Refusing Neulasta

Options
crs003
crs003 Member Posts: 73

I am suppose to go in for my first Neulasta shot today. Yesterday was my first treatment of AC and it went much better than everything I had been imagining in my mind for the last two weeks. I feel ok, except for more nausea feelings trying to creep in, but I have been on it with meds. All of my counts held up well through 12 weeks of Taxol and I don't want to take anything that is not necessary. I have heard about painful side effects of Neulasta and am also concerned about Leukemia. Would it be ok to take a watch and see approach? I have labs again next Tues, so I can see how I am doing on my own. Has anyone done this?

Comments

  • Leighrh
    Leighrh Member Posts: 317
    edited August 2015

    I never had neulasta.... My MO said he would give it to me if he saw I needed it. Apparently I did not.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2015

    I had it after every A/C, no side effects. If there are, it's recommended to take non drowsy Claratin for bone pain. It is to help keep your white cell count up, which helps your compromised immune system fight off infection. Your MO or nurse can address any other questions.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited August 2015

    AC is nastier than Taxol (once the steroids wear off), but not everybody gets Neulasta after AC. I think a "watch and wait" approach is a good idea if you're healthy otherwise and are careful about germs. I taught while getting AC, and was happy to get Neulasta because students can be very germy.

  • tamkay123
    tamkay123 Member Posts: 56
    edited August 2015

    I've had Neulasta after each AC treatment(just finished my fourth). I do take Claritin beginning the day before the shot until a couple of days after and I've had no side effects. I've had 2 infections so I can't imagine what could have happened without it.

  • muska
    muska Member Posts: 1,195
    edited August 2015


    I think Neulasta is given to those who are on 'dense' AC protocol - AC infusions every two weeks. It is not given to those who get AC every three weeks unless the blood counts get too low. In most cases however, blood counts recover enough during the last - third - week before the next infusion.

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    If you have Ac every 2 weeks, you will have to have Neulasta. If you get it every 3, it'll probably be your choice. If you choose to skip it, be very careful to avoid infections. In 2013 when I did TC, my doc tried to see how I'd do without it. I ended up in the hospital for 4 days with a neutropenic fever. I'd take the Neulasta any day over a hospital stay. Even with Neulasta, on AC, my counts were sometimes really low (and they have been fine on Taxol with no shots). Like everything, it is an individual choice; just make it carefully.

  • CatsRus
    CatsRus Member Posts: 310
    edited August 2015

    I had Neulasta after each of 4 TC infusions. I had no bone pain or other side effects, and I did not take Claritin.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2015

    Mine was every 3 weeks. Before treatment they did a blood draw to check my count. Next day I was back for the jab. I guess I could have said no, but why should I? Felt crappy enough, didn't need a hospital stay.

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2015

    There are no 'absolutes' on anything with how our bodies deal with any BC TX.

    I did Neulasta the day after my 4 neoadjuvant DD A/Cs. The only issue I had with it was that I would go to sleep an hour after injection for an hour. Wake up fine. Did not take Claritin - no pain. Do not do it with my 12 weekly adjuvant Taxol.

    For me, A/C was easy - did not slow me down at all. Taxol was nasty - completely and utterly EXHAUSTED during the entire 12 weekly infusions. From the posts of those who have done A/C and Taxo. - for the most part it seems that if A/C is not bad, Taxol will be but if A/C is bad, Taxol won't be. It is individual and how each body handles,what is going on - there are no absolutes that all will experience.

  • crs003
    crs003 Member Posts: 73
    edited August 2015

    Thank you for the replies, I'm glad to read different experiences and views. I spoke with my nurse at the infusion center this afternoon. I decided to wait for the Neulasta. I hope I made the right choice, but she explained all the possibilities and what we need to do. I am on DD AC, and that was the only reason my MO prescribed it. I have my next labs on Tues. If they are low, they will do Neupogen, which is a daily version of the Neulasta. If they look good, I will go back in on Thur. and if they are low, Neupogen through the weekend. Worst case senario will be delaying treatment for a few days.

    @Leighrh-Did you get dose dense AC or every 3 weeks?

  • Leighrh
    Leighrh Member Posts: 317
    edited August 2015

    Every 3 weeks!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2015

    I loved my Neulasta shots! I was teaching, and wanted to keep working during chemo. With them, I had one less thing to worry about (dose dense AC every two weeks....no claritan, no problems with it).

  • jbokland
    jbokland Member Posts: 890
    edited August 2015

    Nuelasta is MEGA expensive $8-9,000.00 per dose. Your insurance will not cover it unless you meet the criteria of low WBC and other white cell details.

