Scared and in denial

Options
MaggieMae123
MaggieMae123 Member Posts: 38
edited August 2015 in Just Diagnosed

Hello, I just found out Friday that I have Invasive Ductal Carcinoma, grade 1 with a 1.4 cm tumor. I am so scared. I can't sleep and have so much anxiety when I think about any treatments. I think I am in denial because I don't want to believe the biopsy results and have even thought about sending them to another pathologist to have them reviewed again. Has anyone else done that ? My daughter thinks I would be wasting my time, but I keep thinking maybe the first one was wrong. Also, does anyone know of anything over the counter to take to help with anxiety and sleeping? I am glad that I found this forum because it helps to read about other women who are in the same boat as I am. Thank you and good luck to everyone.

Comments

  • CassieCat
    CassieCat Member Posts: 1,257
    edited August 2015

    I'm so sorry. I was diagnosed about a year ago and it was an awful, awful time. My surgeon prescribed me Ativan to help with anxiety and sleep, and it really did help.

  • DSW1976
    DSW1976 Member Posts: 118
    edited August 2015

    I' m so sorry you are here but glad you found bco site.  Call your surgeon they will give you something for not only sleep but I also needed it for some Dr appts and tests. Hang in there you will feel alot better once a plan is in place. And it doesn't feel real and it won't for a while. The ladies here  get it and will help you. Good luck . So sorry

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited August 2015

    I don't know how many of us did want to believe the biopsy results! (After eight years of mammograms that made radiologists go all squinty eyed and suspicious like, I still had a moment of doubt!) There are some OTC things that might work for sleep--melatonin and/or Benadryl--but I'm tossing in another vote for "Ask your doctor about the problem." At the very least, that'll alert them that you're having problems with anxiety and sleep. (I did, in spades!) i'm on trazodone for the issue, but the anti-anxiety medications work well for others.

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    MaggieMae

    I am right there with you- DX on Friday IDC less than 1cm. Call your doctor for anti-anxiety meds. I would even call the on call person and explain your situation. You are already suffering enough. I realize that everyone has their own feelings about anti-anxiety and I respect that as well, but worth asking about.

    I look it at this way- if you were in physical pain, you would not hesitate to call right? I consider mental pain to be just as if not more excruciating. This is just my opinion on the matter.

    I take clonazepam at night and it is a life saver for me.

    My doctor had advised me to send the pathology slides for another opinion as well.

    Take good care-

    MT




  • zayb
    zayb Member Posts: 83
    edited August 2015

    A second opinion pathology review is always a good thing. This doesn't mean you don't believe the diagnosis, but seeking out a review of the pathology and a second opinion is just part of due diligence. As far as anxiety goes, I would ask one of your doctors for a presxription. I was recently prescribed ativan, but this makes me really sleepy. I requested Xanax and have been taking one occasionally. I just had surgery and am taking percocet occasionally as well, it tends to make me mellow without having to take the Xanax so much. Definitely request an anti-anxiety med to help you through the upcoming weeks.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited August 2015

    Yup. Ativan.

    Also, now is not the time for denial, it's time to plan your battle strategy with clear eyed determination to win. It is war and you CAN do it. Hugs!

  • Scl1954
    Scl1954 Member Posts: 2
    edited August 2015

    I was just diagnosed on 6/11 and immediately had a confirming biopsy. I decided to treat with the Cleveland Clinic in S Florida and saw a breast surgeon and a medical oncologist. At their direction, I picked up my biopsy slides from the original pathologist and delivered them to CC which confirmed the diagnosis. All kinds of lab work and radiology testing followed and on 7/17, I underwent a lumpectomy. It really was no big deal and I traveled out of state for vacation the following week. I am back now and must have chemo very soon to be followed with 33 radiation treatments.

    I want to point out 2 things which may help you.

    1. You are your own best advocate. It requires lots of determination and persistence B/c you will get runaround and find that one hand does not know what the other is doing. You will get lots of misinformation. It helps to start a notebook and keep copies of everything in it. All labs, scans,office visits should be in it and keep a list of all your meds in it also. I was totally frustrated B/4 I switched over to CC which has its records on line and any doc at CC can look at them and review your history, etc. You can also access your own records online, too. If you can treat at a university or teaching hospital or a prominent place like MD Anderson or Johns Hopkins, I believe you will receive superior and cutting edge treatment.

