August 2015 rads

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  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    I think it would be worth asking if you're concerned about breathing and how they're avoiding your heart and lungs.I'm sure they'd rather that you ask than worry.

  • CAMommy
    CAMommy Member Posts: 437
    edited August 2015

    yes, it can cause heartburn. I'm not sure they are hitting esophagus as much as the scatter is, but he did say the esophagus is in my line. I'm also easily nauseated.

  • Coconut0906
    Coconut0906 Member Posts: 1
    edited August 2015

    Hi, I started on Aug 17th also. Today was #4 of 33. I was told to use Aquaphor Ointment (horrible sticky stuff that I cannot use due to sensitivity to lanolin), Dove or Ivory soap, aluminum-free deodorant such as Crystal (goes on wet and takes forever to dry) or Toms of Maine, and use an electric razor for the underarm. After reading some other posts, I decided to go with Jeans Cream, which I love. Days 1 and 4 were 1/2 hr in which my fingers went to sleep! The other two were about 15 mins. They had to do x-rays which took longer. As they're doing the entire left breast, it's due to getting the best position with the least collateral damage to the heart and lungs. They initially tried me in the prone position during the sim but being on my back worked better.

    So far, everything is OK. The light fixtures above me are clouds and blue sky so I focus on that and try to relax. Yes, it is like an ET staring at me, moving away, and popping up again!

    I was also told to wear a wireless cotton bra. Some other posts mentioned the Genie bra but it's not cotton. Anyone have any suggestions?

  • Woods
    Woods Member Posts: 17
    edited August 2015

    Had my first treatment today. Scary room! It was for three minutes only. I see some people have it for 15 minutes or more? My doc said total of 5 minutes only with this new fangled machine. I was so so nervous and cried in the waiting room. 24 more to go. My boob is HOT. God I hope my side effects are not bad. Hopefully I will be not such a wreck tomorrow. Oh I was going to ask about lotion? I have some Aveeno daily moisturizing with Oatmeal you think thats good? THanks!!

  • Keys-Plez
    Keys-Plez Member Posts: 304
    edited August 2015

    4 of 28 done. I get rads on my way home from work. When I get home, I lotion up, put on a soft, comfy TShirt and throw a Polar Pad over my rad area. It's very cooling and I just chill on the couch and watch the news. Someone on this site recommended it. Whoever you are, Thanks. It's perfect. I got it off Amazon.

    Physically I'm doing fine. No noticeable changes. A little bit of sensitivity after rads, but that calms down after chilling with my cooling pad.

    Emotionally...I had a little private meltdown at work today. I just had a dark cloud hanging overhead. It followed me to rads too.

    I'm having a bone density test and blood work tomorrow in preparation of meeting with my MO next week to discuss AIs. The fun never ends.

  • Keys-Plez
    Keys-Plez Member Posts: 304
    edited August 2015

    Woods..Oatmeal? Is that an exfoliate? That does sound like it would be comfortable. Hot...get a Polar Pad. It really draws out the heat. I love mine. Look on Amazon. Good luck tomorrow.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    I don't remember if it was in this thread or the Summer 15 rads thread that someone talked about the machine actually touching her. This happened with my boost today and I asked about it. The techs thanked me for asking and assured me that this doesn't matter--that they're calibrating based on the beam distance to your skin, so if I was a little less swollen today, the millimeter's difference might mean the edge of the plate would touch me, but it was not a problem.

  • Nancdancer
    Nancdancer Member Posts: 47
    edited August 2015


    That was me asking about the machine touching me. It goes right up to my elbow each time. I am so nervous that it is going to go the opposite way when it starts to move. I should just out my arms directly behind me instead of the arm holders

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    I have my sim today. I am hoping I can see the RO briefly to get all of the questions answered that the PA could not answer last time. We'll see. I'm a bit nervous about that. I worked last night though, so other than that, I am hoping I can take a nap on the table for the hour or so I'll be there, Hoping I get a convenient time slot, and that I can start on time, which would be on Tuesday.

  • Zoritsa
    Zoritsa Member Posts: 37
    edited August 2015

    ksusan, They've assured me that my heart and lungs will be fine, but it's just my nature to have it in the back of my mind. My MO assured me that the bad side effects of Tamoxifen are so small, I shouldn't worry....but I already know I'll be thinking about when I start taking it. That's just how I am,lol. I get over it quickly though.

