Supplements, what do you take?

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gnatmo
gnatmo Member Posts: 10

I'm still fairly new to all of this maze. I would love to hear what you take (and why) if you wouldn't mind sharing.

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  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    Hi Gnatmo. I'm fairly new to this as well. I've been prescribed 50,000 IU of Vitamin D for eight weeks because mine's so low and I take a multivitamin, but I'm not taking anything else at the moment; still exploring options myself. I've read posts that say taking glutamine helps if you experience neuropathy. I had my first TCHP treatment on July 9th and so far not experiencing any side effects to speak of, but I keeping hearing the key is hydration, hydration, hydration and so I am hydrating and eating well while I can. As time goes on we'll see. My doc also recommended accupuncture for neuropathy and other side effects. Being in Colorado, I want to explore tmedical marijuana more especially for after chemo. The National Cancer Institute website has info about studies they're conducting that show marijuana can kill cancer cells without harming good cells.

  • mkinoly
    mkinoly Member Posts: 86
    edited July 2015

    I'm new here and am taking supplements based on a lot of research I've done. I see a naturopathic oncologist for the first time tomorrow, so I'm sure things will be changed. I'm going to ask him specifically about chelation for mercury removal and about cannibas oil for pain and sleep. Here's what I've started taking in the past week (diagnosed early July):

    Vitamin D3 algae based 5000 IU - I know I'm low so trying to raise
    Vitamin C raw 500 mg - antioxidant
    Probiotics 70 billion CFU - am sure my gut needs healing and gut is large part of immune system
    Omega 3 algae based 570 mg - inflammation, fill dietary gaps
    Astragalus 500 mg - boost immunity
    Tumeric 450 mg - inflammation
    Organic mega greens powder - 1 scoop occasionally - boost antioxidant, phytonutrients, immunity

    After my surgery I'll add some powdered plant-based (non-soy) protein to help with healing. I really want to get a firm, convincing answer about soy and ER+ cancer. I'm vegan and since diagnosed I've mostly stopped using soy, and I'm having a terrible time finding enough food protein replacements.

  • abigail48
    abigail48 Member Posts: 1,699
    edited July 2015

    gary null in his long ago book the egg project determined that all vegetables & even fruit in a lesser amount contain all the amino acids

  • mkinoly
    mkinoly Member Posts: 86
    edited July 2015

    I believe that's true, but it's the small amounts of many of the amino acids in most fruits and veggies that is an issue. I think it'd be hard to consume enough fruits and veggies to get the proper amount without adding specific veggie protein sources such as beans, legumes, soy, etc.

  • gnatmo
    gnatmo Member Posts: 10
    edited July 2015

    Any update on how you are doing now with your chemo? I am scheduled to start mine on 7/28. I had my port placed on Monday and have not done really well with it at all. I see my oncologist again on Tuesday(21st).


  • gnatmo
    gnatmo Member Posts: 10
    edited July 2015

    I'm not sure what your IHC means at the end, but we have almost identical cancer & size, etc. I would seriously bet I could really benefit from vitamin D and vitamin C.



  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    Since chemo, I've had some SEs, but nothing that wasn't manageable, so I'm very pleased about that. I've been off work all the week after which helped, so I could rest when I wanted. My tastebuds changed some, but food is mostly still good, although drinks except water taste strange. I started to take a probiotic, but then got diarrhea the next two days, so I stopped taking it because I hadn't had that SE before. Not sure if it's related or not or just a delayed SE I would have gotten anyway. I think at least Vitamin C and Omega 3 would be good for me to take for now, too. My second chemo treatment will be July 30.

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    Mkinoly, thanks for the info you provided. I have read that some things like turmeric can interfere with chemo, so I'm waiting to take that once I've completed all treatments, but Vitamin C and Omega 3 surely wouldn't hurt. Let us know what your naturopath onc says about what you're taking or further recommendations. -Barbara

  • Momine
    Momine Member Posts: 7,859
    edited July 2015

    Vitamin C is an antioxidant and should be avoided during chemo.

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    Thanks, Momine. I just read more about that on Sloan Kettering's website, so no Vitamin C for me.

  • Momine
    Momine Member Posts: 7,859
    edited July 2015

    bjsmiller, welcome, and best of luck with everything. As for the probiotic, not only is it OK during chemo, it may even help the chemo do its job. It will also help against thrush and against intestinal issues. The diarrhea may have been from something else, or maybe from too large a dose all at once.

  • mkinoly
    mkinoly Member Posts: 86
    edited July 2015

    My visit with the naturopathic oncologist was pretty validating and also somewhat disappointing. He's an integrative/complementary medicine guy, and I was hoping for more of an alternative medicine guy. However, I learned a lot and am so glad I was able to see him.

