INSOMNIACS place to talk in the wee hours

1…927928930932933…1503

Comments

  • Smaarty
    Smaarty Member Posts: 2,951
    edited August 2015

    nice pics lovely

    · Share on FacebookShare on Twitter
  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited August 2015

    Hi there Ms. Smarty! It's about 6:00 am there right? Did you get any rest? Waiting for scenic and food pics.........have fun touring the town today.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2015

    LOVERLY trust me, carefully turn the Angel right side up. Glad you love it. Me too.she looks great with your lighting. What are we doing up?

    Boyd in your pocket for bx today

    · Share on FacebookShare on Twitter
  • Boyd748
    Boyd748 Member Posts: 149
    edited August 2015

    Love the Fairytale wedding Wow! So amazing

    · Share on FacebookShare on Twitter
  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited August 2015

    What are YOU doing up so late? It's almost 2 am your time! I am getting ready for bed as I have to be up early to take DD to school early tomorrow for Senior Sunrise. Good night and sweet dreams.

    Boyd, in your pocket tomorrow too.

    · Share on FacebookShare on Twitter
  • Boyd748
    Boyd748 Member Posts: 149
    edited August 2015

    Thanks everyone so ready to find out but not to fond of the needle aspect.

    image

    · Share on FacebookShare on Twitter
  • Holeinone
    Holeinone Member Posts: 2,478
    edited August 2015

    So that explains my lifetime insomnia.....

    Boyd, got my fingers crossed for you tomorrow. Deep breaths & go to your happy place. I hope you get the results Friday, but unlikely. I got mine in 24 hours, but I don't think that is common.

    Smaarty, what a beautiful entrance to your hotel. I loved Dublin, wish I had spent more time there.

    Hello to all....

    · Share on FacebookShare on Twitter
  • kathindc
    kathindc Member Posts: 2,042
    edited August 2015

    Rose, you're in my prayers.

    In your pocket Boyd.

    Love the wedding pictures.

    Had a blast with DGS. Took him to the Udvar-Hazy Air and Space Museum out by Dulles airport. Has a hanger with Discovery, Enola Gay, Concorde, you name it and it seems to have it. He wanted to use my iPad to play mahjong on the ride to it and the next thing I know I hear him talking. He is now taking video of the drive to the museum and narrating it. He had so much fun taking videos in the museum. Call me nuts for letting an 8 yo have full reign of my iPad. He asked that I send them to his dad. They are going to put them together so he can show his classmates what he did on his semester break (they go to school year round). Sas, asked him what he likes about the US - toys and our houses (as we have basements here). Didn't have answers for what he didn't like or what he would change. Now to ship off his souvenirs and a couple of toys I had wanting for him that he wanted to take home.

    Almost have full range of motion back in the left shoulder. Have a good physical therapist. She's thinking today might be my last session. Just need to work on getting my hand to go across my back. Can get it partially across.

    BBL bedtime is finally calling.

    · Share on FacebookShare on Twitter
  • susan3
    susan3 Member Posts: 3,728
    edited August 2015

    great pics everyone!!

    In your pocket Boyd

    Wish I could sleep

    Almost 2 here and gotta get up at 6:30. Work, then the kids are coming down from Michigan. Everyone needs s cut and color. Maybe we can all nap together first, then have a salon party :)

    Hope everyone is restfully sleeping.

    Night night.....I hope

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2015

    wide awake and out of melatonin

    · Share on FacebookShare on Twitter
  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited August 2015

    Hi Susan... I'm up. hope your group cut and color goes well! Sorry you have to be up in so short a time - hope you get some sleep. Have a great day tomorrow!

    Boyd good luck with the biopsy. Hope it's benign. The biopsies do not hurt and it's over with quickly. Smarty love the hotel!! Post pictures of Ireland. Love the dog yoga post and allthe wedding pictures.. beautiful and different! Lovely to have the ocean as a back drop! Spookie Yoohooo on finally getting the arm pump! Lymphadema is such a pain in the arm!! May this be your ticket to less hassle and more comfort. Chevy love your posts. Love the tea and goat stories and I can hardly keep up with everybody. Enjoyed the pictures and photo of Sass, Spookie and Loverly. Hugs to all I missed.

    · Share on FacebookShare on Twitter
  • MaryJC
    MaryJC Member Posts: 350
    edited August 2015

    hi ladies, glad I found this thread :) I did a search on cardiomyopathy and this thread turned up. I went to last page and saw others in my time zone awake too. Anyone have any experience with this?

