TRIPLE POSITIVE GROUP

I'm looking for sources of nutritional information. What foods should I avoid and what foods are particularly good to eat? Does anyone have any good resources to point me to?

momwriter - thanks! Unfortunately, the next surgery will not be my last as my PS will hopefully be able to place another expander - I will have to go through the expansion process again and then exchange for an implant if all goes well. Because things are such a mess on the left side I think it will require some more fat grafting after exchange to make things look presentable. Glad you can pare the doc appts down to a manageable level.

jumbled - thanks for the good thoughts, but I am not having any surgery yet, probably not until the end of the year. You can PM anytime if you want me to look at any of your report info.

twiggy - there doesn't seem to be much hard and fast food info. A lot of people like David Servan-Schreiber's book, Anti-Cancer, A New Way of Life. There are also some threads on BCO, here are a couple:

https://community.breastcancer.org/forum/79/topic/...

https://community.breastcancer.org/forum/78/topic/...

Here is another site some people use. Also, just Google breast cancer diet and you get a bunch of info:

http://foodforbreastcancer.com/

Well, it's time for the next echo (in two weeks). Fingers crossed that the old ticker is strong enough to keep going with Herceptin/Perjeta! No reason to think it isn't, but I'm developing test anxiety. . . .

twiggyOR, check out a cookbook called the *The Cancer-Fighting Kitchen.* Fantastic recipes and tips.

Moonflwr912 I was osteopenic before even chemo. After chemopause I took a big drop but still osteopenic. My MO does dexta scans every year when you are on the AIs and not being treated for osteoperosis. Now that I have osteoperosis and it's being treated she only scans every 2 years.

Thanks all for the congrats! Seems like a lot of time has passed, but it also seems like yesterday!

lago - I know, right? Seems endless, but I did have a couple of years with no issues, then when I had the allograft repair last year everything went to hell in a handbasket. That surgery spawned four more, with at least another two coming - and that is if everything goes perfectly - what are the chances of that happening? Lol!

elainetherese - I have a BRCA1+ friend who had a robotic ooph after her BMX with recon and was back to work in a relatively physical job, on her feet a lot, within two weeks. Her insurance didn't hesitate to pay, even though she was TN, but I would guess that was because of her BRCA status. I would think if your onc is recommending it you could get a pre-auth so you would know for sure.

elainetherese - I would also think with being pre-meno and ER+ would be an easy approval for ooph. My friend did bmx with TE, fat grafting and exchange and the ooph was easiest by far. And, yes, it seems like I should contact the Guiness Book with my number of surgeries - lol! I actually know someone who has had 18, I'm hoping to stop short of that, but I may not, as that is only four away

Elaine, I had a laparoscopic ooph/salpingo yesterday morning. I've felt pretty good. No running down the street though! I went to my DS two baseball games today. The incision at my belly button is a little sore but the other two don't bother me at all. I was told two weeks for recovery although I could get back to most normal things within a few days.

specials you really explain thing so we can understand all. Had my 8th round of herceptin , have 9 more to go per my MO. He definitely wants me to get flu shot and pneumonia shot. And consider shingle. I am not fond of vaccines, so I will get pneumonia and Prolia shot, but slightly considering flu, and no shingles. With immune system being almost killed with these chemicals he thought it a good idea. I feel about 2/3 close to almost 100% but not there yet, fatigue is pretty compelling some times. Just hate to put anything else in my body. So just gonna take it slow for now. I only did 4 rounds of tcph b cause of side effects and other factors my MO felt I did enough to satisfy protical . Your MO is your guide in these matters..

Anyone here have muscle and joint pain and/or spasms subside after finishing herceptin / perjeta? Love, Jean

Hi zj, my muscle and joint pain did lessen after I finished Herceptin (and possibly Perjeta- was on double blind study so don't know if I got it). I still have some on tamox, but it definitely made a difference for me finishing up- I also felt my energy was better. It's also possible that it improved because I was further out from chemo- taxol definitely was rough on my joints. Tamox still is but nothing as bad as taxol/herceptin was for me.

Thursday begins another year of Pinktober or *%&#tober. Or your designation of choice.

Today, the eggs I purchased were stamped with pink ribbons. If the company had spent the money on research instead of stamping pink ribbons--oh my. I have said this during my three years of membership-and will again. I do NOT enjoy *$&%tober. In my prior life I was thrilled to purchase food items with a pink ribbon-I was certain so much money was going to research. Now just let me have my eggs and sweet potato and spend the money elsewhere.

This month I will have my first appointment with my new MO as mine moved to Wisconsin. Anyone living in or near Appleton PM me-he is the best ever. As a nurse, I don't like the new guy. But have said I will give it one appointment. I have an appointment for a bone density. Am thinking my bones are hollow by now and I will be classified as a bird---if you see an odd looking flying object in your yard--might be me. Have an appointment to meet with yet another GI guy. And more labs in hopes there is just a tad of iron in my blood. I used to say I wanted a salt lick (still do) but maybe should add an iron lick of some sort. And eat a placenta.

But, I did use a hair dryer today for the FIRST time since my hair fell out--the first of three times. Not saying I enjoyed it. Will probably have chemo curls again tomorrow. Am clueless as to why I still have chemo curls. Never had a curl in my life before the great adventure.

Blood moon tonight. For the nurses and other medical persons among us. Yikes.

Much love.

Well said Lago

I guess I'm in the minority, but I not only don't have a problem with Pinktober but I actually appreciate the efforts that go into it. I know not every product/package/t-shirt/whatever is putting every single penny to BC research or awareness and the like, but if it has contributed, even in a very small way, to the life saving treatments and support that I've benefited from over the past 18 months or so I'm all for it.

Jersey girl which group contributes to planned parenthood?

Jersergirl Planned Parenthood does not "make it their business to kill babies."

They are funded by organizations like Komen to provide breast examinations to nearly half a million mostly poor women many of whom would go untreated each year.

Educate yourself. This from the New England Journal of Medicine....Doctors and scientists...the ones who find cures for the deadly disease which we all share..

http://www.nejm.org/doi/full/10.1056/NEJMe1510281