Terrible Experience with Oncologist
All: Tough couple of days. Had appointment with MO Monday...someone who appears on my city's "Top Doctors List." Got confirmation that cancer small and low grade....yay. But had read that this lady was knowledgeable about genetics and thought she might be able to help quantify ongoing bilateral risk that comes with ALH, LCIS, and very strong family history.
Suspect I am one of the many women who have strong, scary family history but probably BRCA negative (will find out soon).
She wouldn't answer my questions, and the responses she did give were formulaic and at times defensive. She was cold, arrogant, and dismissive. She lacked empathy and didn't seem to be reading facial or voice cues. She just kept saying, "We have to wait for the [genetic] test results." Positive test results would make the treatment decision for me; I need someone to guide me toward smart treatment choice if my future risk is moderate to high but not clear -- lumpectomy/rads/AI, or CPM.
At one point, I said I wasn't comfortable and that the meeting wasn't going at all as I'd hoped. She replied, "I don't like your tone." I returned, "I don't like YOUR tone." Then she said, "We can call it quits right here." WTH?! Since my BS works with this doctor, I didn't want to end on such bad note, so I stayed calm.
My husband was with me, thank goodness, and we agreed it was a bizarre experience. I went home and cried for an hour. Also found a few positive but many more negative online reviews of her. Can't imagine anyone entrusted with cancer care acting that way. It blows trust out of the water.
Maybe I didn't understand her role on the care "team," or that having talk I wanted really was premature at that point? Either way, it was a horrible intro for me to BC oncology. Have been anxious and upset all week. Major effort not to keep turning this over in my mind and allowing it to rent space there! Rather, this was an unfortunate, brief experience with someone I would never choose for care. There are jerks in all professions and walks of life, as well as wonderful folks, right?
Seeing plastic surgeon for consult tomorrow and genetics person for discussion and blood draw Friday. Also consult with surgical oncologist Monday at major east coast breast center. So nervous and so afraid trying to gather info to prepare for appointments. Having trouble just walking my dog and cooking dinner!
Comments
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Sorry you had such a difficult experience with the MO. Is this someone you have to stay with going forward? Is there another MO who works with this BS? Stating the obvious, it sounds as if you had a terrible chemistry with this person, and you'd be much happier with someone else going forward. Communication with all of the doctors is something I have worked hard on, and some are better at it than others.
Good luck!
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Ughhhhh!
Chances are there is very little additional informationspecific to you that anyone can give you until you have the results of the genetic testing and your surgical pathology, but that is no excuse for rudeness bordering on hostility. Not to worry about who your bs works with--all breast surgeons work with multiple oncologists, often in pretty far-flung geographical locations. Chances are your bs is very much aware that you are not the first person to opt out of treatment by this particular oncologist.
Why don't you call the breast center where your Monday consult is set up and see if you can see an oncologist as well? Long term, you might prefer to work with someone closer to home, but often the docs at the top centers direct, or at least, discuss, care administered by local oncs.
I don't know if you are angst-ing as I did about surgical options, but just in case, I'll mention that I remember being absolutely, and equally, torn between surgical options: Lumpectomy, mastectomy, double mastectomy (with DIEP reconstruction). I simply could not decide. Eventually I chose lumpectomy, just to get the darned thing out and find out exactly what we were dealing with. If I didn't like what I learned, insurance would have to cough up the one or two mastectomies. As it happened, I found I was very happy with the lumpectomy.
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I would tell your surgeon that the oncologist is someone you don't want to work with and find a new one. I had a horrible experience with a plastic surgeon recommended by my cancer surgeon. I found out she had many negative reviews. I found a better one.
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If I had this experience, I would find another MO. I wouldn't want to dismiss my first impression and have regrets.
I love my MO and consider myself fortunate to have been guided to her. It's a good thing, because we are going to be working together for 10 years.
None of my docs were ever short with me. They took their time and answered all of my questions.
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I'm really sorry that you had such a bad experience! Cancer is hard enough without a rude doctor! I agree with the others....run, not walk to find another oncologist. Your doctors need to be your cheerleaders not extra stress. I switched oncologists after 6 months due to the oncologist not wanting to answer questions. I've never been happier! Good luck!
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Girl53, so sorry for your experience. Please before you decide anything seek out a second opinion from another MO. You need someone on your side which she probably but you deserve an MO who can work with you. Hugs
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I "fired" my first MO. Or maybe she dumped me, its up for debate!!!! I found her to be cold, short and way to matter if fact for me. At the time I was recommended chemo before surgery which is not done as routinely four years ago, so I got a second opinion. Oncology being the tightknit circle that it is she found out and called me at HOME and said she felt that I had broken trust w her and that she would refer me to another MO. I mean seriously, pissed that I got s second op? ( routinely done in Canada by the way).
I never connected with her in fact the MO that she referred me too is wonderful and I've had nothing but great rapport with her over the last three years
No matter what your treatment is you're in for the long-haul especially if your estrogen positive so find someone you feel comfortable with and who takes your concerns seriously and takes the time to explain things properly
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If you have a pretty good relationship with your breast surgeon see if they have a different recommendation for MO. I am sorry that the meeting didn't go well. It's important to have a medical team you can trust and communicate well with. Good luck.
