INSOMNIACS place to talk in the wee hours

1…966967969971972…1503

Comments

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited September 2015

    Spookie: I don't mind. It's the doctors who seem to think it matters. But then I won't be seeing the oncologists once I'm done with treatment if I have anything to do with it. So in the long run it doesn't matter.

    MammaRay: only if pressed. And at that, I've shared more with my next-door neighbor than with my family. But then she's much more a part o my daily life than my family at this point--not that my family don't care about me, but rather that they live at a distance, so they don't see me creeping home after a rads treatment, or see me drooping on the front porch after surgery. And this particular neighbor is a) the Queen of the nosyparkers and b) went through cancer treatment herself.

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2015

    image

    · Share on FacebookShare on Twitter
  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited September 2015

    Yes, yes, I did!! Yup it came and left in less than a few minutes. What a teaser!!

    Mamma, if friends and family ask, I share with them. Did you have radiation tx today or was it someone else

    · Share on FacebookShare on Twitter
  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited September 2015

    We are emotional beings. It's ok. May the gamma rays or whatever rays they are using ZAP those little boogers out forever!

    · Share on FacebookShare on Twitter
  • blondiex46
    blondiex46 Member Posts: 5,712
    edited September 2015

    Rosie,  i am so sorry that they r idiots. I think we all have idiots in one of our teams somewhere.  I have a hospice team and in our county we have an agency call COSA which is an office for the aging. I applied for meals on wheels and a home health care aide in april i got approved in july n still dont have the services. My hospice social worker n i keep calling thecase manager from cosa to no avail..

    How do u feel? 

    Mama,i am an only child n a singe parent of 5 40,37,34 21 year old twins. They are in such denial.they dont care

    · Share on FacebookShare on Twitter
  • Kjones13
    Kjones13 Member Posts: 1,520
    edited September 2015

    mammaray-- I have a 4 yr old daughter and 11 yr old son. My son knows that I had cancer. He knows that I could die from it, but I told him he would be the first to know if anything bad happens. He seems ok about that and knows that my ongoing treatment is to keep cancer away. My 4 yr old has never said the word cancer now that I think about it. I've showed her my port. She knows I get medicine every three weeks. She has come with me when I got my xgeva shot. She is pretty fascinated with the whole ordeal. I guess I should consider talking to her more about "cancer." I think I'm waiting for a reoccurrence. Want to give them some breathing room while it's there.

    Rosie--so very glad you had a good day and the nurse was helpful! You said something the other day that hit me...and it's true...you are the only one who has posted info and what you are going thru re: ascitesis sp? So very thankful for you in so many ways. Hope the good days continue

    · Share on FacebookShare on Twitter
  • susan3
    susan3 Member Posts: 3,728
    edited September 2015

    I can't believe I get so far behind.ughhhh.

    Chevy, I had my butt massage when I desk down stairs and hurt the same thing. Yes a butt massage, ice and heat alternated and it got better. Hang in there

    Mammary, sorry about rads. Never had them myself. I am a chemo gal :)

    Smarrty, beautiful quilts. Love the one with flowres in the middle and reds fir ain't color. So talented.

    Luvmygoats, silk is in his last year of med school. Letters for residency had to go out Tuesday. Nationwide, all meds schools are on the same schedule. He got 3 interviews so far. So quick, made him happy. So stressful. So far, Oklahoma, tennise, and peiora Illinois

    Rosie, happy you got some relief

    Sas, I will post a few pics now and then. I have so many, don't want to bare anyone.

    Having weird symptoms from chemo today. Oh well

    Sleep well all

    · Share on FacebookShare on Twitter
  • susan3
    susan3 Member Posts: 3,728
    edited September 2015

    imageimageimage

    · Share on FacebookShare on Twitter
  • susan3
    susan3 Member Posts: 3,728
    edited September 2015

    imageimage

    · Share on FacebookShare on Twitter
  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited September 2015

    Kjones- yep I tried checking around for info about malignant ascites and got very very little. Most folks pass within 6 months. I have had it since May. So I figured giving some detail about the journey, expectations and trials, symptoms etc.. might be beneficial to others down the road. Probably too much detail but this is all new to me. I ordered supplies from the company Pleurx and they asked how many 1000ml bottle/kits I might need and I said I am not sure, but we are tapping 2x week. That's the game plan to date. I spoke with the HHnurse about what orders had been sent over. So the next poor soul who gets ascites from breast cancer will have info to read. It must be common because on the pleurx order sheet the ICD 9 codes for malignant ascites have a secondary ICD9 code and Lung, Breast cancer were listed on the preprinted forms. I know lobular cancer is more likely to mets to the omentum and peritoneum, stomach and bowel.

