Starting Arimidex today (July 15, 2015)

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  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited August 2015

    As y'all are saying, it's hard to know exactly what is causing what. Last week I was in the black depths of depression--this week not so bad. Actually I'm counting my blessings after hearing of what some close friends are dealing with in terms of illness (cancer and other things).

    I'm having almost constant, very mild hot flashes, but maybe that has to do with the temperature being over 100. It will be interesting to see what it feels like in the winter time.


    Tbayer said: This is my 2nd time around with BC, more treatments this time. I can only take it one day at a time.


    Oh my, that is so scary and the last thing any of us wants... but it does happen. I'm so sorry. And you're right: admitting your powerlessness (in the Big Picture) and taking it one day at a time are important. Hugs to you.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited September 2015

    About a week ago, my right knee started hurting...actually it was in the middle of the night and the pain woke me up. I generally walk for an hour every morning, and I didn't stop...and as the day wears on, the pain does diminish somewhat. The pain never goes away. I've been taking IB, icing it, but I suspect it's here to stay and I just need to get used to it until it goes away. Or doesn't.

    Last night, my back was bothering me. Not excruciating pain or anything, but just an all over ache that would not go away. I couldn't get comfortable for love or money. Finally fell asleep about 5:00 am. Holy cow. Now I'm at work and the ache continues. Is this my life from now on? <sigh>

  • Pheasantduster
    Pheasantduster Member Posts: 2,905
    edited September 2015
    Gratitude- as I mentioned before with regard to aches(severe leg knee pain) my Primary Care Dr recommended that I try
    Co-Q-10, a supplement over-the-counter. It seemed to help me a lot. Unfortunately, I suffered from gassy, watery diarrhea. I stopped the Co-Q-10 and the Exemestane for a couple of weeks till feeling better. Starting back on exemestane every 2nd day for a couple of weeks, then 1 every other day, and if things behave, I'll take one ever day. Please note: this is MY decision. Let's see how I manage.
  • sebm9
    sebm9 Member Posts: 501
    edited September 2015

    I've had no problems with Arimidex. Short history: I had lumpectomy, chemo, and rads with boost. I used Penguin Cold Caps during chemo so kept my hair throughout chemo, and I had very few SEs from chemo either -- even my bloodwork stayed normal throughout. Went on tamoxifen for 1+ years then went into a very sudden and fast (3 week) full menopause. I'd been having lots of SEs on tamox and was both grateful and wary of switching to Arimidex. After two weeks I developed excruciating bone pain, even the bottoms of my feet and my toes hurt. Then I remembered that during chemo, when I had my neulasta shots, the nurses told me to take Claritin the day before and for 3 days after, as it relieved bone pain. So, I hobbled to the medicine cabinet, popped a Claritin...and overnight the bone pain disappeared. I take Claritin every day and have not had an issue. My doctor now tells her patients to try this if they have issues. I posted this on the board, and other women immediately also noticed results. I found it depressing to read the boards, to be honest, so stopped. If I'd been having SEs then it would have been helpful. I take mine at bedtime.

    I find it a little harder to keep weight off -- I'm very active -- and have given myself occasional 1-2 day breaks. I always notice a reduction in bloating and seem to lose a pound or two when I do this. I've put on about 5-7 pounds that just won't come off but nothing to worry about. I was worried about bone density, but began training in aikido (a Japanese martial art), in part because I'd always wanted to but also because I wanted to learn to fall safely without injuring myself and breaking any bones. My first dexa showed that I now have the bones of a 25-year old, my baseline was a healthy age appropriate. Next week I expect to get the all-clear from my doctor to stop, as I'll be at the 5-year mark. (Unless there's new info suggesting that continuing has benefits.) I have been a 1-mile/day swimmer for almost 30 years, and also hike, do strength training, and other activities.

    If my doc suggests I continue, I am absolutely fine with that, as I consider myself free of SEs from arimidex.

    I try to keep in mind that with any drug, there is always a menu of potential SEs and every woman will respond differently. I decided not to worry in advance about things that hadn't happened yet or might not ever happen. That thinking has served me well throughout all of my treatment steps. And I'm healthier and stronger than I have ever been in my life!

    Susan

  • Dromedary
    Dromedary Member Posts: 26
    edited September 2015

    Sebm9, that is an encouraging and inspiring post. Thank you. So happy for you that it hasn't been so bad and/or you have found ways to deal with the low points.

    I went through a very down period after about 4 weeks - lots of pain in the knees and ankles, putting on weight, coming to terms with 5 years more of this crap... Onc put me on Effexor and after a couple of weeks I began to feel better. My head is certainly in a better place - the body is variable! I try to walk for an hour and/or do Pilates 5 days a week. I'm certain the exercise helps, and clearly from an osteoporosis point of view, it WILL help. I'm pretty lazy so I have to force myself sometimes but Sebm9's post has given me a boost. I haven't tried Claritin but I think I will.

    Otherwise, I just don't have the energy that I used to, but have gained quite a bit of weight - about 12lbs since January/surgery - so that could be a factor and I have to keep an eye on it. I don't want to "give in" to this - I don't want to be overweight, I don't want to feel older than my age, I don't want to be a gloomy pain in the ass and I have to believe that I have a choice, and not give in.

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