How did you feel when you were first diagnosed?

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  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    I had so many similar feelings. Especially about being a wife and mother. My biggest fear is leaving my children with no mother. I am also afraid that things are worse than they seem (which unfortunately was compounded for me after my MRI revealed other issues).

    I am in the process of a lot of self-blame right now. Especially with ER+ cancer, I feel that if I would have partied less during college and grad school, I might have prevented this. That all the hard living from prior years is now coming back to bite me and that my children will be the ones to pay the price for the wild ways of my youth.

    I also feel like I'm not ready to be upbeat about all of this. I have an acquaintance who was diagnosed with triple negative IDC at 31 and is also a young mother and she keeps telling me to "stay positive." I firmly believe in God's plan and that I will have peace about this at some point, but I'm just not there yet and all the unknown factors are scary and I don't feel positive at all. :(

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    cajunqueen-

    I am right there as you know. I am starting to tell people when I feel composed enough to do so.

    i have let go of the self blame, because for every woman on here who talks about having made poor health choices, there seems to be another saying that she herself had lived an amazingly "healthy life style and still got sick.

    I have moments of positive, mostly when I am holding it together for family and friends. Believe it or not that helps for a bit. I am reassuring them, but also myself. Just hearing myself say things like " you know there are worse diagnoses to get" and

    " I have great doctors" helps for a brief nanosecond. Even if I am making it up as I go along. I haven't even met most of the doctors and I don't have my full diagnosis yet.

    Then I panic again and head for Google where I wind up alone and in that "bad neighborhood" as the Internet can easily lead all of us.

    I am starting to understand the phrase " battling" although I hate it. For me it means that I have to gather every last bit of emotional strength I have today, get off the couch, off the internet and just live.

    I am just faking my way through this for now

    I am sorry.

    This sucks

    Take care and be kind to yourself

    MT


  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    msphil

    Thanks for sharing your story. I needed it :)

    MT

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited August 2015

    There's always something we could have done! I am childless, but I wouldn't have chosen to have a child just to reduce my chances of breast cancer!

  • solfeo
    solfeo Member Posts: 838
    edited August 2015

    queenmomcat - I had a child and I breastfed for longer than most women. Didn't help me! Then you always hear about those 110-year-old women who, when interviewed, say their secret to long life was a good bottle of whiskey and cigars. Even poor health choices don't necessarily cause cancer without the genetics and environmental factors to set it off.

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    There is a lot that rings true about this. My friend who was diagnosed with IDC at 25 (ER+/PR+) was a marathoner who has literally never more than one glass of wine, maybe once per month, in her life... and then she had a recurrence 6 years later. I think for me, the cancer diagnosis brings up strong feelings about how I wish I had made better choices in my youth. I just felt invincible. I fear that the fact that I don't do those things now won't negate the past.

    Does anyone feel sad about the impending lifestyle changes? I used to be a distance runner, but with three kids and a F/T job, that has ceased. Now I'm struggling to find the time to exercise for even 20 minutes at night but I've been told I need to get 4-7 hours of exercise a week. I have 3 toddlers! I also quit drinking to excess a long time ago, but I so enjoyed a glass or two of wine a few times a week to unwind. Now, I've cut that all out. I'm trying to give up processed sugar and cook more meals with more veggies and it's so hard! There is literally no down time. It's get up, take care of the kids, work all day, cook when you get home and care for the children, then exercise and go straight to bed, and be positive too!

    I know these are petty things, but it just seems like a complete life overhaul in the span of weeks - losing my breasts, maybe losing my hair, change your diet, change your lifestyle, change everything or you may leave your kids with no mother - and then how will you feel on your deathbed if you didn't give it 100%?!? Stress is.... rising.

    Okay, I'm done. Thanks. :)


  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited August 2015

    Cajunqueen; vent away! It's lifestyle changes for all of us, I think, to some degree or another.

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    that's a lot to process. I have felt that way ( overwhelmed and stressed) for a long time. I tend to be a super hard working perfectionist as well.
    Working full time and caring for a family leaves little time to care for yourself that's true.

