Exercise and well being during chemo and radiation

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  • eheinrich
    eheinrich Member Posts: 792
    edited August 2015

    Oh Katy. I'm so sorry. Your shit sandwich has had so many toppings. Know that we are here for you always. From what I've seen you are a fierce, strong lady. I agree that seeing a random shrink would be less than ideal given the catch up time s/he would need.

    Hang in there my friend

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    Katy, So sorry for what you had to endure today.

    Littleblue, I plan to try and keep the arm out to the side the best I can, to wear soft, cotton t shirts and/or tanks, and to use corn starch before my runs. I also try to plan to run while it's cooler, and like chemo, I will adopt a walk a couple miles, run a couple miles strategy. I also will try to not swing that are back and forth too much. I am very thin, so I will likely chafe less than a lot of people.

  • SueH58
    SueH58 Member Posts: 632
    edited August 2015

    Well, my DH often starts a sentence with "we'll laught at this some day, but..." Now I realize it's not as serious as your situation, but I know your "Katy disposition" will get you through whatever you choose to do.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    thanks guys. Home now. Limp noodle. Got my Jack and Tutti with me. Tomorrow will be better.


  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    You're going to get stuff taken care of so you can be as healthy and happy as possible. Got some yoga or breathing you can do, maybe with some music?

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    Susan- I like your new avatar.

    Great minds think alike.

    To get home I blasted out the 1812 overture. With full cannons. Loud.

    I think, when I reflect onthe day, that it was her use of the word "disfigured" , and that she could fully understand why I couldn't stand to look at our touch myself that got me. That my worse fears and self-bashing were actually true. I know I will get past it.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    It doesn't sound like she had the greatest bedside manner. Both the up- and downside of what she said was that she confirmed your fear. I want to encourage you to think of this as legitimating and liberating, especially since it sounds like you'll have some options.

    Today's avatar is an American oystercatcher. For you I'd change it to an Oregon local Black oystercatcher, or indeed, any bird that would give you pleasure.

  • pboi
    pboi Member Posts: 663
    edited August 2015

    Katy...I am so sorry. Glad that you are home safe with Jack and Tutti with you. You will get past this...and we are all here for you, lean on us when you need to. Hugs!!!

    PB

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited August 2015


    Oh, Katy, so sorry for your day. Mine has not been great either. I ended up going in for a brain scan and a bone scan. Not sure exactly why my MO is having me do all these tests. I cried through it all. I am sure they think I am a big baby! Home now, but a mess. Three more scans next week. All based on the tumor markers, I guess, but she sure does not explain things to me. About you, you know I have a sister in Corvallis. She would welcome you to stay with her if/when you go to Portland. She would even drive you. I am not sure how far you are from Portland. What city are you in?

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    image

    Katy, here are the Cat-boiz to keep you company.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Mysunshine, I'd be crying, too. Do you know when you'll get results back?

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited August 2015

    Katy, I had to start a new reply as my iPad is not cooperating. I think you can see that we are all in this together and care about you a lot. Try to keep yourself together (easier said than done), but we hsve to get through all this crap so we can get healthy and strong and move on with a long life! Love you! Lyn

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    Susan- I agree with you on all points. The message and the action plan is what I need to focus on, not the delivery. It was quite shocking, but I am fucking fierce and strong.

    I appreciate you offering to rename a species for me. The oystercatchers I've seen here in Oregon, Port Orford to be exact, have the most enchanting but haunting call. They are quite distinctive with their long legs and yellow feet. A favorite of mine, and the mere imagery and memory cheered me up. I guess the word "mere" has no place in that sentence. Huh.


  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    Lynn- you poor thing. I'm sure it's just baseline routine stuff. But I think I would be crying too.

    That is so nice to offer your sister! I love Corvallis and remembered she was there. The ps I'm going to talk to comes here from Portland once a week. I'm about 3 hrs south of your sister. As Hopeful said, maybe it wouldn't be as bad as I fear. It won't hurt me to talk to him.

    Susan- love the boiz. Looking very in charge of their space!

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    These handsome birds? Ee-ee-EEE!

    image

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited August 2015

    Ksusan, I did my own research and of the 2 tumor markers she did, only one was a little elevated. I am trying to think that she is just bring over cautious. It is so weird that many of you never even had their MO mention tumor markers. I posed the question on other threads too and so many women never had these mentioned or said their MO did not do them. I get the results of today's tests on Thursday. The chest, abdominal and pelvis is next week. Geeezzz!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited August 2015


    Between all this and what foods to eat and what supplements to take, I could end up a crazy woman!

