Starting Chemo in October 2015

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Looking for anyone else that might be starting chemo in October>

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  • moni731
    moni731 Member Posts: 293
    edited September 2015

    Hi Jackalyn3, I am starting the 29th of September, hope that counts! Anyway, this is my second go round, I am stage 4. My chemo is to be Kadcyla. You're doing Taxol? Hopefully someone will be along soon (wish it were not so) that will be doing the same. Questions? My sister did Taxol a couple years ago., tolerated well. (((hugs)))

    Moni

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    I am on the September board, but might hang out here more. I start on 9/30. My port went in on 9/21 and my energy from that finally came back yesterday. I am doing 6 rounds of chemo and will go in every 3 weeks.

  • BellaV
    BellaV Member Posts: 27
    edited September 2015

    This is my first post. I am going to see if this works. haha

    I am supposed to start chemo October 7.

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited September 2015

    Hi Bellav your post did work! I don't have a date yet when I will be starting but I'm having a port put in on Thursday. Reality is hitting really hard. So very scared

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited September 2015

    hi Moni good luck to you and you will be in my prayers on the 29. I hope I handlle the taxol as well as your sister. Having port put in on Thursday don't know what date for starting. Be well

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited September 2015

    Hi Jackalyn3, I am starting chemo on October 6th and getting a port put in this Friday. I am getting pretty scared about everything too:( If you get a chance let me know how the port business goes. I am dreading that almost as much as starting the chemo.


    Dx 8/2015, IDC, Right 1.5cm, 0/9 nodes, ER+/PR+/HER+

    Surgery 8/19/2015 Lumpectomy

    Chemotherapy Carboplatin, Docetaxel

    Targeted Therapy Herceptin

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    My port went fine. They put me completely under for it. No stitches. Just lots of glue. It's healed up really well after one week. The procedure took about 35 minutes. The longest part was getting ready (iv and millions of questions) and waking up and waiting for discharge stuff. It took about 4 more days to get my energy back though.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    I am a week out and am carting around my 36 pound toddler. I would take it easy for the first 3-4 days with heavy lifting. My discharge papers say to talk to the doctor about when you can resume heavy lifting.

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited September 2015

    Glad to hear that your port went fine. Sounds like me and you are going to get the same chemo treatment around the same time. Wish you the very best.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    Thanks. You too Maggie.

    We will see if chemo starts tomorrow or not. I ended going into 2 doctor offices yesterday because the original biopsy site isn't healed and is a fairly large wound. My surgeon wants to look at it too, so I go see him this afternoon. My MO is planning to go ahead like we are starting chemo tomorrow, so he had me take the steroids this morning . One of the doctors yesterday wrote a prescription for a 4x a day oral antibiotic. So we'll see what the surgeon says when he looks at it.

  • peculiargirl
    peculiargirl Member Posts: 68
    edited September 2015

    Hi - THANK YOU for starting this thread, Jackalyn3!

    My port went in Sept. 18, MaggieMae123, absolutely no problems. They put me under, was in and out of the hospital in about 5 hours, but most of the time was in pre-op and in the recovery room. After I was discharged, my husband took me shopping and out for lunch, home for a nap, then we went to our neighbor's and played cards all evening. I took a couple of extra strength tylenol when I got home, and an ES tylenol and ES tylenol PM at bedtime, but I didn't need anything stronger than that. I was worried about how I'd sleep afterwards - I'm a side sleeper and wasn't ready to sleep on my left side because of the lumpectomy, but wasn't sure if I'd be able to sleep on my right side because of the port -- but it's fine. The night of the surgery I slept in the recliner, but the 2nd night I was in bed on my right side with no pain at all.

    I'm scheduled for an ECHO this Thurs, hoping to start chemo next Thurs, 10/8. I'm scared, but ready to get started. Seems every time I think I'll get a chemo schedule, the MO orders ANOTHER test! The plus side is that the PET scan, bone scan and MRI showed clear lungs, liver and bones, praise be to God!!

    Chemo playlist, check. Kindle books, check. Prayer warriors, check. Freezer full of easy food, check. Wig, check.

    LET'S GET THIS SHOW ON THE ROAD!

    Kathy

  • BellaV
    BellaV Member Posts: 27
    edited September 2015

    rose50: I have not had the oncotype test. I am not sure, but my Dr. is doing some blood tests tomorrow. I know one is for the hereditary gene.

    As far as ports go, mine was a little difficult. Of course the surgeon did my port a week after the mastectomy and I still had tons of swelling/ bruising/and two JP drains.... The surgeon nicked my lung during insertion of the port and I got a pneumothorax so they kept me overnight in the hospital for oxygen and observation. I did get to go home the next day since it was not any worse.

    I'd say the tape around the gauze was worse than the incision. It really was pulled tight. Ouch. Was glad to take that off! Now, I can hardly tell it is there, but the bra strap goes right over the port and makes it a little uncomfortable. I need to find something that hits me a little different over the shoulder....

