MIDDLE-AGED WOMEN 40-60ish

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  • KJSUN
    KJSUN Member Posts: 44
    edited August 2015

    MinusTwo, funny you should say that about the salt, water tastes like it has a tiny bit of salt in it. Strange.

    Thanks elimar, most things are still off but I have no problem with saliva, even though I should have dry mouth, because of my autoimmune disease.

    glennie19, sounds like I need to focus on protein and getting enough to eat rather than if it is "bad" for me.

    I think I need to do some grocery shopping and find some foods that are easier for me to tolerate. Maybe I need to stop and get a burger on my way home!

    Thanks ladies!

  • Momine
    Momine Member Posts: 7,859
    edited August 2015

    KJ, I am usually pretty careful with what I eat, and that was before cancer as well, but during chemo anything goes. I found it helpful to stick to a meal schedule. That way even if I only ate a little, at least I ate regularly. I also loved nasty texmex from TGIF and other crap like that. Eat whatever appeals and find some things you can choke down even when nothing appeals. Green apples worked for me, with a little almond butter

  • KJSUN
    KJSUN Member Posts: 44
    edited August 2015

    Momine, You are so right on the meal schedule. I couldn't find anything in the house that I wanted, so I went to Tropical Smoothie! I've found if you ask for 1/2 the sugar it is still good. I was able to drink about 1/2 of it, they are sooo big! I made my husband take me to the grocery today, I didn't last too long, but got some good stuff. Luigi's ices, I like the lemon., organic grapes, grass fed beef and some other basics. I had to make sure what was bought, my husband doesn't understand the change and the weirdness of my taste buds now. Not that they weren't weird before. Lol

    I was wondering, the Taxotere causes hair loss but I haven't lost all of mine. I am only half way through my treatment, 3 more to go, Will I lose more of my hair? I know everyone is different but has anyone continued to lose their hair? I don't care either way, I was just wondering. Neuropathy has spread but I know it is not always permanent. I now know that the week of chemo is a bad week. I can't do anything. I am sick for days.

    My MO says my liver and gallbladder are slightly enlarged, I had an ultrasound. They don't know why. I have a slight bulge on my right side but it doesn't hurt. I have a referal to see my gastroenterologist in 2 weeks so we shall see. Always something odd going on with me.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2015

    KJSUN, I know you want to be as aggressive as possible. That is understandable. Just make sure to report any and all SEs to your doctors, and don't underplay them. Your neuropathy that "is not always permenent" just might be, and there are women who cannot pick a penny off a table or button their own clothing because of CIPN (chemo-induced peripheral neuropathy.) Sometimes people feel that they stoically have to suffer through all the collateral damage to their bodies and finish every last bit of the chemo, but sometimes it really is too much for the body to take. Listen to your body, tell your doctors. The docs only have numbers on paper to go by, and what you report to them, so how you are feeling really matters.

    "We want to kill the cancer, we don't want to kill you," is what a doctor said to me.

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited August 2015

    Very well said!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2015

    Thanks for posting that Eli. I too was going to say something about telling the MO. They will often reduce the dose of the Taxotere if you have some neuropathy. I wish I'd chosen that option.

  • KJSUN
    KJSUN Member Posts: 44
    edited September 2015

    Thanks elimar, I will make sure to tell the nurses and my MO when I see them next. I will try to make notes on all SEs that I notice, of course I never remember when I am at my appointment unless I have them written down. I am going in for fluid on the Mondays that I don't have chemo because my blood pressure is low, so I can tell them then.

    I am taking more control of the food I eat. I ask for what I feel like eating, not just what is healthy for me. I find I am not as hungry as I was a couple months ago. I do have to remind myself to eat more frequently. Good news, I will lose some of this weight!

  • BookLady1
    BookLady1 Member Posts: 253
    edited September 2015


    Hi, all. Wow, I've been meaning to write but I get distracted by all the beautiful men pics.

    KJSUN I hope you are eating whatever the hell you want and are having a peaceful night

    Glennie - Austin is still weird - a little too hip these days, but weird at its core. I've been reading Pink Ribbon Blues by Gayle Sulik to prepare for October, and just received Louise Penny's newest. How bout you?

    I'm having major neuropathy pain waking in my left hand and forearm most night. Usually happy with my MO, but Gapapentin for nerve pain isn't cutting it. I'm getting accupuncture and starting PT for range of motion issues with that side. I want to be done with SE's and get a dog!!! Linda

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2015

    hey BookLady,,, I'm reading Sara Paretsky's latest. I need to look for Pink Ribbon Blues,,, how are you liking it? Sorry gabapentin isn't working for you. Are you on a high enough dose? Maybe try Lyrica instead, if your insurance will cover it,,, it is not generic and it is damn expensive. Glad Austin is still weird at the core,,, it's important to maintain a certain level of weirdness.