    I have my birthday on Sunday. DH asked me what I wanted. Really I want nothing, I have everything anyone could want or need. (except a cure) I said Google was running a campaign to help the Syrian refugees offering a dollar for dollar match up to 5 million. If you give 50$ Google will match it 50$ so it makes 100.00. I asked DH to give a birthday donation to help those women, men and children. Winter is coming. They are splitting the money between 4 groups helping the region, Doctors Without Borders was one. I know all my motley relatives originated all over Europe.. all economic and religious refugees. In my bones I feel for these people and pray for them every night. I may not share their religious views, but I feel their pain and would do the same to protect my kids from being blown up, tortured or starved.

    Good night. Glad you are feeling better Chevy! Fortitude for everyone out there. Hugs too.

    · Share on FacebookShare on Twitter
  • Holeinone
    Holeinone Member Posts: 2,478
    edited September 2015

    Rose, What a gift you are. Your example of compassion inspires me. Happy that you are able to tap your "keg" & feel somewhat better. Your reality is my fear, lobular friend. I had a raging case of H pylori 2 years before BC. Supposedly your risk of stomach is much higher after that bacteria is done. Wish I was closer to you to help with the driving. I am a weirdo, I love to drive. I should of been a trucker !

    Phlillomister, oh how funny when I start your name ! My trusty IPAD comes up with its 5 different names. Most involve the penitentiary or disturbing the neighborhood.

    Smarrty Pants ! Those quilts are lovely ! You travel & enjoy life with your passion. Your skills are apparent & hard work.

    Susan, likewise... If I had a grand baby, I would love to put an order in. The 2 of you make me think I could whip something up, besides corn muffins.....lol.....

    Mamma Ray, happy to see YA hanging out. Hugs to you. I always think of my kids, when I think of you. You & my son are the same age.....hope the rads are gentle to you.

    Blondie, hello Hello !

    Love coming here & catching up with you all ! So crazy busy right now with the 2nd move, & the rental is also for sale. 3 showings in the first 24 hours....... Arrggg.....

    Worried about sweet Patty......HOOTIE Hoo if you are lurking. Love you girl !


    · Share on FacebookShare on Twitter
  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited September 2015

    MR I found rads to be depressing in the beginning. Cried on the table a few times. Don't know if it's the basement/dungeon or what. Then I started imaging pacman chomping those cells.

    I'm fairly open about my tx. My family doesn't get it. I try to stay away from their drama. I have a few good friends but mainly it's you all on these boards. I get tired of it's all in the attitude or the bus analogy. I don't look like a cancer patient.

    I don't think cancer is on my 3 year olds radar either. This is how I've always been. She even asked why I had no hair in a pix.

    My 6 yr old? Not sure. He's learning about heaven and dying. It's normal for his age. Breaks my heart when we talk about it. I don't have any experience with this age group. I was a preschool teacher. I wonder about therapy for him/them.

    I don't want to make a big deal out of it. I want them to be children as long as possible. There's enough changes coming down the road as it is with divorce, moving.

    I haven't even told them about sx next week. Figured I wait until I saw the sx on Monday. It's supposedly a minor procedure and they will be excited about staying with gma for the afternoon and my sister is supposed to come in for the weekend.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    Morning owlies.

    Chevy, I knew sure as a dog chases lizards, that if I said a Prism was an ugly car, someone would have one. Should have listened to my Angel that said "Don't write that'. On the rollover thingy. The government rates all cars on everything imaginable. It focuses mostly on how to protect the occupants. The scale is 1 to 5 star rating. Crash Index, Occupant injury rating which is divided into driver and passenger, Rollover, theft, insurance, color, 5 mile an hour bumpers. The most advertised is Crash index. But a car can have a 5 star rating on a crash index and a lesser index on occupant injury rating. i.e Crash index--5,driver sider occupant injury 5, passenger side occupant injury 3, rollover index 5. I think that was the Stealth. So, if DS got in an accident & rolled over He had the highest rating of making it out , his passenger wouldn't fare so well.

    One stat that amazed me was a car could have a 5 crash index, but say a 2 on occupant injury rating. That means the car came through a crash okay, but the occupant didn't. I thought that wasn't right. Maybe later I'll bring the link computers locking up

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2015

    MammaR....... Some things I talk about, and some things I don't... If they ask, then tell them, but sometimes they are all like little kids... and just need to know the big picture, maybe not all that you are feeling......

