Just diagnosed

Flower68
Flower68 Member Posts: 147
edited October 2015 in Just Diagnosed

Three hours ago I received the phone call from my doc: biopsy is positive. All I heard, scared now, metting Tue to go over options. Have no idea if she gave me more info re biopsy. Big sigh now and getting ready to go to the beach tomorrow

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Comments

  • solfeo
    solfeo Member Posts: 838
    edited August 2015

    Hi Flower68. Sorry to hear about the news but glad you found us. The hardest part for me was that time in the beginning when I knew I had it but I didn't know any of the details or what to do about it. It never gets easy but you will feel more in control of the situation as you learn more. Any questions your doctor doesn't answer will be answered here, so please do take advantage of the available knowledge. Monday will be a month since my diagnosis and I'm not very far along in the process myself, but I feel tons better than I did that first day.

    Hang in there and try to enjoy the beach if you can since there is nothing you can do until Tuesday.

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2015

    Flowers68, we are very sorry that you are in the club nobody wants to join. We are all here for you, and know exactly how you feel. Please try and enjoy the beach this weekend, and deal with the issues on Tuesday with your doctor. Keep us posted!


  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    Thank you solfeo you alreday made my day better. And you are right it is hard until i get more details and have a plan. Will keep updating as I go along

  • Stacy7
    Stacy7 Member Posts: 32
    edited August 2015

    I will never forget that day but i must tell you it does get better when there is a plan and even better when you are done with treatment. Im 3 months out and done with radiation on Monday. I love this site, its been helpful but i need to be honest that i try to stay away from the posts of awful side effects of pills before taking mine because my main strength has been positivity and i need to Hope and believe that they will work for me before i even try. Find the threads that compare to your steps as u move fwd :) this too SHALL pass ... Hug

  • solfeo
    solfeo Member Posts: 838
    edited August 2015

    Oh, can't forget some of the best advice I received when I came here in a panic: ask for anti-anxiety meds. I don't even need them much anymore, but they were invaluable during that initial burst of appointments and tests before anything is decided.

  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    Stacy7 wish youall the best and just hang in there.

  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    Solfeo i think i hit the jackpot on anti-anxiety: I am a psychiatrist and now I can follow all the beautiful advice I give to my patients (I use humor since is the best coping tool for me right now)

  • LittleFlower
    LittleFlower Member Posts: 405
    edited August 2015

    flower68, sorry about your recent diagnosis. I was given the news on a Friday afternoon also. That is just wrong in and of itself😒. I remember the NP asking if I'd be ok over the weekend, or would I consider doing something to hurt myself? I remember thinking, ummm I'm gonna fight for my life now, not really considering the alternative, haha. Though I had a locally advanced stage 3, I'm glad to tell you that was 9 years ago. I just want to emphasize that breast cancer is not a death sentence. I sure thought so. It's not easy (heck, I'm still on these boards 9 years later, still dealing with anxiety and uncertainty) but once you get your game plan it'll bring some peace. Gentle hug

  • 614
    614 Member Posts: 851
    edited August 2015

    I wish you the best.  Sorry about your diagnosis.  The worst time is the waiting, the not knowing, and the wondering.  It is extremely stressful.  Once you meet with doctors and map out a plan for treatment, it becomes less anxiety provoking.  Good luck.

  • CeCegbp
    CeCegbp Member Posts: 12
    edited August 2015

    Hi Flower68. Sorry about your diagnosis. This is a wonderful board. I haven't posted very often but come here regularly. The women here are helpful & caring so you've come to the right place. I wish you well & hope you enjoy the beach

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2015

    Flower , I got a similar call on a Friday(11:55 am) except it was re: a brain tumor with no particulars available, just before leaving for a breast bx we knew was going to be positive. Then like a good little nursey, I told the boss which was a hugely bad move. Definitely spoils the weekend. Flower you can't change what is, but you can control how you react. All will unfold in time. Stick here and many will come to your side. One day at a time. Fear is your worst enemy right now.

    My reaction was I partied with some neighbors. Loved that I was with them and my DH. Made it a memorable night, but not b/c I was crying or such. I remember the laughing and hugging.

