Summer 2015 Rads

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited September 2015

    Totally with that chorus! It itch a lot already, it do!

  • CAMommy
    CAMommy Member Posts: 437
    edited September 2015

    15/20 done, 75% done. One more whole breast, then on to boost.

    My center plays this new age, meditation type music. I rather enjoy it, it's soothing. They rescheduled me today to the late afternoon because they were behind.

  • bluedog
    bluedog Member Posts: 212
    edited September 2015

    ksusan, hahahahahahahahahahah!!!!!!!!

    Brilliant!!!

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    I hope everyone feels free to add verses--I know I didn't get everybody in!

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited September 2015

    Filk singing for the win.

  • Marksgirl
    Marksgirl Member Posts: 65
    edited September 2015


    You are the best ksusan!!!!  

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Lausanne you rock!!!! That totally made my day

  • Keys-Plez
    Keys-Plez Member Posts: 304
    edited September 2015

    ksusan....I play the guitar and like country. We can start a band!!! Only you'd have to add something about a dog, a train, prison and Mother.

    #13/28 done on Wednesday. Today I'll be half-way. So far I'm doing pretty good. I have some discoloration. My boob is looking a little splotchy. A little redness under the boob. I change up my bras. I have different sizes and styles. I work everyday, so I can't be free-swinging. I use a different type of bra everyday, so I don't get rubbed in the same place everyday. This morning I think I'm going with the uni-boob look (kinda like a uni-brow) with cheap-ass, cupless, one-size up, sports bra. Gee, getting dressed in the morning takes so much more planning and thought. When my boss asks me why I was late, I'll just tell him I couldn't decide which bra to wear. Actually, I keep an extra cheap-ass, cupless, 2 sizes up, uni-boob, tank-style sports bra in my desk at work for emergency use. For when I just can't stand it anymore.

    OK boss, maybe I was late for work because I was on the dang computer. Adios ladies.

  • CAMommy
    CAMommy Member Posts: 437
    edited September 2015

    ugh ugh. :(

    I would be 16/20 but RO met with me today and said no, I want you to go 21. My last day was the 10th, and we are flying out of her on the 11th, moving across country. Since I can't do my final one on the 11th, I am doubling up tomorrow and having 2 sessions.

    So I am 16/21. And I am not just having a boost, I am having a boost integrated with whole breast. I wonder why he changed my plan? My pathology is the same, I haven't had any additional testing or anything to change anything. My guess is, originally he was on vacation when my plan was written up and I'm guessing he didn't like the other doctors plan but didn't actually look at my plan in detail until yesterday.

    The nurse said your skin is going to get significantly worse the week after rads. I'm like how bad is that? Like oozing open sore worse? She said probably not, but more pain, redness and possibly peeling and blistering. Lucky me.

  • dragonista17
    dragonista17 Member Posts: 50
    edited September 2015

    Camommy, I had the 16 + 5, too, although all consecutively. My skin did hold up pretty well, but the boob was quite uncomfortable. As per my RO, symptoms can develop for a couple of weeks after the last tx, and peak up to 21 days. I felt crappy starting about mid-way through, worst the last week and then the following weeks, but the crappiness did level out. So.. that doesn't mean the minute you finish you'll feel so much worse, everyone is different. I guess it depends on everyone's baseline, it's different for everyone. Moving is a big deal, and right after tx a bigger deal. Just do the best you can. Hang in there, and you'll get through this! Then you'll be on a plane, maybe sleeping or having a cocktail, but definitely not getting nuked. Good luck with your move!


  • Marksgirl
    Marksgirl Member Posts: 65
    edited September 2015


    My skin and pain started to get better as soon as rads were done, the fatigue was a little more the week or 2 after.   I would think the fatigue would be the toughest part CaMommy.    I was wearing a bra again in 2 weeks (much to the relief of my Mom who was a little concerned I would enjoy the freedom and leave my bra behind!)    I saw the MD today though because I have a new pain/aching in my armpit above my radiation tan.   He palpated and did not feel anything, suggested it was in my mind and told me to take Advil.   If it feels better, it is not the lymph node, I probably pulled something or aggrevated scar tissue.   Is this true?   Wouldn't Advil settle down an achy lymph node too?    My first lymph node never ached so I don't know.  So the wait 2 weeks to see if something goes away advice holds true for my MDs.   

