Cancer in scar after double mastectomy; what now?

I had a primary tumor and two spots that were precancerous. Due to my medical history of lymphoma, my doctors recommended BMX. I took tamoxifen for 6 years! Not sure if it helped. The new tumor type (er+,pr-) is not responsive to Tamoxifen

It sure does!

Have you been able to get an appointment with your doctor? I hope that the lump turns out to be benign

Jamie, My oncotype was 16 too. When do you start chemo. I hope it goes as well for you as it has for me. I have just 4 Taxol left! I did 4 AC and 8 Taxol already. Then onto rads.

Frostecat, I had the lump removed nad then further excision where they made sure there were very wide margins. They took some of the pec muscle, but my implant stayed since the tumor was between the pec muscle and skin. A second tumor was found hanging out in the soft tissuea bout an inch away from the impland towards the axilla, so they took that with wide margins and a whole bunch of lymph nodes too. Other than a couple extra scars, I look really good still. Not sure I'll be able to say that after rads though!

My appointment is for Friday in the AM so hopefully I will learn a little more then. But we all know how it goes, wait for this wait for that, which to me is the hardest part. They wanted to wait until next week to get me in, but I told her I can't handle the waiting, so Friday it is.

BEST NEWS EVER!!!!😊

Hreat news

Phew, Frostecat. I hate that you had to go through all that worry for fat necrosis, but at least you have relief now!

I am still going very well. There's s new thread in the chemo forums about exercise... Hop on board! There also is an active thread specific to TC which was very helpful to me in 2013. I try to remember every day that chemo is my ally, not the enemy. Cancer is the enemy. I have just 3 Taxols left and I still feel great !!

hey everyone. I had a 3 month check up with my Onc and she found a small marble like 'thing' in the cancer breast and I have an ultrasound scheduled for Friday morning. Almost eactly 2 yrs since my BMX. She says it is probably fat....but it has just popped up very recently and it on top of my expander, almost exactly where my cancer was. I am panicking. I had a HORRIFIC time with dose dense chemo and I had 32 radiation treatments. I won't do chemo again and I can't have radiation...I feel pretty doomed right now :-(

i am unfortunately joining the band wagon. I had a bilateral mastectomy with saline implants 3 yrs ago. At that time I had an oncotype score of 16 so no chemo. Been taking tamoxifen for 3 yrs! In July found a small lump which is IDC. I have a clear CT scan and bone scan. The BS is sure the tumor is at the original biopsy scar. The MO and BS say it is a local recurrence, but it is still scary. I choose a BMx so I would only have to do treatment once. I will have surgery to excise the tumor and than radiation and the MO will decide about chemo once she has the final pathology report. This group is showing me this happens more often than I expected. Thanks for starting the group.

KBReee congrats on being finished with chemo and stay strong for radiation. Did you have the oncotype testing with the first occurrence? Thanks for telling your story

my local recurrence is ER + 80% and PR + 50% and Her2 -. I am not sure about the k67 level. My MO said she would decide about chemo after she gets the final pathology.It sounds like most people with a local recurrence have chemo. I wonder if they will do another Oncotype on the tumor? I wish you all the best and a quick return of your strength and energy.

May be joining this club. Was back for follow up 2 years after finishing treatment. Had a chest CT for another issue on my right side, but they found something outside of my implant on the left side. Did find something on the right rib where I was having pain. Also saw a shadow top of pancreas, and something on left ankle. Also BR 27.29 tumor marker was increased.

Having a PET on Thursday. Yikes. I think my signature still has all my hx. Basically right lumpectomy in 2008 with chemo and rads, left side issue in 2012 with mastectomy/reconstruction, chemo through June of 2013, right side TE infection in Jan 2013. took it out. Tried last summer to put TE back and used hyperbaric for better success. Infection, skin issue where original rads were. Took it out in Oct 14.

Cannot believe I am even back on the list serve looking for this....but glad to see others. I hope everyone has a good weekend and recoveries from surgeries.

I am a professor/AD so plenty to keep me busy until I get results.

SharonS, sorry to hear of your concerning medical tests results. Sending good thoughts to you. Hope you have fun things to distract you as you wait for the PET scan so you don't have time to worry. Feel free to bring your concerns here, everyone is a great listener

I am having a lumpectomy on Monday for a local recurrence and am anxious to get treatment started !

Hope you are doing well Doingwhatihaveto and have a treatment plan soon.

My onc won't have the final read in the lump until Tues bc of holiday, but she did say no METS. That is something good.

If the tumor is cancer I am going to have the implant removed too. Since the right implant failed three times I really hate the whole lopsided thing. I was always small and would just prefer to go with nothing sometimes

Appointment is Tues at 10. A little more waiting.