  • LilaT63
    LilaT63 Member Posts: 7
    edited August 2015

    I found out June 22nd that I was stage 1 in left breast.......yesterday I was told I'm positive right side as well. Two lumps were found. ....both are positive. Have to get checked for the gene since there is no history in my family. I'm not sure how i feel. Sounds like I'll be having surgery first. I can't seem to find the words right now. I have found myself staying to myself, ignoring calls from my family and friends.

  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    hi Lila

    Sorry to hear that but try to distract yourself as much as you can. Do not let this run your life for you. Be upset a little and then take charge. I do not know what stage am at but the size and the pain are telling me is serious. Even with that, today I will do something that I love: going to Edisto Beach and then tomorrow I will get ready for a new week and looking forward to meet all my patients

  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    Hi sas thank for sharing. That is a great attitude. Yesterday I was just seeing the half empty glass now it time to see it half full as well

  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    thank you CeCeg for coming and writing. Wish you well as well

  • Flower68
    Flower68 Member Posts: 147
    edited August 2015

    LittleFlower your story is so soothing to my soul now. I am sorry for what you had to go through but am so happy that wou are better. Yes you do want to fight for your life and enjoy every day with the goods and the bads

  • mdg
    mdg Member Posts: 3,571
    edited August 2015

    It breaks my heart to see more and more ladies come here with a new diagnosis. I am almost 5 years out now and I still clearly remember the day I found out. I know the fear and uncertainty you all face.....I pray every day for a cure for all of us. The beginning was by far the hardest part.....you just don't know what is going to happen. I can honestly say that my anticipation of each step was far worse than actually going through it. I know that's easy to say when you have already done it..... Please be kind to yourself. Live in the moment and find a little joy in each day despite what you are going through. In time things slowly return to a more normal pace. Hugs to all!

  • lindab142
    lindab142 Member Posts: 105
    edited August 2015

    Flowers68, I'm with you in the anxiety - got my diagnoses on Mon 8/24. The waiting for more results from biopsy and trying to schedule the MRI is frustrating. I need to have a physical exam and tests done because I need to be sedated for the MRI. Wish I could be done with the surgery already, but I haven't even got all the results yet.

    Hope you got to enjoy the beach.

    I also am working on keeping a positive attitude and affirmations. I am a survivor!

  • Bluefrog76
    Bluefrog76 Member Posts: 260
    edited August 2015

    I was diagnosed on 8/4 with advanced stage 4 breast cancer. It's amazing, just four weeks later how much calmer and more at peace I am. Those days and weeks of testing and results and unknowns are so exhausting. But you quickly adjust to a new normal and put one foot ahead of the other.

  • Flower68
    Flower68 Member Posts: 147
    edited September 2015

    Hi Bluefrog, please just hang in there. Right now the best you can do is enjoy your family as much as you can and try to think more about the present than about the future: use mindfulness for this, is a concept that I use with a lot of my patients that are getting overwhelmed about their problems. Try to google exercises for mindfulness and learn how to live in the moment, after all this is what we have! I am also H+ but E/R negative and going through a PET tomorrow to see if is spread.

  • msphil
    msphil Member Posts: 1,536
    edited September 2015

    hello sweetie, Hi bluefrog i,m from philly too, and to you Flower68, sorry u had to join us here but we will help get u this this over this overwhelming time, we do know what yourgoing thru been there, i am now a 21yrSurvivor(Praise GOD), and come here to give inspiration to others going thru, HOPE is what got me to where i am today, hadmy cry and decided to fight the good fight with my faith.We here are daily in my prayers, even private messaging to those who need me separtly, stay strong. msphil(idc,stage2, L mast,0/3 nodes,chemo and rads and 5 yr on tamoxifen,reconstruction didnt work for me, and wear prothesis),

  • Flower68
    Flower68 Member Posts: 147
    edited September 2015

    msphil what a story, thank you for stoppinh by and the encouragements. Hugs and more hugs

  • lindab142
    lindab142 Member Posts: 105
    edited September 2015

    Bluefrog, flower68 and msphil and mdg - I can so relate to the anxiety of waiting and to all you survivors! I'm one too.

