So many complications,any chance to survive?
In the last three years I've been diagnosed with the following:
type 2 diabetes(inject 3 times a day, fairly well controlled)
high blood pressure(out of control)
high cholesterol(well controlled)
arrythmia(well controlled)
blood clots/genetic blood clotting disorder(under control now but almost lost a leg to a blood clot three years ago)
diabetic retinopathy(monthly injections of lucentis in right eye, every 2-3 months in left eye) Don't seem to be working too well anymore, losing vision again
broken knee, held together with pins and wires(still hurts and difficult to walk, knee still too weak for much exercise)
Stage III kidney disease(doctor says kidneys aren't normal but doing every thing they should for now, says there is no treatment until I have to go on dialysis)
Now, breast cancer(two areas: IDC/DCIS and DCIS)
The pins and wires in my knee and the kidney disease will prevent some diagnostic tests(MRI and CTscan). History of blood clots will prevent hormone therapy.
So much has happened so quickly I'm too overwhelmed to think straight -- do I have any chance to survive breast cancer with all these complications?
Comments
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My opinion, take it for what it's worth, is that your chances of surviving BC are better than mine as long as it's not metastasized and truly was caught early. Your other medical conditions most likely complicate or restrict some treatments but I wouldn't be planning my exit anytime soon. I would think a palliative consultation would be in order as they're great at assessing multiple issues and coming up with a care plan. I wish you well and hope you can feel optimistic about your BC as much as any of us can.
Amy
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Ebony, you are not saying how old you are but all the things you listed are pretty common and do not necessarily interfere with testing and BC treatments. CT scans are done on people with stage IV kidney disease, they just don't use contrast. I had MRI only once and it proved useless in my case. Blood clots are a risk with Tamoxifen but I don't think that's the case with aromatase inhibitors, so if your cancer is ER positive and you are post-menopausal they will most likely put you on an AI. I am sure you will do fine, just find a good oncologist.
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I am 63 years old.
From the biopsy report:
ER and PR positive, HER2 negative.
DCIS: low grade, no size given.
IDC/DCIS: intermediate grade. Two sizes were listed(a nurse said that means only part of the tumor is cancerous. Don't understand that)
2.1 cm x 1.5 cm x 2 cm/at greatest 0.3 cm
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AmyQ
They said it was caught early and that the tumor is small but they want to do a mastectomy, 6 months chemo,and 7 weeks radiation. Sounds like pretty aggressive treatment to me. I wish you well Amy.
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I know 6 months chemo sounds like a long time, but most likely it's once every three weeks but even so, chemo is doable in most cases. I had such good results my treatments ended 1 month early, ultimately my choice but suggested by onc. In addition, I chose NOT to do radiation. It didn't make sense to radiate my axilla (under arm) when it had already spread to numerous bones so you do have options. And I would not rule out a second opinion. If there is such a thing, you have the "good" or more common BC with lots of treatment options. But you are right, mastectomy is major and aggressive and so is chemo. I hope you have a strong support system bc I can't imagine going through this alone.
Amy
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Ebony Eyes I was 66 at diagnosis with 1.5cm pure IDC grade 2. I also had a long list of comorbidities-- high blood pressure, high cholesterol, VMT ( retina problems ) , diabetes, atrial fibrillation, migraine auras, osteoporosis, arthritis and fibromyalgia. All I've had is a lumpectomy and sentinel node biopsy. Chemo was not recommended based on my Oncotype score and for various reasons I could not have radiation, nor take tamoxifen or aromatase inhibitors. But here I am, 2 1/2 years later and doing fine. My doctors monitor me closely and I figure if anything crops up, I'll deal with it then. Both my MO and surgeon suggested a mastectomy, but they were ok with my decision. I think you need to find out why they are recommending such aggressive treatment for your "caught early" and "small" cancer. I agree with the option of a second opinion.
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Ebony, I would get a second option and also get the other specialists with whom you are involved for your other conditions involved in your treatment plan. They should be working with your oncologist to help develop a treatment plan based on your unique situation.
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Thanks all. Am having a second opinion next week. It bothers me that this surgeon wants such aggressive treatment for tumors everyone is calling, "tiny" and "caught early"(0.03cm tumor,small clusterof calcs).
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Surgeons do NOT make the final decisions on treatment. Oncologists do. Get one on board before you do ANYTHING, including surgery!!!!!!!!
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I don't see why any MD is telling you that you need chemo at this point. An Oncotype test will tell you if hormonal meds are the best treatment and whether you would benefit from chemo or not.
I have a lot of other health problems and could not do some treatments, but I did get onto an aromatase inhibitor, which is my only treatment now, after two mastectomies. At your stage of the game I was headed for chemo and Herceptin: retesting, second opinion and Oncotype changed all that.