    ORgal, I am glad you are able to get an ultrasound.    Keep us posted on your results tomorrow.    Hoping its a "scar tissue issue"!     (Sounds like a rap for KSusan or Little Blue!) 

    Jenny

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    I'm a week out and have an ache in the same spot.

  • Alibeths
    Alibeths Member Posts: 656
    edited September 2015

    my armpit hurts too. Achy.

  • CAMommy
    CAMommy Member Posts: 437
    edited September 2015

    thanks everyone. My fatigue is getting worse but it's hard to say, is it rads, lorazepam, moving stress, or driving to the cancer center every day. I plan to sleep the entire way on the plane. Dh can deal with kids.

    I have armpit soreness and my nodes aren't even in the radiation field. I also had arm pit swelling after my lumpectomy. It could be angry/irritate nodes at all this crap we are doing to them. Advil helps all my pains. Or maybe that's the lorazepam ;)

    It's funny, when the RO told me I had to go for one extra treatment I almost started crying. It's not rational obviously, it isn't even an extra day, but I was so focused on that number and being done. This felt like a punch in the stomach. I don't remember who said they would sing "I f'ing hate rads" on the way to radiation but I'm doing that too. Doesn't matter what song is on the radio I change the words to "I effing hate rads!".


  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    ditto on the pit pain..but I had node removal. Pretty much flayed my armpit like a deer...

  • ChicagoReader
    ChicagoReader Member Posts: 110
    edited September 2015

    20 of 20 done! Skin is red, swollen, and tender. There's a small part of the underboob area that's blistered, raw, and oozing. My chest and shoulder also feel tight and stiff. On the bright side, the fatigue started to lessen once the switch from whole-breast radiation to boosts started.

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Congratulations, ChicagoReader!

  • Marksgirl
    Marksgirl Member Posts: 65
    edited September 2015

    Ouch LittleBlue!   Congrads Chicagoreader!!!!     I made it 25 days from "Woo Hoo I'm done" to my first "panic, is it back" attack.   I do have a very specific sore spot in my armpit but it sounds like that is really common!    I didn't really have a heads up on what to expect when I finished.  The MD that saw me my last radiation day was a very young MD who told me to take Benedryl for a rash on the back of my knee.   She got very flustered when I told her that Benedryl is contraindicated with Tamoxifen.   ( Thank you for the resource Breastcancer.org!    I used to be an Advil PM person so I am glad to know it interferes with Tamox, list found at http://www.breastcancer.org/treatment/hormonal/serms/tamoxifen).   Anyway, thank you for calming me down everyone!!  

  • wrmbrownie
    wrmbrownie Member Posts: 114
    edited September 2015

    I just started radiation this week and I've had three so far. They're radiating four different areas and it takes about 45 minutes to an hour. I'll be having 30.

    I have a question...my breast is quite swollen (and hard.) That's normal, right?

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited September 2015

    Wrmbrownie: no idea if it's normal, but I was rather wondering the same thing. I'm four treatments in--a shorter time per appointment, but possibly higher rads--and have started noticing swelling in my breast.

  • ORgal
    ORgal Member Posts: 56
    edited September 2015

    I'm pretty certain that a swollen breast is common, as well as skin tightening. In fact, I think I remember the doctor noticing mine being swollen before I noticed it.

    I had my ultrasound today. They also had me do a mammogram, first one since being diagnosed - it wasn't that bad, not like I expected it might be. I was having a really sore spot, felt like a little lump kinda between my lymph node incision and my breast. Also have throbbing and pain there and sometimes that radiates backwards towards my armpit and side and back. Turns out mine is also scar tissue. I am two months post rads and was told the pain is very normal and can come and go for even years after having radiation.

    I had a pretty easy time of radiation, other than off and on tenderness in the armpit. Since I felt mostly recovered from radiation I wasn't expecting more fun to come now at a later date. The gift that keeps on giving?

    I've got to say having an unexpected mammogram actually is pretty nice to have peace of mind that something new isn't stirring up in there.