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    Interesting. No gauze or tape for me. Just tons of glue. Which is now starting to come up, but the nurse when I checked in for the port placement was all "don't pick at it when it starts to come up." So I am leaving it alone.

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited September 2015

    I'm so glad to hear from all of you! So sad we had to meet this way. But we are all here for one another and that's the main thing. I go on Thursday for my port. The reality is hitting! I don't have a start date but I'm assuming some time next week. I'm feeling the same way lets get this moving and be done with it! You are all in my prayers every day

  • peculiargirl
    peculiargirl Member Posts: 68
    edited September 2015

    BellaV, so sorry you had problems with your port. Prayers for smoother sailing from here on out. Assuming things go as planned, you and I will have similar treatments - you'll be a couple of days ahead of me.

    rose50, I didn't have an oncotype either - not sure why. I can never think to ask the right questions in the MO's office. My head just spins. All I hear is "blah, blah, blah, breast cancer, blah, blah, blah". I just can't focus.

    Prayers for everyone - we're going to make it through this!

    Kathy

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2015

    Hi all! Thank you for starting the October '15 thread!

    For you, and all who join this group, we wanted to provide some helpful links, starting with the main Breastcancer.org site's section on Chemotherapy, including info on what to expect with chemo, types of chemo meds, and side effect management. Also, the Treatment Side Effects section is a great resource for tips to help manage any side effects you may experience.

    There are some really helpful key threads here in the Chemo forum too! Great tips and practical advice on the following discussion board threads:

    Also, Last Month's Chemo thread might be informative!

    Hope you find this helpful!

    --Your Mods

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    I met with my surgeon. No infection, so that's good. I can stop the oral antibiotic. I go back to see him in a couple weeks. He said to let him know if it gets bigger or gets angry looking. He thinks the MO will be fine with it and chemo should be on for tomorrow. So just antibiotic ointment and keep it covered with a bandage, which were his instructions yesterday. But then he wanted to see it, so he double booked himself to get me in.

  • Andraxo
    Andraxo Member Posts: 410
    edited September 2015

    Greetings everyone!

    I'm starting chemo next week - Oct 6th - TC regimen of 6cycles Q3weeks, then radiation.  No port for me - they want to try using a regular vein in my arm.    Hmmmmm.  

    So happy we have a group!!  Yay!  Unbelievable how much it helps to read the posts! :)  This is my first public post, but I've been reading the boards for a month for a few weeks as I recovered from B mastectomy.  Thanks so much to all who post here!  xoxox

    I was off work 2 weeks after surgery but really worked a bit from home so I didn't go crazy, but now back at work full time for 2 weeks before chemo starts.  Distracted for obvious reasons (I'm posting this from work!), but working anyway.  All my treatment (surgery, chemo, and radiation later) is 4.5 hours away because I live/work in a very rural area on the Navajo Indian Reservation.  I'm solo and have been out here for 18 years, but thankfully I have support where I'm getting my treatment.  I'm a little anxious to start chemo....it keeps creeping closer.  People keep asking me if I'm 'ready'.  Yes ready and eager to start because I want to kill any remaining cancer cells in my body and be done with this....whatever being done means.  No not ready, because when I feel so fantastic otherwise (happy and grateful for my life), why would anyone want this poison/chemo??...it seems so counterintuitive.   Have to trust in it I guess.

    I will be cold capping, as well as adding cold mittens and slippers for my hands and feet just during the Taxotere to hopefully decrease likelihood of neuropathy since I'm going into it with mild carpal and cubital tunnel symptoms (had to postpone carpal tunnel surgery indefinitely since mastectomy and all all the tx for this cancer take precedence).  I don't tolerate cold well unless I'm being active, so this will be a challenge.   The posts on cold capping have be great for guidance - more thanks! 

    Any other recreational athletes out there?   Eager to hear how people do with their sports and athletic endeavors during chemo and radiation.  My spirits are high and I am super optimistic!  I dream that I'll have enough energy just before each round of chemo and before radiation begins to snowboard a little this winter if I can handle the high altitude.  Am I crazy?  Maybe so.  I hiked many miles daily at altitude with my drains in post-mastectomy and started running and cycling again as soon as the drains were out.  Getting outside and sticking with my usual exercise kept me sane.  Not sure how I will fare mentally if I can't exercise at all.  Even a little would be great.     

    I'd better get back to work, but wishing you all a great day :)  Keep fighting the fight!   We can do this!!      -  Andra  xo

  • ThePrincess
    ThePrincess Member Posts: 424
    edited September 2015

    Jumping in from the April group to wish you ladies all the best - the groups are so wonderful and you can find so much good information!

    Andra - I exercised all the way through AC and Taxol - you can and you should if you can - I think it really helped keep the SEs down and my attitude up - and now that chemo is over I'm not starting off having not exercised for 5 months. I was able to run 4+ miles 4 times a week during AC (just not on days 1-3 - those I walked). Taxol because it's weekly, hit my exercise harder and I went down to 3 miles 3 times a week, with a couple fast walking breaks in it. I did manage to throw in a couple of light bootcamps also! But lots of ladies just do long daily walks and those help too! Just move! Get that oxygen flowing through those red blood cells!

