Vent about Permanent Neuropathy

hmmm, my feet have cramped in the past but now lately. I just had a test that said I did not have any nerve damage in my legs and feet

I have started sort of focusing on bending my toes and stretching them in the pool, dang but do think it may be helping me or maybe it is the ginger?

then there are the folks who believe in the bar of soap, that did not work for me!

recently I have been sort of exercising my feet in the pool, gently flexing the foot back and forth, do believe it is helping the tootsies

the pool is the best for all body aches!

for a time, I was getting foot and leg cramps, tried to eat bananas but not fond of them for every day! if you research, you will find other foods hi in potassium like potatoes! I sort of stopped pasta in my diet and starting eating potatoes. Also dried apricots are good to get your levels up. Not sure but not having the dang cramps anymore

do not know but my feet are just nuts, have found the pool and exercising there is a big help

my back doc had me tested for nerve damage in feet and legs but nothing is wrong there and he thinks all will resolve itself, yeah sure

Minus Two,

Saw on another forum that it is your Birthday today, so.........................

Happy Birthday to you

Dsgirl

Thanks dsgirl but it's not until 8/25. I'll celebrate any extra days tho.

Just found this thread today - CIPN sisters! 

I am 3+ years out from chemo.  My neuropathy has not eased at all.  It did not present until about 6 weeks after I finished chemo.  It is mostly in my right foot and leg, and in my right hand.  Sometimes the ball of my foot will get a horrible stabbing pain that feels like I just stepped on a nail.  The cramping is not as often since I started on Gabapentin (that helped a lot).  The only shoes I feel truly secure in are my tennis shoes.  I can no longer wear my beloved Clarks clogs, or heels, or sandals.  I cannot keep them on my feet, and I cannot risk falling.  I have balance issues.  I do not use a cane, but we have installed grab handles & rails around the house.  I am no longer allowed to carry laundry baskets up/down the stairs.  My DH and my son look out for me and take care of household tasks I cannot safely perform.   I always was a very physical, active person.  Long walks with the DH - not happening.  A lap around the shopping mall and I am done walking for the day, so if I have to walk somewhere in the evening, I take it easy during the day. 

I do not see any abatement.  Whatever the tiny % occurance of neuropathy (it was the TAXOTERE!  MY MO ADMITTED IT!) was a side effect, well it's 100% for me.  BUT ... I'm here. 

Debbie

I at times I feel like Arnold is squessing my poor tooes

I have started using a cream I found at whole foods called Topician or something

is seems to calm the nerves, not a pain thing but calming

it lets me sleep!

Dr at Hopkins is prescribing a compounded pain cream. I will let you know how it works. Has stuff like Advil and gabapentin in it. 4 different medications

Hello everyone,

I discovered this thread recently and have been reading the posts with great interest. I developed neuropathy in the feet ten years ago after treatment for IDC breast cancer with triple negative receptors. I had Taxotere for three months during chemotherapy and developed a strange numbness in the feet shortly after I ended treatment with radiotherapy.

I saw my GP, oncologist and two different podiatrists and they all said it was peripheral neuropathy. The oncologist said it was definitely caused by the Taxotere and there was no cure. The GP and the podiatrists also said there was no cure.

Unlike many of you posting, I have no pain, just an uncomfortable feeling under the soles of the feet, making them feel as if they are rough and dry, whereas in fact they are very smooth to the touch, well moisturised and cared for. I use CCS Foot Care Cream to keep them in excellent condition.

I do not know if there is a connection but I have developed osteoarthritis in the big toe of one of my feet.

I was interested to read about the foot therapy cream you are using. Is it a good moisturiser as well?

Good luck and best wishes to everyone.

Sylvia xxxx

I don't really have pain either, just no feeling or weird feelings like rice in my shoes. This goes 1/3 of the way up my calves. The thing I hate most is waking up almost every morning and thinking "oh no, I don't have any feet anymore". I'm not sure how this panic wake-up thought started but not a good way to start the day. Below is a link that i think is the product Proud is talking about.

http://www.topricin.com/

No Proud, not yet. There isn't a Whole Foods very close and I'll be darned if I'll run any errands except strictly urgent in this 100+ degree heat. I've put it on my list for the next time I'm doing errands - which is usually only twice a month.

BTW - I really think that the water aerobics is helping. I can feel pin pricks that I couldn't before. Still, not sure if that's good or bad. I hate being numb, but I feel lucky not to have pain and wouldn't want to move in that direction.

Proud - I'm enjoying lurking on your CRAZY thread. Hard for me to keep up, but glad you started it.