Sandra Lee advocates aggressive screeening/treatment for DCIS

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Jelson
Jelson Member Posts: 1,535

what do you think? I am again made uncomfortable by the power of celebrity.


https://gma.yahoo.com/sandra-lee-reveals-she-cance...

Comments

  • lisa-e
    lisa-e Member Posts: 819
    edited September 2015
    It is so frustrating to read articles like that one, where the celebrity has her facts wrong and promotes overly aggressive treatment. I would hold Sandra Lee responsible for any harm she causes. Just once, I would like to hear some nuanced messaging from a celebrity.
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2015
    This is a tough one. Clearly, I can't agree with her declaring she's cancer free. Cancer free for now would be far more accurate, but plays less well in the media. As for the tx of DCIS, this has been an ongoing controversy with doctors and patients alike falling into different camps. There are many, many women, like Sanrdra Lee, who go aggressive and are comfortable with their choice. Others feel that aggressive to is over treatment and opt for less aggressive to or even watch and wait. They too are comfortable with their choice. I never faced this situation, so have no personal experience, but not being able to tell which in situ cancers will turn invasive and which won't does give one food for thought.
  • muska
    muska Member Posts: 1,195
    edited September 2015

    I didn't listen to the actual interview but based on the published quotes, "She said she rejects the "wait-and-see" approach to early-stage breast cancer, which has lately been suggested by some medical research as the better strategy rather than aggressive surgery, radiation and chemotherapy." I tend to agree with her on the above quote.

    I am having a hard time with approach to treatment decisions that is mostly based on being "comfortable" with one tx vs another.

  • Staple
    Staple Member Posts: 35
    edited September 2015

    I wish they wouldn't spread the misinformation and if they don't know anything, just keep their mouth shut. I understand the need to talk about it - we all do - but I think she just wants to be on camera. I put the 'cancer free' comment into the same category as the people who asked me 'if they got it all'. I would also hope she was misquoting her doctor saying they were 'ticking time bombs' and the doctor actually gave her sound medical advice regarding her choices.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited September 2015

    I was surprised that so many people commented on the story saying that her cancer will eventually come back! I think a lot of people are misinformed about BC. Long-term survival stats for BC are better than many other cancers! Even for women diagnosed between 1975 and 1979, when treatments weren't nearly as good, the 30 year survival rate is 46.3%, so nearly half of all cases!

    http://seer.cancer.gov/csr/1975_2012/browse_csr.ph...

    I just want to add that these stats are only for invasive cancer, too. They don't even include DCIS because the survival rate is sky-high for that diagnosis (typically around 98%).

  • coraleliz
    coraleliz Member Posts: 1,523
    edited September 2015

    I watched the video clip. To me, it just sounds like she is trying to justify her treatment decisions. We all do this to some degree. I'm one of the few who would have "watched & waited" if I had DCIS. That was my plan before it was determined that it was really IDC.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited September 2015

    I am happy that she is happy with her decision. That said, I am very happy that I watch little television.

  • cp418
    cp418 Member Posts: 7,079
    edited September 2015

    I'm not familiar with her DCIS diagnosis - were there multiple DCIS sites, large mass, strong family hx? If that is her situation then she certainly had strong evidence for her choice of treatments. I strongly agree that until the medical 'experts' can accurately determine which DCIS cases are aggressive - then the decision and worry is left on the patient. Her choice gives her peace of mind and that is all that matters. However, that being said - sadly this type of public cancer discussion communicated by a celebrity only adds more confusion for women and new patients. It was not a balanced interview with an oncologist to CLARIFY the entire discussion. Tabloid news IMO.

    In addition, the general public has very mixed and confused ideas about cancer. For example, colonoscopy procedures are advised to screen for pre-cancerous polyps and remove them - not watch and wait. Same for skin cancer screening for pre-melanoma - remove and not watch and wait. Although these are different cancers - the message is to remove and not watch and wait. No wonder people are confused.....