    I'm asymptomatic. Initial EF was 64%. Have had high bp. Next echo said 51% and Herceptin was held. A month later which included maybe 2 weeks of heart meds went to low normal or 56% but bp not optimized so H still held. Next echo we all thought would be back to 60s and it didn't move! Now cardiologist wants MRI and I'm freaking out. Meanwhile, although not the best bp is responding to meds. Dr is gingerly managing the dosage to find the right dose.

    Since finishing rads on 7/31 I resumed my supplements coq10, acytal l-carnitine. Dr put me on magnesium bec it was just below norm at 1.4. Reading a book by Dr. Sinatra says the 'awesome foursome' are the above mentioned and d-ribose which just arrived Monday. So now I'm on all four. My issue is I feel GREAT! I work out, run, weight train eliptical. So what's with the heart issues? It makes me so sad. I also juice as well and IF.

    Read that grapefruit can interfere with my bp meds. And I was od'ing on them between last two echos. So I'm hoping that was the issue and my EF returns to normal. Just not sure how grapefruit affects it tho. My mother said most people advised to stay away from it when on bp meds. Never heard of it, nor did it say on Rx.

    Anyway hoping for advice, experience, encouragement. Thanks ladies

    · Share on FacebookShare on Twitter
  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited August 2015

    Loverly- your photos of the wedding are awesome. I love the whole thing from the setting, the dog in the wedding, the bridesmaids in bare feet and more. I am so glad the weather was good that day for the event!

    Yes, that hummingbird was at my backyard feeder last night. There have been a lot of hummers in the backyard lately, but this little fellow has been dominating the scene around the hummingbird feeder. The rofous hummingbird as an aggressive personality!

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2015

    Oh HI miss Mary! Welcome to the Heinz 57 thread...Ha! That means we talk about EVERYthing! You mean you have high BP too? My little didkens Daughter just told me SHE has that too! I mean how do KIDS get it, when us older ones don't? So Doc has her on some kind of meds.... she even read where it CAN cause Tinnitis...which is just one more thing she deals with... so maybe something will help her... Maybe one of her BIG drinks she mixes up?

    Also Loverly... BEAUTIful photo's! A fairy-tale wedding for sure.... I love the picture of the two peeking out the window. All of those pics are beautiful memories! WE got married at a JP... couldn't afford a wedding... But it was a "dream" come true for me.

    We were only 20... (actually HE was 19, but turned 20, 3 months later)

    I had to drive us there, because he lost his license for too many loud pipes.... Ha! Got it back a few days later, just in time to drive up to the Mountains for our honeymoon in a cabin! We were soooooooo young, but happier than I had ever been.... just us two together, in our own little tiny 1/2 of a double, used furniture, and beginning the rest of our lives! Been almost 58 years now...! We are really blessed..........

    Loverly! Hah! I'm glad YOU posted those "other" pictures, because I had reservations.... (yeah, I know, hard to believe!) But those mushrooms were just hysterical! I thought "DAMN"! I can grow them WILD!

    Thinking of you today Boyd! Best wishes.... okay? We're in your pockets........

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2015

    So you know what I just figured out? If you start a long post, and don't want to lose it, just hit "preview" and that much is THERE! Then keep going on, like I just did! I hit it twice, in mid sentence! I am SUCH a genius........... I boggle my own mind sometimes.

    · Share on FacebookShare on Twitter
  • susan3
    susan3 Member Posts: 3,728
    edited August 2015

    hang in there Boyd imagehope all goes well. Still in your pocket :)

    Welcome Mary, I have no info to share with what you are experiencing. Hope it's the grapefruit. You actually, I think, aren't suppose to eat grapefruit with most meds. But I could be wrong and our local information gatherer , sas, will have lots of info for you soon...I am sure. She is great.

    Didn't sleep long, but feel ok this morning. Kids will be here by 10 this morning.

    Hi everyone. Hope everyone can have a great day today. :). Pain free and fun. XXOO

    · Share on FacebookShare on Twitter
  • debiann
    debiann Member Posts: 1,200
    edited August 2015

    triple positive group

    Welcome Mary, post your question on the thread linked above. You will find many knowledgeable ladies on herceptin there. 

    Good luck to you.

