Starting chemo November 2012

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  • Jennie93
    Jennie93 Member Posts: 1,018
    edited June 2014

    My hair came back curly too.  Bit of a shock, it was stick-straight all my life, lol.  I haven't been able to bring myself to cut any off yet, but it's sticking out all over the place and looks pretty silly.  

    Anyone else still dealing with fatigue?   I'm 16mo PFC and surely expected it to be gone by now, but no.  It's better, but still an issue.  

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014

    Jennie when I told my MO at my one year pfc checkup that I only had about 60% of my energy restored! she didn't seem at all surprised. Maybe this is normal, but I hate it. I have to really push myself to do anything.

    Paula

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited July 2014

    Well hello there all my BC sisters, it's good to know that we still have each other and that we've all moved on.  I'm doing ok except for my joint pain, really bad, especially my knee since I fell on it in March. Hope everyone is doing well and let's continue to keep in touch.  Enjoy your summer. 

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  • macyhen111
    macyhen111 Member Posts: 754
    edited July 2014

    Hey Bugs!!

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited August 2014

    hi girls, how are all my BC sisters out there?  We haven't chatted in a while and I want to know how everyone is doing.  Tomorrow august 31, is my 2 year cancerversary and I am so happy to be here to chat with you.   How scared we all were 2 years ago, look how far we've come, hope everyone is doing as well as I am.   Oh I have my issues but it's with the arimidex, awful joint pain, weight gain,jiggly buttt,  bitchy outbursts, loss of energy, blah blah blah.... well at least I blame it all on the meds.  Now it's the last weekend of summer already and I hear its Going to be a really cold winter so enjoy this weather while you can.  Hope your all doing well,  chat soon, love ya girls

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited August 2014

    hey LuvBugs .. good to hear from you.. I feel like you do... joint pain, weight gain and major redistributing of fat to my stomach area, snippy, impatient, fatigue --- but glad to be alive! and yes, we have come so far in this journey.

    Hope to hear from others - I think some left the board but I come to my favorite boards everyday.. glad you are doing well!ThumbsUp

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  • macyhen111
    macyhen111 Member Posts: 754
    edited August 2014

    Hey Y'all!!!! I guess we are all suffering from the same 2 year symptoms. I have joint pain, muscle aches, stiffness, grumpiness, big ass belly, etc!!!  But I'm not complaining. It's good to hear from yall! I miss you all!!

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited August 2014

    we'll after reading your posts, I'm sitting here laughing so hard that my big fat belly is jiggling and my bigger fat ass is bouncing and I'm sitting here with an Ice pack because my joints hurt and I'm bitchy, I am soooooo glad I have you girls to confide in.   Love ya all

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  • volley44
    volley44 Member Posts: 11
    edited September 2014

    Hello Ladies....I'm one of the lurkers that has been reading and loving the posts over the last year +. Started chemo in Nov '12 and just finished the exchange process and was humming right along in my survivorship.

    This weekend I was purging old files and came across my original diagnosis paperwork. Read the post surgery pathology over again and it's shaken me so badly that I can't get the prospect of recurrence out of my mind......how are you dealing with this worry?

    I'm feeling good and NED but I am surprised how this has brought me back to that initial panic and worry.F-ing cancer

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited September 2014

    VOLLEY44 - I know for me, when thoughts of recurrence come around, I just don't entertain the thoughts.. I think about all the positives - how I am being watched by doctors and had successful treatment and my mammograms have been good..

    I know that all sounds simple but I don't wanna worry about cancer..

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  • michellej1980
    michellej1980 Member Posts: 342
    edited September 2014

    Hey girls!

    It's weird to think back to nearly two years ago but makes me grateful I'm not going through it anymore! Does anyone else kind of feel...I don't know... nostalgic about it all? Obviously I don't miss feeling like shit but I find that I often mention it or refer back to when I had certain side effects. 

    I'm on anastrozole too but don't get any effects from it. I must be lucky! I realised the other day that I've only got 3 and a half years left of it. I don't want to stop. It helps me feel somewhat protected. 

    I think less about recurrence these days. It probably still crosses my mind EVERY day, but I don't dwell on it as much. I used to be googling stuff obsessively and it used to get me down. Now I accept that what will be will be and I just need to enjoy myself. 

