August 2015 rads
Comments
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I used a home made cooling towel - a finger tip size towel wrung out in water, rolled up, stuck in a zip lock baggie and tossed in the freezer overnight. I threw it in my purse align with my aloe and applied both in the dressing room after tx. I think it made a difference in how I did and it certainly felt good.
Thanks again to SweetHope (summer radiation thread founder) for the suggestion!
I will say that it felt great last Friday after my last session to throw it in the laundry and then put it away! -
I'm really looking forward to donating a bunch of medical supplies to local medical charities!
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Can anyone point int he right direction with lotions, etc? I started yesterday and I used AQUAFOR before bed. Its gross...HELP!
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Alibeths....I started radiation yesterday also. In Key West. You never told me where you're are having your treatments.
I didn't take anything with me. I had a list of things and they scratched off what they didn't want me to use and added a couple of things. They don't seem to make a big deal out of it and just keep telling me to stop being so nervous. But I don't have an abundance of confidence in them and will continue to be proactive in my own treatment.
They like Crystals deodorant and CVS Blue Aloe Gel with lidocaine. Don't get Walgreens Aloe Gel. It has alcohol.
I didn't apply any lotion at the facility cause I'm on my home after my treatment.
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I posted this over on Summer 2015 RADs. I'll post it here too.
I had my first rad of 28 yesterday. Yes I was nervous as hell. I went after work and was armed only with a list of questions and my digital voice recorder. My RO said I wasn't listening to her. How do you absorb everything when your brain is going 90 mph (160 kpm to my friends over the border 😊)? I knew I could go home right afterwards. Thus the voice recorder. I didn't bring any lotions or anything. I was going home right after and figured I wouldn't be baked like a potato on my first trip.
Anyway, I kept my head in a good place. I tried to keep my eyes closed, but my curiosity got the best of me. I'm proud to say I'm a bit Geeky. I didn't physically feel a thing. After a bit, I started thinking of the machine as ET, the extra-terrestrial. I couldn't see the whole thing cause I had my head turned to the side. But the little alien head kept popping up in my field of vision and staring at me. First it pops up on my left side. Then it disappears from my view and I'm waiting to see where it's going to pop up next. I felt like the alien was as curious about me as I was about it. I was expecting it to raise a crooked little finger, point to the sky and say, "ET Phone Home." I can't stop laughing about it when I think about it or tell someone else...like now. 😊
Bottom line, I kept my head in good place, I didn't feel a thing. I'm getting a few more twinges in my boobie. Or maybe that's in my head too. I still get occasion twinges from the surgical site. But it seems like a little more than normal.
I must say that as I was leaving the facility, my team said. "See you tomorrow". That kinda hit me and took the wind out of my sails. I hung my head and replied, "Oh yeah". This isn't just another appointment, it's my new norm. Crap!
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I'm in Deerfield beach Florida!!!!
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Alibeths, I have two different creams/lotions now (Aquafor, and one that the radiation dept gave me yesterday), and I think they are all gross in their own way. I'm using some old sports bras after I apply them. I also don't apply them right after, since I pretty much go straight home afterwards. That may change in the future though...all depending on how my skin is.
Keys-Plez, I'm the same. They didn't give me anything at first, not even a list of products (except the crystal deoderant (which does nothing for me)), so I looked here and bought the Aquafor, and will get the Aloe Vera from CVS soon. I think we have to be proactive ourselves. They all keep telling me of the easy peasy side effects and never mention what could happen, like some here have experienced, so I want to be on top of things myself with the skin care. I understand they don't want to scare me, but I like being informed.
Nancdancer, I understand that. I am 43 and so far have been the youngest I've seen....even the person who did my dot tattoos was like,"Oh my gosh, you are SO young!". Everyone wants to know how I found out, whether it was through a routine mammo, or through a self breast exam.
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Zorista...So how did you find out?
Alibeths...You're on the mainland. That's great. You have so many more options and better shopping. I'm 132 miles from the nearest Walmart. The saying down here is, "I live closer to Cuba than Walmart".
I have had a headache all morning. As a rule, I don't get headaches. The only time I get a headache is when I'm dehydrated (too much sun or too much alcohol). I'll let them know this afternoon. As one person said, "They can't feel what you feel". You have to let them know.
Make sure you get the CVS Aftersun Cooling Gel with Lidocaine Aloe Vera. It's blue. The green doesn't have lidocaine.
I use Cetaphil lotion. My RO said that was fine.
Is Aquaphor a name brand? I looked it up online and they have so many choices and options.
Hey, does anyone get my connection with the machine and ET the extra-terrestrial? Nobody likes my humor?
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Keys-plez: (amused at the image of ET!) Yes, Aquaphor's a name brand--it's put out by Eucerin. Sticky gooey stuff!
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queen...Thanks for laughing at my ET connection. So which one of the Aquaphors do you get? Baby, Advanced, Healing, ???
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Alibeths, Miaderm is expensive but working well for me. Everybody remember to stay well-hydrated, keep your protein up, and if you go in the sun, use a high SPF sunblock or a sun-blocking shirt (like a rash guard or board shirt).