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2015

    Yea, it's true about grapefruit and bp meds. Sas will have the explanation if and when she wakes up. They don't like me. My EF has gone down too, I blame adriamycin.

    Loverly, the pics are great!!your dad looks like any other tourist around here!!

    · Share on FacebookShare on Twitter
  • Freygea
    Freygea Member Posts: 300
    edited August 2015

    Thinking of yo Boyd. Hugs!

    Love- Those wedding photos are so pretty. Love the ladies dresses.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2015

    Morning Owlies, Ah such faith. I know some stuff, other stuff I don't.

    Mary hello. Sorry, you are having trouble. The easy part first. 1.Grapefruit/GF juice interacts with so many drugs that it's simpler to not use it while taking drugs than to figure out which ones it does interact with. 2.You are taking supplements. I would suggest that you only take supplements if approved by your docs. Anecdotal recommendations of chemicals has no value and can be unsafe. Granted the pharmaceutical drugs have problems, but they have at least gone through testing to determine lot's of things about them. Chemical makeup, action within the body, side affects, drug interactions, and safe dose/route.

    The major reason supplements aren't tested is it can take billions to bring a drug to market to be patened(sic). Most supplements can't be pattened. The place to look for supplement info is NCCAM a division of NIH. National Center for Complimentary and Alternative Medicine division of the National Institute of Health.

    Your own phrase I'm od'ing on them. Girl be careful.

    In order to deal with the heart, you must have a cardiologist. Please, make them aware of the supplements. The phrase describing taking too much is slang "The more is better theory". Not true. It can damage and or kill. Not the goal.

    My guess is you are on Coreg/caravidol. There is a newer drug on the market, but is cost prohibitive. Coreg has stood the test of time and now is very inexpensive. Either way you are likely on a Beta Blocker. Perhaps an Ace inhibitor, most common Lisinopril. That combo is universally used. Plus, a diuretic(variable). A diuretic like HCTZ is usually the first line drug in new onset Hypertension--HTN ( sustained elevated BP), but your situation is different, it's drug or rad  induced HTN.  None of these drugs influence magnesium-Mg. Again supplement amount should be directed by your doc which is what is happening.

    You're EF change is early. It did show some response to medicine. GREAT. You're docs have associated with your Herceptin and are watching that close. Also, great. The EF at 56% is in the normal range. What the change indicates is your heart is being affected by the drug. I know you understand that. Hopefully, the docs have told you that sometimes the heart doesn't recover. Your exercise and comfort won't be affected till the EF is lower. Generally, below 50%.

    From here on out you should be under the care of a cardiologist for life. Bummer, but true.

    If you PM me your drug list I will put it through my drug checker through Genelex. You could get a subscription to it for around 24$. Great when you add a new drug to the soup to see how it works and interacts with your other drugs.

    As Debiann suggested going to the Herceptin thread is what you need to do. The reason I spent this much time is I hope I was able to help with what I do know. Chemo drugs are not in my repertoire. Be careful about taking and doing anything not approved by your cardiologist. Those heart cells once damaged may not recover. Always put safety first Good luck :)


    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2015

    Mary, Google alternative and complimentary medicine and Germany. They are in to research. Haven't looked at them in a long time.

    · Share on FacebookShare on Twitter
  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited August 2015

    Good morning lovely ladies!

    Susan, hope you have good visit with the kids. Hope sleep deprivation won't cause any of your clients who need coloring today to walk out of the salon with rainbow hair.

    Rose, I can't keep up with the ladies either.

    Jazzy, saw this when I had a stroll on the beach

    image

    image

    Sunset yoga

    image

    · Share on FacebookShare on Twitter
  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited August 2015

    Welcome Mary! Don't have enlarged heart and grateful I don't have to do Herceptin as I am also Her2+++. Furanocoumarins, compounds found in grapefruits, can block the break down of drugs for elimination from the body. Norvasc and Cozaar,other blood pressure meds, some chemo meds, and even Herceptin can be affected by grapefruit. Some BP meds don't work as well in certain ethnic groups.Hopefully, your EF will go up soon.

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2015

    Loverly, getting closer

    bulk clear round small decorative glass beaded charger plate

    · Share on FacebookShare on Twitter
  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited August 2015

    Chatty bunch this morning. Bet there is at least one post b4 I even finish this short one. Yup at least one, there's Sassy. At least hasn't flipped to new page.

