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Stinky914
Stinky914 Member Posts: 3
edited June 2014 in Caring for Someone with Breast cancer
Hey guys, I hope this is a place where i can make my introduction! My dad was diagnosed with Metastatic in April of this year and i am so excited to find a place where i can talk to people who are really going through the same thing. I do not know all of the medical details...so i will try to explain his situation is the best i can Like i said he was diagnosed in April of this year at 51 years old... despite having a lump (thought it was a pimple or something) he actually ended up going to the doctor because of severe hip pain. Turns on he did in fact have cancer that had spread and almost completely eaten away at his hip. Also found spots on his lungs. So he had immediate radiation and meds which really helped the hip and he was finally of crutches in August. Well, a few weeks after he was so excited to finally be feeling better we noticed a droopy eyelid. Well we asked the doctor and after immediate MRI, turns out there were little spots in his brain. Radiation again.... shaved head this time. Thats about to where we are now. At last appointment the "spots" of cancer were no worse, but not really any better. Today he started a new round of meds that we hope will increase the effects of the Tamoxifen (i think that is what it is).

His doctor has said that although he obviously cannot determine how long he will be able to fight this the average lifepan of people with this disease is only 18 months. After i heard this, thats when i decided i need to find people to talk to... perhaps to help encourage me to stay optimistic. I was really caught off guard to hear this because he had been feeling better recently. I cannot imagine not having him around in two Christmases.... that is so short. Its so hard to hear things like "I want you to make sure you have your kids listen to this album (Dark Side Of the Moon)" he didnt actually say it, but i know he meant because he probably wont be there when i have kids. This was the first time he said something like this and it really hit me.

Anyway i'll stop rambling now but thats my story so now you know who i am when i jump into your conversations!
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2006

    Post deleted by bco-administrato

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  • Stinky914
    Stinky914 Member Posts: 3
    edited October 2006

    Wow thanks for the replies everyone...

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  • nowheregirl
    nowheregirl Member Posts: 894
    edited October 2006
    Hi Stinky, (How I hate to call you this way!)

    I'm so sorry to hear about your dad's situation. I don't have metastasis that I'm aware of so I don't think I have much to offer. However one thing I can tell you is that your dad is NOT the statistics. Screw them. They're outdated and no one knows how much time we have here.

    There's a section on this forum that is directed at those with the metastatic disease. Go there and ask whatever you want. I'm sure you will get more of information and support that may help you go through this.

    Hang in there sweetie. Sending a lot of positive vibes your way across the ocean.

    Hugs,


    edited to change the subject line back.
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  • Shemp
    Shemp Member Posts: 89
    edited October 2006
    Quote:

    Wow thanks for the replies everyone...



    A lot of people are gone over the weekend. This isn't a terribly busy section.

    Anyhow, as Timtam noted, the statistics in many cases are outdated, even those expressed by doctors. We ran into that firsthand. Fortunately, I don't know much about mets, but do wish your pops the best. Timtam also mentioned the other subforum which will likely be of more benefit when it comes to battling mets. Scary wake up call/reminder for us guys that it's not just our spouses, mothers daughters that can be victims of bc.
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  • Stinky914
    Stinky914 Member Posts: 3
    edited October 2006

    I apologize. The only reason i said that was because at the point i posted that i had already had 50+ views and only that one reply (which had nothing to do with my post! lol)

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  • rosieS
    rosieS Member Posts: 83
    edited October 2006

    I am very sorry your Dad has to deal with breast cancer. You might try posting in the forum for men with breast cancer or the metastatic forum. I am sure you will get more responses there.

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  • why790
    why790 Member Posts: 1
    edited December 2006

    I have been looking for a place to ask a question. My sister-inlaw has been fighting breast cancer for 7 years. She has liver mets now. I am looking for info to help her start social security disability. Her place of business closed as of 12-22. She has chemo every 3 weeks and knows that it is going to be difficult finding a job with her illness and chemo schedule. Wondering if anyone can point me in the direction on disability. She found out today that it could take 7 months with no income before collecting. She has fought and worked for these 7 years and cannot live without an income.

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  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited December 2006
    you can do a search on the recurrance/mets thread. There are several references there to SS Disability. Stage 4 cancer is an automatic approval as it is a terminal illness. Doesn't matter how long you have to live you are granted the money so you can not worry about working around all your tx schedules. You do have to work so many quarters prior to applying to be eligible. Once approved it takes six months from your last work date to get your benefits. So yes you do have to go a certain amount of time with no income. You also are not eligble for medicare until 2 years after your SSD approval. So sorry your friend is having to go through all of this.

    LuAnn
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