Her2+ diagnosis

I hope you are doing well Flower68. Friday phone calls are a bear. I'm glad you have the ball rolling now. I'm in a holding pattern waiting on an appointment with the Oncologist on the 14th. I hate that they tell me that I have an aggressive cancer, then make me wait. My surgeon wants to get my port in and get me started on chemo right away. Waiting and more waiting. Sending positive thoughts your way!

Flower68, As you can see from my signature line, I basically had the same diagnosis as you in 2006.

I opted for a mastectomy, had four AC and one year of herceptin.

I am now eight and a half years out from the end of AC, and due to the ER/PR-, HER2+ tumor status, my chance of recurrence is now down close to zero. At ten years, the chance will be so low that I can be considered "cured."

I am HER2+ -just did AC and Taxol - with Taxol got herceptin/perjeta every 3rd infusion - My dr said the TCHP is rougher and uses this one for her HER2+ patients.

Hi Flower: So sorry you have had to join us here at BCO, but this is a great place for information and support. I had a very similar diagnosis in 2008: 2.2 cm ER-/PR- Her2+ with extensive DCIS (and the surgeon found another .7 cm invasive tumor.) As some of the others, I had surgery first then Taxol/Carboplatin/Herceptin. And 7 1/2 years later, here I am, doing well.

Wishing you all the best.

flower def wait for surgery so you can get the perjeta it made my tumor melt away I have yet to have surgery but I've had a pet and ultrasound showingno signs of any cancer left perjetas biggest side effect was diarrhea but it's managble and worth the added benefit of fighting this disease good luck with your pet I remember the anxiety before my pet scans stay strong you will get through this!

Hi Ladies,

I have had BC three times, my last was in 2011 but this time it was a Her2. I recently went for a colonoscopy and they found two precancerous polyps. I am now thinking if it wanted to start there whats to say polyps can be someone where else in the body. I may be over thinking but has anyone had that experience where you had BC, and had precancerous polyps some one else in your body?

Great picture and wonderful story Flower68! So glad you had someone there to calm your nerves! Good news on that PET also!

flower, best of luck to you. I was triple positive with one positive node, and TCHP completely eradicated all traces of cancer. By the time I had surgery there was no cancer to be found in any of my pathology, and my PET scan was clear too. I am wishing you all the best and tons of hope!!!

thanks for sharing your latest news and questions. I'm now waiting for another MRI and possible a boost. Another spot has been found by radiologist at Dana Farber where I went to seek a 2nd opinion. Once we know what that is we will begin chemo. I am progesterone and estrogen positive but am waiting my her2+ results. They were not as conclusive so they are reviewing those slides. More waiting. Hang in there Flower68.

Hi--I was diagnosed HER2+, ER-, PR- in April. Have just completed 4 months of neoadjuvant T/H/P, which has done a great job of melting the tumors away. Will have a bmx in a couple of weeks followed by AC, then rads, then, I hope, reconstruction. We are fortunate to have the Herceptin/Perjeta available to us, as my MO has reminded me.

Minor lesson of BC: spellcheck doesn't like the terminology!