April 2015 Chemo Crew... Starting in April? Please join us!

Options
1…135136138140141…204

Comments

  • Alibeths
    Alibeths Member Posts: 656
    edited September 2015

    Is anyone having sex? My poor husband.... : (

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    We had sex 3 weeks ago! It hurt, but it was possible. Which is good, because after a while, BJ's are a drag....well, on my end anyway LOL. DH has been gone since, but I'm hoping for great things this weekend. And by great, I mean, enough relief from pain to actually fake like I'm enjoying it. Baby steps!

    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    This is why the gods made Astroglide (Astroglide Natural, not the gel, which has methylparaben).

    · Share on FacebookShare on Twitter
  • ThePrincess
    ThePrincess Member Posts: 424
    edited September 2015

    ALL DONE WITH CHEMO!!

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    So happy for you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Yay Princess!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1

    · Share on FacebookShare on Twitter
  • AndreaC
    AndreaC Member Posts: 220
    edited September 2015

    DizzPark, sorry for all you are going through with your parents. The only people who truly understands what we are going through is those who have been there. That's why this group is so valuable! Your job right now is to get better, and unfortunately sometimes others don't get that.

    Congrats Princess!!! 💥🎉🎈🍷

    Alibeths- very, very rarely. My husband is so understanding. I feel guilty though.

    10/28 rads completed. This is getting old. But no SE's yet and I feel great. 😀

    Andrea


    · Share on FacebookShare on Twitter
  • Rpayton
    Rpayton Member Posts: 235
    edited September 2015

    dizzpark: sounds very stressful with your parents. You must have the patience of a saint to have had them living with you that long too. Parents mean well but I'm finding that I think they have a protective amnesia that won't allow their brain to fully comprehend that their child has cancer and is in treatment. Seems like mine are always trying to tell me what I should and shouldn't do but then act like I'm fine and all is normal not a care in the world. My parents forgot that I started radiology this week. Once they realized I got tons of advice and questions. LOL Thank God for our group!!!

    Andrea so glad to hear it is going well. I can see where it is going to get old fast everyday but we are almost there.

    BIG CONGRATS to all of you finishing chemo this week! May your SE be brief and onto recovery.

    I am so grateful the "chemo fog" has gone and I feel like myself again. I don't think I realized how yucky I felt until I got back to my "normal". For me I would have to say that was the worst SE of chemo was the memory brain fog issues. Still have the ball of my right foot numb but I can deal with that and it just may take more time.

    So I meet with HR tomorrow to see what options I have for return to work and a position, I hope. Should be interesting. After four years of outstanding performance reviews I hope they will work with me. My FMLA ended Aug 1st.

    Happy week to all and low SE.

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    imageself portrait 1.5 months PFC, if Chewbacca was totally bald. Yes, ladies, today I discovered my lady stache has reappeared. WTF? Ok, now I have proof my skull can produce hair. So where the hell is it on my scalp???????

    · Share on FacebookShare on Twitter
  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    Dizz: So sorry about the situation with your parents! I hope things smooth out, you certainly don't need that added stress right now. Sounds like there were other factors at work with them before your DX...its too bad that you are having to deal with it now too. Big hugs to you!! Glad you only have 1 more to go, woohoo!! And I'm not the lone ranger at the chemo bar just yet...glad I have your company! :)

    Congrats Princess!! You made it!! YAY!!!!!!!!!!!!!!!!!!!!

    haha little blue, I took hair remover to my face, I had white fuzz all over it.....well, cept the lady stache, it was dark. The white fuzz WAS longer than the hair on my scalp in places...I was starting to look like Santa Claus, I couldn't take it anymore!

    Glad you're feeling good Andrea!!!!!

    Good luck with HR Renee!!!! Hope all goes well!!

    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Jen, my Eastern European roots (literally) asserted themselves on my face prior to my scalp. If it provides a sense of solidarity, I now have what I might characterize as a reverse landing strip.

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Ksusan, ok I blame genetics then because I too haIL from eastern europe. So lame. I get breast cancer and facial hair and 8 words for chicken fat...

    · Share on FacebookShare on Twitter
  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited September 2015

    Princess: Congrats on finishing Chemo!!!

    My parents have decided to stick around until December 1st. I made them give my son a date and told them that if they get petulant again and pull this "we're outta here tomorrow" crap that they'll have to take it up with him. It's not fair to jerk him around. They took a road trip today...had already planned it last week. So my son and I had the whole house to ourselves today! After he finished his school work, we spent all afternoon playing Monopoly. Sigh. December 1st is really far away.

    Sex? What's that? LOL. We tried it once back in June. Painful...brought me to tears. It's drier than the Sahara down there and no amount of KY or Astro could have helped. Haven't dared to try again - not that I felt like it. I was proud of myself last week when I checked the Sex Issues "box" on my side effect self-assessment at the cancer center. It was part of the survivorship program - meeting with a Nurse specialist and social worker. They are supposed to help coordinate support as the patient nears the end of treatment. I figured that checking that box meant they would bring it up. Nope. Didn't bring it up. At the end of the meeting they asked if there was anything else. So I brought it up. The male social worker blushed and spun his chair around with sudden urgency to write something down. The nurse specialist explained that they have a dedicated specialist just for SEX! Then why is there a box on YOUR form for it? They did give me a non-hormonal moisturizer to try. And gave me the speech about exploring "other forms" of intimacy. Okay, I'm 41 years old. Are they insinuating that I'm unaware of "other forms" of intimacy? Got that...but eventually I'd it all to work please! "Use it or lose it!" Something you don't worry about when your 18!