    I hope the others pop in soon and let us know how they're doing.

    Michelle

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited October 2014


    Hi Michelle and everyone else..... I can't believe it's 2 years for us - so happy to be here with you all - we sure went through a lot together didn't we?

     Volley when you get worried let yourself worry for 5 minutes and sing. the song from Frozen... "Let it Go, Let it Go".  We all worry about recurrence but like Nancy said we are being watched.... Hope all my old BC sisters are doing well.  Love you girls Smile

    PS my hair is soooo long now, I had it cut 4 times since last year....Yay  BUT I'm still bitchy and short tempered - Husband and family blame the chemo and Arimidex - ha, don't they know they just piss me off sometimes...Let them blame the chemo....oh and I got really chunky!!!!  That sucks!!!!!

     

     

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited October 2014

    LOL 5LuvBugs I got chunky too - that part I hate but it seems like lots of people that went through our treatments and that pill get chunky!!..On a fun note - today I dyed my hair .. its the first time in 2 yrs I have done that... and the chemo curls are gone and my old hair is back...!!

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  • macyhen111
    macyhen111 Member Posts: 754
    edited October 2014

    Hey Bugs and Nancy! I'm doing okay, I had scans yesterday so will find out if Ned has left me. I don't want to dance with the beast again, so am praying for clear scans. I miss the old group. Oh by the way I would take Chunky any day for the mounds of fat that I have. Doctor told me yesterday that I have to lose weight. How? The more I try to eat right and ex Her size. The bigger Her gets. So happy to here y'all are doing good. Miss You Gals!!!

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2015

    How are you girls doing?  Great I hope.  A lot has happened since I lost wrote on the board - not cancer though so that's a good thing.  My husband and I are still recuperating from a bad auto accident on 10/12.  Hit head on and we were going 40 mile ph.  truck destroyed, both of us had concussions, they flew me to the trauma center and I had/have a 9" long, 1.5" deep gash in my leg that still has not healed = husband is back in hospital with severe vertigo - he lost 40 lbs - I lost nothing!!!!!  What the heck is this S++T - I blame it on the Arimidex, like our girl Macy says the more I Ex Her Size The Bigger Her gets.. Me too!!!!!   Has anyone quit their  treatment.  I considered it because of the weight and the joint pain but I don't want that C word in my life, better I waddle around... Oh, my hair is really long now and I need a haircut but I think I'll wait until the warm weather.Ok, girls, take care...L Love your BC sister.

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited January 2015

    Oh my LuvBugs! You sure have had a tough go of it.. you and your husband! Sounds like you are both are still on the mend  but I see you still have your spunk! I had thumb reconstruction surgery 3 weeks ago... I had the arthritis before BC but I feel like that nasty pill we take made it worse and the injections weren't helping anymore... so I am recovering from that. It was my right hand (I am right handed) and I had to eat with my left hand - I found that so difficult - thought oh maybe I'll lose a few pounds - that's a joke... who can lose weight with this pill? That is probably my biggest gripe with these treatment - well, and the joint pain and walking like I am so old blah blah blah.. wouldn't dream of stopping the meds though - just hope it does its job! Hope things start looking up for you and hubby.. hope your leg soon heals.

    good to hear from you..

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2015


    Hey Nancy maybe you and I could waddle around together.  I have all those joint issue to and my thumb hurts terrible, along with my other joints...but we are too scared to stop the freakin meds.....Good to hear from you girl - glad we are still in touch

     

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited January 2015

    Luv

    Did we ever find out if we live in the same part of Jersey? Did we have any of the same doctors? My breast surgeon is Dr Fantazzio .. my MO is Dr Zrada and my RO is Dr Fanelli... all in the Cherry Hill, Sewell and  Vineland area..

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  • macyhen111
    macyhen111 Member Posts: 754
    edited January 2015

    Bugs!!!!!!! I miss you so! I'm not on here much, just trolling now and then. I'm so sorry to here of you and hubby' s accident and am so happy y'all are on the road to recovery. I'm still here and doing ok. Wow I really miss some of the convos we used to have. Love and Hugs to You and Hubby.