    I too was thinking about the amount of time this going to take. I can barely do everything as it is.

    I am not going to be the best mom, wife or teacher this year. I am just going to be good enough.
    MT

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    Somebody once told me, your children don't know what a perfect parent is - you are the standard. That helps me when I feel like I'm doing my best but it isn't enough.

    I'm thinking about the time factor too and projecting too much. I have no clue how we will handle chemo if need be with no family in town. We won't be able to afford the nanny (who only works 35 hours a week anyway) if I have to give up my salary for 6 months... what then? I want to say cross that bridge when and if I come to it, but the thought of having no plan gives me anxiety. I'm a big planner!

    I've felt overwhelmed since we had our identical twin girls in 2013. I wouldn't change a thing but I was not prepared for how hard twins would be when you are healthy, especially with a husband that works all the time.

  • Janett2014
    Janett2014 Member Posts: 3,833
    edited August 2015


    MT said:
    I am not going to be the best mom, wife or teacher this year. I am just going to be good enough.

    THAT IS EXACTLY THE RIGHT ATTITUDE TO HAVE! (IMHO)

  • 123JustMe
    123JustMe Member Posts: 385
    edited August 2015

    Hi!

    I just want to say that I have thought just about everything written on this thread. Often wonder to myself will this ever get better?! Seems like there is always something. I don't like surprises but lately it seems like it's always "something"

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    just me - No surprises for me either, thank you very much. I don't like surprise parties, gifts, trips, or cancer diagnoses! And the surprises just keep coming. Surprise, looks like there is more than DCIS in there! Surprise, you have a good chance of carrying the BRCA mutations! Surprise, looks like you may need chemo after all! Surprise, there is probably lymph node involvement! Noooooo thank you!

  • solfeo
    solfeo Member Posts: 838
    edited August 2015

    Add me to the "don't like surprises" group! My husband knows better than to throw me any surprise parties. Of course with BC, once you get diagnosed the rest of it isn't a complete surprise because they tell you just enough to leave you in suspense and terror for weeks or months before the next big surprise comes.

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    solfeo - Isn't that the truth? I had no idea there could be so much uncertainty in something as common as breast cancer. I feel that if you mapped out all the possible breast cancers, stages, and variations thereof on a dart board, blindfolded me, and threw a dart... there would be just as good of a chance that where it lands would be my eventual diagnosis as what I "know" now.

  • daylilynanna
    daylilynanna Member Posts: 1
    edited August 2015

    I found out 12 days ago that I had IDC grade 1,<5mm . Yesterday I saw the surgeon. The treatment plan is lumpectomy followed by radiation, followed by hormone suppresion therapy. Thirteen years ago I was diagnosed with salivary gland cancer. I had two surgeries and 33 radiation treatments to both sides of my face. Since then I have struggled with repeated tooth extraction, donor bone placement, scar tissue in my cheek that limits opening my mouth, hearing loss and damage to my ears from the radiation. I have had hyperbaric therapy twice, and I see my ear doctor every four weeks for ear cleaning to keep the holes in my ear canal from getting larger and exposing more bone, and it hurts. How do I feel about this new diagnosis? Mad as hell, full of self pity, resentful, crabby, hurt,victimized, tired of it all, humiliated. I will do what is required of me to get through this, but I don't think I am going to be very gracious this time. I am very grateful to have my husband beside me in this, i dont know what I would do without him. If I really work at it, I am grateful that I don't have to have chemo or a mastectomy (I'm sure this will become stronger down the road). I have actually been in therapy with Cancer Family Care for years so I have a counselor I really, really like. I am grateful for her. But, yesterday, when I was laying on the exam table with my breasts exposed to the five people in the room, I had this incredibly strong urge to run out of there and just keep going. I guess that is the flight response. Ok I'm tired of being cranky, I'll leave now.

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    Hi daylily. Come here to be cranky! I'd be cranky too, that situation is terrible, no way around it. Having cancer once is enough. Period.

