How do I stop hating myself?

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EbonyEyes
EbonyEyes Member Posts: 85
edited September 2015 in Life After Breast Cancer
How do I stop hating myself?

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  • EbonyEyes
    EbonyEyes Member Posts: 85
    edited September 2015

    Recently diagnosed with bc, haven't started treatment yet. Three areas in my right breast: two of DCIS and one of IDC/DCIS. Everyone keeps telling me it was caught very early and that the cancerous part is tiny(0.03 cm). Everyone uses the word, "cure". However, I am still going to lose the breast, who knows what other treatment I'll need, and need reconstruction(I'm 40 DD, a missing breast is going to be noticed). A bc nurse told me this cancer probably started forming twelve years ago and would have shown up on a mammo two years ago. So I guess that means I could have gotten off with lumpectomy or even just radiation if I'd been getting those mammos. Well, I couldn't afford them. My hometown has various programs that provide free or low cost mammos for low income women like me but I didn't know about them. The same doctors who berated me for not having mammos never told me about these programs. Everyone is so nice to you -- after you're diagnosed. I can never stop hating myself for not having those mammos, never stop hatng myself for all I could have been spared if I'd had them. Will probably never stop hating those doctors either. How do I get past this? Prayer isn't working, I don't know if I still believe in God. It's not just the bc, it's a whole lot of things that have happened during the last three years. My entire life went to hell. Please don't tell me a lot of people have it worse-- most people have it better.

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited March 2018

    Hi EbonyEyes:

    I was not a good girl about getting regular mammograms and I had good insurance. Regret sucks, so I try not to look back, but to learn from my experience and apply what I have learned to do better in the future.

    Regarding the nurse who told you this cancer "probably started forming twelve years ago and would have shown up on a mammo two years ago," she has absolutely no way of knowing what would have shown up on a mammogram two years ago. Also, that 12 year number is subject to debate. I think it is highly variable and can range from about 5 to 10+ years. When it chooses to become visible via suspicious patterns of micro-calcifications or whatever is a biological phenomenon that is not as predictable as she would make it seem. Maybe it only became screen detectable 11 or 12 or 18 months ago. Who knows. Sadly, cancer does not become visible according to an established timetable that is in sync with each patient's annual or biannual screening timetables.

    I am glad you went in when you did, and that it was visible at this time, caught early, and that the prognosis is very favorable.

    BarredOwl




  • dismay15
    dismay15 Member Posts: 343
    edited September 2015

    I have had mammograms every year for at least 10 years. The tumor in my breast was never detected until microcalcifications were noted on my last mammogram. I took it upon myself to seek out a facility that had 3D mammography and ultrasound and only then was my cancer found. Mammograms are what we have to detect breast cancer. but they are not flawless and neither are the radiologists who review them. Please don't blame yourself or allow any one else to suggest otherwise.

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2015

    EBONYEYES: Please do not blame yourself. You have NO WAY of knowing when your cancer would have been detectable. That nurse should be reported for saying those things to you. You could have easily have had mammo's every single year and it not be seen,, as has happened to many of our sisters. Please please, do not beat yourself up. You need all of the positive energy you can muster, to help your body heal from the upcoming surgery.

    It is a shame that you were not informed of these low cost programs to get a mammo,, and the doctors should have told you about them. Getting cancer is not your fault.

    Yes, as a 40DD, it will be noticeable to be lop-sided,, but you can wear a foob to disguise that or get recon if you desire. We are here to be your support team with whatever option you choose.

  • Ridley
    Ridley Member Posts: 634
    edited September 2015
    Ebony - I had mammograms for 7 years, including a callback and ultrasound 8 months before being diagnosed. I had multiple areas of cancer. The imaging never found it. I wouldn't give it another thought. No guarantees that prior imaging would have found anything.
  • Bluemnm
    Bluemnm Member Posts: 1,078
    edited September 2015

    Ebonyeyes,

    I had a clear mammo in Nov 2013 and was diagnosed Stage 4 five months later. That nurse should never have said that to you. She wouldn't know when a mammo "might" have found your tumors or if it would have. You can't blame yourself for any of this.

  • fralaliso
    fralaliso Member Posts: 63
    edited September 2015

    EbonyEyes, Please don't beat yourself up over the mammos. I have been getting mammos every year for the last 12 years since I turned 40 - even springing for the more expensive 3D mammos because I knew I had dense breasts. My BS estimates my cancer likely started growing 7-10 years earlier and not one of my mammos detected anything. Even after they inserted a marker (during biopsy) to mark my lump, they still were not able to see the cancer on a mammo. There is no way at all to know whether or not yours would have shown up either. I agree with the others who feel the nurse was out of line with her statement.

    Hang in there. What's important now is what you do to take care of yourself going forward. Re: reconstruction...My recon failed, so I'm now flat and using foobs and it really isn't the issue I thought it might be. It was a much easier adjustment than I expected. You have a lot of options to consider with reconstruction so take your time and make the decision that feels right to you.


  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Ebony, my IDC was only detected through the MRI I got when DCIS showed up in the other breast. If not for the DCIS followed by a contrast MRI, I'd be walking around with an undetected tumor. Even when they knew it was there, they couldn't see it at all on mammogram.