    Loverly - Love the beach wedding pictures. Great weather. Adore father's black socks. My DH doesn't even own a pair of sandals. I could see him doing that in his white socks. Umm Beach Yoga. Must find those easy DVDs. Somewhere I have a yoga mat from years ago when I used to exercise to Gilad.

    Welcome Mary. Yes we go all hours of the day/night. I'm pretty sure I have heard of cardiologists who specialize in oncology related matters. Not sure of the correct professional title. In NYC there surely should be some. Are you having low BP or high? I could see either I suppose. I'm thinking maybe low??? Sassy the master - I bow b4 you.

    Boyd - thinking of you and hoping all goes well. I got my results in 3 days which I think was actually sooner than anticipated. But of course being a Thursday probably not until next week. Bummer. Stay with us. Check in when you can. You got this girl and we've got you.

    https://pbs.twimg.com/media/CMPwd7fUkAAbLqc.png

    I got sent this yesterday and it took me forever to find what the hysteria was about. I though the geography was wrong. You girls and your mushrooms.

    Yes Chevy Preview and you can see who has posted while you are composing.

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2015

    Thanks Lilgoats! It's just that with AOL, and this site, AOL will suddenly just shut off! And I lose everything....

    What do you gals know about the Cholesterol meds? Just wondering, because DD hates to takes something, thinking it might cause other things to go crazy.... She is changing everything about her eating habits.... trying to get healthier....

    FUNNY picture....Hah! That IS funny.... The guys were probably going "Oohhhh YEAH!"

    · Share on FacebookShare on Twitter
  • gypsyjo
    gypsyjo Member Posts: 304
    edited August 2015

    Chevyboy - I have read a few places and found a study that says long term use of statins for cholesterol greatly increase chances of breast cancer. I have stopped taking mine. Also can't eat grapefruit while doing statins.

    · Share on FacebookShare on Twitter
  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited August 2015

    Chevy - I have the problem of opening too many windows and my computer just says "nada no more not going anywhere". I've learned to not be afraid of "control-alt-delete" and then log off. It will all come back for me and then I can open selected windows. Usually my post is still there in the composing section. DH looked into getting more RAM - some kind of memory that this is lacking - and it would only take one more "Ram" so not worth tinkering with it. Just cannot justify $ for new computer and I just am not a laptop person. His sits there unused all day long with all kinds of memory. He just got an external hard drive that I think might be supposed to help. A computer person I ain't and I know it lol.

    OK girls tea report. The Ntingwe Kwazulu was OK but I would not spend the money on it again. The Tea Room tea came in a lovely tin I hope to reuse for something. Smelled divine this morning but I just made Yorkshire. Tomorrow will try the tea room blend. Having a big glass of iced apple chai.

    Have been fighting the gosh darn ants again. Had outbreak in LR and found ants all in my bleached towels in DD's room (storage mostly there). Not a fan of bug spray but Raid House and Garden has been lightly applied. DH needs to spray foundation. I hate to do anything to my toads and frogs but can't keep this up. No serious chance for rain for at least 2 weeks if then. Ants must have liked the May/June rains because nothing came in then.

    Know Spookie took statins. Think they caused her lots of pains. I have not gotten there yet. More trouble with BP than cholesterol.

    · Share on FacebookShare on Twitter
  • mema4
    mema4 Member Posts: 574
    edited August 2015

    HeyLilGoats, I loved that graphic! Yeehaw! Like to be in that front!

    Chevy, I hate cholesterol drugs. Took Lipitor and Crestor for several years, at diff times of course. Last year, I just decided I was getting off the Crestor and did. It was like waking up from a fog. My memory improved, I felt better, all sorts of little things changed. I think they are one of those drugs that can do more harm than good but then I'm often accused of pretending to be this close to be an expert at everything. Ha!

    Loopy

    · Share on FacebookShare on Twitter
  • kathindc
    kathindc Member Posts: 2,042
    edited August 2015

    Yoga anyone?! https://www.youtube.com/watch?v=xn3mMmy_ghY

    There are several more to the side. Unbelievable!

    Chevy, I was on Lipitor and its generic. Affected my memory something awful. Went off it and PC was not happy but at least I have my memory back. Have also read where it can be a factor in developing diabetes. Thank you very much guess what I have and now to hear it attributes to developing breast cancer. Chit!!!

    · Share on FacebookShare on Twitter

Categories