  • PatRN10
    PatRN10 Member Posts: 332
    edited September 2015

    33 radiation treatments done

    ! My granddaughter helped me ring the bell

    SillyHeart

    image

  • CAMommy
    CAMommy Member Posts: 437
    edited September 2015

    congrats Pat! We have nothing like that at out center.

    I had 17&18/21 today. Two in one day is a doozy. I am nauseous again. Boo. I think he upped my dose or something. Yesterday he said we start you off nice and easy and then really go for it at the end. Nice.

    I am getting alarmingly pink. Not yet red but close. I have solved my under boob pain/discomfort. I am wearing cami under my bra. If I don't wear a bra my nipple itches and hurtslike a devil. If I wear just a bra the bra hurts under my boob. So I tuck the cami up under the boob so there is no skin on skin and the bra won't cut into it, and the cami keeps it dry under there.

  • PatRN10
    PatRN10 Member Posts: 332
    edited September 2015

    CAmommy. That under bra cami. Was my saving grace too! I came out of this with minimal skin issues. I used calendula based "California Baby" found in baby dept. At Target 3 x per day and aquaphor twice daily on open red areas.

    The bell at our cancer center is new. It was donated by the crew of a submarine in at our local shipyard so the wife of one of the crew would have a bell to ring when she finished treatment . So nice!

  • Keys-Plez
    Keys-Plez Member Posts: 304
    edited September 2015

    I completed 16 of 28 today. I'm starting to feel the effects of rads. My skin is sensitive to most fabrics. Just like you, CAMommy, bras irritate under the boob and most fabrics irritate the skin without a bra. My rad tech told me to use CVS AfterSun Aloe Gel w/lidocane. She says I can use it 3 or 4 times a day and it doesn't interfere with the machine. I'm glad to have 3 days off to recover and next week will only be 4 days. Yay! The situation is not intolerable. I'm not complaining, just making an observation. Overall, so far, it's not as bad as I thought it would be.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Finished 10 of 33 today. Starting to get the weird geometric tan, scar is a little red, skin feels a little tight...does anyone wear a lymph sleeve? Do you find it chafes your radiated bits?

  • Marksgirl
    Marksgirl Member Posts: 65
    edited September 2015

    ORgal - Woo Hoo for clear ultrasound and mammo!!    You described exactly what I am feeling.   It really flips me out to have a specific sore spot.   Thanks for the update!  

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Okay, I last posted a photo on this thread on 8/22 (31/33). Here's today (1.5 weeks after boosts finished). It looks a little scary, but is actually nothing unexpected.

    image

    Dark skin rubbing off (not really peeling) along the scar and in the axillary area. Anywhere deep brown (like the line at the top of my underarm) is going to rub off. The pink circle in the shape of West Virginia is where I had sticker dermatitis. It's the only part that has actually peeled. The general radiated field is rapidly shifting from pink to tan. Skin is a little tight where you can see creases to the right of my underarm, but not swollen and I still have all but about .5" of my range of motion. It does feel a little sore if I sweat and the skin of my arm rubs the pink part. There is a 2F temperature differential between my left and right pectorals.

  • CAMommy
    CAMommy Member Posts: 437
    edited September 2015

    2 rads in one day yesterday did me in, thank god we get Monday off. Ugh. If you are offered to do two in one day, don't do it.

    I am so red and sore under the boob, it's almost purple. 3 left I can do this. But it's 3 whole breast. He said he's doing an integrated whole breast and boost. Ugh, I was hoping for under boob healing time during boost.

  • AndreaC
    AndreaC Member Posts: 220
    edited September 2015

    Hi all -

    15/28 yesterday and my skin is doing well - a tiny bit pink in a couple of areas and a bit of mild pain now and then in the armpit but all in all, pretty good. I use a moisturizer (I have a selection of them) 1-2 times a day and Aquaphor at night. My cancer clinic says that deodorant is fine so I use it, just not within 2 hours of rads. I had bought some Tom's but it doesn't work worth sh*t so I went back to using my usual Secret.

    I'm tired but that's nothing new. I usually have an afternoon nap - or at least lie down and read for a while.

    All in all, things are good. I hope that all of you with skin burning etc. heal well!

    Andrea



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