    I'm going to the ER a little later... I just give up on this pain... It's only right after the Oxycodone that it doesn't ACHE as bad... And now my knee is numb! And it hurts in the front of my leg, up towards my thigh, and in my groin, and my knee gave away once last night...

    I think I am just DONE with this... I need to go find out with tests what it is.. If it has anything to do with the rod and screws going through my femur.....

    I might just send my girls a chipper little email telling them that... Because they all have advice.... and it hasn't been working so far. So no details, just that I'm having it checked out... Have a good day you guys..........xoxo

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    Rosie, YAY progress. HHis required to supply ALL dressing materials. None of this telling you to pick up supplies. BTW you asked long ago about tile. That board simulated tile is okay, definitely less slippery.I put in vinyl when I redid bathroom. Tired of cold feet and grout care. I really should do something with the rest of the house, but think I will not. .... Thanks for the nice words :)

    Jazzy, all fried at the fair. One training seesion for something. A demostartion was shaking up the blood( I think). Anyways, the fat in the blood solidified---icky

    Chevy, will you now believe me about Piriformis? It's the piriformis muscle. Butt has the Gluteus maximus and Gluteus minimus. You hurt the piriformis.Let me know if you want any suggestion. The pirifomis stretch will help. Pain will drive you too it. I second Spookie, a vacation will help. Except prolonged sitting will make it hurt worse. Those fireman are yummy.........can you imagine my typical class of 50 students had + - 40 fireman. Always had a few that were so into the physical and girl chasing thing.

    Gads I'm two days behind !

    Lillgoats is texas really like Sheldon and his mom make it out to be? Thanks for finding the priformis stuff that'll save time and effort. Can you C&P all the pages for piriformis?

    Gorgeous quilts Smarrty

    Zills, well.....yeah for a while, everyone's different. Read the Hot Flash Forum the first 30 pages. We worked very hard on the science and products that helped. The later pages aren't as good. Please, stay away from EFFEXOR. Docs are fixated on it working-----very nasty drug.

    Frechfrye YAY feeling better.

    OhPhyllisosillyandfunny

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    Mamma, used to share. Not so much after awhile. Basically here now or the government LOL Hugs on the rads treatment.

    Spookie, so right LMAO on the license plates...............their coming soon..........

    Blondie send me their number by pm and your name address and phone, city and County. Who is your State representative senate and congress and Federal. I'll also call Medicare. The name of your local newspaper? Name of Hospice? Name of that COSA spelled out.

    Kjones, Zills, and MammaRay check with the local pediatrics hospital. They have counselors(free of charge usually). The generally have them divided to age groups. They will provided age appropriate information. If they are close, they would likely have support groups for family and per-teen and teenagers.

    Pediatric hospitals usually cover so many counties. They provide lots of services for no cost. They are incredibly into helping the emotional, psychological, and mental health of children and family with serious conditions. Total wealth of services. Truly if all hospitals functioned like pediatric hospitals healthcare would be so much better all over.

    MammRay Kids in Akron is marvelous. Last I knew they covered 67 counties.

    LOverly--"bare anyone"? WE can deal with that, maybe BCO would mind though.

    Susan, WOW Talented to the MAX so cute. Would you make me one for a possible future grandchild. Larger for maybe a one year old? Burgundy for FSU, please? Gender neutral? Did you see that stuff on Jaw necrosis on that thread link?

    Holeinone details about the new house when you have time YAY a new house.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    Chevy ask about Valium as a muscle relaxer, Voltaren topical cream(it's NSAID), Lidoderm patches, the priformis stretch, Tylenol is NOT the best drug as anti-inflammatories go for your condition. See what else they suggest. Make sure all drugs compatible

    Proper walking, sitting, avoid doing anything for prolonged periods. Iceing and warming alternately as Loverly suggested. Piriformis stretch wihile laying on you back is the definitive stretch. Physical Therapy has others too

    · Share on FacebookShare on Twitter
  • Freygea
    Freygea Member Posts: 300
    edited September 2015

    Rose! That is such a loving gift. I hope you are able to get some answers as well as pain relief Chevy. The weekend is here, looking forward to it.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    You can make re-usuable ice packs.

