Ebru is back \ o / :)))))
Dear all,
Been quiet I know.. But felt you all by my side throughout..
Turns out summer, sund and hot weather are not favorable in my condition.. TMs still on the rise a bit.. Well it's autumn already, so hope Xeloda will make peace with the surrounding contitions and kick back in.
Since hormonals did not like me before, I want to stick with hair protecting chemo as long as possible .. Dh hates short hair & Ds is still too young to grasp things as they are.. Of course, already started viewing new hair trends in case I ll go for wigs again
Great that Xeloda (which gave me my first heart attack right at the start) is my great friend now that I am constantly on heart pills for the past 3 years..
Strongly suggest newbies to read my past threads on its SEs and nutrition advices )
Well, today I said bye to Tramadol 100 mg, which had been my sole pain killer right from the start. I insisted on not moving on to stronger weapons immediately and confess have endured a 'bit of' pain especially during this past summer.. Keeping activities on low level, etc .. So feel confident my new handsome pain management doc has joined my team at the right time. Today we discussed matters in detail and he prescribed a codain based coctail
)) for regular use and another strong weapon for breakthrough pains.. Feel happy.. Feel relaxed.. Finally the pain is under control. I am confident I made the decision to move on to new meds right on time. No more driving. Dh already took away my car, knowing my fast driving instincts o well .. But am still allowed to go to grocery store etc when I must.. Driving has always been my hobby loved my cars and probably that's why I resisted so long not to use much meds till now.. Susan & Sue who have been in Istanbul know that
the city is much enjoyable with a car.. Well that's the end of another chapter now
Still on Xanax & Lexapro for mood and anxiety control.. The yummy doc said we'll stick with those for noww.. Gals, please consult with a psychiatrist for mood meds and pain doc for pain control.. MOs can only know as much on those c- buggers .. My cardiologist is still in control of my heart and pulminologist ( also an immunology specialist) closely watching mu PE and the rest.. The headmaster of the team is of course DH, dealing with his crazy wife still. I am so blessed to have him by my side. He is writing a book on history, hope I get to see it published..
DS finally got the notion mommy is really sick.. A great success of the family I believe.. Not to have him worry for mommy for this long! Now he is 10, just started middle school.. Just another accomplishment to have witnessed that as well..
Guess I'll need 24/7 house assistance from now on, so will be hiring a full time maid soon. Not my fave to have a stranger living in the house, but my bone mets disagree with that )
Life's been good.. Met so many gals during this journey and based on my experiences, what I suggest most is PLEASE IGNORE ANY SORT OF NEGATIVITY in your life..
Especially during the past few months, I was so surprised to experience such horrific pain right after I got sad, angry, overwhelmed .., you name it.. Interesting but true.. Very true. Not easy to deal with everything so possitively I KNOW, yet communicating this with you loved ones DOES help. This has been the greatest discovery of tje past few months living in pain hell..
Btw I am still around, my post may sound a bit like wrapping things up.. NOPE! I want to meet the newbies, that's why I keep on writing.. Hopefully will post more often .. I know you all miss my photos and all.. Elections are coming up in Turkiye.. Fingers crossed we'll finally get rid of this tall mustache!
Codaine is good well life's rewarding me being a good girl all my life.. Now I am a junkie! Haha
))
Hugs, kisses & love
Ebru
Comments
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yay ebru! From one junkie to the next--welcome back
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hi Ebru!! Welcome back sweet friend
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welcome back Ebru!! So glad you have the pain under control. So sorry about driving (I have sympathy, I had to trade in my really fast car for a comfy one when my back went bad).
Really, really sorry to see summer come to an end.
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always good to hear you Ebru!
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Welcome back my dear friend. Sounds like you have made some important changes..... I will miss knowing that you are enjoying the hills of Istanbul in your cute car, but, being pain-free is an important thing as well. I assume the streets are lined with banners once again, and the streets are filled with vans spewing political catch phrases from megaphones.
