Winter rads 2014-2015

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  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited August 2015

    WndrWoman ~ Wow! I thought we have wind. So glad all is well at your home and no one was severely injured. We're you home when all of this was going on? How terrifying that would be!

    We lost a big part of an old cottonwood tree at my studio earlier this year, and the rest of the tree will be going soon, I'm sure.


  • WndrWoman
    WndrWoman Member Posts: 333
    edited August 2015

    The rain was so heavy we couldn't see out the windows for 15 minutes. Roof was pummeled by acorns and leaf clusters and branches. It was a severe thunderstorm with microbursts. Oddly the force of the winds is downward and swirling so no one I know has any broken windows. Our rose bush did not even have a petal blow away while the ground is littered with acorns. No power, no phone still. But I lost 15 pounds in my 10 week program so cutting back on the estrogen troublemakers. I always wanted a Japanese Maple and now there will be space and more light in the backyard.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited August 2015

    Windwoman, glad you are ok. Did I understand that you were able to cut down on estrogen suppressants due to weight loss? Love, Jean

  • WndrWoman
    WndrWoman Member Posts: 333
    edited August 2015

    Fat cells contain estrogen. Post menopause, fat is one of the main sources of estrogen. I may not have my science exactly right. One source I read said losing weight does not mean you actually get rid of the fat cells once you have them. That made me think some of my cells have deflated like Tom Brady's footballs. No matter how it works, being overweight or obese is a risk factor for a recurrence (or for breast cancer in the first place). So I am working on improving my eating and losing weight and exercising, all of which are good for health in general. I am still taking my regular daily dose of Anastrozole nd that won't change. Just trying to lessen the impact of estrogen on more than one front.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited August 2015

    Thanks wndrwoman for the info. Love, Jean

  • mqt64
    mqt64 Member Posts: 103
    edited August 2015

    Wondrwoman, what an experience! So glad no one was seriously hurt.

    I actually tolthatd mny PS that I had told my dh we were going back on Weight watchers the Monday after I was"healed" He said not yet.I have been watching anyway nd have lost a few pounds for the same reason. I figure every little bit helps.

    My appointment at U of Michigan is not until August 27th. They know that I have an open wound but he's only there on Thursdays. Go figure. The good news is that in spite of the holes in my boob, it hurts less than it has since the lumpectomy. No signs of infection. I think they just want to drag full recovery out to a year from diagnosis. I can call every Wednesday to see if they have a cancellation. Crazy as it sounds with a 7 hour trip I'll probably do it. When I got off the phone with the receptionist I was in tears.Understandably the poor person on the other end of the phone had no idea how long this has been. In that moment 3 weeks sounded like forever. I'm better now.

    Thanks for all your support. Marge

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited August 2015

    I have been going to a chiropractor for 3 weeks now trying to get my sciatica under control...went to my oncologist Thursday for 3 month check up...we were talking about my diet (I've managed to lose 10 lbs so far) and exercise...so I told him I was going to a chiropractor to get my back better so I can walk...so he decides to take that opportunity to tell me to be very careful going to a chiropractor since I'm on the Arimidex because it weakens your bones so she could break a bone...I'm like what the heck, shouldn't you have told me that when I started taking the drug 3 months ago. Crazy!!!!!


  • mqt64
    mqt64 Member Posts: 103
    edited August 2015

    WheelyGirl, while it is true that Anastrozole can cause bone thinning, I guess I would take the breaking your bones part with a grain of salt. Did you have a dexascan prior to starting the Anastrazole? Are you taking calcium and vitamin D? Maybe your mo just doesn't like chiropractors. Personally I iwould prefer a good physical therapist but not all insurances pay for that. If they didn't check your bones before you started the Anastrozole, you might want to ask about that now if he is really concerned. It's hard to know what to do sometimes. Congrats on your weight loss. You and Wondrwoman are good examples for all us overweight women, myself included. And yes, he should have told you when you started!