    Fill a zip lock plastic freezer bag with 1 cup of rubbing alcohol and 2 cups of water. Try to get as much air out of the freezer bag before sealing it shut. Place the bag and its contents inside a second zip lock freezer bag to contain any leakage. Leave the bag in the freezer for at least an hour. It will be slushy. The alcohol prevents hard freezing. The bag being slushy allows it to mold easily to any area

    Make several. Refreeze when it's lost it's cool.

    · Share on FacebookShare on Twitter
  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited September 2015

    Ladies you have certainly been busy. I found this link Sassy. It sounds rather good but for sure there are others. Not sure I can C/P all of that. I'm on my way shortly to DD's. She is on her way to Boston tomorrow at 0 dark thirty via Southwest. She is going to see the guy that came to our "camping" trip in April. Think this may be serious. My little girl (28) is growing up. Mama has to turn loose. Anyway I'm driving her to airport and then picking her up next Saturday. While I'm in Big Dallas I'm going shopping. But have to stick to the main parts of town, not the burbs where most of the really great shopping is. Might get to do some of that Saturday.

    http://triggerpointrelief.com/cdrom/piriformis.htm...

    Sassy might have something to say about this and for sure Chevster you follow your doc's instructions. Yup Sassy I found those ice bag instructions for making for DH's upcoming tooth surgery.

    Rosie - Agree that HH has to supply everything now. Surely HH is going to reimburse you or you have a HH account with Pleurx. You are so generous and hope DH follows thru with your wishes.

    HoIeinone - yes details on the new house. Pits you have to move/clean and show a house for sale that's not yours. You win my award.

    Sassy - I don't watch Big Bang. What do Sheldon and his mom says about Texas?

    Susan - Your sweaters are works of art. OK DD/SIL won't be that far away from you for his residency with any of those 3 choices. If he gets OK esp OK City area maybe we can meet. I can certainly get that far, have been to Norman (south suburb) for goat shows.

    My DD knows most of what went on but certainly not day to day since she doesn't live with us now. I did finally last year show her my surgical scars. I have really only her and DH and he really doesn't want to hear much. My DB lives N of Dallas and we're not really close buds, OK relationship just not close. We went out Sunday and cut logs. DH was like " let me do that" picking them up - now most of them were rotted/very light. I said "I'm stronger than I make out to be" which he laughed at.

    Zills- I would think the oph. itself (hot flashes might be something else) would be just a blip compared to what you've been thru. Prob. restrictions on lifting which might be a pain for you/DD. Plan on how you would do diaper changes, can she climb up on something you can reach? Glad your mom/sister can help out.

    MammaRay - praying for those rays to zap the buggers.

    Howdys to Loverly, Phyllo, Frey - good to see you back and howdy to anyone else I've missed. Off to feed goats then get my act together.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    image

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    image

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    Image result for funny cars

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    image

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    OOPS wrong thread

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2015

    Susan, love the sweaters!! I can knit a little, really can't follow a pattern.

    Good thinking on the sweater Sas, garnet or gold?

    DAH is going to be a chit about Christmas, my next project is to find a 3' fake tree. Went to Christmas store, a HUGE thrift store next block up. Oh Sas🎶🎶.

    · Share on FacebookShare on Twitter
  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited September 2015

    Susan: avid knitter over here, impressed with your work.

    · Share on FacebookShare on Twitter
  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited September 2015

    Oh Gosh Spookie. DH (maybe not dear in this instance) still talks about the Christmas we all had the flu and did no decorations. Could be your DH's brother lol.

    I have one of those skinny trees 6' maybe, I can't reach the top lol. I have the ceiling height for a bigger one, but not the floor circumference for it.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    There are collapsible trees, that are fairly thin at the bottom. Solutions catalogue has them.

    I am so procrastinating and it's cold an rain. I have to put socks and my warm and fuzzy bathrobe

    Spookie let me take a look for trees cheap.

    Susan, could you make it in FSU colors. Spookie's right burgundy is NOT FSU's color. She read my mind.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2015

    Solutions pull up 149

    http://solutions.blair.com/p/7-ft-lighted-pop-up-tree/53950.uts

    Improvements catalogue pull up, on sale 119

    YouTube link about pull up tree's

    https://www.youtube.com/watch?v=7jTssuGQQnQ

    Amazon. reviews weren't good

    http://www.amazon.com/Collapsible-Christmas-Tree-with-Lights/product-reviews/B000II338A

    Overall the review aren't great for the prices. But several worked out solutions for the problem. The worst was the center pole could be seen. One gal wound a garland around it and another gal wound pointsetta ribbon.

    · Share on FacebookShare on Twitter

Categories