Exercise and well being during chemo and radiation

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited August 2015
    97 degrees and 19% humidity as 4PM (roughly 36 C). Too hot to make much use of the weekend, especially since I am told to avoid sweating. Maybe I'll think about cleaning the cellars - it's nice and cool down there.
  • pboi
    pboi Member Posts: 663
    edited August 2015

    Very exciting and inspiring to see everyone's exercise log...really helps keep me going!

    Walked 2.1 mi this morning...despite rads fatigue...slowly but surely trying to walk a little more every day. I think it's really helping with the rads fatigue...one more week to go.

    PB

  • rainnyc
    rainnyc Member Posts: 1,289
    edited August 2015

    Katy, I was a little tongue-in-cheek with "treat myself" to chemo--and yet there is something about a long stretch when I can't move around oand am forced to do some of my favorite things: read or listen to music, for instance. Or, er, watch the aforementioned show. Speaking of which, when I was wig-shopping and coming to grips with that whole thing, I found a blog titled something like "Hats of Downton Abbey." Not to mention that the amazing Dame Maggie Smith is a BC survivor!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    yes, I learned recently about Dame Maggie! I just loveher. She kept it pretty quiet. It's amazing to me the scedule she keeps, bc or no. And she still acts on the stage! I really can't get enough of her.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited August 2015

    Rainnyc - I understand about downtime for oneself. The few minutes I wait each day for radiation treatment (plus wait times at other medical appts.) are sacrosanct to my crossword books. I will admit that I look forward to the (fortunately brief) drive to/from as well, as I can listen to NPR for a few minutes, then go lose myself in a crossword.

    Didn't know that about Dame Maggie, either. Just one more thing to admire about her.

  • so-she-did
    so-she-did Member Posts: 202
    edited August 2015

    Hit the trails by our house again this morning and went 3 miles. Other than the initial climb up and some switchbacks it was relatively flat. Great views of the valley. Stayed overcast right until the last block home.

    Think I will have to skip tonight's walk since I just learned by means of extreme necessity that I can pull down my pants without unbuttoning them. Don't really want to be decorating the bushes in the neighborhood with the big D.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited August 2015

    Hopeful... yes, it's funny, isn't it. Our lives get so busy, yet this disease of necessity forces us to slow down, and so we get these pockets of time to ourselves. It's a silver lining, I guess.

    So-she-did, sorry about the big D.

  • octogirl
    octogirl Member Posts: 2,804
    edited August 2015

    well, my good intentions to up my game to two miles went by the wayside when i slept in today....so by the time I got up and going on my walk, it was already quite warm out. Did half a mile and decided that I'd keep with the 'day of rest' theme for the rest of the day and get an earlier start to the day tomorrow....I have to admit that sleeping in felt nice. Sometimes being lazy is the way to go...

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    5.2 mile walk to day. It was HOT out!!!

  • Trvler
    Trvler Member Posts: 3,159
    edited August 2015

    I went to Jazzercise this am.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2019

    Back home with cooler temperatures after a weekend in Bend, Oregon. Temps over 100F meant low exercise, but I'm looking forward to hitting my treadmill tonight.

    We saw three new bird species, a yellow-bellied marmot ("rockchuck"), and several chipmunks and squirrels. Good food with many gluten-free options for my wife, excellent desserts at Deschutes Brewery, best mozzarella of my life with heirloom tomatoes at 900 Bond, fun shopping, and powerful hotel room air conditioning.

    No obvious lymphedema noted at ~4000 ft. altitude for two nights, which is useful info since I live and work below 1000 ft.

    Fitbit clips have arrived.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    Ksusan- that good sounds like heaven and it's making me hungry! Glad no sign of LE at altitude.

    Today for me:

    3100 steps

    30 active minutes

    1.2 miles

    I might do a bit more later, but I'll call this official.

  • wpmoon
    wpmoon Member Posts: 270
    edited August 2015

    Went to Disneyland this weekend, so walked quite a bit on Friday and Saturday.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited August 2015

    2 days post chemo, and I spent most of it on the couch. Very low energy and gastric issues. I went out for a little while this afternoon--maybe 25 minutes?--but the temperature was in the high 80s/low 90s, and my gut was saying, "Just try it, Missy. You'll be sorry." Which is a shame, because just moving my legs and feet felt great, but I knew better...

    Tomorrow is another day!

  • pboi
    pboi Member Posts: 663
    edited August 2015

    Took a morning walk with my girls this morning, 1.6 mi.

    PB

  • Italychick
    Italychick Member Posts: 2,343
    edited August 2015

    spent the day at the beach with grandkids, building sand castles, digging in tide pools, and throwing them around in the waves. It wasn't exercise, but was certainly therapeutic. Then baths, spaghetti, chocolate milk, and off to home they went.

    Beautiful day in San Diego!