  • KJSUN
    KJSUN Member Posts: 44
    edited September 2015

    Thanks BookLady1, I am definitely choosing more of my own food. I am not eating as much as I was before even with "the good stuff", but at least I can enjoy it! I hope you find something that helps with your pain. I know people that have had great results with accupuncture so you never know. I have been taking Lyrica for years and am very happy with it, I hope your insurance will cover it if you decide to try it.


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2015

    Booklady - thank heaven's for Austin. Let us know about the new Louise Penny. She is a gem.

  • 6doggies
    6doggies Member Posts: 96
    edited September 2015

    Hi Ladies, I have an embarrassing question, my BF and I tried to have intercourse this weekend, first time in a while, and it felt like razor blades stabbing me, we even used lubrication, have any of you ladies had this happen? I think that my body has changed so much from Chemo and now radiation. We stopped and I went into the bathroom, I was bleeding a little and it burned when I went to the bathroom but the bleeding stopped. I have my annual gynecologist appointment next month and I start Tamoxifen on the 21st of this month.

  • treelilac
    treelilac Member Posts: 245
    edited September 2015

    6doggies: This is what I found on AdjuvantOnline about the SE of Tamoxifen. If you scroll down, there is more information. I think you should still discuss with your doctor since you went through chemo (also a contributing factor) but haven't started Tamox until the 21st. :)

    Please also refer to this.

  • 6doggies
    6doggies Member Posts: 96
    edited September 2015

    treelilac, Thank you very much!! :)

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2015

    6doggies, I have never used this, but a friend of mine mentioned using gynecological lidocaine to not feel that pain from rawness. She said that her Gyn. told her that after menopause, we not only lose out lubrication but the tissues actually thin out and get irritated quicker. I do know that a lot of our chemos effect the rapidly dividing cells of the body, like those found in the epithelial linings of our mouth, stomachs, and vaginas. As treelilac pointed out, the Tamox. is probably going to add to the problem. Let us know what your Gyn. has to say.

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2015

    I would definitely ask the GYN,, but one friend with BC told me that she uses coconut oil for lube. All natural and smells like a pina colada.

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2015

    And unfortunately, this is not a problem I have any experience in since I haven't been in that "position" since 2003! (I know TMI) Hope you find a solution 6doggies!

  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited September 2015

    Oh crap! I missed the party! But I sure enjoyed looking through the pages at all the delicious food and drinks! And the guys, oh the guys! Who is Jax? They're both my type - in fact they're all my type! Elimar, who was that luscious guy that had some completely unnecessary chocolate on his hand?

    I'm so glad I postponed opening my store until after this insanely hot summer! People were not out strolling around here in Atlanta and I would have probably passed out from heatstroke with all the physical labor involved. So now I'm looking at mid-October.

    I was planning on October 1st, but on September 30th I have an appointment with the Emory Back Clinic to see what's going on with all this back pain. I'm sure there will be a lot of physical therapy to begin with so I need to schedule the store opening around it. I wish they would give me some pain pills, but I highly doubt they will. I asked my PCP for some and I could sense his sphincter tightening up, haha! I've never asked for pain pills in my life so I said, "Just like 4 or 5 a month. That will help me be productive on the worst days." He just kept saying, "You don't want to go down that road." Yes I do! I do!

    Then I told him that I was having a hard time getting my Vitamin D levels up. STILL in the 30's after 5 years of trying! So I asked him what he thought about me going to a tanning salon to up my Vitamin D. Again, sphincter tightening! He said, "You don't want to do that. You can get skin cancer from those." I said, "Yeah, in 20 years! I'll be dead by then." Oh my, all this smart-aleckyness probably went into my chart.




  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2015

    HnS so good to "see" you!!!

  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited September 2015

    Hey Eph! I meant to tell you how happy I am you got that job! It sounds so interesting, something different everyday. I used to work in the ER department on weekends, just in medical records, but we saw a LOT of crazy stuff. I always thought I might like to be a 911 operator.

    So you're a dispatcher? You get the call from the 911 operators and radio it in to the police? That sounds so exciting! What are your shift hours again? Anything crazy happen so far? NOT in Oregon!!


