Starting Chemo February 2015

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  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited July 2015

    face hairs and chin hairs coming in faster than hair hair. And eyebrows look like snuggle tooth fron the flinstones very disappointed in my hairdresser, that's me, that she can't make it come in even on top of my head. Very haphazard to be exact. Pubic hair still unseen.

  • SugarCakes
    SugarCakes Member Posts: 353
    edited July 2015

    Well there is comfort in knowing I'm not alone. My eyebrows are trying to come back. I never lost the eyelashes completely, but they seem shorter. Does that make sense? Didn't notice them thinning, yet they seem shorter. Head hair coming in VERY slowly and the front of my head is coming very slowly if at all. That scares me. Pubs are noticeably coming back as well as armpit hair, but I have not been driven to shave either.

  • live_deliciously
    live_deliciously Member Posts: 346
    edited July 2015

    i have about 1/2 of hair growth on head but very silver compared to what it was. Whole body is coming in with hairs all over. I too have bushier eyebrows and eyelashes. Underarm and pubs just starting but real fine. Even arms and legs are hairier. I'm sure it's just the cycle they are all on at same time so expect it will thin out over time.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited July 2015

    Hope the brows settle down. Posted a photo on Facebook and got a comment "never knew you had eyebrows!" Well at least full brows were in style a year or 2 ago LO

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2015

    I have about half an hour inch on my head, but a bald spot right in the front that has some new hair follicles that just appears this week, two months afte chemo. I think it is typical for the front to grow in last.

    I am doing Herceptin, and I think it can slow hair growth.

    I think I've decided to dye my short hair red like the character Red on Orange is the New Black until I have enough hair for a real dye job. That way people will think I am just doing something edgy.

    My eyelashes partly fell out, and the new ones are short, but I think they are growing back in. I hope anyways. If they stay short, some of the women I work with get lash extensions every few months, so there is always that.

    Three days in Big Bear without shaving my legs, and when I came back, it was scary fur. Why can't my head grow that fast?

    Eyebrows fell out about 3/4th, and the new ones coming in right now stick straight out, and are really dark black. Guess I better trim those suckers.


  • Dromedary
    Dromedary Member Posts: 26
    edited August 2015

    Just picked up all the posts about hair growth and am laughing out loud. Isn't it a fact that the stuff grows best just where you don't want it? Cheeks, chin and pubes doing great, tweezers working overtime. To be fair, brows are back better than before, eyelashes coming along (wore mascara for the first time in MONTHS last weekend!). Head is slow, very silver, but growing evenly. Already showing signs of crinkliness so I think the old chemo curl will be with me.

    Otherwise, I've been on Arimidex for 2 weeks and so far all good. Still have some joint/bone pain in lower legs but have had that since Taxol so can't blame Arimidex.

    Italychick, love the idea of going red! Post a photo!

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited August 2015

    hair growing everywhere, chin still in the lead, have to shave every 2 days. I am taking clariton for the aches and joint pain, not sure if it's from the arimadex but it seems to be helping, also having very vivid dreams, and I am not a dreamer? Anyone else with dreams?

  • Darumama
    Darumama Member Posts: 135
    edited August 2015

    Jerseygirl, I'm going to have to try Claritan too. I don't know if it's from arimidex, radiation, or leftover chemo SE but have been very achy. I know some of you ladies had this months ago where the first few steps you take when you stand up, wake up, etc. are very difficult. I'm on vacation so I'm also being more active than I've been in an entire year. That could be contributing,I suppose.

  • Dromedary
    Dromedary Member Posts: 26
    edited August 2015

    One week on from my last post and my aches and pains seem to be getting worse. So maybe the Arimidex is contributing after all. I feel like an old crock sometimes, even though I'm still managing to walk plenty each day - but until my joints "warm up" it's pretty rough.

    I'm finding my head is not so good this week - I think I'm waking up to the fact that this isn't over, not by a long shot. Aside from going back for more reconstruction surgery etc., there's still all these years ahead on these hormone blockers and I feel like they're going to suck the life out of me and I'm going to turn into a dried up old hag. Plus dealing with people who WANT me to be "all better" and keep saying in that hopeful way "So, you're all done now, right?..."

    My oncologist said there was a chance I'd start to feel low around now - I think it's normal, kind of being off the treatment roller-coaster, anti-climax after my son's wedding last month, am now back home and trying to work again but not really wanting to... Oh well, just another cobble stone along our rocky road girls!

  • Darumama
    Darumama Member Posts: 135
    edited August 2015

    Dromedary, I am right there with you. I can do a lot once I get warmed up, but I am achy. Last night I went to a stargazing program on the beach. I was on my back on the sand for an hour and needed a lot of help to get up at the end. It would have been comical if I hadn't felt so helpless. I am also afraid of the hormonal treatments turning me into an old lady at the ripe old age of 46. I do want to stay on arimidex though, so I'm going to suck it up and maybe try some Claritin. Maybe it will get better after I adjust to it a little.