So happy to see your post. *susan*
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Ebru,
I love your update...thanks so much for sharing.
Amy
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Hi Honey! So wonderful to see your post. Sounds like you are taking care of business - good for you. We must all keep on dancing! Just a thought on the in- home help you will hire: please remember that people need to work and need to feel useful. You will be providing a job to someone who needs it, this is a good thing. PS: (the tall mustache!). Best to DH - be well my friend. SUE
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Welcome back!!!!
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Ebru,
I am so happy to hear from you and even happier that you've changed upyour pain meds so that you can be comfortable. Junkie? Who cares? We all do what we have to do. Inshallah, you will be comfortable, pain free and enjoy what ever comes your way. I really have missed you.
Caryn
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(((((Hugs, Ebru)))))
Welcome back, you were missed!
--The Mods
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Ebru: Glad to see you back, and love your own quote posted on the daily quote
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Ebru - so good to see you and glad that pain is under control. I couldn't take the codeine this go 'round but discovered dilaudid (for breakthrough) - awesome having the feeling of control over the pain isn't it? We're in the midst of an election campaign in Canada too - sick of politicians!!!!!
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Ebro, loved reading your posts when I was a lurker, and missed them! Glad you are back
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Ebru, it is wonderful to have you back, and especially to hear that the pain is under control! Finally!!!!!! I am sorry about the sacrifice you have made regarding the driving (vs. not having sufficiently effective pain meds) and it's obvious that you've made the right decision! Do you have public transportation where you live? I recognize it's a poor substitute for driving one's car, but you may find to your surprise that you enjoy taking a bus somewhere and daydreaming along the way!
You have been deeply missed, and here's a big Welcome Back hug to greet you!
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So glad you're back!
Leah
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good to hear from you Ebru! ((((Hugs))))
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Thanks for the update Ebru.
Terri
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Missed you Xoxoxox
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Ebru, you,add so much to the community. Happy to see you posting again.
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Great to hear from you again hugs xx
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yea for no pain! I have always wished for a housekeeper. My house is never caught up. I hope you find it a blessing and not an intrusion.
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So glad your finding some comfort in your new pain meds. I was in that position yrs ago and was so happy once I did my pain pump it has helped. I agree on your thoughts of we often need to enlist other specialist help for each area. Since I've done this I find my onc can focus so much better on my cancer journey specifically. I hope you are finding peace in your new norm and you are so up beat it is an inspiration
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Welcome back, Ebru! You've been missed, so happy to hear from you. xoxo
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Ebru
I still feel like a newbe though dx since 11/2014. Your voice is such a positive addition it will benefit us all. So glad you found a good plan for your pain and apparently a nice doctor to listen to and look at.
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*\o/*
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Ebru,
So very glad to hear from you, my friend! Welcome back! It sounds like things are finally getting sorted out - at least in regards to the pain meds. I'm sorry that you had to give up driving, but glad that you are finally going to get some pain relief! Missed you and worried about you - so glad to have you back!
Love and hugs,
Amy
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I love you all so much I return to each post and read over and over again!
Now listening to the beautiful music of Melody Gardot .. So peaceful.. Her voice her words all.. 'Some lessons 'is my fave so far..
Anyway Public transport is not much convinient in my case (dear Anne), and even less than a day long single activity is a bit blah so far, but the more I focus on resting, the less drugs I need for painkilling.. The trade is not that bad.
DH works more homeoffice to support and thats romantic indeed ;Here s a selfie I took last weekend on a daily trip to a small mountain town.. It was a bit chilly so I covered my head.. Hair's still very short after an unfortunate hairdresser messup.. The second pic
I wanted pale violet.. He colored me blue
Yep I looked like a stupid parrot for 5 minutes.. Ugh.. I am calm now ..
Hugs kisses..
No stress smile
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Ebru - you are SO beautiful!!! Doesn't matter what the color of your hair is - just stunning!
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So good to hear from you Ebru.
Donna
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Thanks for the update Ebru! Always thinking of you!
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