  • WndrWoman
    WndrWoman Member Posts: 333
    edited August 2015

    WheelyGirl. It's great that you have been losing weight. Good going. I don't have any experience with chiropractors. My MO did an initial bone density test and repeats it every two years. I had had one in August of 2013 so that counted as the initial one. I go in a couple of weeks and we will see if 10 months on Anastrozole has an impact. My previous levels were fine. Anyone significantly overweight like myself often has okay numbers in part because of the extra estrogen in those fat cells. But osteoporosis beats cancer in my mind and there are med (also with side effects of course) for the bones. Your MO should have done a bone density test and certainly should have warned you at the start about any risk of breaking bones.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited August 2015

    I did have a bone density text done prior to starting the Arimidex and the test showed mild osteoporosis so you really would have thought he would have mentioned that about the chiropractor as I have discussed my back situation with him on several occasions. I have been going to a chiropractor for years for my sciatica. I am not real big on muscle relaxers and pain pills and the chiropractor usually does the trick. I waited several years this time so my back is really out of line but it is definitely better than when I started. My next appointment is tomorrow so I am just going to talk to my chiropractor and see what she thinks. I hate to quit going since it is making it feel better.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited August 2015

    WheelyGirl. I have been wondering how you made out with the chiropractor.

    Mqt64 and Quiggy. We are quietly eager for updates. Mqt64 - is it this week that you finally see the special surgeon?

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited August 2015

    I am still going to the chiropractor, she was not worried at all about what my MO said about the bones. I have 4 more weeks and it is helping although not as much as I had hoped.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited August 2015

    hello Winter Rads friends! Checking in with all of you after a few months break from BreastCancer.org. Today is my Cancerversary, hard to believe that it has been an entire year since I started this journey. I am doing well. I gave up my wig 3 weeks ago, my fingernails are back to normal. My radiated Breast still feels strange, and the color is off, but I've been told that it will take 2 years to get back to normal. I am tolerating the Tamoxifen well. I'm scheduled for a mammogram sometime in September, I'm not overly worried because I have to believe that the chemo got everything.

    I think of all of you often, especially Quiggy and mqt64. I hope you are both healing

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited August 2015

    Hi all, just checking in too. I'm done except for femara for 19 yrs and 3 more herceptin / perjeta infusions. Done by November. I still have neuropathy, stiffness and severe muscle and joint pain. Hoping it subsides after the infusions are done. No definitive research on whether a year of herceptin / perjeta can cause this. It isn't the Femara since I was off it for 2 weeks with no changes. My left breast is still swollen. Hoping you all are doing well. Love, Jean

  • mqt64
    mqt64 Member Posts: 103
    edited September 2015

    Hi all. Yes I did go for my consult last week. It was a disappointment to say the least. The fellow/resident that was working with the PS needs to learn how to talk to people. He was full of himself and U of Michigan and was very dismissive of our concerns. He wanted to send me to their breast clinic where they do "miracles". The PS was better but he still wanted to do another debriedment with closure. Duh! I was pretty dumfounded and had a hard time responding. I had myself so psyched up for the other. Given past results, I am leary of doing the same thing and expecting a different result. It seemed like just another postponement. Everything we had done seemed to make no difference to him. He sent me for pictures in case I do need the TRAM and mammograms and an ultrasound. GOOD NEWS! NED! And I didn't have time to worry about the Mamms. So, the long and the short of it is I saw my PS here on Monday. He was rather surprised too. He is going to call the guy at U of Michigan and they will make a plan. If the U of M guy wants another debridement I can do that here. My doc isn't convinced that will work but he will defer to the specialist. If he can convince the specialist, I'll have the mastectomy with the TRAM. It's really not that I want major surgery. I just want to be done. Believe it or not, radiation ended 6 months ago! I will have gone through every holiday of the year since diagnosis.

    The last 4 weeks have been trying. My brother was diagnosed with kidney cancer and had surgery and they're hoping that will be all that is needed. His PET scan was clear. Then a week and a half ago I had to put my dog down. He got sick really fast with some form of leukemia/pleural cancer. He lost a lot of weight quickly and was short of breath. He wasn't eating. After 12 1/2 years it was the hardest thing I ever had to do. He was one of the most gentle souls I will ever know. We did that on Monday and went to Ann Arbor on Thursday. I didn't have any emotional reserve.