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited March 2015

    Oh Nancy, I can't believe it - we have the same breast surgeon....wonderful Dr. Fantazzio! Coincidentally, my husband is in Virtua Hospital Voohrees as I type this - on my way there in an hour, so I guess you could say our paths have crossed more than once...I din't do chemo or radiation there, I went to English Creek in Mays Landing because it's a little closer. Maybe we will meet one day, I have to make my appointmet for September, what about you.

    Macy dear, I miss you also - we all had lots of funny, uplifting and venting chats on here. As far as our accident on October 12, 2014, our lives have not been the same since - may never be... I finally got discharged from the wound center last week - will have a large scar on my leg but at least I have a leg and can walk pretty good. My husband is not doing well, he has been in the hospital 3 times and has lost over 60 lbs in 5 months!!!! I, on the other hand, was in the same accident and guess how much I lost - NOTHING! but I bet you guessed that (I had to add a little humor) He is having so many issues and I'm really worried.

    Anyway, I hope everyone on this site is doing well. Keep in touch and remember We are all survivors.

    Love you girls....

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited March 2015

    Luv!

    amazing we have the same wonderful doctor - she is the best! I love her attitude and she has a positive happy personality! My next appointment is either June or July but I may see her sooner... my incision had burst during chemo - all kinds of fluid came out ..anyway, it leaked about a year -slow leak all during radiation and beyond.. stopped for a year and a few days ago it started leaking again! I forget what she said it was the first time but later said it was melting fat oozing out... who knows? but I have to call her since it seemed to have reopened after all this time. 

    Glad you were released from the wound center - and hope your husband starts to do better... I know you are worried - I'll say a prayer..

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited March 2015

    Nancy I guess you better give her a call - and please note, if you have to have fat melting make it somewhere else, not your boob!!!

    I was just standing sideways looking at my perfectly round body - this sucks!!!! 

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited March 2015

    Luv - haha! I wish it was melting from my FAT stomach area... ridiculous how fat I have become.

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  • PrincessPincushion
    PrincessPincushion Member Posts: 74
    edited March 2015

    It's been a long time since I've visited here, but I'm so glad I did! I'm having a heck of a time with my weight, too. I've been dieting and exercising, (carefully, because I'm still struggling with that blasted lymphedema), and can't lose an OUNCE! And here I thought it was just because I'm "old" (just turned 42!)

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited March 2015

    AmethysButterfly - 42? you are just a baby ...Loopy

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  • Sickofpink
    Sickofpink Member Posts: 190
    edited August 2015

    Hi ladies, I miss you all! Having new SE's from Aromasin, still brain slow from chemo, and even reconstruction didn't make my boobs match due to the radiated skin. Might just write a book about it.

    But boy do I appreciate birthdays now, And all of you!


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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited April 2016

    Hi there girlfriend...miss you too! Tomorrow is 3 years since my last radiation and I have long hair again...I think all our brains are shot but the outsiders wouldn't understand would they?

    Think of you often, take care...


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  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2016

    5LuvBugs - you made me realize its almost 3 yrs for my start of radiation and 3 yrs for my completed chemo... 3 yrs!! wow!

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited August 2016

    Good Morning all my BC sisters. It's been a long time since I (or anyone) posted here. Well this week is 4 years since my diagnosis - wahoo, I made it! Next month I get my annual mammo and hope all is well with me - how about all of you girls?

    That's the good news but the bad news is my dear husband of nearly 49 years passed away in June after a terrible struggle with lymphoma - I miss him soooooo much but thank God I have my kids and grandkids around - also lost my 94 year old dad in December so I've been dealing with a lot of stress, more then ever - but we have to remain strong and carry on no matter what life sends our way right girls... Keep in touch if your still online...

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  • IamNancy
    IamNancy Member Posts: 1,158
    edited August 2016

    Oh Luv - so sorry about your husband and father...sad for you... and I am sure your stress level went through the roof with this.. but you are strong and a fighter - 4 yrs since diagnosis!! ... you made me realize its almost 4 yrs for me... wow, that is exciting, isn't it? so far so good and I don't expect anything less... infact, today is my 6 month check-up with my MO and I expect everything to be fine.

    So good to hear from you ... hope more respond also... we had a good group going through all this stuff together.

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