Denial?

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I am wondering about others here and a feeling like, "This isn't happening to me. This is not real. This is a bad dream or an interlude, and it'll go away." At times I spend hours doing BC research in order to understand, and then the other feeling returns: "This is silly. This isn't me. I'm too young and healthy to have BC. Just a few weeks ago everything was fine." Now I have important, life-impacting decisions to make. It's serious. It's real. I feel at times like a small child struggling with something I don't understand.

At times I feel I need to learn some new things from what will be a journey: To ask for help. To be more vulnerable. To be more engaged in life. Other times, I just want to get "this" overwith...to decide on treatment, do it -- whatever it is -- and then forget this ever happened. Live as if it just didn't happen.

Wouldn't it be great to be the woman who wants to learn from it, see it as having a silver lining? Maybe this will happen. Maybe this is just hard after only a week.

Comments

  • Girl53
    Girl53 Member Posts: 225
    edited September 2015

    One more thought: I wonder if some emotional aspects of a new BC diagnosis are different among those who do and do not have a strong family history of the disease.

    Have read that most women dx'd with BC have no family history. But when you do have one, dx seems to bring up all sorts of feelings and associations and memories, fears and false beliefs, identity issues, and pain related to things seen and experienced in childhood. This has been hardest aspect for me in week since dx.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2015

    Girl - Anything and everything you feel now is completely normal. I do think having witnessed the BC struggle in our loved ones does make it extra difficult to accept. It seems surreal that the very thing we screened for and agonized over has actually happened. I know I completely fell apart. In one sense it was cathartic. I never really mourned the loss of my mother to BC. In the sixties you just shoved the trauma in the cabinet and hoped you'd never have to deal with it. So for me falling apart allowed me to grieve her departure and my loss of ever having a life without a monkey on my back called BC. I needed meds and counseling to pull out of the darkness. I highly recommend them if you need it. There havebeen some positives come out of this. I think I am more compassionate. I don't really remember the high strung control freak I used to be. You do gain perspective about what is and isn't impotant. Also believe it or not you won't always think of BC 24/7. All of this takes time. A wise doc told me it may take a year or even two to really accept the dx. You'll get there. For now be easy on yourself. If I can help with anything let me know.

  • Girl53
    Girl53 Member Posts: 225
    edited September 2015

    Farmerlucy: Thanks so much for your reply....it's a godsend this morning.

    Felt good just to express the fears and so many different emotions. On other threads, have shared that I had a wonderful husband who died of a brain tumor 10 years ago after a 14-year struggle with it during our marriage. Fortunatley, I am now happily remarried to a great guy. I feel so angry that a "shadow" has now entered this new place in my life, when I longed to not have a monkey on my back -- to leave behind daily concern with serious illness, especially cancer. Think my expectations and hopes were understandable but unrealistic for a middle-aged person.

    I am so sorry about your mom but glad to hear that you were finally able to grieve her loss. I know what you mean about finally processing these feelings and experiences. I have a twin sister, and she and I made it together through a lot of early trauma, including a disturbed mother and a very disturbed paternal grandmother, who raised us after having been sadly abused themselves. Both women had breast cancer, and my GM died of it. Over the years, have done so much work trying to accept and heal, and consciously tell myself, "I am not them." And then breast cancer dx. It feels like such a tough identification with people who, though I loved them, I want to detach from in a healthy way.

    Blessedly, I have a good counselor now. Several months ago, she diagnosed me with complex PTSD. Am already seeing, with dx, some aspects of this stress disorder. Good thing is I'm aware of it and can address it, day by day. Am also in Al-Anon, a 12-step group for people with friends/relatives living with alcoholism.

    Thanks again, Farmerlucy. Are you an actual farmer? Have never been to Oklahoma but would like to visit. And have always wanted to milk a cow LOL.

  • scrunchthecat
    scrunchthecat Member Posts: 269
    edited September 2015

    Hi -

    I have zero family history of breast cancer. Four out of four grandparents and my father had diabetes, but I do not, go figure. I really had no health issues until I was diagnosed with breast cancer. My diet was pretty good (not perfect, but not awful), I exercise regularly, I don't smoke. I was a heavy drinker by official standards (2-3 drinks per night, most nights), and alcohol is a risk factor (not that I knew that then), but my parents drank like fish until they were in their 70s, and when I lived in the UK for a while - I could *never* keep up with their consumption. Now I limit my alcohol to one to two glasses of red wine with dinner, but not during week 1 of treatment.