    Tomorrow is my lumpectomy and I'm sure Dr B will remove the cancer and 1-2 lymph nodes. I'm reading and listening to Louise Hay (You can Heal Your life) and (Cancer - You can heal it) about letting go, forgiving and looking to the future. I'm relieved the cancer will be gone tomorrow and looking forward to recovering with my kitties and husband. I'm grateful to friends and family for support.

    Msphil - good for you, 21 years and you're giving back - thank you so much.

    Hugs to all :)

  • JCC4488
    JCC4488 Member Posts: 2
    edited September 2015

    Hi There ~

    Another newbie here. Just diagnosed 9/21. Waiting for appt with surgeon next week. Was told by gyno that I had it dcis and idc in same breast. That's all I know. I've had mamo's every year, but very dense breasts. Mom had BC at 41. I'm 52. Roller coaster doesn't cover it. I'm looking forward to meeting everyone here, although I wish it were under different circumstances..

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2015

    We too wish it were under different circumstances, JCC4488. You are not alone on that roller coaster, just glad you found us.

  • LivingThis
    LivingThis Member Posts: 38
    edited September 2015

    Sorry about the reason you are in this club but glad you found this site. I too was recently diagnosed. I got yearly mammograms and had a normal/negative mammogram in December. I don't even have dense breasts. But in July, I thought I felt a lump and in August I knew that it wasn't going away. I am glad I had it checked out. It appears on ultrasound that I have a 1.8 cm lump. I have surgery for lumpectomy scheduled October 5th. then comes probable chemo (I am "triple negative") and later radiation. I was overwhelmed in the early days after getting my diagnosis...then I had a few days of "pity party" and now starting to feel better. I am determined not to let this change my self-perception. I am a healthy woman who happens to have a tumor.

  • shannondunlop
    shannondunlop Member Posts: 12
    edited September 2015

    I was also given my diagnosis on a Friday.  And I had a list of questions prepared for the doctor because I just knew what it was going to be.  When I asked her about the grade of the tumor and if it was estrogen and or progesterone positive, all she said to me is "I don't know.  It just tells me you have cancer.  I see you have been reading."  Needless to say,  I found another doctor.  Then, she gave me the name of a surgeon who is mainly a general surgeon and bariatrtic surgeon.  I asked for another one at a woman's hospital and she said, "I dont know any.  This one takes your insurance."  I have since taken my health into my own hands and found doctors who are compassionate and patient.  Getting that call was the worst.  I will never forget it.

  • lindab142
    lindab142 Member Posts: 105
    edited September 2015

    JCC4488, welcome. I was diagnosed in August and has my surgery 8 days ago. I'm keeping optimistic and recovering with lots of naps and kitty love. We have 4 cats.


    The surgery went well and they removed all the cancer. Lymph nodes are clear.

    image

  • lindab142
    lindab142 Member Posts: 105
    edited September 2015

    shannon, glad you got a new Dr. Think positive and remember that you're in charge with G-d's help. I won't forget my phone call either, from the surgeon's office telling me to come in. I knew it was bad news. But, my tumor was 5-7mm and they removed it last Friday.

    Keep asking questions and get the people you're comfortable with.


    Linda

  • linda15
    linda15 Member Posts: 40
    edited September 2015

    I'm new to this site...32 yrs old visited my Gyn in Aug with complaining R breast&nipple pain w/ discharge:/ She ordered diagnostic mammogram and ultrasound however, somewhere between referrals and Ins authorization I finally got scheduled Oct 13😖 My energy has significantly decreased ove the past 4-5 months (a couple months) prior to pain/discharge (Clear but brown/red tinged when dry on tissue) Has also been Grey/green. My pain now radiates to my back between my shoulder blades and nothing alleviates it:( I'm so nervous since I don't see much info on Breast Pain and discharge! I have two dd (19m apart) whom I breast fed and the changes in my breast I thought were from nursing! No lump that I can feel...also new is swelling R collar bone, I feel a MESS and so Extremely Tired. FYI back pain keeps me up at night😟

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