    Anybody seeing an end to chemopause in sight?


    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Littleblue, meh, schmaltz is schmaltz, nu?

    Tamoxifen countdown 3... 2...1.... Tamoxifen dose #1 has launched!

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    over the lips and around the gums watch out stomache here it comes!

    Update on the hourly hair report- chin hair and neck beard firmly in place. One nose hair of loggable size. Eyebrows only at the uni brow position. Still bald. Schmaltzed up. Come'ere lover boy and give granny a kiss!

    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    I find that image even more enchanting when I imagine you wearing a schmaltz-spotted UM tee shirt and reading glasses with schmaltz fingerprints.



    Oh, sorry, that was a duck, not a grizzly. I must be looking in the mirror.

    · Share on FacebookShare on Twitter
  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited September 2015

    dizzpark - hang in there. A huge hug for all that drama you have to deal with. I had to ask my bro to take mom for 3 months. I love her but I was taking care of her emotional needs, as well and mine and the kids. Much better now and house is a total mess, Heeeheehhee!

    Congrats to all the chemo babes that are done this week. Yeah!!!!!! 💫🎉🎉🎉🎉

    GingerChi...I can't wait to post Fall leaves for you.

    Littleblue - you are simply amazing. Thanks for the humor, the hair chronicles, and staying up me the other night. I did well tonight!

    Kids did well tonight. School begins tomorrow. My hair is growing in places it shouldn't! Pushing intermittent med leave paperwork through at work...they sat on it since the beginning of Aug. sigh.

    Day 1 of our new business...DH is overwhelmed ...how many types of beer, wine and liquor are there. Oy! So much to learn. So happy for him after two crappy years for us.

    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Dizz, how crazy-making!

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Positive spirit, good luck with the new business venture.

    Littleblue, I wish we could pick the order our hair grew back...or move it from one place to another.

    Appt with LE therapist to see if she can address the cording which has gotten worse over the past month or 2. Then straight to radiation for my 5th zapping. I am going to try to remember to ask what my dailydose today. Not sure why I care, but I like to learn about the details of things.

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Anyone feel like some days all you do is take your clothes off and put them on...all day long? Dr. appts are making me crazy!

    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    It's a full-time job!

    · Share on FacebookShare on Twitter
  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited September 2015

    hahahaha... so true with clothing removal and appointments - with random hair

    image

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Littleblue, yes, yes, yes! I had my clothes off and on twice in a day twice so far this week, and once the other day!

    So my daily rads dose is 200 centiGrays. I will get 25 of those for a total of 5,000, and then will move to 5+ boosts. Not sure why I cared, but I was curious. The tech said breast cancer patients that my doc treats generally get 180 or 200 per day for a total of 4,500 or 5,000. I am taking a picture each week of my chest to document changes week to week. Good thing I have a passcode on my phone. If I were to lose it and someone would get into it, they'd sure get an eyefull!!!


    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Kbeee, for this very reason I just backed up and deleted all chest photos on my phone :)

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    My new theme song for this phase of the cancer journey (insert lip curled in withering scorn, two middle fingers way up in front of my battle scarred chest)

    Lets Just Get Naked- my new theme song,

    Holy hell, that was the most painful gyno visit Ive ever had! Physically cause my cooch is all shrunk up, and mentally because the grandmotherly NP called me chickadee and I lost it. First time I've cried since this whole train rolled out of the station. So, anyone who hasn't had their post-cancer annual yet, be prepared. Not that ya'all are weenies like I am. But I wish I'd taken an Ativan, both for my brain and my vagina. Woulda been a lot less traumatic.

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Nice song! Chickadee.......really?????????????????? Oh my! I agree that gyn visits are even moer of a "pain" now.

    · Share on FacebookShare on Twitter
  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    I'm sorry :( . My post-chemo annual was fine, though I had a little spotting after the pap smear. Both my naturopath's and new OB/GYN's waiting rooms are filled with natural lubricants/vaginal wetting products for sale. It's so much more inviting than old copies of The New Republic and Guns and Ammo.

    · Share on FacebookShare on Twitter
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Which of course we have in spades up here in Montana LOL. Eh, it is not unexpected, just unprepared for. The wonderful world of lubes....I really need to get on Amazon :)

    · Share on FacebookShare on Twitter
  • melb44
    melb44 Member Posts: 130
    edited September 2015

    CONGRATS Princess, Addie, AJ, and Karen !

    Gingerchi & Dizzpark - I am with you not being done. Finished #11 Taxol today so crossing my fingers that next Wed. I will be done with chemo. I can not wait!

    I made an appointment for the 16th for the deportation. I hate that thing so much.

    Then lumpectomy on October 1 and the radiatian starts at the end of October.


    · Share on FacebookShare on Twitter
  • ankledolphin
    ankledolphin Member Posts: 99
    edited September 2015

    hi everyone....sorry i have been mia for the past two weeks....got a lot going on and just needed to get away- so i have a lot of catching up to do.

    For those with dcis, i have some questions...my mom didn't want me to go with her to meet with her surgeon, so i didn't, but i gave her the following questions - er/pr/her2 status and grade/stage.

    in the two biopsies she has had, they never did the hormone receptors and they will do they during her lumpectomy and that dcis has no staging- so...anyone else not get these answers until after they had lumpectomies?

    thanks

    :)

    · Share on FacebookShare on Twitter

Categories