. Anyone else have a lot of bruising? I'm hoping its not infected-it's covered well with glue and I can't tell that it's any warmer than the surrounding area.
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Amy, are you running a temp? I have quite a bit of bruising but I bruise very easily. Hope your ok.
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Jackalyn3, We start chemo on the same day, the 15th. You are.getting what I will get after 4 cycles.of AC though, so I will be anxious to hear how you feel after each treatment.
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MamaBexar, Thanks-I am not, and the office called today and said the redness was common and probably bruising. I do bruise easily too. It's just so hard to not stress out about every little thing! Hope your chemo goes well today.
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HI Ladies!
I am starting chemo tomorrow, on dose dense AC, 4 treatments, then 4 treatments of Taxol. Super nervous. Any thoughts about what to bring with you? I think it takes about an hour each time for these first 4 treatments. Looking forward to hearing how you all deal with the side effects.
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I just got home from having port in today. It wasn't bad. I wasn't knocked out all the way but he made it so toward the end I'd become awake enough to get over anesthesia quicker. So for the finishing touches I was awake talking sports with the guys so it made it kinda fun. Just got rid of a slight dull headache only because from 11 am on the stretcher until 4 pm I've either been on my back or in a recliner chair waiting for my free ride from drivers for survivors. So think this not sitting up for hours is the reason for the dull headache. So just popped a couple tylenol.
Tomorrow I have labs drawn that my MO wants at the infusion center. The picc line from my infection is still in and they'll pull it out tomorrow. I"m glad I had my picc for this procedure. IVs are always painful for me cuz I have tiny veins and a few got blown while trying to set up the IV when I was admitted to the hospital a couple weeks ago.
So it sounds like the discomfort with the port comes the next day? Anyone need narcotics or was Tylenol fine?
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Pat and MamaBexar - hope it went well for you both today!
I'm dragging a bit. Feels kind of like the day after a quickie virus goes through you, or is about to hit you and you know it's coming for you (maybe it is!). Hard to explain. Happy my appetite is still good and I was able to exercise once I felt warm (cold and damp here today in the southwest) had some energy in the afternoon. I felt the best during exercise and for an hour after.
hugs to you all!
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By the way, what types of beanies/caps are you all going to be wearing? I plan to wear a wig to work, but at home would like to wear something comfy, and something for nighttime. What's good? I've heard ones with seams can be sensitive on the scalp.
Kim
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Kimmer33 - dress comfortably and bring some snacks you really like!
Though if your chemo only takes and hour, you'll be in and out of the infusion clinic fast and may not even have time or want to eat.
I also brought an electric blanket since I was using cold caps, mittens, and slippers at the same time and everyone who used cold recommended the blanket. Oddly I wasn't cold until the end and barely used the blanket - maybe because I was a bit nervous!
Andra xo
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my first chemo yesterday : 21 year old daughter came with me / long day as had to squeeze in ECHO before beginning so a little behind schedule 7:30 am labs and iv in / 8:30 am MO appointment which was delayed as sent for ECHO / back to visit with MO then 12:30 finally in infusion room / very different experience / I loved how another member came up with different word instead of poison / picked out a wig because I will be losing my hair / then daughter drove me home / in bed by 9:30 and feelong sick to my stomach he but so far keeping food down. Skipped work but did 15 mins on treadmill puts me to shame with the woman who ran 4 miles but I am happy with my 15 minutes! Time for bed i am tired.
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Hi everyone! I am scheduled to start chemo on 10/14, but only if my drain gets taken out by tomorrow. Not that I want chemo at all, but I need to keep moving forward or else my mind wanders to not so great places.
I got my port in 3 weeks ago, had surgery 2 weeks ago and am planning 6 rounds of chemo (TCHP), one every 3 weeks, then Herceptin onlyfor another 7 or so months.
Sending lots of positive energy everyone's way!
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I am pleased to report that my first day of chemo & Herceptin was very routine. No SE of any sort. I am aware this stage doesn't last long. Thanks to everyone that sent me good wishes.
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Thanks Andra,
Yah, I will be there 2 hours total because it being the first time, they will be running through everything with me and all that first time stuff. I think I will be too nervous to be hungry, but planning on bringing lots of water for now. Thanks!
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I brought a blanket, books, knitting, snacks, and my phone charger. And then made DH bring me DVDs when I realized there was a DVD player. They had some snacks and drinks there.
For me, I had labs at 9:15, meeting with oncologist at 10:15, and was supposed to start infusion, which takes 6 hours at 10:30. However, my blood work came back high for calcium, which meant I had to have a liter of fluids before getting the anti-nausea IV meds prior to the 4 drugs. So I didn't end up leaving until 6:20 that night. The next time should be faster because the two targeted drugs can be given over 30 minutes each instead of the 60 and 90 minutes it took the first time.
Today I had my follow up labs and appointment. Labs were good. One liver enzyme level was high, but it is not uncommon. I also have thrush, so I have a prescription solution to swish and swallow for that.
Tomorrow I go and get my hair buzzed. I stocked up on hats and scarves while we were at the cancer center today.
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Hello everyone - I am glad to have found you all and look forward to being there for you in any way I can. I am having my port placed on Tuesday and then I start chemo on October 21. I am planning to use cold caps but I also bought a wig today that looks surprisingly cute. I am a researcher by nature so I am compiling lists and buying odds and ends on Amazon to help get me ready.
I just posted this elsewhere but are any of you doing Lupron or Zoladex to preserve ovarian function/ prevent menopause?
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Anyone have a spot smaller than a dime, like 1/2 it's size under the white bandage after port sx?? Frick, Can't tell if blood or not.