    I personally think it's okay to call it like it is. All the "just be positive" stuff makes me angry. Some days I feel positive, some days I don't and I don't want it crammed down my throat all the time.

  • Lissee
    Lissee Member Posts: 40
    edited August 2015

    Marie Therese Its been quite a while since I last visited this site to read and hopefully provide some words of hope. This post caught my eye, and I was compelled to respond. It has been six years and 3 months since my treatment. Only recently have I been able to talk about my experience with breast cancer (DCI 2A) without bring tears to my eyes. I was afraid and can recall moments of seer despair. It was my journey and although I wouldn't want to do it again, I am a tiny bit thankful for my experience. It has (like everyone who has experienced it) changed my life, in many ways for the better. Keep you spirits high and go to bed each night with positivity for a better tomorrow.

    One of my favorite quotes: "I am too positive to be doubtful, too optimistic be fearful, and too determined to be defeated"

    I am ashamed to admit that my first thought was losing my hair. ( I love my hair)- HAIR IS IMPORTANT, to many women and something I totally relate to. When it grows back, it will likely be better than before, mine was..

    I am afraid that others will judge me and assume that I just wasn't taking care of myself. If you feel judged by anyone, dismiss that as quickly as you can. The diagnosis is not who you are or what you represent. Take the opportunity to exam you life and you health, then make healthier choices. It worked for me.

    I read that the cancer drugs cause weight gain and I do not want to gain any more weight. I already have too much as it is. Gaining weight is temporary and something you have the power to do something about. Its not permanent and with a few minor changes can be controlled and reversed.

    I am afraid people will not want to be my friend because they will be uncomfortable around me. If there are people like this in your life now, they were never your friends, and your better off without them. Surround yourself with only those that add value to your life.

    I don't want people to feel sorry for me or talk about me at work . I worked through my entire treatment. My team had almost 130 people. I told my entire team just enough about my condition and asked them to be supportive but not intrusive. they were terrific.

    I am afraid I won't be able to work. This is why there is disability. If you don't feel up to it, use it.

    I am afraid people will be too nosy and ask me too many questions. When that happens, asks them a question back. like "Why do you want to know/" That worked for me.

    There is nowhere to cry at work or even take a private phone call. Discuss it with you boss or the H.R.Dept. They should and most likely will be understanding and make accomodations

    I will be too sick to be a good wife and mother, Family is about give and take, its time that they should be there for you and take on roles and responsibilities that will help you, until you get back on your feet.

    They haven't found everything yet. Don't pre-worry. It is terribly stressful and doesn't help you at all.

    The doctors know more than they are telling me. Ask, Ask Ask, until you get all the answers you need.

    I feel contaminated and damaged. This is simply not true, every person who ever lived has experienced a trauma in their lives, and having cancer is not who you are.

    I am not ready to be positive and optimistic, you will be soon, take it day be day.

    Why can't I just get a new pair of boobs and be done? RIGHT! That would be great, I would totally sign up for that :-)


  • 123JustMe
    123JustMe Member Posts: 385
    edited August 2015

    Lissee,

    Thank you for posting this! 

  • octogirl
    octogirl Member Posts: 2,804
    edited August 2015

    Thank you Lissee, there is so much in your post I can take to heart!

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    thanks Lissee! I appreciate the kind words! I am now so frustrated with the lack of information I have.

    "We'll know more when... " I can't take hearing this anymore!!!

    Thanks

    M

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    "We'll know more when... " I can't take hearing this anymore!!!" - THE WORST. And it's always some date that's a long way off and totally out of your control and then is inevitably delayed by something else totally out of your control.

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    Yup- I just posted that I cannot believe that they can do such expensive, painful, invasive tests that tell us nothing! I still am puzzled by the need to do a core needle biopsy when the ultrasound told them they were 95 percent sure it was cancer! So take it out and take some tissue if you need it and let's move on already. I asked them why at the biopsy and they told me something about giving them other information, but all I got from it was - you have IDC and we think it's small, but can't really know until... I heard some other numbers that I was told also mean nothing at this point


    Blah- I must be in that anger part of the diagnosis-


    MT

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