    2. Read up on your diagnosis. It helps to understand what the docs are telling you. You can write down your questions and ask your doc about whatever you don't understand. If you look up all the words that you don't know in advance, you will be better informed and have at least an inkling of what they are saying. Understanding my diagnosis and prognosis helps me deal with my situation, but the best part is I NOW HAVE NO FEAR! I understand what will happen and I feel more in control. I can prepare myself for the side effects of chemo and radiation and know them for what they are when they come to pass. This is what has helped me the most and eliminated all that gut wrenching initial fear. I really believe that whatever may come, I can deal with it and move on to the next part of my life.

    I wish you the best,

    SCL

  • msphil
    msphil Member Posts: 1,536
    edited August 2015


    sweetie, i also was prescribed ativan for sleep,we here know what your feeling, But i,m here to Inspire, i got thru it all,(Praise GOD and am now a 21 yr Survivor) i was diagnosed after i found my lump in shower, and while making wedding plans, talking bout overwhelm, went thru all stages u mentioned and more, so we ALL here are in my prayers daily, i got out my cry then decided to fight and stay Positive n have HOPE," that this too shall pass," one of my favorite scripture.  msphil (idc, stage2.0/3 nodes, L mast, chemo three months before and after surgery and 5 yrs on tamoxifen)

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    Thank you so much to everyone for their replies. It really does help me feel calmer just hearing other peoples stories and how I'm not the only one who needed help with the anxiety. I am meeting with two different breast surgeons next week and will see if they can prescribe me something for this awful fear. Thanks for the hugs and support and I am amazed at how nice you all are. I think I will try to confirm with another pathology lab just for my own peace of mind.

  • Nash54
    Nash54 Member Posts: 837
    edited August 2015

    Maggiemae123....so sorry you are having to deal with this.  The initial dx is just mind boggling.  I had to take Xanax to help me get ghru the initial phase and I had never taken anti anxiety meds before.  It was a life saver.  You will get thru this....(((hugs))). 

  • CAMommy
    CAMommy Member Posts: 437
    edited August 2015

    I'm so sorry. I was in huge denial at first. I couldn't even say the word cancer for several weeks. I too have a rx for Xanax. It helps me through the toughest times.

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    Thank you so much for all of your information. I am seeing 2 different breast surgeons this week and will plan on writing down questions for them and educating myself on everything. They are both supposed to be top notch surgeons. One got her fellowship at Washington University here in St. Louis. I don't have an oncologist yet, but will have to find one soon. Thanks again for your tips.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited August 2015

    My onco had my slides reviewed by a second pathologist himself. Questioning the size...was it changed by mri biopsies, etc.

    Nothing wrong with using prescriptions to help you through the anxiety. It does get better


  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited August 2015

    Miss Maggie Mae
    If you must get breast cancer, Grade 1, smaller than 2.0 centimeters is certainly one of the best diagnoses you can have.
    The reason that I know this is that it is also my diagnosis, and I am now 7 years out, and am doing just fine.

    Your odds of recurrence after treatment will be the lowest possible -- just about the same as the chances of a person who never had BC getting an occurrence.

    Sadly, no one told me that -- also, because your tumor is very indolent (slow, lazy, etc! -- exactly the kind you want), take all the time you need to consider your treatment options. You may want to consider -- lumpectomy, and short course of radiation. You will get your final results of tumor type later, but it is very unlikely that it will be anything else other than ER/PR+ (goes with grade 1), which means you will be on hormone therapy for several years and will likely not need chemotherapy

    Good luck, this is so the scariest time

  • debiann
    debiann Member Posts: 1,200
    edited August 2015

    At first, I think deep down, everyone has a small smidge of hope that the biopsy is wrong. But the next step will be a lumpectomy. They will take out whatever is in there and you will get another, more detailed pathology report describing the entire mass. If its benign, wonderful, at least it is out of there. If it cancer you'll be recommended treatments. If you want a mastectomy, you can still have one, even if you did lumpectomy first.

    Good luck to you.


  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    HI!

    The waiting is a true test of patience. :( I have a lot of anxiety too (3 children under 3) and was given a prescription for Xanax which helps a tiny bit and I was already taking Buspar, as I am prone to anxiety in the best circumstances. But I agree with the others that once you have a plan in place, some of that should ease up. I'm playing the waiting game too... waiting on BRCA results, waiting to schedule surgery, waiting to see if IDC is lurking (which I suspect, based on the MRI), waiting, waiting and more waiting.

