BRCA2 Positive- Prophylactic Surgery Sept 18

Options
WestKat
WestKat Member Posts: 2
edited August 2015 in High Risk for Breast Cancer

At my 20 week ultrasound, not only did I find out I was having a boy, but also learned I had a 20cm cyst. Not until a few days after his birth did I learn it was malignant. While pregnant I learned I had the BRCA 2 gene mutation. So 6 weeks after giving birth I had debunking surgery where I was staged at 3b ovarian cancer. All that the doc could see was roved, along with my ovaries, Fallopian tubes, ute toys and one yum I finished chemo in January.  Originally I had said no to a double masectomy (my mom had BC at 27 and is a survivor), because I just didn't want to.  However, having battled cancer once, I just don't want to do it again. The chances of my ovarian cancer coming back are great- they only list 5 year survival rates.; however mine is almost 50%.  I thought I was okay with my decision for the double masectomy, but the closer I am getting to d-day the more upset I have become.  I thought I would be able to at least see a size c again(I'm an e- too large- now).  However that c may not be possible because I am not a petite woman. I can get a bigger size with saline, but like the feel of the gel better.  Anyone else going through this, what type of implants did you choose? What are you doing to prepare? I get ticked at people with no mutation telling me- if I had it I would do it- well you don't so you don't understand. I know they mean well though. I have been putting on a good face throughout this and was even going to throw a "Bye,Bye, Boobies" party. But I'm sad now. At least when I shaved my head my hair came back. Did anyone else have this sadness too? Thank you. 


Katie

· Share on FacebookShare on Twitter

Comments

  • maxdog
    maxdog Member Posts: 147
    edited August 2015

    I was very sad when I signed the consent for my BMX. I gave myself a day or so to be sad. But, I knew it was what I had to do!

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited August 2015

    Hi WestKat-

    We want to welcome you to our community here at BCO. We're sorry for the circumstances that bring you here, but we're glad you've joined us.

    You may want to head over to our Implant Sizing forum. Whippetmom is something of an expert and can answer questions you might have. Also, it's totally normal to mourn the loss of your breasts, and feel sad and angry over it. You're losing a part of yourself, and even though you are making the best decision for your health, it is still something that can be difficult to process.

    Please let us know if we can be of any assistance!

    The Mods

    · Share on FacebookShare on Twitter
  • Curlyq1974
    Curlyq1974 Member Posts: 144
    edited August 2015

    Ugh West Kat! So sorry to hear about the mutation. My cancer was found in my breast, but I had to have the hysterectomy and salpingo oophorectomy. So I am just the reverse. I was very sad when I lost all my girly parts down there... It is just so hard to describe to people who don't have the mutation. I wish you much luck in your journey, a speedy recovery, the steady hand of a skilled surgeon, and tender caring nurses to take care of you.

    · Share on FacebookShare on Twitter
  • radgal
    radgal Member Posts: 100
    edited August 2015

    I was diagnosed with stage I breast cancer on June 30th, 2015.

    I tested negative for the BRAC genes.

    That said, since my diagnosis, I've been voraciously reading and learning all that I can.

    Last night, I watched a movie on Netflix (for free) entitled "Decoding Annie Parker" with Helen Hunt, Samantha Morton and Aaron Paul. It was an excellent, heartwarming and inspirational movie about the geneticist Mary-Claire King who discovered a genetic link to breast cancer. It was a great way to take my mind off my surgery happening on 8-25-15.

    If you, too, need a positive distraction, please check out this movie.

    Hugs and love!

    · Share on FacebookShare on Twitter
  • Straitlover
    Straitlover Member Posts: 124
    edited August 2015

    Sorry for all you are going through. What is your current bra size? I'm not petite either :) (well weight-wise that is; I'm only 5'4" tall, so almost petite height-wise). I wore a 40B before my BMX. I got the Mentor Ultra high profile silicone implants, 750 cc, and I still am a 40B. I know those implants go up to 850, so if your band size is close to me, that might get you to a C. I didn't really want to be much bigger than I was. I am trying to lose weight, and I hope they don't end up looking too big if I am successful, LOL!

    If memory serves, I read about some silicone implants coming on the market even bigger than mine. Not sure if they are available yet, though. Don't know if it's possible to get the 850s now and swap out for bigger when they come on the market and have insurance pay for it.

    · Share on FacebookShare on Twitter

Categories