  • Suladog
    Suladog Member Posts: 952
    edited September 2015

    Ebony,

    Be kind to yourself. I found a lump in my 30's myself during monthly self exam... Went for a mammo, did it show up? No.,I went to a surgeon friend who did a biopsy and sure enough, there it was a very tiny cancer. They were shocked that I could even feel it as they couldn't even see it! I am very small so even a lumpectomy would have removed most of what was there. I had a mastectomy and after they examined the breast they found a couple of other suspicious spots that had I been able to do a lumpectomy, I'd have been back with another tumor in 2 or 3 yrs. I don't regret having the surgery considering I didn't want to deal with that whole thing again so shortly after.

    Don't let anyone make you feel bad about any of this, the same thing could have happened had you been regularly mammogrammed. This is some tricky shit we deal with. I would have gladly removed the other breast back then to be safer but back in 1990 that was a no no , they just didn't do it. Last year I had another cancer in the remaining breast, it was very small just like the first one but at least it showed up on the mammo!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2015

    As many of the replies have already said, it is just not possible to know if your BC could have even been detected earlier. I had a .07cm that didn't show up, myself, and I totally agree with what Barred Owl posted to you.

    If only we could know everything in advance. Then we could avoid all the bad stuff in life. Too bad it doesn't work that way. Instead, we have all kinds of experiences (good & bad) that we learn from. It's fine to look back at what happened to you if you can get something positive from it--like now you have found some resources in your community for low cost health care; but if you look back and all you are getting is negative, like self-blame and self-hate then stop looking back. Face forward.

    BC puts a lot on your to-do list, so concentrate on what you need to know and do and who you will need going into your surgery. I know you are scared of what is to come. That is natural. It is the fear of the unknown. Every time I got freaked out by that, it really helped to think that many, MANY women had been through it before me. I got to thinking that they could not all be superwomen, that were probably just average people who got the same bad news that I did and somehow managed to step up and take care of business, even if it meant cutting away a body part. I thought, "Well, o.k. then, I can do this!" Try to learn and understand what all of your treatment options are. Ask questions and keep asking until they are answered, so you can make informed personal choices. If you can do that, you will be creating the best opportunity to one day look back on the whole BC ordeal, not with regret or loss of esteem, but with a sense of accomplishment at all you have done.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2015

    Ebony, NO ONE can say that your cancer would have shown up on mammogram. I've had five lumps in my left breast throughout my lifetime. Not ONE was found by mammogram. I found them all. Even when we knew they were there, I still got the all clear on my mammogram report. So PLEASE stop blaming and hating yourself. To that nurse that said that to you....may the fleas of 1000 camels infest her crotch, and may her arms be too short to scratch. Shame on her for saying that to you.

    I had a laundry list of health problems before being diagnosed with BC - it was almost laughable. How will you get through this? One day at a time, and sometimes it's one hour, or one minute at a time. There are some wonderful women here on BCO that will offer support throughout your treatment. I make it my mission to find at least one thing to laugh about daily, no matter how bad I'm feeling. I almost always find that laugh here on BCO. You're not alone here Ebony. There are many women here that will support you throughout your treatment. You CAN do this. Gentle hugs to you.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited September 2015

    Ebonyeyes, please give yourself a break. I'm 63 years old.....starting having thermography....cutting edge at the time, then mammograms, biopsy, then 3d. This all started after I was 22 years old. Nobody knows for certain when your cancer started....and yes, those same docs should have referred you to a program

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited September 2015

    I agree with the others- don't beat yourself up over this. I faithfully did my mammos every year since the age of 40. From one year to the next I ended up with a 2.8 cm grade 1 tumor. It clearly was missed as my ob/gyn said the ultrasound picked it up not the mammo. I only had the ultrasound because my ob/gyn found a thickening at my annual check up. Thank God for herbecause I wasn't doing self breast exams. I do now though lol

  • mdg
    mdg Member Posts: 3,571
    edited September 2015

    Don't hate yourself! Please! I did the mammo's and was told it was all clear. A few months later I found a lump and had it checked out. They told me it was a fibroadenoma and to have it rechecked in 6 months. I listened to them and then went back in 6 months and they indicated it looked like cancer and wanted to do a biopsy that same day....came back cancer. I did what they said and I still wound up here. I even am a fitness professional and have lived a healthy lifestyle and have no family history...none of that mattered. Please understand that often even with getting exams, mammo's, etc.... many of us still end up here. Hugs!!!


  • dtad
    dtad Member Posts: 2,323
    edited September 2015

    No regrets! My tumor was only found on a MRI. Not mammo or utrasound....

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2015
    As others have said, no when can say when your bc started and even mammos can miss them. I was faithful about mammos for years and even had a needle biopsy at one point. They all revealed nothing abnormal. Thirteen months after a clean mammo I was dx'ed with what was thought to be stage II IDC mixed with DCIS. Six weeks after my surgery, I was found to have a bone met. Hello, stage IV and I did everything "right".
    So, take time to grieve and be angry but realize that you can't go back and rewrite the past. Then, decide how you want to live today and in the future. Therapists who specialize in cancer patients and anti-depressants and anti-anxiety meds can be very helpful too.
  • Bliss58
    Bliss58 Member Posts: 1,154
    edited September 2015

    Ebony,

    I understand how you feel. I wasn't a good girl about having mammos, and then when I finally went, wham! Dx with what was thought to be IDC IIB, but then wham again, PET scan showed mets to bone, so hello stage IV. I've thought over and over again, if only.... but as the others here have said, there's no going back now, so move forward the best you can and do the best for you now and going forward. So many here all did the "right" thing, but still ended up in the same boat as us. My BS even told me not to beat myself up because (she said) the fact is cancer isn't always found in routine testing. Give yourself a big hug! And know that these threads are a good place to vent and get support.

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