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Key-Plez, I found the advanced healing ointment, and bought Walmarts version which is named equate. It's usually right next to the name brand. I did have to look up what lanolin alcohol was though....because when I read that as an ingredient, I was afraid I bought the wrong thing. Found out it's a non-drying organic compound produced from lanolin. Learn something new every day. I looked on this site and others for products that others were using during radiation. I started radiation in the middle of the week...maybe had I started on a Monday, which is when I meet with the Dr. after treatment, I might have gotten more information on products then and been given a cream sooner. I don't know. I'm just glad this site is here and people are willing to tell others what worked and did not work for them.
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Keys-plez: I got the advanced healing stuff (looked at Target, but didn't see if they had a generic version. Won't do Walmart for personal reasons.) Now envisioning other ways to apply lanolin to the area getting rads; rubbing sheep on our breasts probably wouldn't be approved by the medical community, even if we did use virgin merino.
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I think rubbing sheep on our breasts is the way to go. It's, like, natural.
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queen....sheep. Funny. Besides, it's summer. You should save that for winter. Maybe I could make a sheep-shawl.
I'm in the Keys. 132 miles to Walmart. Even further to Target. Thank God for Amazon Prime.
As one may see, I'm not really focused on work today. I gotta get busy. I have to leave in 45 minutes to meet with ET (extra-terrestrial).
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And everybody knows that natural is the way to go when treating cancer! (Radiation's natural, right?) Hopefully, Michigan will have cooled off enough by the end of September for me to use the 'sheep rubbing' technique. Until then, Amazon Prime for me as well!
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Nice ksusan. WWJD?
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Start tomorrow for CT scan and tattooing? Then for real on thursday. Hope my skin can handle. I have 25 sessions ahead of me. WANT THIS OVER. Anybody have hardening of boob? That kinda scares me. I had lumpectomy one month ago. Worried about side effects but I don't have to go to work so thats good. I live in Mexico and have to take a ferry to Cancun for my treatments and its SOOOOOOO hot right now. Doc said to stay out of the sun..near impossible living here but I guess my a/c bill will take the hit. ok back after a couple of treatments.
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I believe that J would not suffer the mutant cells to live.
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just did #2 of 28. Surprisingly 2 was tougher than one, mentally. I was expecting the first would be the most emotional. So I prepared. But it was no big deal. I had all my walls up. I guess I blew all my defenses yesterday and was running on empty today. Overall, once I got there, I was ok.
Physically I did quite well. I interacted with ET a lot more. I even watched him with my peripheral vision as he followed me around the table. I even stared him in the eye when he was hovering over me. I dare say we might become friends, or at least have a mutual understanding.
I didn't feel a thing. I have no pain. When I got home, I put lotion on and threw a cooling pad/towel over a T Shirt while I watched a little TV.
2 of 28 done. So far no issues, no noticeable changes.
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Done with WBIs; now I get 5 boosts. I'll post the boost sim photo later.
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Go, ET, go! (keeping that image firmly in mind for when I start.)
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I tried to picture the machine as E.T. Today, didn't work, it still looks like something out of Alien to me.
5/20 today, 25% done. Talking to the tech about the nausea I have and he said it's not uncommon to have some from breast radiation because they are hitting part of the esophagus. That made me feel better. lorazepam works great for the nausea, I am very glad of that. And I'm more relaxed too. No pinkness or skin issues yet but I am sore and itchy.
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Ha, I couldn't get the image of E.T out of my head while I was getting my rads today. 6/33 today, but while I couldn't actually picture E.T, it did make me think of having some alien scanning over me. I sang my,"I f'n hate radiation" song on the way to and from the hospital today...and will probably do so everyday until I am done. The lyrics are the same, though the melody changes depending on what I'm listening to at the time
It's juvenile, but it makes me feel better,lol.
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it seems like everyone is having a boost, what is that exactly and why do you get it
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A boost is radiation to a more concentrated area, typically the incision scar and tumor bed. It seems often to be 5-8 sessions at the end of the radiation treatment. Its purpose is to be sure that scar tissue, which is thicker than normal tissue, receives a good dose of radiation so that if any rogue cells are lurking there, they get adequately radiated. Electrons are used, and the dose intensity may be higher. A different "sim" is done (where you're marked so the techs can line up the machinery and check it properly). Mine is delivered through the same equipment, but with a snap-on plate holding a squared-off "cone" that holds a sort of stencil of the area getting the boost.
There's a photo of my "field" a few posts above this; the techs line this up with the visible light that comes through the stencil and is projected onto my chest. I assume they don't do tattoos for this because it's a short course of treatment.
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I'm glad ya'll like the alien theme. Sometimes I think of War of the Worlds🐙CAMommy The esophagus? I didn't think they were supposed to hit anything but breast tissue. Dang! That's a bit frightening.
Zoritsa...I like your song. I'll have to think of one.
How does everyone breathe? Did they give you instructions? Today (3 of 28) found myself over thinking breathing. I kept thinking don't hit my lungs, don't hit my lungs. I was taking little bitty shallow breaths. It was starting to freak me out.
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Keys-Plez, I take shallow breaths for the same reason! No one instructed me how to breathe either.The other thing I'm afraid they'll get, is my heart. My tumor was at the 7 o'clock location on the left breast...and at 43, I'd like to be healthy at the end of all this, not worse off. And thanks on the song,lol. It gets me through the drive there and back....traffic is horrible and to many trains any other way I try to go.
CaMommy, interesting on the esophagus...I didn't know that. Wonder if it can cause heartburn...
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