NEW Oncotype Dx Roll Call Thread

Oesgirl I had a score of 12 and had chemo. Most of the studies are done on older women and primarily Caucasian. I was 44 when diagnosed and do not fit into the above categories , somy doctor felt given that I should have chemo. I went to Slone Kettering for my second opinion and they also reccomended chemo.

While it is important to be aware of those trials as guides to our treatment. There are other factors to consider and I am grateful that our doctors still look at all of the individual factors we bring to the table and use those to make recommendations.

KBee - It truly is frightening to see that even with negative nodes, bmx, AND chemo, you can have a recurrence. I see where women with negative nodes develop Stage IV. It truly is a crap-shoot.

Wishing you the best.

Just fyi, I thought that the TAILORx study results would be available in 2015 but according to the website for clinical trials it will not be available until December 2017.

My oncologist said that at a recent conference researchers presented that both the control and intervention groups of TAILORx study participants are doing well at this time. More time is needed to see differences between the groups. However, it's a great sign that both groups are doing well. YEAH!

Thanks so much for the info.  Looking for to the results.

Just got my score: 21. This gives me 13% chance of recurrence but as I'm 67 (!) it also shows that if I did chemo I would have the same exact 13% recurrence....so I'm hoping that's good news - I meet with my doctors on Friday to discuss - I thought it was a bit strange to get this in an email but then thought perhaps they wouldn't have given me the results that way if it had been worse news...I'm thankful that chemo looks unlikely - just radiation and hormones. Any other oldies out there who can share their experiences?

23 for me. Strongly considering chemo. Age 52.

Oxfordlady - I was 69 when diagnosed (now 75) and my oncotype was an 11. I did not do chemo but did radiation and tamoxifen. I only lasted for 4.5 years on the tamoxifen because I could not tolerate the side effects any longer. However there certainly are lots of women who do not have side effects so my hope is that what ever they put you on.... you will have little to no problems. Good luck to you, sending good thoughts.

9

Any word on the TAILORX info from Vienna?

yep! Sept 28!

JC--Thanks for the link! I am almost three years post diagnosis and had a BMX in February 2013. My oncotype score was a 6. I was a Stage IIA with 1 positive node, ER+/PR+/HER+ and chose Herceptin only, tamoxifen, total hysterectomy, and then Femara (Letrozole). I have my annual breast MRI coming up at the end of November so I am getting nervous. Whenever I start to get worried, I do a little research. This brochure made me feel better about my choices.

My came back 12 - no chemo recommended

I also had a ki-67 of 35 so I was pleasantly surprised that that the oncotype came in low. I was highlyER/ PR positive though- over 90 percent for both

33 rads and then tamoxifen

MT

Sandy here. Age 64 at dx (will be 65 in Jan. 2016). 10 yrs. post-menopausal. OncotypeDX score 16. L LMP w/SNB. Starting APBI (16 tx) Nov. 2015; FM Jan. 2016.