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    8/2: stretches + 2.35 mile walk & steps + .5 hr T (2.5 MPH avg) + stretches

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited August 2015
    Yesterday-

    45 minutes on the bike doing intervals
    60 push ups (girls)
    Stretches
    13k + steps

    Today - errand running all afternoon and garden work this p.m. Only 200 more steps and I can go to bed!

  • so-she-did
    so-she-did Member Posts: 202
    edited August 2015

    This morning a big climb and I went almost 4 miles.

    This evening was a walk with the dogs and we went 2.1 miles.

    6 miles logged today!

  • KBeee
    KBeee Member Posts: 5,109
    edited August 2015

    Wow Amy!!!

    I did a 4 mile walk early this morning. Now in the chair for taxol 11.

  • shaz101
    shaz101 Member Posts: 718
    edited August 2015

    you are all so inspirational! Well done. I've been walking most days 30-40 mins and did some gardening and cleaning on the weekend.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited August 2015

    yesterday I didn't do my morning walk, but I did clean out part of the basement and garage and made a dump run! Good old fashioned sweaty work for sure. interestingly, the Fitbit only logged one minute as "very active" so I guess I should've cleaned with a little more spring in my step!

  • octogirl
    octogirl Member Posts: 2,804
    edited August 2015

    Nice and cool this am and did two miles, yay for me!

  • Trvler
    Trvler Member Posts: 3,159
    edited August 2015

    I also noticed that Fitbit doesn't call moving around active. I guess it wouldn't call walking active either?

    Jazzercize today.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited August 2015

    Good to see you back here, Sharon. I was thinking about you yesterday. It sounds like you had a good weekend.

    Octogirl, I know you've not started either radiation or chemo yet (still determining tx. plan, I think?) The one suggestion I'd make, if I haven't already, is to start moisturizing your chest NOW. The better shape your skin is in before you start the easier it will be on you.

    With the scars still being quite new, go lightly around them until you get the all clear to start massaging them.

    End of lecture for the day, Octo. Glad you had cool enough weather to do a couple of miles and enjoy it!

    Sloth - that's frustrating, isn't it, how little some of these devices seem to value some pretty heavy work! My pedometer gives me almost no credit for vacuuming, for instance, although there is a chart I can use to figure out the equivalence. Still, it's not the same as seeing the numbers on the device. Wasn't it nice to have it cool enough to tackle some of those summer projects we've all been chomping at the bit to do?

  • octogirl
    octogirl Member Posts: 2,804
    edited August 2015

    Thanks Hopeful...yes, I meet with MO this pm and should learn/know more on the next treatment steps. What do you recommend for moisturizing?


    Octo

  • wpmoon
    wpmoon Member Posts: 270
    edited August 2015

    Walked 2.1 miles this morning before rads. Gonna hit up the gym tonight, either for weight lifting or yoga.

  • ksusan
    ksusan Member Posts: 4,505
    edited August 2015

    Broke my not-very-fast rowing machine record to go 2500 meters in 15 minutes (1.55 miles).

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited August 2015

    Octo, I started using Emu oil about 3 weeks before radiation - even before I knew for sure that it would be the next step. I use a brand that comes from NZ, which I buy through Amazon, although I prefer to support local businesses. I think the brand is New Zealand Natural (it has an emu on the label).

    Frankly, I was reluctant to use an animal product but a) the oil is a by-product of the processing of the birds for food and b) one RO told me they had seen very good results for women using it. Prior to starting RT, I used a light layer in the a.m. followed by more at night. Once I started RT I added pure aloe (liquid, not gel) to the mix and my skin's done "great," per my RO. Other than along the scars it's not painful except for the internal tissue swelling, which really is a pain. I just had tx. #28 today and there's no breakdown, no peeling, very little itching. Even the supraclavicular area, which I was concerned would be fried, is just pink, not red. Not to say it's a cake walk, just that skin issues haven't been nearly as bad as I'd feared.

    I also used a product from Vie skin care designed for post-peel healing of skin. It was expensive but my skin seems to like it.

    I was told again and again that I would do well because I'm small and that seems to have been the one prediction that could be made with some degree of accuracy.

    If you prefer not to use Emu oil, I've heard good things about Jean's Cream, My Girls, Abourdoun Calendula cream, and Elta. You might start reading the summer 2015 radiation thread to get an idea of what people are doing. Frankly, prior to treatment, I don't think it matters too much what you use, but rather that you DO use something. Once treatment starts, you want something with as little alcohol and as few ingredients as possible. Oh, and stay out of the sun as much as you can between now and the start. My RO's nurses really emphasized that point.



  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited August 2015

    Hopeful- So glad to see you are on the home stretch with rads. And though not a cakewalk, always nice to have results not as bad as feared or expected.

    KSusan- awesome on breaking your record!

    Everyone, you're all doing so wel. Keep up the good work

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