    He agreed with all of my supplements! Well, except he wants me to replace tumeric with curcumin (which is derivced from tumeric). That made me feel like I'm doing a good job researching and making decisions for myself. Plus I'm already eating more veggies/fruit, am vegan, walking 25-30 minutes a day, and losing weight, which he also would have recommended. I need to bump of the veggies a little more because he says 6-8 servings of veggies a day.

    The additional things he recommended are: more veggies, serving from cruciferous family every day, serving of berries every day, green tea and/or green tea extract, acetyl-l-carnitine, d-ribose, ashwaganda. I still have to look up some of those. I don't like green tea so will go for the capsules. I'm sure I'm forgetting something...

    After surgery he recommended some arnica pain relievers (oral and topical). I asked about cannabis oil for sleep and he suggested melatonin instead. But I'm still getting the cannabis oil today because of the anti-cancer and other health benefits it may have.

    And soy is ok! He said whole soy foods (tofu, tempeh, some soy milks) are fine 2-3 times a week and to avoid things with processed, concentrated isolated soy protein and isoflavones.

    I know we're all different, so what works for one person won't work for all, but I hope all this info helps someone.

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    Momine,

    Thanks for the probiotic info and I think I'll try it again now that I'm pretty much over all SEs from 1st treatment. I had read that chemo will kill gut flora and that makes sense to me, but my onc said, no and I don't need to take a probiotic.


  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    mkinoly,

    Thanks for the info from your naturopath; very interesting and useful. I've checked into the astragalus and think I might start taking that too, for an added immune booster!

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    mkinoly,

    Please share your experience with the cannabis oil; what you get and how much you take or how often. I'm toying with the idea of using it, too, especially after chemo, but need some more advice and information. Thanks!

  • mkinoly
    mkinoly Member Posts: 86
    edited July 2015

    I've given up on the idea of cannabis oil for now. Even though marijuana is legal in my state, it's nearly impossible to find it in a medicinal form. The retail shops mostly have stuff to get high from (which I don't want) and most of it is in smoking form (refuse to do that). There were some capsules close to what I wanted, but they were $4 each!! I'd have to get what I want from a medical dispensary, but neither the naturopathic oncologist nor my regular doctor will write me a prescription. So I'd have to see a special doctor and pay $125 out of pocket plus the medicinal stuff at the dispensary is really expensive. sigh...

    For sleep I'm trying a combination of ashwagandha and melatonin. Only tried one night so far and wasn't that impressed. I'll give it awhile before I try something different.


  • Bliss58
    Bliss58 Member Posts: 1,154
    edited July 2015

    I agree about the smoking, I wouldn't want to do that and I'm not looking for a high either just more natural cancer killers. I haven't approached my onc about a prescription yet, and I'm guessing she wouldn't prescribe while I'm doing chemo anyway, but I'll inquire later; just curious. Since legalization started in my state with medical, there are lots of medical dispensaries and I've heard with a prescription, it's much cheaper than recreational. Thanks for the update.

  • shorty123
    shorty123 Member Posts: 14
    edited August 2015

    Does anyone know or has used Muscadine grape seed supplement? has it helped or is it something to keep away from.

  • MaryJC
    MaryJC Member Posts: 350
    edited August 2015

    hi ladies, so glad I found this thread! Jeez my list is long. I'm taking curcumin, maitake mushroom extract, vitamin d drops, gluclosomine (for my runners knee), which has MSM in it, I forget to take my probiotics bec they're refrigerated and not in my pill dispenser- SMH😤, coq10, magnesium, acytel l-carnitine and d-ribose. The latter four are to treat the cardiomyopathy and EF dip from Herceptin.

    They say d-ribose is so powerful but it's a sugar although not a fructose. I'm wondering if it's dangerous to take since sugars/fructose fuel cancer cells.

    I think I'm leaving out a few things. Oh- multi vitamin and hmm, not sure. I also IF- intermittent fast although not a supplement I know :

  • mkinoly
    mkinoly Member Posts: 86
    edited August 2015

    Mary, the naturopathic oncologist I saw recommended I take D-ribose, and he knows I'm 100% ER+. There's much debate about the "sugar feeds cancer" theory. Sugar feeds ALL of our cells, that's what our cells on run to sustain life. I'm still not clear on it all, but I wanted to share that D-ribose was recommended to me (though I haven't gotten any yet).

    Is your mushroom extract in capsule form or something else? I was just thinking yesterday how I need to find some mushroom extract to add to my arsenal.

  • MaryJC
    MaryJC Member Posts: 350
    edited August 2015

    mkinoly, the mushroom extract is liquid. It comes with a dropper and 20 drops is a full serving. My vitamin d is also a liquid. It squeezes out in one drop at a time. I put the vitamin d, d-ribose and mushroom extract in my juice. Since the d-ribose is sweet, it helps me tolerate the taste of my green green juices better. Or sometimes the rind of the lemon or lime is thick and adds a bitter flavor.