So your IDC is 0.3 cm? You definitely need a second opinion from an oncologist.
ER and PR+ is a good thing.
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keep this in mind. I don't know where I got this stat but 50% of breast tumors left untreated would never leave the breast.
There was a woman in a support group with me who for complicated cultural reasons put off treatment 10 years and didn't get mets.
Lets face it, plenty of us are over treated.
you have a good shot at survival.
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Hi, Ebony ~ I'm so sorry about your diagnosis, but from what you've told us -- and especially in view of your pre-existing conditions -- it sounds like the surgeon you've seen is being overly aggressive re. rushing forward with his treatment plan. I strongly second the suggestion that you not only get a second opinion, but perhaps if you aren't already, consider going to a major cancer center where they will have all the specialties related to your needs under one roof, or at least on the same campus. That way, your medical team can include all the expert input you need, and they will all have instant access to your medical records and can easily communicate when an existing condition might impact a treatment decision. Having one surgeon suggest an aggressive treatment plan, especially in view of your other issues, seems very egotistical and dangerous. You need a medical team that will work together to figure out your best options taking everything about your health into account. I'm not sure one doctor can do that.
Here's a list of the type of comprehensive medical centers that might be best equipped to treat you. Hopefully, there's one near you. http://www.cancer.gov/research/nci-role/cancer-cen...
Good luck. It sounds like your breast cancer has been caught early, and from what you've told us, I see no need to panic. Take your time finding a medical team that has the most experience treating women with similar medical issues. (((Hugs))) Deanna
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Ebony,
As Ruth stated, surgeons do not make post op treatment decisions, oncologists do. Also, bear in mind that these treat decisions are driven by the final pathology report after surgery, not biopsy results. Lastly, although some women (not sure about 50%) may do fine with no treatment, how does one know if you will be one of them. Without a way of knowing that, it seems like quite a gamble. Take care. -
Hi:
I would just like to clarify something about that 50% number above.
Here is some documentation (sadly, the full-length article is behind a paywall, curse you Springer). First, the article is about DCIS, and secondly, the range or in-exactitude of the number is huge: "between 14-53% of DCIS may progress to invasive cancer over a period of 10 or more years." What it says is that DCIS can sometimes have an indolent course, and may be present for years before becoming screen-detectable and/or morphing into invasive cancer:
http://www.ncbi.nlm.nih.gov/pubmed/16319971
EbonyEye's pathology report indicates a mix of DCIS and IDC, based on a core-needle biopsy. In other posts, she has indicated that the IDC is 3 mm, although not all posts are clear on that. In any event, she has a diagnosis of "invasive" disease.
It is my understanding that the controversy about over-treatment relates to DCIS, which is an in situ disease and is not an invasive cancer. Once invasive disease is present, the picture changes. The National Comprehensive Cancer Center (NCCN) practice guidelines recommend sentinel node biopsy for invasive disease (but not pure DCIS). This reflects the relatively higher risks invasive disease poses, and the need for some treatment.
That said, in most cases, there is time to obtain a second opinion regarding pathology and/or treatment options.
BarredOwl
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Hi EbonyEyes,
I just wanted to say that the blood clotting disorder prevents you, I believe, only from taking Tamoxifen not the AIs. I also am unable to take Tamoxifen due to a prior history of blood clots and had my ovaries removed to go on an AI (Femara). I am sorry you are dealing with all this.
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Thanks, barred owl. That's why I was unsure of the 50% figure. IDC is a whole different ball game than DCIS and I was aware that ebony eyes had some IDC (seems pretty common to find that mixed with DCIS). Can't imagine taking a gamble and not treating that.
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EbonyEyes
http://www.cancer.org/cancer/breastcancer/detailedguide/breast-cancer-treating-by-stage
Stage I
These cancers are still relatively small and either have not spread to the lymph nodes (N0) or have a tiny area of cancer spread in the sentinel lymph node (N1mi).
Local therapy: Stage I cancers can be treated with either breast conserving surgery (BCS; sometimes called lumpectomy or partial mastectomy) or mastectomy. The lymph nodes will also need to be evaluated, either with a sentinel lymph node biopsy or an axillary lymph node dissection. Breast reconstruction can be done either at the same time as surgery or later.
Radiation therapy is usually given after BCS to lower the chance of the cancer coming back in the breast. Women may consider BCS without radiation therapy if they are at least 70 years old and ALL of the following are true:
- The tumor was 2 cm or less across and it has been completely removed.
- The tumor contains hormone receptors and hormone therapy is given.
- None of the lymph nodes removed contained cancer.
In women that meet these criteria, radiation after BCS still lowers the chance of the cancer coming back, but it in studies it didn’t help them live longer.
