mastectomy show IBC?

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Nikki1986
Nikki1986 Member Posts: 21
edited August 2015 in IBC (Inflammatory Breast Cancer)

I was diagnosed with IDC stage 2 triple neg in Jan. Sentinel node bx was neg. Started chemo in Feb and began noticing that my affected breast would fluctuate pinkish/red. Sometimes it would go away but always come back. My onc wasnt worried as I mentioned it several times because I was worried about the possibility of having IBC as well. Well I just had bilat nipple sparing mastectomy and no cancer was found. However my breast is still red and Im still worried. Would IBC have shown up on the pathology for nipple sparing mastectomy?


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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2015

    Hi Nicole-

    We want to welcome you to our community here at BCO. We're sorry for what brings you here, but we're glad you've joined us, and hope you find the support and advice you're looking for.

    IBC is a very aggressive disease, with symptoms progressing rapidly, sometimes in a matter of days or weeks. Symptoms of IBC typically do not come and go, like you've described. It also would have shown up on your path report from the tissue that was biopsied after your mastectomy. So it's unlikely that you have IBC.

    If the redness persists, we would suggest speaking to your doctor again about what could be causing it. It could be some kind of infection, or a side effect of the chemo. It sounds like something is going on, but more likely it's a symptom of your treatment that's causing it.

    Please keep us in the loop!

    The Mods

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  • Kicks
    Kicks Member Posts: 4,131
    edited August 2015

    IBC is rare - only between 1% - 5% of all DXd types of BC. It is aggressive and rapid in presentation - literally overnight often/usually. Once it presents it progresses,rapidly - not 'coming and going'.

    IBC does not always present with 'redness/rash' - MANY do not. I did not and never developed any redness/rash in the 24 days from overnight presentation in lymph node (17 days from DX to starting neoadjuvant chemo.

    There are MANY possibilities/probabilities for skin issues (even on breast) that have nothing to do with any type of BC. 'Something' is going on and,you do need to find out and take care of it. An appt. with a Dermtologist might be in order. Of course, 'anything' is possible, however, IBC would be incrediably unlikely. Skin issues/infections, on the other hand, are quite common.

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  • Nikki1986
    Nikki1986 Member Posts: 21
    edited August 2015

    Thanks for your responses. Hopefully I can discuss more with my surgeon next week. I also dont have any lymph nodes affected so wouldnt that be rare with IBC?

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