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited September 2015

    cp....I had the same thought about including a physician during the segment. Unfortunately, the problem with that is.....could her doctor have been on the show with her to explain her case? And then, go on to explain the DCIS controversy in an engaging, non-controversial way? Could a doctor who wasn't her doctor appear with her and do the same? For sure, she doesn't need to justify her decision by having physicians accompany her. However, without the details known about her individual case, again, we have a celebrity touting their own message which only leads to greater misunderstanding.


    With Breast Cancer Awareness month only days away, I'm going to spend even less than less time watching television. 😇

  • cp418
    cp418 Member Posts: 7,079
    edited September 2015

    VR - totally agree with you. This was about a celebrity needing air-time for "her" message.

    Time to enable PINK SHIELD!!

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited September 2015
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited September 2015

    voracious, you're right, including a doctor would have been a good idea. But that'd be less face time for Sandra Lee.

    The other thing you mention reminds me of what I'm noticing this year: "breast cancer awareness month is days away." That month is starting to bleed into September so we get an extra week or two of the pink glut. Numerous advertisements for pink ribbon fundraisers on TV and in the newspaper for next month are already everywhere. It's unsettling. I think Sandra Lee's appearance was timed to usher in the month a few days early.

  • pennsygal
    pennsygal Member Posts: 346
    edited September 2015

    She made the decision that was right for her at the time. I have no argument with that. However, I find this irresponsible:

    Why we would consider negotiating with cancer is beyond me," said Lee, who had a second surgery after her mastectomy to treat an infection. "Let's just wait and see what it does. It's like a terrorist that lives inside your body and we're going to wait and see what it does? We know what it's going to do."

    I understand her fear, but the terrorist-negotiation metaphor really doesn't work. Cancer is not a sentient being. I would be interested to know more about her history - I do know she has Lupus.

    Also, the white mantilla is a nice touch.



  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited September 2015

    I didn't know that she has Lupus. Radiation is contraindicated for Lupus patients, so mastectomy is usually recommended. I was told by two radiation oncologists that they wouldn't give me radiation unless it was absolutely necessary.

  • pennsygal
    pennsygal Member Posts: 346
    edited September 2015

    I'm not sure how mild/severe her Lupus is - I have it too, and mine is limited to joint pain/fatigue. I will be having radiation - my docs said that the contraindication is more for women with skin involvement, or scleroderma.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited September 2015

    I just read that she has lupus anticoagulant, which is not Lupus, it's a completely different disease.

    Most people with Lupus have skin involvement, I do. (Not the "butterfly" rash, but photosensitivity and other rashes.) I think that's why it's generally not risked.

  • labelle
    labelle Member Posts: 721
    edited October 2015

    Not sure what to say, but now I know who Sandra Lee is. I'd never heard of her before now. I don't watch much TV either.

    It does seem like she's using this as a way to get air time and I hate the whole "let's just cut our breasts off and we'll be fine" junk. For most women a DMX for DCIS is an incredibly agonizing decision but she seems to be presenting it as easy and a no-brainer. So not true.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited October 2015

    What bothers me about celebrities voicing their opinions so immediately after their diagnosis and treatment is that there is no introspection on their part. They seem to want to capitalize on the publicity, taking no time to do more thoughtful research or see how things unfold after a couple years. It's just bam, right out of the gate, let me share all this info right now now now, and in general, they do not add anything new to the conversation. I'd like to hear some celebrities who are dealing with bc start talking about how the pink ribbon has become a marketing tool for companies and corporations to make money, and how awareness has become stagnant in the quest for a cure. But not one wants to stick their necks out and make waves as it would signal possibly the end of their careers to go up against something like Komen, which so many of them immediately embrace.
  • rainnyc
    rainnyc Member Posts: 1,289
    edited October 2015

    She is the girlfriend of the governor of New York. It really bothered me--during a long summer of chemotherapy--that news about Lee was released so strategically, i.e. just at the moment when a new poll came out showing that the governor's approval ratings were tanking. In other words, they were using her illness for political ends. Just as they're dong now.

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