Some women who do not meet these criteria may be tempted to avoid radiation, but studies have shown that not getting radiation increases the chances of the cancer coming back which can shorten their lives.
Adjuvant systemic therapy: Most doctors will recommend adjuvant hormone therapy (either tamoxifen, an aromatase inhibitor, or one following the other) to all women who have a hormone receptor–positive (estrogen or progesterone) breast cancer, no matter how small the tumor. Women with tumors larger than 0.5 cm (about ¼ inch) across may be more likely to benefit from it. Hormone therapy continues for at least 5 years.
If the tumor is smaller than 1 cm (about ½ inch) across, adjuvant chemo is not usually offered. Some doctors may suggest chemo if a cancer smaller than 1 cm has any unfavorable features (such as being high-grade, hormone receptor–negative, HER2-positive, or having a high score on a gene panel like Oncotype Dx). Adjuvant chemo is usually recommended for larger tumors.
For HER2-positive cancers, a year of adjuvant trastuzumab (Herceptin) is usually recommended as well.
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A tiny IDC still doesn't equate to "required" mastectomy, much less a modified RADICAL one. Something doesn't make sense here. With the documented comorbidities she reports a lumpectomy would probably be the recommemendstion
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Hi EbonyEyes:
From previous posts, I recall that you had a palpable lump and more than one area of disease (an area of DCIS and another area of DCIS/IDC).
In certain limited circumstances, a mastectomy may be indicated for early stage disease. For example, with a biopsy showing widely-separated multifocal DCIS (two areas of confirmed DCIS and a third area of suspicious micro-calcifications), spanning a large portion of the breast, I was advised by two surgeons to have a "simple or total mastectomy" with a sentinel node biopsy (one to a few nodes removed).
Your situation may be different. As a layperson, I cannot say what the recommendation should be for you.
Because you have doubts about the recommendation you have received, and because of your other conditions, a second opinion would be of value.
For your information only, these are the different types of mastectomy:
http://www.breastcancer.org/treatment/surgery/mast...
BarredOwl
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Right--I was told lumpectomies weren't feasible for me because of multifocal high-grade DCIS in one breast and multifocal DCIS + IDC in the other (both additionally located deep in both breasts where there was no reasonable possibility of lumpectomy, either).
My brain went first to "radical mastectomy" just because that's a phrase I have in my head from when I was growing up. What I had, though, was simple mastectomy with sentiel node biopsy.
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Hi again:
Although, it does not change what I said above, I would add the following.
A surgeon's "recommendation" is not statement that there are no other options. The recommendation reflects their medical opinion that a particular option is what they think would be best for this particular patient, based on imaging, pathology, clinical findings, and presentation.
With lumpectomy (plus sentinel node biopsy), if adequate margins are not obtained, a second surgical procedure under anesthesia to remove additional breast tissue is performed ("re-excision"). I do not know what the rate of re-excision is, but this may be a consideration in balancing the risks/benefits between lumpectomy and mastectomy.
BarredOwl
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Hi EbonyEyes:
Still thinking about you evidently!
Whether or not a second opinion is sought, one can always call the breast surgeon's office and request that the surgeon give you a telephone call to answer some follow-up questions. Then take notes. For example:
- Can you please tell me again the technical terms for the surgical interventions you recommended?
- Would you please bullet-point for me the considerations which support the recommendation for mastectomy in my case?
Ask them to go slowly so you can note things down. Do not hesitate to review your notes/bullets with them at the end of the call to confirm your understanding.
BarredOwl
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I am sorry it happens to you.
We all try our best and we all have a hope for better.
I just would ask you to look closer at your nose.
I have seen somewhere that a lot's of our health problems come with our breathing problems.
Do you have some kind of nasal obstruction or chronic sinus pain?
All the best,
ata
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Hi, I just read your note and I also have Kidney disease stage 4, Breast Cancer stage 3, which I have surgery for in 3 days, and many other health issues. My worry is because of my Kidney Disease they won't be able to give me anything that will kill they cells they miss. What can they do for you? have they said?
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kbirk - the OP has not signed on to this site since early last year, so I doubt that she will answer you. This thread has not been active since 2015. It seems that you are new so I would advise that when you post, look at the last date the thread was active, and if asking a specific question of a member you can click on that member's name and check to see the last time they signed on. I was worried you would wait for an answer and be disappointed. You might also try using the search bar on the left side of the screen and type in kidney disease - the result will reference all mentions of kidney disease chronologically from newest to oldest. Wishing you luck!
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Kirk, you also might start a new thread. Also consider sending a PM to the member who wrote this original post. Some people have their account set up to send them an email if they get a Private Message. Best wishes
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