    Speaking of the MO, I finally met with mine for the first time yesterday. He gave me the script for Tamoxifen and told me that I'll start taking it a week after I finish rads. I was nervous meeting him, since I checked out some reviews on him and no one liked him because he's to technical. I liked him...technical or not. I understood everything he told me,in fact, he didn't tell me anything I didn't already know. I'd rather someone be technical, but look me in the eyes and really talk to me, then just talk at me while looking at their computer screen or something.

    Today will be #8 for radiation....5 more weeks then. I'm gathering a collection of lotions,ointments and creams, but hey, if they work at keeping my skin feeling not so bad, I don't mind. I will be happy when I can put them all away though. So far, so good though. Some days my skin feels warmish, but mostly, it's just sensitive. I am noticing a lot more yawning and feeling a bit drained. It doesn't last long.

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    I had my sim today. The RO was in there for a while and answered all of my questions. He told the dosimetrist that he has spent a lot of time working out the details of my case and working out the details; much longer than most. I do know there are some complicating factors; I told him I appreciated his time. I also found out that I will be getting the bolus every day...and they will be using the bolus on the entire area. The tech's eyes got really big when he said that. My friend just finished rads a couple weeks ago and had the bolus every day on a small area. I know what that area looked like. Yikes! I need to think long term though, and I am glad he is being aggressive. My dry run is Wednesday, and I start on Thursday.

  • bluefin
    bluefin Member Posts: 50
    edited August 2015

    I'm waiting for rads #5 today. I started Monday. So far so good but I think it's early to be expecting any issues yet so we will see how things look in the next couple of weeks.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    After I'm all done with treatment, I will have a big box of medical/skin care products to donate to the local women's shelter and low-income clinic!

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Cross-posted to Summer 2015 Rads thread.

    image

    Here's 31/33 (14 + 14 with bolus whole field + 3/5 boosts with bolus). I'm pink and a little itchy but the only problem has been in two spots where I had contact dermatitis from the sim stickers. One had two little blisters for a few days, and one has darker and somewhat coarse skin at the moment. The light-blue inked area around the mastectomy scar is my boost field (all with bolus).

    • Miaderm 2 hours before radiation and immediately afterward, in the late afternoon, and before bed.
    • Supplemented with an occasional Aquaphor application, normally not before bed since it made me too hot.
    • No deodorant before or for several hours after radiation; crystal deodorant later in the day if necessary.
    • A little calendula lotion and calendula oil on the two dermatitis areas.
    • MLD before radiation and at least one other time per day.
    • ROM stretches 1-2 times a day, not pushing it (about 1" ROM lost at present due to tight pectoral).
    • 200 mg Advil with RO's consent x 2 a day.
    • SPF 35-50 sunblock on entire radiated side if in the sun more than 10 minutes.
  • Woods
    Woods Member Posts: 17
    edited August 2015

    No exfoliant on the Aveeno. I am using Aloe now..2nd treatment today and it hurts! Zapping pain on side of breast and already burning..god what's it going to be like next week when I have a full week of this and four more? UGH..

  • Nancdancer
    Nancdancer Member Posts: 47
    edited August 2015

    Week 2 done and so far no skin change, hope it stays that way. Got a better time for my appointment so happy about that. Having a hard time taking a deep breath but doing my best. I have rads on both breasts so takes longer. I did start crying one day on the table but have been fine the rest of the week.

  • auroaya200882
    auroaya200882 Member Posts: 942
    edited August 2015

    Just started my first rad yesterday today I had my second one. I am a little different than most of you as they are targeting two vertebrae C3 and T4 which they found tumors that are breast cancer. Hope I don't scare too many of you as I see you are probably all early stagers but I read your posts and those in the summer 2015 thread and I've already learned a lot of what to expect which I had forgotten from when I had initial diagnosis and rad tx.

