Does you Onco check your hormone levels?
If so, what is the test? My appointment is Friday, I'm going to be asked if I want a prescription for Tamox or Aromisin. I really don't want either without knowing what my estrogen status is.
I know I've been very low in the past, and my Estradiole has been low for years. Onco says that test doesn't mean anything, I am post menopausal. Had both Mammaprint (low risk) and Oncotype (8). I think the first one says my Estrogen status is +34% unless I'm reading it wrong.
I have had this beast twice. But I'm convinced the reason is not completely related to estrogen, but more to my sensitivity to radiation from exposure in my 20s.
I don't want to be old before my time. But if the test, whatever it is, says I still have tons of estrogen I will take the scrip.
I'm asking because my Onco is pretty by the book and not a great listener. For him, ER+ equals hormonal pills. I think I will need to tell him what test I want.
Comments
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I'm going to ask mine to test my levels. In had a hysterectomy/BSO two years ago and was on estrogen which I had to stop because of this mess. My DCIS is 70%+ for estrogen. I'm thinking I don't have a heck of a lot left anymore without my ovaries.
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My BS ran hormone levels pretty early on. Because I'm still producing estradiol, I'm considered premenopausal. Therefore, I'm getting tamoxifen. If my MO wouldn't test me but wanted me to choose, I might say, "It depends on my hormone levels."
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I get mine checked, and my onc wants me to do it every 3-4 months to determine when I can switch to an AI. I get FH, LH tested as well as the various estrogens (estradiol, etc.) and also progesterone. I am nowhere near menopause, but he did not recommend shutting down my ovaries :-(.
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Catcher, what is the complete name of the FH, LH test? Maybe that's the test I need to ask for.
The typo in the title is driving me crazy. Is there a way to edit the title?
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I don't know how to edit the title, but don't worry about it. What's important is that you get your questions answered ;-).
I meant FSH, which stands for Follicle Stimulating Hormone. The other is Luteinizing Hormone.
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Ok, have heard of those, and was thinking that is what I need to ask for. Thought I had them pre-surgery but it was TSH only. Thyroid Screen, and low again.
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Hi,
I didn't ask my MO, but my gynecologist/nurse practioner instead. And she did them, no problem, after she heard my explanation about why I wanted/needed my estrogen levels tested. You might try your gynecology office, but you'll probably have to make an appt and talk to whoever.
After she got the results I had her fax/e-send the results to my MO.
Claire
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My onco never offered to test my hormone levels (estradiol) or do a bone scan before starting Anastrozole. I asked him for the bone scan before starting Anastrozole. Good thing I did; I went from strong bones to osteopenia in just 7 months. I asked my PCP for an estradiol test while on the drug and again a few months after I stopped taking it. While on the drug, my estradiol was <15; off the drug, it was 16.4. Before my hysterectomy, it was 65. Did the drug make a big difference? No idea, can't get a straight answer.
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Baseline bone density/DEXA scan should be routine prior to starting an aromatase inhibitor. Maybe snappy-squirrel's oncologist thought her primary care provider would order it? Good job on requesting one.
I had FSH, LH & estradiol checked twice, a few months apart, before being switched from tamoxifen to AI therapy.
Even with no ovarian function, we have our favorite female hormone supplied internally via enzyme action in fat cells. I think this is why it is so hard to lose weight after menopause: our bodies know how good it is for mood, cardiac health, etc which means every shred of adipose tissue stubbornly hangs around so we can make more...
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A bone scan and a DEXA test (bone density) are not the same. Bone scans are not to look for density - DEXA tests are for that.Because of strong family HX of osteoporosis and relatively early nature meonpaouse (44) I had been having DEXA for years and was already osteopenia - now osteoporosis. Was 63 at DX.
All our bodies produce estrogen - even men - even afer natural or surgical menopause, we ingest estrogen in many things we eat.
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im not an expert here by any means but I was in hormone therapy for about 9 months before my diagnosis. Depending on when they take your estrogen level if you are pre menopausal anyway it varies during the month.
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Mine did. She said: oh yeah you're still kicking! So Tamoxifen for you!
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I had a partial hysterectomy in 07, but still had my ovaries so my MO checked my estrogen level just to make sure I was post menopausal. He does not routinely check them and said regardless the number still doing AI's. Luckily my se's are very mild so I don't mind being on them.
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I had mine checked twice: one as a baseline and then 9 months later, another. Both times proved I was in permanent chemo-pause, so it was goodbye Tamox and hello Arimidex (now Aromasin) for me.
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HI, Mine checks, up front prior to starting the AI and then at the 1 year mark. LH, FSH, estrogen were checked both times.. I'm glad. Its good to know the AI's are working!
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I just had mine checked, but I am not sure what they mean. My Estradiol was 5, my FSH was 11, and my LH was <1. I am on Lupron and had my last injection July 31st.
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Means your Lupron is working I think. That's a really low Estradiol level.
Shirley
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Bevin,
Can you remember what your pre and post estradiol levels were/are? I'm really interested since my oncologist didn't test mine.
Shirley
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I'm surprised that the FSH is in the normal range.
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I think you can Dr. Google what estradiol levels are and what they mean, also.
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After all the worry, since both the Oncotype and Mammaprint came back low risk, my Onco is not pushing the hormonals. He strongly advises it , however. I'm going to ask my GP to have my FSH, LH, TSH and estradiol checked in a couple months since I'm trying a new thyroid med and also added Indole 3 to my supplements.
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