    I also agree about arming yourself with knowledge. I went to my surgeon with 30 questions and she laughed and said she needed to go back and review the medical journal articles to answer all of them. I have a second opinion scheduled next week. Keep asking questions and keep pushing for answers.

    I think there is such a feeling for the need to get moving ASAP, but as my doctor stated, even grade 3 breast cancer is pretty slow moving and has likely been there for years before the diagnosis, so it's okay to take some time to breathe and get the best treatment plan in place that you can (easier said than done, I know).

    Hang in there! Xo.

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    Thank you so much for your letter. It makes me feel more hopeful. I am glad that you are 7 years out and doing well. That is great. I am still learning about all of this. I am not sure what ER/PR is but will find out. Thanks again for the hopeful letter!

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    ER+ = estrogen receptor positive; PR+ = progesterone receptor positive. ER+ means that the cancer is fueled by estrogen and PR+ that it is fueled by progesterone. It changes the treatment options depending on the results and you should get a percentage for both in your follow up report to the pathology report. For example, I am 99% ER+ so my cancer is HIGHLY fueled by estrogen and decreasing the amount of estrogen in my body will be a primary goal over the long haul (Tamoxifen, changing my diet, no hormone replacement therapy ever, etc) to prevent a recurrence.

    Also, I am sending my results to another pathologist who does nothing but review breast cancer slides. I don't expect anything to change, but I figured a second set of eyes couldn't hurt while I'm doing all this waiting.

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    Thanks for the information. Am just looking forward to learning more and more and going from there. I am so glad that I came to this forum and found so many caring people. Thank you!

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    Thanks so much for your reply and information.

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    icandothis

    Thank you for this post. At this point I have the same DX as you had; IDC, 1 cm/ waiting for other results and lumpectomy, but you just gave me so much hope! i have been barely holding it together.


    MT

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    Does anyone else obsessively check their phone? I have this fear that I will miss a call from my doctor or the genetic counselor or whomever. Especially when I'm in court (I will run out of my own hearing to take a call if I have to). All this waiting, I feel like I can't wait more than I absolutely have to.

  • Nash54
    Nash54 Member Posts: 837
    edited August 2015

    Waiting is the absolute hardest....and the phone calls never come when you think they should.  Hang in there !

  • cajunqueen15
    cajunqueen15 Member Posts: 794
    edited August 2015

    Nash, that's so true. Which is what I think makes me so edgy about the whole thing. I think my doctor will call and nothing happens. And then I think it's a friend and, BAM, it's the hospital. My mom always said, "Patience is a virtue." Clearly that is a virtue I have little of.

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    Marie Therese and I Can Do This, I found out today that I am HER 2 negative and ER/PR positive. I guess I will be getting a lumpectomy, chemo and radiation as well as hormone therapy. I saw a breast surgeon yesterday before I had the complete pathology report and she thought I could just get the lumpectomy and radiation. Saw a second breast surgeon today who had the complete biopsy report and she said that the HER was a game changer and I would have chemo too. So now I wonder if I should get a third opinion because sounds like I Can Do This didn't have to get chemo? I wish you the best Marie Therese and thank I Can Do This for any more information.

  • debiann
    debiann Member Posts: 1,200
    edited August 2015

    MaggieMae, are you Her2 positive? Yes, then  chemo will likely be recommended.

    If you are Her2 negative, then chemo is a  maybe, depending on things like node involvement or oncotype score.

  • Nash54
    Nash54 Member Posts: 837
    edited August 2015

    Maggiemae...I was wondering the same thing.  If your her2 negative that doesn't mean chemo necessarily ...

  • MaggieMae123
    MaggieMae123 Member Posts: 38
    edited August 2015

    To Debiann and Nash54, I am ER, PR and HER positive. I said HER negative before and that was wrong, it was positive. Debiann it sounds like you had the same. I am confused though because they told me it was a Grade 1 which is slow growing, but HER positive sounds fast growing. Feeling more and more depressed as I learn about this HER positive. Debiann, how are you doing now?

  • MarieTherese
    MarieTherese Member Posts: 85
    edited August 2015

    maggiemae-

    I am sorry for yet another round of bad news. I will not know this for my DX for another 5/6 weeks since I could get into the surgeon until the beginning of September.

    Take good care-

    MT

Categories