    I'm going back to work on August 31st after being out since my mx. This is going to be a scary transition for me. Working in a high school, I have many colleagues and students who haven't seen me in a while. I'm afraid all the "catching up" is going to be overwhelming and exhausting---and I found work to often be overwhelming and exhausting before BC.

  • live_deliciously
    live_deliciously Member Posts: 346
    edited August 2015

    hi ladies. For what it's worth my stiffness in my legs and ankles is getting worse too for the last two weeks and I'm not on the hormone suppressant yet . I feel like I need oiled! I think its a side effect of chemo or this chemopause thing or radiation. Doc says no but it isn't in my mind. It isn't as bad as when I was in chemo but it takes a couple minutes for me to warm up to walk right. Feel like i have club feet. Heaven help me if I had to start running after i sat in the car or get up from bed. I'd fall over first. Haha I've also been pretty dehydrated so not sure if the two are linked. Not sure if its from the heat or being nuked.

    I'm sharing this in all my threads. The nutritionist gave me this info yesterday. Says its got the science/study behind each item so she recommends this info more than other non science backed sites.

    http://cancer.ucsf.edu/_docs/crc/nutrition_breast....

    It's kinda long but something to reference and extract what is right for you.

    Hope everyone is doing well and the summer has been fun. Way better than being in chemo!

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited August 2015

    live deliciously. Most interesting information. Thanks for sharing. Flax oil and soy products.looks like more conflicting info so hard to know what to do

  • Dromedary
    Dromedary Member Posts: 26
    edited August 2015

    Thanks for the link Live - lots of info there!

    Darumama - I absolutely understand your fear about facing everyone when you go back to work. I find people in general can be a little overwhelming and I long to escape from the interrogations and the endless questions. I'm sure it will be somewhat overwhelming for you, but hopefully you will be overwhelmed with love and kindness and people who are happy to see you back and on the road to recovery.

    Taking my aching bod to bed - nothing more to add since yesterday.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited August 2015

    darumama, hope all goes well when you go back, I still have some small aches, but think the clariton works for now, I too hope I can stay on the arimadex for now or for however long it takes.

    Went to my B S yesterday and all is good, she asked about all my s.e's and we discussed my numbers from the biopsy, she thinks a piece of cake, I told her I still had nuropathy, in my feet and hope the arimadex didn't make it worse. She was saying, in a few years or sooner the protical for my type of cancer will just be herceptin and forever how long. Wish they would hurry up on this. Trials usually take 20 to 40 years before they commit. Wow. In the meantime, don't need to see her for a year unless a problem comes up, she said to make sure I space out my other Drs over the year, so I will be covered every 4 months. I still have herceptin till November and arimadex and that's it for now.

    Two questions, does anyone have a fat gut because of the hercepton.? And what's your thoughts on prolia shots?

  • Dromedary
    Dromedary Member Posts: 26
    edited August 2015

    Guess you might already have read this Jerseygirl - about Prolia http://www.breastcancer.org/research-news/20110919

    I'm going to ask my Onc about it when I see him on Monday. My cousin was on Arimidex for 3 years and was getting stress fractures in her feet just from walking! Since bone loss is such a big deal with this stuff, seems to me we should definitely be looking at ways to counteract it.

    Am not on Herceptin so can't comment. Honestly could they have dreamed up any more ghastly SEs for us? I think not.

  • Darumama
    Darumama Member Posts: 135
    edited September 2015

    I had to pay a visit to my friendly, local infusion center this afternoon to get my port flushed. Ah, the memories! ;) Actually, it's nice to go back and say hi to the nurses every month without the stress of treatment. I get to hang onto my port until January when I get my TEs exchanged.

    I went back to work Monday and got the warm fuzzies from everyone I met. I think I hugged 100 people. The past three days have been more difficult as I struggle to focus on getting projects done. It is a little overwhelming to deal with so many people after the quiet life that I've been leading this year. Interruptions really throw me off and it doesn't help that we have so many tech problems. Hopefully, it will just take a few weeks to adjust.

    My stiffness continues, but since I don't get to sit still for too long at work it doesn't seem to bother me as much during the day. Hope everyones' side effects are few and improving!!!!

