What percentage ER+ and how many years NED?

TectonicShift · August 2015

.

NancyD · August 2015

Wow, it's been so long since I thought about this, I had to go dig up my medical records.

I was 100% ER+, and it's been seven years.

Edited to add that the PR was positive too, but not as much as ER. And at least one node had extranodal extension.

Momine · August 2015

100%, close to 4 years so far.

jenni__ca · August 2015

98% ER+ (PR and HER2 negative) and eleven years dancing with Ned ....

sbelizabeth · August 2015

98% ER+ (can't remember the PR%), almost four years.

Momof2inME · August 2015

11% ER (4 years in Nov.)

sas-schatzi · August 2015

Deleting b/c I don't fit Thanks, Good health to all

Kathleen26 · August 2015

95% ER, NED for 5 years.

KSil · August 2015

95% ER - Approximately 2 1/2 years and doing very well.

Elizabeth1959 · August 2015

99 % ER and PR positive. 5 years. Doing well. Still worry about future

sas-schatzi · August 2015

Tect, I had a brain tumor and thyroid cancer. They are not supposed to be connected. So, I can't specifically say I'm NED. What was nicely amusing is when I first posted, I said I'm NED 6years, 94% ER+, 6% PR so technically per the doc I'm a ER+ 100%. then I remembered the other two problems. Nice to forget that kind of thing.

wrmbrownie · August 2015

Wow! You guys have really large numbers! Mine is 80% for both ER and PR.

weesa · August 2015

This is interesting! Thanks for thinking of this,Techtonic. I was 95% ER and 85% PR and have been NED for almost 13 years. weesa

wintersocks · August 2015

100% er, will be dx 3 years at end of the month.

SharonMH · August 2015

Hi, I am 96% ER and 73% PR and Ned for 6 years and doing very well. SharonMH

Annette_U · August 2015

I was 100% for both - dx April 2013- 2 1/2 years. So far good but getting prophylactic total hysterectomy and ooph in September. I have SE's from tomoxifen.

Holeinone · August 2015

I am 69% ER, 4% PR.

2 years post dx......

hopefour · August 2015

Hope you share any wisdom you gather from all of us stating our %!! I am 95% ER and 95% PR...It was interesting to see some say "am" and some say "was"...I went with am! I was four years since DX this past May.

Madicyn · August 2015

95% ER 5 years post diagnosis.

YATCOMW · August 2015

100% ER and 98% PR

Stage IIIC.....17 nodes.....8 cm tumor

Finished 11 years this may......going for a dozen;) and then some.

Jacqueline

Lucca06 · August 2015

100% ER 50% PR - 4 1/2 years since diagnosis and 4 on Sunday since mastectomy.

Lolis197138 · August 2015

95% ER and 85% PR - just over a year since diagnosis :-)

KayaRose · August 2015

All these high percentages have me worried. I'm only 25% ER and 50% PR. I just finished a year of treatment and am now on anastrozole. I hope with such low percentages, it's worth taking. My MO said the guidelines say any positive percentage makes it worthwhile. Fingers crossed.

peacestrength · August 2015

80% ER, 70% PR and another test indicated 80% ER, 2% PR...2+ years and counting...stage 3a. Anyone have androgen tested?

caaclark · August 2015

I actually can't find my stats in my files but I am fairly certain I was 95% ER+, slightly PR+. Extra capsular extension too.

9 years 7 months out from diagnosis-but who's counting?

123JustMe · September 2015

Bump

AusUSA · September 2015

Thank you TectonicShift for asking this question!

I'm just in the middle of my TC * 4 chemo treatment and have been on a rollercoaster ride of thoughts going between "I'm going to die next year" and "I'll live another 43 years!" One of my big questions is the ER+ and lymph node involvement (including extra nodal extension).

I'm 95% ER and 75% PR positive.

Huge 96mm/3.8 inch ILC tumor and 4/13 nodes (one 6mm with extra nodal extension).

Will have radiation after chemo which will finish Christmas. LOL

So, I'm not contributing to the stats of the thread, but I hope more people respond.

I've looked at those of you have have put your BC diagnosis at the bottom and was "happy" to see many of you were like me, in Stage 3 with large tumors, both ILC and IDC, and nodes involved.

IT GIVES ME GREAT HOPE!!!

I have 2 young children to raise into young adults and future grandchildren to spoil.

Thanks all,

Chris (Milwaukeean in Melbourne, Australia)

mary625 · September 2015

I'm at 4 years now. I believe I was 100% ER positive on both biopsy and path, and 80% PR positive on biopsy but 100% on pathology. I had 10 positive lymph nodes even AFTER chemo, and all of them had extra-nodal extension. Feeling good and planning to make that 4 years into 8, then 16, etc. Oh, yes, on Femara for sure.

123JustMe · September 2015

bump

TectonicShift · September 2015

.

123JustMe · September 2015

Bump

What percentage ER+ and how many years NED?

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