    So, am playing the waiting game until the 14th. Good news is not a lot of pain and no infection. Still striving for courage , grace, and humor.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited September 2015

    Wow MDQ, so sorry you are still not healed. I finished rads in early April and still have a lot of tenderness and tightness especially where I had the lymph node dissection in January. Still on 3 week herceptin / perjeta infusions till November. Lots of joint and muscle pain, stiffness, cramping and neuropathy. NED at my July mamo. Yay. Hello all my Rads sisters. Love, Jean

  • farmerma
    farmerma Member Posts: 83
    edited September 2015

    Hi ladies! Was wondering if anybody had gone for their first "annual" mammogram yet? I'm scheduled on 9/16 and am NOT looking forward to it. After my lumpectomy and radiation, the right side still has a a large, hard lump (MO doesn't seem too worried but did tell me to expect lots of extra views to try and figure out what the new "normal" is), and it's still painful at times. I'm trying not to think about it being squished in the mammo machine--it will not be pleasant (as if it every was). Just curious how everybody else made out the first time.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited September 2015

    I have not had my mammogram yet, but it is scheduled for this month. I'll keep you all posted

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited September 2015

    I had my first mammo in June and it was tender but nothing I couldn't handle...it was worth it to get the all clear NED! My last radiation was April 16 and my breast is still tender and hurts to touch sometimes.


  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited September 2015

    Tks wheely, me too. Tender and sorr. Got an ned mamo in July. A bit uncomfortable but not bad. Love, Jean

  • kpmacmill
    kpmacmill Member Posts: 85
    edited September 2015

    I had my first mammogram at the end of June. They also told me there would be lots of extra views. It hurt a bit, but was nothing compared to what I'd already been through. At the time my breast was still hard and swollen. Apparently the tissue was fibrotic, so I went to a lymphadema specialist for several weeks where she massaged my breast tissue and did some lymphatic massage to drain any extra fluid which helped a great deal. Now that the swelling is down, it appears that my breast implant (from before cancer) may have shifted or has capsular contracture from the rads...sigh...it's always something ain't it??

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited September 2015

    Had my first mammo in June. It hurt a bit but handled it.

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited September 2015

    kpmacmill ~ Yup! One thing after another or the same thing over and over! There is no doubt in my mind that bc changed my life, but... it isn't all negative. I think the mental changed might be an improvement.

    My radiated implant area was much firmer for awhile, but it unstiffened and matches the other side now. I hope it works itself out for you too.

    Jana

  • Professor50
    Professor50 Member Posts: 220
    edited September 2015

    Hi Ladies, I wanted to mention to those who have not had their first post-everything mammogram that it is different from any you've had before because instead of going home and waiting for the little, "Everything was fine" card in the mail you get your results immediately. Like, the tech said, "don't take off the cape yet" and I nearly had a heart attack. That first mammogram is really important because they want to get a good baseline of what your scar tissue looks like for later comparisons. And it is a chance to see that you are "all clear." (Which I was and I imagine most people are but wow did I break into a sweat when I found out I was going to have "that" conversation again).

  • Beachlady28
    Beachlady28 Member Posts: 54
    edited September 2015

    Sept. 21, 2015 Hello to all. Need some input and ideas. In the past I had 2 benign biopsies plus a cyst aspiration on the left. Had a malignant Stage 1 Grade 2 cancer on the right so had the surgery last Sept., rads and am on anastrozole. They are watching a "Birad 3 complicated cyst" on the left. To ease my mind can I request/suggest/demand a biopsy of the cyst? The protocol is 6 month rechecks which will bring me to Feb. Don't know if I can stand the worry and anxiety till then. Research tells me that excess worry makes cortisol which makes inflammation which can cause diseases like cancer. Wouldn't you think that with my past history that a biopsy should be done on the cyst? Maybe it is a Stage 0 now and will be worse in another 6 months? And my breast are also dense which makes mammograms harder to read. Anyone else have this dilemma? Any comments or thoughts are much appreciated.

    Thank you all and have a good evening!

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited September 2015

    Beachlady, in my humble opinion it doest hurt to ask for a biopsy if it will help put your mind at ease. Nothing to lose by asking. Love, Jean

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited September 2015

    I had my first post-treatment mammo today, and I am NED! It was a challenging mammo, my tumor was close to the chest wall near my right armpit, so they wanted to get those areas in. More hard to breathe than painful because they had me getting really close in and almost hugging the machine. I'm so happy to be in the clear.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited September 2015

    Yay, Sjacobs. Doing the happy dance for you. I had an ned mamo in July so I know how good it feels. Congradulations!

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited September 2015

    Sjacobs - Super news. Give a sigh of relieve and relax... live your life in peace and joy. I always smile when someone does "the happy dance". It paints such a great picture. Congrats to you.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited September 2015

    Thanks so much zjrosenthal and Coyote. I figure the chances of recurrance at this,point are low, but remembering he outcome of the last mammo gave me the willies. Onward to do battle with Pinktober

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