    Good luck, I wish you an easy couple of months!

  • BellaV
    BellaV Member Posts: 27
    edited September 2015

    I just came from the oncologist...The start of my chemo has been postponed from Oct 7th to Oct 14th to give my surgical incision a little more time to heal. They drew 70 ml of old blood off of the area Friday (25th) and the oncologist says he wants to be absolutely sure the area is fully healed. He says chemo will make it harder for the healing process to continue, so .... we wait.

    Not what I wanted to hear exactly. Just ready to start so I can get it DONE...

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited September 2015

    So sorry about the delay. Mine got delayed for a week for additional biopsy result. Then I was given the choice to wait and let a wound heal and do chemo early next week or just go ahead today with chemo knowing it has a few more risks. I opted to go ahead today and the oncologist was fine with that decision.

  • maryannecb
    maryannecb Member Posts: 1,453
    edited September 2015

    Best wishes to all of you starting chemo this month. I started chemo October 2005 ..10 years ago. I am fortunate to still have no evidence of disease and living a full active life.

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited September 2015

    To peculiar girl, Glad that your port went fine and hope you get to start chemo Thursday. It is hard waiting for things to get started. Best of luck to you when you do start. Sounds like you are well prepared. I just went wig shopping today and had a hard time finding anything that didn't look weird on me:) Take care, Maggie

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited October 2015

    Getting port put in tomorrow morning! I am so very nervous! So happy to hear from all of you and so glad in this unfortunate situation we have each other. I was very hesitant at first about joining but I am so thankful I did.

    Be well everyone

  • Artista928
    Artista928 Member Posts: 2,753
    edited October 2015

    I'm in the Sept chemo thread thinking chemo was going to happen then but delayed first with drains in for 5 weeks post op and then infection on my right tissue expander area. Tried Amoxicillin for 10 days and nada. Last Thurs was admitted to the hospital for picc line IV abx. Was just released Tues with a home set up IV and to administer abx myself for at least another week. So I anticipate unless this goes on the whole month of Oct that I should definitely be an Oct start chemo pt. Sx was 8/6 so it feels like I'm behind. All others who had sx around the time I did are in chemo. So I definitely want to be added to the list here and will provide a date once I get it. Thanks! xo

  • peculiargirl
    peculiargirl Member Posts: 68
    edited October 2015

    Morning, everyone!

    Andraxo and ThePrincess, you two are so inspirational! Last night I dreamed I could run. I've always been a walker/hiker, but I never could get the hang of running and breathing at the same time. My BS and MO have both reminded me about the importance of exercise during chemo. I was hoping to go to a yoga class tonight, but have my ECHO, which I'm HOPING will be the last test before they clear me to start chemo.

    Jackalyn, prayers and best wishes for you today as you get your port, and greytmph2, prayers and best wishes tomorrow.

    Prayers for everyone -- we WILL get through this!!

    Kathy

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Dear Community Members,

    We wanted to let you know about a new product that supports people recovering from excessive hair loss caused by chemotherapy and helps them to regrow their hair. It is called Theradome LH80 Pro, and it is the first FDA-cleared laser hair restoration for use at home. The helmet is safe and easy to use— you only need to wear the helmet twice a week, 20 minutes per session. Check out before and after photos and learn more at www.theradome.com. Results from their clinical studies showed that all participants benefited from using the Theradome™ and experienced one or more of the following: A minimization and slowing down of hair loss; A doubling of hair follicle size for existing hair; New growth of healthy hair. It is costly ($895.00), but could be shared, or donated further to others.

    We do however have one Theradome helmet that the company kindly donated to BCO, so we are happy to pass this along to someone who is experiencing hair loss, and would like to give it a try - and then urge you to pass it down to other members when your treatments are completed!We only have one so the first person to make the request will receive the helmet.

    Take a look and let us, or the company, know what you think,

    Thanks,

    The BCO Team

  • Jackalyn3
    Jackalyn3 Member Posts: 15
    edited October 2015

    Skittlegirl, I had my port put in today. So far so good. I too have a ton of glue! They said

    the exact thing "No picking".


  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited October 2015

    Glad to hear your procedure went fine. I went and saw my surgeon earlier this week and after he gave the okay to pick at it, my 7-year-old piped up at home later that night that she didn't think picking at it was a good idea.

  • maybeoneday
    maybeoneday Member Posts: 8
    edited October 2015

    Hello,

    My port was added today neck feels really stiff. They use tegaderm, i was told it takes 3-4 days to heal and I have to wait 7 days before it can be accessed for chemo. I have my cart filled at Amazon with stuff others have recommended to get through chemo. I'm doing some final research to make sure I havent missed anything

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