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I'm so sorry you have an MO with such poor bedside manner. Mine is also one of the "top BC MO's in the area" but treats you like he has all the time in the world. I met him before the surgery and asked pointed questions about my biopsy pathology and he shared what had him concerned, what options would look like etc. You don't have to settle for an asshat in my opinion. Unless you live in a small town and there is no other option? Best of luck to you and I hope you are able to find someone that is more patient oriented.
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I fired my first--not enough time to answer my questions, told me to "trust" him instead. Since he acknowledged that he didn't check my menopausal status before putting together my hormone blocking plan, no. In addition, the staff were always in chaos about appointments and orders, and the facility was grim. Nope.
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ksusan - I do think that is an excellent point about the facility and the staff. I can just tell the staff at my clinic like and respect each other. They are all a team when it comes to patient care.
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girl53---so sorry you had to go thru that, her bedside manner sounds awful! I hope you can find another oncologist who you can have a better relationship with, as this person is someone you will be seeing for a long time. Having said that, they can only guide you so much with their medical knowledge, and then sometimes it comes down to person choice, about difficult treatment decisions and the amount of risk you are comfortable living with.
Hope your upcoming appts will be a better experience.
anne
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Get to another doc ASAP! You should never feel that uncomfortable with a doctor no matter how famous. Just curious if you are in the NYC area. I'm being treated there and can give you some great references. Don't put up with that. You deserve better.....
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girl53, I too am not pleased with my MO. The doc herself is meh, I neither liked nor disliked her. My issue is with the facility and staff. Making my appointment was a major task (multiple office locations, minimal availability at each), Checking out after my appointment, I commented that they seemed pretty busy. The girl checking me out said yes, they were very busy. "I don't even know why we are taking new patients". Really???? This is what you say to a new patient??? It was all downhill from there, it actually got worse. I will absolutely NOT be returning there.
Meeting with BS next Tuesday, I will ask her for another MO recommendation.
As others suggested, run, as fast as you can. Her attitude toward you was completely inappropriate and unacceptable.
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I will echo what others have said. Whether or not the mo was able to give you the info you were seeking, to behave so rudely is simply inexcusable. You will be in a long term relationship with your mo, so it's important to find someone you are comfortable with. My first mo saw me through surgery, a collapsed lung and the beginning of rads to my bone met. He was knowledge and not rude but I felt that we didn't "click". My RO recommended a colleague . He even booked the appt. for me. I love her! Don't settle. Find yourself a great fit
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Girl53, the MO may have been frustrated being asked questions for which she did not yet have the answers, but that doesn't negate being rude. It also doesn't seem like the kind of question that would have been impossible to answer. If I understand it, you have a bad family history, and your questions were about risk/plan if the testing is negative? I don't understand why she could not give you some idea of options in that case. I understand a "don't put the cart before the horse" mentality, but there's also something to be said for considering your carts and horses if there's not a huge number of possibiilties you are hypothesizing about. In any case, it's not very likely you'd be able to repair that relationship. You can ask other people besides your surgeon for recommendations. If you know any doctors, ask them, and ask women you know who may have had breast cancer.
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Ladies: Thank you all SO much for your responses. What a stressful week. As it turns out, I'll be seeing today -- very briefly, and not by choice -- the MO from Monday. She works with the genetics folks and will speak with me just before blood draw today.
Outfield, you're right: she was probably frustrated with "cart before horse." But there isn't a huge number of possibilities, and I'd imagine that she is confronted often with patients with strong family history, probably BRCA negative, and wondering what the heck they should do. I understand that it's a personal decision but was expecting she'd offer some perspective. Nothing. Will not try to repair relationship...will just be polite today and then move on. I live in the Washington, D.C. area and fortunately have lots of other choices. Am just new to this and had no idea about the dynamics. Will ask my BS, who I do like, and also a doctor I'll see Monday to get another opinion. This will be Johns Hopkins in Baltimore...I am blessed to be near such a great facility.
Talked to my sister-in-law last night, and unbelievably, she has a girlfriend who also had a horrible experience with this same doctor. So it's confirmation that it wasn't "all me."
MrsGreenJeans, that is UNbelievable! That would scare the h*ll out of me, if a staff member said she didn't know why they were taking new patients. Ksusan, also can't believe doc didn't check your hormones first.
Ladies, I think the whole situation is so stressful that I just hoped for empathy and caring, forgetting that there are jerks and people with no social skills in all professions, including doctoring. It is hard to feel as vulnerable as one does with a new cancer dx and encounter that kind of coolness and rudeness and impersonality. And I got so sad, newly learning about all the women in my dad's family with BC, that I just felt raw.
Hope everyone has an okay day. Thanks again for great support, and hugs to all.
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Girl if you remain unhappy with your MO, may I make a suggestion for a guy in the DC area? Private message me if you want info. I had a great experience with mine Take care.
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