  • live_deliciously
    live_deliciously Member Posts: 346
    edited September 2015

    hey darumama. Why do you have to wait to get your port out? I didn't get one but I know the exchange surgery for me seems forever from now and was just curious. BTW I went to my general Dr yesterday to get a baseline ck on my uterus lining since I'll be on tomoxifen for a long time and to also get a colonoscopy scheduled. We had a discussion about all the activities and treatmens I've had since December for BC. He said even dogs get cancer and they don't drink alcohol. And overweight people who drink a lot don't all get bc and skinny people who don't drink at all can get BC. so I thought that was good to hear that they still really don't know that much about cancer and it isn't something we did or something we can magically do to fix it or prevent reoccurrence

  • Darumama
    Darumama Member Posts: 135
    edited September 2015

    Hi Live D, I would like to think that keeping the port in a while is simply a matter of killing two birds with one stone when I get the TEs exchanged. Getting it placed was no piece of cake,IMHO. However, I also think that my oncologist is encouraging me to keep it a while in case additional testing-- gulp-- reveals something. PS said they take them out a lot when doing the exchange. I would actually prefer it this way. Since I was only under twighlight anesthesia when it was placed, I had a front row seat as the interventional radiologist instructed his student step by step. Plus I felt them messing around in my chest. It was one of my least favorite BC experiences.

    I like what your doc said. Every time I stress out over some little bit of food I'm eating, or what kind of tea I'm drinking, I have to remind myself that my sister also has this and we have very different lifestyles. It could be something our mother, maybe even father did. We will never know I think.I try not to beat myself up too much.


  • live_deliciously
    live_deliciously Member Posts: 346
    edited September 2015

    check out when you can this new thread called hello to everyone under stage III. Then read the pink ribbin and wheels under her signature. Hits home.

  • Darumama
    Darumama Member Posts: 135
    edited September 2015

    thanks LiveD, that was a good post Had to laugh at the bit about deodorant. That's so where I'm at right now.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited September 2015


    Hi, I would like to take a poll. I am/was on the May chemo thread. After my last treatment, my MO did tumor marker blood tests for 27/29 and CEA. CEA was a little high, so I had CT scans of brain, bone, chest, abdomen and pelvis. All clear. So, then, she did another. CEA went up one point. Now, she has me having me have a colonoscopy. I would like to know who else had tumor markers done. Thank you!

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited September 2015

    I haven't had any tests. MO isn't looking for anything unless I report a problem. Just having my chest exam every 3 months and told to do frequent self exams

  • Darumama
    Darumama Member Posts: 135
    edited September 2015

    mysunshine- I did have tumor marker tests done. I'm sorry I don't remember what the results were but they within the normal range. He also did a circulating tumor assay and that came back good. I had a lot of bad nodes so I had a PET scan after surgery, prior to chemo. My doc is going to be doing tumor market tests and CT routinely on me during follow ups.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited September 2015

    nothing going on here, I spoke with my gyn and suggested every 4 months see another dr year round but nothing to check unless something reacts. He is offering another pelvic ultra sounds for ovary cysts, but really not concerned.

  • Darumama
    Darumama Member Posts: 135
    edited September 2015

    meant to say CTA - the tumor assay

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited October 2015

    check in report. How are we all doing? Hair growing in nicely, nails still messed up, more energy, but did need more naps and they are pretty long. Dry skin hanging around, but overall feel pretty good.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited October 2015

    Got bouncy curls. Still often need a 2 hour nap to function. Arthritis in hands from the letrozole and stuff all over. Neuropathy in feet but it comes and goes. One very weird big toe nail where it is growing in rounded at the top like an upside down spoon presses on my shoes so wearing sneakers and sandals. Still not able to work

  • Darumama
    Darumama Member Posts: 135
    edited October 2015

    Hi Ladies, I'm back at work and pretty exhausted by the end of the day. My hair is about an inch long. It came in salt and pepper gray. Haven't colored it yet. Still wearing a hat or scarf to my teaching job. At home I only wear head gear when I get chilly. My hair was always pretty thin and straight and that hasn't changed. About 2 weeks ago the last of the chemo stripes grew out of my nails and they look perfectly normal now. I have a lot of joint stiffness -bending over and kneeling are the worst. Also sometimes stabbing pain in my hands. Skin dry too, but always had that problem.

    Having said all that, there are now snatches of time when I momentarily forget BC. I've gone over a week, maybe even more, without checking BC.org. That's mostly because my free time has been seriously curtailed by work.

    Getting my TEs swapped January 28th and can't wait to be rid of my rock solid companions.

    I'm finding myself surprisingly ambivalent about October and BC awareness month. There seems to be a fine line between marketing gimmicks and worthwhile causes.

    My birthday is Monday and I plan to indulge with a nice chocolate cake. I will never bemoan getting older ever again. 47 here I come!

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited October 2015

    Dauramam happy early birthday, mine was during chemo, but you enjoy yours.

    Thought I would share for anyone wanting to check it out.

    http://www.cleveland.com/healthfit/index.ssf/2013/...

    This is about chemo brain.

  • Darumama
    Darumama Member Posts: 135
    edited October 2015

    Thank you for the bday wishes Jerseygirl!

    I walked in the Making Strides walk last weekend and I was thinking of all of you in the Feb chemo club. How is everyone doing? Would love to have some updates.

    I'm dragging myself to work and feeling pretty exhausted at the end of each day. I keep hoping it will get easier... I do feel like my chemo fog has, for the most part, lifted. Have to keep looking for the positives

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