    I had it after each DD A/C after my blood count verified I needed it. I did the Claritin 24 the day before,of and after the dose. I had minimal bone pain.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    >>Your insurance will not cover it unless you meet the criteria of low WBC and other white cell details.

    Not necessarily true. My MO gave me Neulasta for TCx4 even though my counts were always good. I think they're able to make an argument for prevention (at least with some insurers). Most of the women in the March/April chemo groups who developed neutropenic fever cost their insurers more in hospitalization and medications than they would have for Neulasta (and certainly for Neupogen).

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2015

    I had 6 TCH and my oncologist gives Neulasta without waiting to look at WBC - my insurance covered it without question. I suppose I could have refused it and waited to see if it was needed, but I followed his protocol. I also took Claritin and had no side effects that Tylenol couldn't handle.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2015

    I had mine after each infusion without any question from my insurance company......BECAUSE of it, my WBC was always good.

  • debiann
    debiann Member Posts: 1,200
    edited August 2015

    I had Taxatore/Carboplatin x6 and had the Neulasta each time. My wbc, did take a big drop, even with the shot, so I'm sure without it wbc would have been way too low. I did not take claritin and I did not have any pain.

  • CatsRus
    CatsRus Member Posts: 310
    edited August 2015

    <<Nuelasta is MEGA expensive $8-9,000.00 per dose.>>

    I'm in Canada (Ontario) and each Neulasta shot was CAN$2,709.85 - I had to pay first and then was reimbursed by my private medical insurance. If I had needed, I could 'owe' the hospital pharmacy until my reimbursement came in but I just put it on my credit card. I don't know where the OP lives.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited August 2015

    Never questioned neulasta. It was standard procedure and I'm glad it was. One week my counts were too low to have chemo...I can imagine what they would have been like with/out it. After all the slash, poison and burn, whats little shot!!

  • Italychick
    Italychick Member Posts: 2,343
    edited August 2015

    I got the neulasta after every infusion. No pain, and I did the Claritin just in case. My white blood cell count stayed high, and now two months after chemo is done, my white blood count is back where it was before chemo. I worked full time and have three grandbabies I see three times a week, so it was important to me to keep my white blood cell count high so I could live normally as much as possible. I don't know about the leukemia risk, but my MO told me it was a very, very low risk factor

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2015

    I believe the leukemia risk is from the chemo itself, not the Neulasta shot.....and it is very low.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited August 2015

    Despite Claritin, I had terrible bone pain and fever.

    Told my doc. If this was it, I would rather go on hospice. He changed to just one dose of neurogen a week after taxotere with great results

  • PamelaC47
    PamelaC47 Member Posts: 41
    edited August 2015

    I had Neulasta every week during my AC, every other week. I was able to work my full time very physically demanding job (retail sales manager)....it was even holiday season, everyone else was sick and I was healthy throughout, not even a sniffle! When I finished and started Taxol we tried the first week without the Neulasta and my counts dropped so low they wanted to delay my treatment. I went back on the shots and my counts were fine again. I took Claritin.

    My insurance covered Neulasta. Also, my hospital had me fill out a form from the pharmaceutical company where they would pay whatever my insurance didn't cover

  • crs003
    crs003 Member Posts: 73
    edited August 2015

    So, I decided to go back in for the shot a few hours later, I was worried about getting an infection and I want to stay on the DD AC. After the shot I went home and slept, today I also slept. Is this a common side effect? I took a 24 hour daytime Claritin, and no bone pain so far, but I am SO drowsy I cannot function.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2015

    Very glad you did the shot. The tired could be from chemo itself or more likely from the steroids wearing off.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited August 2015

    Yep, there's nothing like the post-steroid crash. I always felt so energized on chemo day, but two days or so later, small tasks like putting away laundry seemed to take forever.

  • debiann
    debiann Member Posts: 1,200
    edited August 2015

    Sounds like steroid crash to me to. I truly hated the steroids, but MO said no way he'd give the chemo without them. 

  • agness
    agness Member Posts: 576
    edited August 2015

    I never had neulasta but instead used chinese herbs from my practitioner that helped boost my immunity during treatment. There are studies in pubmed that refer to this though they aren't "gold standard". My own blood labs on the other hand I consider to be definitive as my WBC numbers went up round 3 much to the surprise of my oncology team and then went down post chemo when I stopped the formula temporarily.

    Astragalus-based Chinese herbs and platinum-based chemotherapy for advanced non-small-cell lung cancer: meta-analysis of randomized trials.

    http://www.ncbi.nlm.nih.gov/pubmed/16421421


    There is a lot they don't understand about the body.

Categories