    Woods I read you live in Cancun or somewhere near. I lived in the area for 7 years in the 90's including Cozumel and my parents lived there for 30 some years until my dad passed this past February. I'm a little worried about the treatment you are receiving because here in the States you don't start seeing changes in the skin in the first two treatments and I'm wondering if they are using the right dosage. Like others have said don't hesitate to ask questions and raise concerns. Doctors in general don't like to be questioned and in the side of the world where you are they may be even more reluctant to answer questions but try nevertheless.

    When I lived in Cancun I had my hysterectomy and I pretty much ordered my surgeon to do the surgery telling him I would not do hormone replacement therapy and he had to go along my wishes even if he wasn't happy. So be your own advocate is what I'm saying.

    I wish everyone to have a relaxing evening and no side effects or pain.


  • meezers3
    meezers3 Member Posts: 95
    edited August 2015

    I start treatments in a couple of weeks. Does any one have to go to work after their treatments? Just worried that I will be uncomfortable moving around at work after my treatment.

  • Nancdancer
    Nancdancer Member Posts: 47
    edited August 2015

    my appointment is at 2:30 and I go back to work after, only on 2nd week out of 6 so it has not been hard so far

  • ErenTo
    ErenTo Member Posts: 343
    edited August 2015

    My appointments are end of day around 5ish, so I go home, apply all the lotions and get in comfy clothing.

  • meezers3
    meezers3 Member Posts: 95
    edited August 2015

    Thanks! I hope things continue to work out for you!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited August 2015

    I made an 8 am appointment, hopi g it won't impact my work to much. If it does, I'll juggle it through until it finds its proper spot. Sorry, no, I can't survey for 10 hrs straight up a hill, unless it starts after 9 am. I need time to look this good!

  • ErenTo
    ErenTo Member Posts: 343
    edited August 2015

    I've had 14 treatments so far. I'm fine after daily treatments and not particularly tired yet, although I fall asleep earlier and sleep better overall, but that could be due to the fact that chemo is finally out of my system and is no longer messing with my sleep.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    I had more fatigue earlier in radiation than I do here at the end. I think it was probably the tail-end of chemo catching up with me.

  • Keys-Plez
    Keys-Plez Member Posts: 304
    edited August 2015

    I go after work and then go home. I debated on going before or after work. I think I made the right choice. But I like coming home, putting on my lotion, a soft shirt and then kicking back with my Polar Pad laying over my shirt.

    I talked to my RO today about breathing. She said my heart and lungs are not in danger. My radiation is breast tissue only. She said it gets tricky if they have to radiate interior lymph node sites. That doesn't apply to me.

    I'm not feeling any real physical side effects yet. 5 done of 28.
  • meezers3
    meezers3 Member Posts: 95
    edited August 2015

    keys-plez I think I would prefer to go home after my treatments and put on my lotion etc. The techs that did my sim last week were hinting towards morning treatments. I wonder if it's because it suits their schedule..Hope morning treatments work out for me.

    Last week my sim was at 12, I waited a long time in both waiting rooms and didn't get out of there until after 2:00. Tuesday, I have another appointment at 12. I told them that time isn't going to work for my treatments because I have to work. I'm also having trouble finding a support group that meets after work. They have some that meet at 10 am.

  • meezers3
    meezers3 Member Posts: 95
    edited August 2015

    ErenTo, going to bed early and sleeping better sounds good. I've been having insomnia and not sleeping well mostly because I am still getting some pain for the lx. My seroma is shrinking but I think I am getting some discomfort from the marker device.

  • Woods
    Woods Member Posts: 17
    edited August 2015

    I guess I have sensitive skin! I am being treated at Galenia Hospital in Cancun brand new Oncology Center..state of the art and love my docs but will be speaking to her about my issues on monday. So so glad for the weekend to recover a bit..I also have heartburn.

  • Keys-Plez
    Keys-Plez Member Posts: 304
    edited August 2015

    Meezers...Sounds like after work would be better for you too. If they're running late, at least you won't be missing work. I just have to watch my time at work and not allow them to suck me into something that will run past 3:00. And if they do, like they did to me last Friday, I just told them."I gotta go" and left. If you're an overtime worker, it might not work. I sometimes work over, but without pay. So it really works well for me. I come in an hour early to makeup for leaving at 3:00.

  • meezers3
    meezers3 Member Posts: 95
    edited August 2015

    You made the right choice by leaving when you were supposed to. Your health comes first.


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