  • LivingThis
    LivingThis Member Posts: 38
    edited September 2015

    I have always wanted my own posse! All I needed to do to become a member of this club was be 55 years old and get breast cancer! It is nice to see the humor, support and information on here. What a helpful group! So glad I found this site. I was diagnosed 2 days ago and have been reading the newly diagnosed forums non-stop. I have to pace myself - -I get infomation overload

  • 6doggies
    6doggies Member Posts: 96
    edited September 2015

    090815, I hate to say welcome to the club, not so much the club of BC but the club of wonderful woman. I read anything and everything about BC when I was first diagnosed last year, I'm on my last treatment of radiation today, so excited, 11 months of treatment finally done! These forums are so helpful and keep you going, even when you feel like you going to go over the edge. You will get a lot of information coming your way in the next few weeks, so please make sure that you take someone with you to your appointments and start a notebook, it helps so much. Sending you a big hug!

  • LivingThis
    LivingThis Member Posts: 38
    edited September 2015

    Thanks for the support! I really appreciate it!

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2015

    hello, 090815, and welcome to the middie party group. We are sorry that you have to join us,, but since you are here, hope you will have some fun with us.

    6doggies!! Last treatment!! It is party time!! Sending you virtual ice cream and cake.

    HnS: damn your PCP! 4 or 5 a month is nothing!! Jerk-face. Let him live with pain and see what he does. Hope the Emory back clinic can help you. How much Vit D are you on? Maybe you need to switch brands? Some are better,,, better absorbed than others. Or you might need to raise your dose. Can you do 20 mins a day in the sunshine? (when you have some,,, raining a lot here)

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2015

    090815, How well I remember those first horrific weeks where I had to read my eyes to bloody sockets every day to learn about my disease. BC robs a lot of our time. Boy, do I hate that. Try to squeeze in some normal daily activities--that you like--just for your mental health. Before long, you will have a treatment plan, a timetable to take care of business and as far as that goes...as one of our Mid-Age sages once said, "You don't have to be brave, you just have to show up." As you read thru' the virtual ocean of BC info., let us know if we can help demystify anything. BTW, having BC and embracing your middle age gets you into this group, but you get a membership upgrade if you have a well developed love of Cheetos (or can convincingly fake it.)

    5doggies, congrats on finishing up with Rads today!!! Wait, let me express that in "dog."

    image

    HnS, That chocolatey delicious hottie? I don't know. I just call him "baby." (No doubt I am old enough to be his mom. Eeeek!)

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2015

    Do Nacho Doritos count instead of Cheetos? *just wondering*

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2015

    HeartNSoul - why don't you push for a referral to a pain management specialist? The heck with the PCP. I agree - let him eat pain (or something like that).

  • Tomboy
    Tomboy Member Posts: 3,945
    edited September 2015

    Glennie, I'm thinking that nacho doritos do count! They turn your fingers orange, don't they?? I used to spend my babysitting money on them when i was a teen. And then, not for years and years, hardly ever. Then, somehow, during chemo, I craved them! But not the regular kind, the spicy hot kind! I ate them every day for months, my fingers were perma-orange!

    Heart, Jax is Charlie Hunnam, He played in that series, sons of anarchy. I was pretty sure I didn't want to watch a series about bikers, boy was I wrong! Jax kept me coming back.Image result for charlie hunnam And all the awfulness of the characters, but great acting!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2015

    glennie19, Those were my first snackin' love, ever since Junior High when (as I mentioned not too long ago) a daring lunch consisted of leaving the J.H.S. grounds to go get Doritos & a Frozen Coke at the newly opened 7-11 Store. They contain msg to the high heavens, but I still have to go down memory lane with them once in a while. So--yes--we can apply those to your Cheetos requirement in a pinch.

    T-boy, I watched that series, mostly on Netflix, with my DH. My fave outlaw biker was "Chibs" (with his thick Scottish brogue) and it was a running joke for every episode that after he had some dialog, I had to ask DH, "Whadda he say?" Yes, I ask it for seven seasons straight, and my husband never once told me to give it a rest...and THAT, my dear Middies, is why my hubster is a keeper!

    ---------------

    Well, it's been about 2 weeks since I went to the MO and I don't have my CMP or CEA results yet. Did get CBC results right at the appt., and it was perfection. I'm thinking that no news is great news, since if something looked wonky they would have phoned. If I don't get the hard copies in the mail this week (for my massive collection,) I'll ring them up. Guess what, I forgot about it completely all last week. Now that's progress!!!

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2015

    That is progress, Elimar,, and THAT is a HOT PINK phone! Wow.

    Glad everyone agrees that nacho Doritos count,, now, if I only had some,,,, **craving**

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