    So when I presented a lump to my PCP, she fortunately is part of a big medical system down here in South Florida, and was able to immediately get me a consult with a surgeon, who immediately got me scheduled for an MRI and a biopsy, followed quickly by an appointment with an oncologist and a PET-CT. The problem was: everyone told me that it would be: neoadjavant treatment, surgery, radiation and a year of vitamin H (Herceptin). So I was mentally prepared for this. Then the PET-CT came back and showed mets to the liver. The oncologist called me to tell me there would be no surgery, but I would start on a more robust chemotherapy regime. *I had no idea that this was a possibility.* I completely freaked out. To make matters worse, my oncologist, although he is good at his job of assigning treatment, is not a great communicator. I thought for sure that I was a dead woman walking. If you Google "metastatic breast cancer," you get some pretty frightening returns.

    So I shut down and was in denial for a while. I felt perfectly fine. I did start treatment. It took me three months before I was able to think calmly and rationally about my situation and research it on the Web. During that time I also learned about breastcancer.org - and many, many thanks to the moderators who keep the discussion on this board sane. It is a safe place to learn about all aspects of breast cancer and connect with other women.

    Just a couple of secondary items - my employer does not know that I am Stage IV. I have let everyone know that I have breast cancer and am undergoing treatment. Fortunately, I work in a very supportive environment. I choose to believe that, for me, there is a chance that I can live with this disease for quite a few years. Of course, the cancer may have other ideas, but I am living my life based on this philosophy. I am afraid that if my employer knew I was Stage IV, that this would make me vulnerable to workplace discrimination. I have told my closest friends.

    So there's my story. Denial is a perfectly reasonable response, at least for a while. It takes time to get your head wrapped around a breast cancer diagnoses, whether it is Stage 0 or Stage IV.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2015

    No - not a farmer. My "farm" consists of a dumb ass (donkey) two goats and some barn cats on 15 acres but I love it. Glad you are working w a counselor and have your eyes wide open re:PTSD.

    Scrunch - So sorry about the dx but glad you are managing ok. It is amazing what our minds can do to protect us. Hugs!

  • Girl53
    Girl53 Member Posts: 225
    edited September 2015

    Grey: You are nothing short of awesome. I can hear in your post how much you want that new life...and you will have it. Providence has blessed you with awareness, love for your precious self, and determination to find a more fulfilling path. I am so proud of you and I don't even know you! Keep up good work. I love the image of a train...getting on...have always loved trains and their motion and sound.

    Massive avoidance has always been my coping method. And I tend to get stuck on, "This shouldn't have happened. With all the other stuff, this shouldn't have been piled on." But, as you suggested, am working on, "This is what is real, now. And to have the different life I have prayed for, I must gently look at and address whatever is real now." As I learn to do this, I'll get better at -- and happier with -- addressing whatever is real tomorrow, and next year, and so on. I AM angry, afraid, and need help, and want this to be okay for the first time in my life. No more, "I can handle everything alone and am always strong. WRONG...LOL.

    Am so fortunate to have a great husband, extended family, good friends and neighbors and co-workers. So much of my fear and isolation is rooted in painful things that happened long ago, and which I've been stuck in. BC -- while not "good" -- is a great opportunity for me to learn some new behaviors and attitudes.

    Will be watching for your posts and updates re: how chemo is going. Hope you have good weekend. Thinking of you.

    Scrunch, read your post and am pulling for wellness for you. So glad your work place is supportive. Thank you for sharing where you are. Big hugs to you today. Am so grateful to have connected.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited September 2015

    Girl53, it takes an awfully long time to process a diagnosis like this and everything that comes in its wake. You can do some of it consciously, whether with research, talk, therapy, sitting and thinking, whatever you need, but your subconscious still needs to come to terms with it, and the whole thing takes time. Meanwhile, you're pulled out of your everyday life and into dr, appointments, endless scans, and what's hardest, immediate decisions that must be made. And there are all these new people in your life, i.e. BS, MO, and so forth, and all their nurses. So it's just hard. You're only a short time in.

    For me, the first month was a blur. It was at least six weeks or more before I woke up and looked around and started trying to come to terms with things and asking questions. Give yourself time and be easy on yourself. Do small things that are life affirming: I was diagnosed in the spring and planted my tiny windowbox garden before starting chemo. It takes a long time to become used to your new normal state of mind.

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