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Thank you all for sharing your experiences so that I have some idea of what to expect. I will be starting chemo soon - I meet with MO on Monday to plan/discuss. It will probably be 4 treatments of dose dense TC or possibly AC. I am thinking I may not need a port for only 4 treatments but I would appreciate your thoughts on that. I have heard about "chemo brain" and am wondering if cognitive rehab is a good idea preventatively
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Artisa, My port incision was covered with clear surgical glue, and it looked pretty bad the second day-lots of reddening of the skin around it. Today it looks much better. If the spot is not spreading I would not worry about it, but you could ask when they call you for follow-up.
I noticed that one of my liver enzymes from my bloodwork last week was high, and I was worried that it was because of the glass of wine I usually have with dinner. But then I realized it was probably from all of the Tylenol I'd been taking after my lump SX-I usually don't take it but they wouldn't let me have Advil. Thank goodness they let me have it after the port SX!
I ordered 4 Elasto-gel mitts from Amazon for my hands during the Taxotere. They have slippers too, and of course the cap, but I'm most worried about my hands as I make glass beads. I looked at their web site and saw that the company had the single therapy mitt (which I bought 4 of on amazon) and the hypothermia gloves for Cancer treatment. I called them to see if there was a difference, and there is not, only single glove vs. pair. So if you want them here is the link: http://www.amazon.com/gp/product/B000H6G55G?psc=1&redirect=true&ref_=oh_aui_detailpage_o01_s00
They are cheaper that way! I have thin hair anyway, and figure it will be easier to just lose it and wear a wig or a cap. But I need my hands.
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I am so thankful for this thread and all of you sharing your experiences as we all start chemo. It is very comforting and helpful to hear from all.of you. I go next Wednesday for another high risk ob appt and an echo. The next day (15th), I start my 1st of 4 cycles of AC. My appts are all late in the day as they were scheduling me last minute. I see the MO (I see people using this acronym, but does it mean oncologist? ), at 12, then have the chemo classes at 2 and 3. My infusion actually starts at 4:30. We have to drive over an hour to get to the cancer center so we won't be home until late I am guessing. I was pleasantly surprised that they gave a choice of when to start, the 15th or the 20th. Not a big difference, but I'm used to them just telling me when to be there! I picked the earlier date just to get things moving faster and it will also be better for me for Christmas I think. If all goes well I should be 2 weeks past my last AC treatment on Christmas day. This does mean I will have chemo either the day before or after thanksgiving, but oh well. How will all of your treatments fall with the holidays?
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MO = medical oncologist
Thanksgiving should be good since my infusion dates are Nov. 11th and Dec. 2nd. Christmas will probably not be so good. I was scheduled for infusion on the 23rd, but it's my oldest's birthday, so they moved it to the 22nd, which probably isn't much better. But it also helps them as they try to schedule infusions on a short week.
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Thanks Amybeader. I looked this am and it looks the same.
Since my fam doesn't know about this (mom's in Seatte, dad and bro are in So. Cal) and I"m not close to extended fam 30 min away- I'll be in hiding. Only bro knows about my bc. I'll be ok as I'm not a big fan of the holidays. Hope all of you can make it a good one even if you are still doing chemo. Being around a supportive family is good therapy.
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Got lab work done at infusion center. Let me do it there even though haven't started chemo so I pay $0. MO approved a nice discount for me since I am cash with her (she doesn't take my insurance). So yay! Got picc line out but tape did a # and created a hole so have this thick abx bandage on with the white mesh netting over it. So doesn't feel different, still achy and feels like line is still in. Then there's the port starting to be uncomfortable on my chest from yesterday's insertion. Can't wait until is all settles down so I can have a break before all the great SEs ahead! :S
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Im starting the same thing on Thursday. I hope I do just as good as you. Glad to
hear your doing great!
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Hey!
Just got home from my first chemo session. It wasn't as bad as I thought it would be, nurses are super friendly, it's a really nice atmosphere at my cancer center. Don't have a port, so they are just using a vein, but it took them 3 tries before they got it on the 4th. Ouch. Overall, good experience, it took a bit longer today as they were teaching me as they went, going through all the anti-nausea meds, etc. etc. etc.
Only 7 more to go and I am peeing red already!!!
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^^^^
How many times do you have left to go in total? I have a port because they blew some veins in the hospital trying to get a viable vein and now my right hand is still swollen 2 weeks later, and it's not the side that had nodes out. If you want to be done with it after chemo and not keep a port for further labs uses in the future and such, picc line may be better. Otherwise they sound like the RNs I had in the hospital. 1 out of 5 did it right without blowing anything, for 1 abx infusion...
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artista i go 7 more times
I think they jinxed themselves when they saw me saying i have really great veins, juicy in fact. Each nurse gets only 2 kicks at the can, then they have to let another nurse try.
I am ok today, my head feels thick probably from all the anti nausea drugs but i slept pretty well considering what i've read about the steroids keeping you up.
If you have more questions feel free to ask!
Kim
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I really think 1 guy was a newbie RN. Just like not every RN can insert a picc, so shoud it be for the IV. Yeah the veins will recover after being blown, but they won't be like before as that's the nature of veins. That's why there's vericose veins. Mess with them too much and they lose their elasticity and don't constrict as well, causing blood to not flow back as well to the heart.
I had to hold myself watching nurse after nurse come by- over the course of 3 hours because it's not like they are lined up ready to go in the hospital. And here I had to start abx ASAP, had to be admitted no later than 5 pm, and they came to start trying at 9 pm and finally at 12:30 AM the IV abx was rolling. That's why I never want an IV again and will keep my port for as long as possible.
Wishing you better luck for you last infusions! xo
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