TRIPLE POSITIVE GROUP

Susan

Except for the D & C , I have pretty much all the same S/E's & more. My cholesterol numbers have totally reversed! ????? If I wasn't so averse to more meds I would be on sleeping pills, anti depressants, pain killers, muscle relaxants etc

Don't think I'd be able to work anymore. I know you love your new job but it must be physically challenging with the SE's. And with the added stress of your domestic life....well ..you are one amazing lady to get through it able to laugh and even make others laugh

My hands & lower back bother me the most. I started art classes and yoga after the Hercetin year . They have both helped my physical & emotional recovery enormously. And now I'm struggling to do each of them because of the arthralgic side effects!

I made the decision to stop the med but my doctor is pushing me gently. I am so grateful that I have such a compassionate, caring MO! This is so important..I'm not a healthcare professional like you but he always takes the time to explain complex matters( like the way the various hormonal therapies work) to me . Never rushes me.

Would be wonderful if we could get together one day...and have some FUN! All you working girls would have to set the agenda because of your schedules. I can meet you guys pretty much whenever, wherever.

I'm in Florida( no cabana boys tho) during the winter & NY the rest. Have room for about 4( comfortably) in each place.

You are invited....

Elaine great news!!

Nope, my lump disappeared but I ended up doing all of my chemo. An ultrasound is fine, but PET scans and MRIs are more sensitive. Furthermore, a pathological complete response can only be verified by a pathological report AFTER surgery. Hope you have one!

Musosgirl I had surgery before chemo so no tumor shrinkage. I still did all 6 tx of TCH. Chemo is not just for the local tumor but also to zap any defectors that might have moved to other parts of the body.

Muso, I did all 6 cycles. Yes, the tumor shrank after the first round, and by three rounds could not be felt or detected on ultrasound, but I still did all 6 cycles. As lago says, it's good to have all of the treatment, in the hopes of killing every single last errant cell.

I haven't been posting for awhile on this thread but lurk regularly. Congrats to all the folks finishing treatment and having exciting cancerversaries! Thank you to Lago and SpecialK and all the others who stick around to encourage and inspire us! I'll finish Herceptin in November and look forward to that milestone and especially the port removal that comes with it! It's also hard to be hitting a year from Dx this month and still be in treatment and struggling with AI side effects. Makes it so hard to move on to "new normal". I don't want a new normal where I feel 20 years older than I am!

TTfan I've always hated "New Normal". IMO we all change every day regardless of cancer, cancer treatment or not. It will take at least 2-3 years to realize you do feel like you. Sure some changes but we all have changes. I do not feel nor look 20 years older. Most people still think I'm in my 40's.

Hi. Just wanted to congratulate Lago on 5 years NED. Lago, I am a 'fan' of yours as well. I am currently in the middle of AC & TH. I would like to thank, You, Toni Lee and Special K for your informative and positive posts. Please keep them coming. I am following from New Zealand and find this forum very useful.

Yoshi my family almost moved to New Zealand back in 1972. Nixon got elected for a 2nd term (by I belive the biggest landslide) and my dad was so disgusted. Had a job lined up and everything but my mom didn't want to give up her American Citizenship. I think that

hang in there. It does get better.

Bone pain is different and than stiffness but discuss this with your oncologist. 2 of my friends didn't know they had mets till they broke something.

Just found out that I'm HER2+, score 3+ and ER&PR + and am still reading about what this means. My onc will be going over my chart with the tumor board next week and before the addendum path. report came back, I was given the all clear with no further treatment necessary as my IDC was stage 1A and my nodes and margins were clear. I'm seeing people in this thread who had negative nodes getting hormone and chemo therapy after a Uni or BMX and would like to know why? If the surgery removed the cancer with clear margins then the cancer is gone. Why the need for Herceptin? I can understand for people who had a LX or UMX done as it decreases the chance of recurrence in the same breast and/or remaining breast but why the need if both breasts are removed? Her2+ is a breast cancer mutation so if the breast cancer is gone, why target therapies at it? Does it continue to exist inside the body?

I'm doing neoadjuvant THP and plan to have BMX surgery sometime this winter. Reconstruction at a later date. I'm wondering with the +++ diagnosis what the likelihood of radiation is. I know it's really a question for my oncologist, but I figured I could ask here and get reliable answers!

Thanks guys. But HER2+ is a breast cancer specific mutation so how can it cause cancer in areas outside of the breast?

I also had a CEA and CA 27.29 test and both were in the normal range.

Based on everyone's signatures, it seems that the liklihood of me remaining treatmrnt free is low.

What do the following mean: NED and MO?

I got my first cycle of TCHP today. Waiting to see what SE hit me.