    Good point about sugar feeding all our cells. I forget how I came to understand the difference tho. I think it's the different kind of sugar. I believe it's that tumor cells have 3 receptors that are fructose but don't quote me on that.

    I'll say this tho. I went hard core ketogenic before my surgery. The biopsy pathology had the usual stuff. Then went ketogenic and the surgical pathology showed necrosis which is a form of apoptosis. So it was tumor was definitely being starved to death by the absence of sugar.

    Very cool that you have an onc with an ND. Why did he prescribe d-ribose for you?

  • Momine
    Momine Member Posts: 7,859
    edited August 2015

    MaryJC, there is no difference. The sugar in your bloodstream is in the form of glucose. Glucose feeds all cells, good ones and bad ones. The only difference is that because cancer cells grow so fast, they use more glucose than the normal cells.

    The body turns all incoming sugars: carbs, fructose, sucrose etc., into glucose for your body to use as fuel. Some of the "incoming" is more easily and quickly turned into glucose, causing spikes in blood sugar and insulin. This is generally not so great for your health, and may also be detrimental to breast cancer patients, for reasons not yet well understood. So, it is a good idea to keep your blood sugar steady for that reason and also to avoid developing type 2 diabetes. But whether the incoming sugar is in the form of white rice, honey, agave syrup or table sugar makes no difference to the cancer cells (or the rest of your cells), since it is all turned into glucose by your body.


  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2015

    kay b this is a marvelous post. it's exactly what is occurring to me now. I always thought so, in fact I think it had gone to my brain perhaps about the time of that 1 tooth exray, perhaps even earlier. didn't make a note of when I notices a swollen vein at my temple. but that could have been.....1998.would need to think more carefully!? at anyrate!! it do move slow. I' inclined to call it: "old age"

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2015

    momine I would think refined sugar is far more rapidly absorbed than other kinds

  • Momine
    Momine Member Posts: 7,859
    edited August 2015

    Abigail, do you mean that you have had brain cancer since 1998?

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2015

    & of course I've not been diagnosed with anything. the hacking cough is the iffy one really, any fat especially late in the day will generate it. pancreas??????? who knows & with luck I never will know. not sure it was '98 when I felt the swollen vein both sides swollen veins now I think.. no time to feel. wintergreen oil on head, a shake or 2, or better gary;s new headach cure a spritz of lemon grass oil, rub palms together & breath itin to face. but the best headache cure is up & at em. headaches no where near as bad as whe I used coffee & was pre menopausal

  • mkinoly
    mkinoly Member Posts: 86
    edited August 2015

    MaryJC thanks for sharing your experience. My understanding of necrosis is the same as kayb stated above, unfortunately. I think if the blood supplies were beginning to get cut off then that would be a positive sign that the tumor was dying (not sure about that, though).

    I believe that even with a ketogenic diet it's not possible to deny glucose to cancer, though it may make it less available. But it also makes it less available to all our other cells, especially our brains. In the absence of carbohydrates, fat and protein are converted to glucose through an elaborate and, in my opinion, not-that-healthy of a process. Our bodies have several ways to make glucose since without it we would die. If our body is distressed by lack of carbs and is putting energy into creating glucose from whatever source to survive, is that a good thing for someone trying to heal cancer? It doesn't sound good to me, though I admit I haven't researched it. Of course I'm happy for anyone that gets good results from a ketogenic, or any other, diet! :)

    I don't know why the d-ribose was recommended to me, he just gave me a print out of a few things he wanted me to add to my already long list of supplements. We ran out of time with my tons of questions, lol. I've been so obsessed with learning about so many alternative medicine techniques I haven't even begun to check into d-ribose, but I definitely will.

    Momine, you make a good case about sugars. They are all basically the same, and aren't inherently bad. The rate of absorption is the key so that, as you state, blood sugar and insulin don't go crazy outside of normal realms, which can have negative bodily effects. That's why whole grains and fiber are recommended, so that the carbs are digested more slowly, thereby releasing glucose at a steadier rate.

    I love talking about this stuff with all of you, learning new things, and looking at things in a different way. My UMX is tomorrow and everyone on this board will be in my thoughts.

  • abigail48
    abigail48 Member Posts: 1,699
    edited August 2015

    kayb why would necrosis be a sign of metastasis?=

  • Momine
    Momine Member Posts: 7,859
    edited August 2015

    Abigail, not exactly. table sugar is converted to glucose much faster than a piece of wholegrain bread, but both are absorbed by the cells the same way once they enter the bloodstream as glucose.

  • Momine
    Momine Member Posts: 7,859
    edited August 2015

    Abigail, not "metastasis," but "malignancy." Necrosis is a sign of malignancy.

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