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Mine ran tumor markers before chemo. I also had a PET/CT before starting.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    Lynn- it is indeed crazy making. The reasons I've heard MOs often dong do them, especially early stage is they give off false positives often. Try not to worry

    Susan - and the red spoonbills! I'm glad you also so subtly changed your siggie line to commemorate that

    TODAY WAS YOUR VERY LAST RADS!

    Well done madam. The mutant uprising has most certainly been quashed. I hope tonight is a night of quiet but joyous celebration.

    🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈💫

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Indian food with turmeric :-) to celebrate.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    yum. Don't forget the pepper! And the Naan!

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Pepper to potentiate the turmeric. Naan in moderation because my non-gluten-eating spouse loves and can't have naan. Might go for black pepper papadam instead and take care of both needs!

  • Italychick
    Italychick Member Posts: 2,343
    edited August 2015

    Katy, I'm late to the forum, sorry, grand baby day, but I can tell you I had a plastic surgeon do a scar revision on my daughters face (old terrible scar at the side of her eyebrow, done by a hack piece of shit doctor when she was a child and I was an ignoramus), and they can do a lot with scar revision. I am hoping that can be done with yours. I'm not really sure if your issue is the surface scarring or internal scarring, but don't give up hope.

    So sorry. The person who said that to you was a complete rat bastard fuck face fucker nut bitch.

    I have a few other choice words for her, but I may be at my swear word limit!

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    Another busy, busy day! Just got back from a 5.25 mile walk /run. Walked 2.5 and ran 2.75.

    Tomorrow will likely be just about a 3 mile walk. I have to be at work in the morning, have rads practice run at noon, and have to back at work at 5:30. Then Thursday rads begins..........

  • slothabouttown
    slothabouttown Member Posts: 449
    edited August 2015

    Something I came to learn through this process is there seems to be a tendency among the different veins of expertise to"trash talk" each other's work. My surgeon trash talked the RO, said he causes lymphedema, the RO TRASHED the surgeon and my MO, and my LE therapist had general disdain for all doctors! What they all seemed to forget when they were bitching about each other's work is that we are their work product. It's not a golf game or a fantasy football league their talking about, these are our bodies and we are standing there naked and our feelings are raw. It's too bad that seems to be forgotten so frequently, that we become "shop talk" and we continue to acquire even more scars we can't see.

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    Good point Sloth. I prefer teamwork to trash talk

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited August 2015

    Italy chick- well said!

    Katy, glad yr home with your kids! Big hugs!

    Joined a gym for the sake of my armpit today. 1 hr on the stairmaster, level 5. Arm strteches. MLD. abs. Wearing my sleeve. One down 32 To Go!

  • SueH58
    SueH58 Member Posts: 632
    edited August 2015

    So Katy, how was the bread? I can just see you laying in bed, with your 2 furry friends, overlooking the view, with delicious bread and a little red wine. I hope it's relaxing and making you feel better. You rock, and you're right--tomorrow is a new day.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Katy, is this person typically this blunt, or was she giving you a covert message that might be something like "Sue the bastard"?

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    it was the first time I'd met her. I think she was just blunt. It did not seem as though she was suggesting malpractice. She did ask which doctor. I didn't read anything in her facial expression to clue me in when I told her his name. I think she was honestly shocked at what I looked like, saw I was uncomfortable from the defensive way I was sitting, I started to cry when I talked about my pain, and she ran with it. She went too far, but maybe some good will come of it.

    I've said it many times, it was a horrible experience. The information itself was no surprise to me. I know what I look like. I've been trying to make the best of it, hoping I'd learn to accept it. The pain was my primary Ramon for being there. She said she is not sure she can help me with that but she will try.

    But you gave me good advice. I will not be further victimized by it, and I will see what can be done. I will double check with my shrink on Thursday that my mental state is not as precarious as she suggested, and I will pursue the idea as to whether "the pain is in my head" if that's even possible. I felt that was insulting.

    But it's my job to take care of me.

    On a bizarre final note, she talked about her sister who had suffered enormous pain, for different reasons, but had used magnets to good effect with her pain. She said there is not clinical trials to support it, but anecdotally she thought I might wish to research it. She also told me one of my legs was longer than the other. Totally off point. I left feeling like a monster.

    Hmmmmm. Magnets?

    I am re-reading what I've read, and I can see I'm not communicating entirely cogently. I'm emotionally exhausted and I'm going to just give up on the day now. Thank you all again,


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