atypical intraductal hyperplasia - new diagnosis

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Trichick1964
Trichick1964 Member Posts: 43
edited August 2015 in Benign Breast Conditions

Hi ... I'm new here. Wish I wasn't here at all, but most certainly grateful to have found you. I had a mammo showing a few clusters of micro calcifications. had a spot mammo and was told I needed a biopsy. had stereotactic biopsy on Tuesday (am fairly certain my right breast now hangs 2 inches lower than the left...they had a tough time getting me into a good position for the procedure). I have 2 clusters of micro calcifications very deep near my chest wall. Path report came back today as "ATYPICAL INTRADUCTAL AND MICROPAPILLARY HYPERPLASIA WITH
ASSOCIATED MICROCALCIFICATIONS." I'm waiting to hear from the surgeon's office to schedule a consult. I'm assuming I'm understanding correctly that this does not mean I have cancer but my risk is increased. I'll be scheduled for an incisional biopsy and understand that the results could come back clean or with cancer, but it will likely be early stage. am I missing anything? Is it typical to have an incisional biopsy and then further surgery if cancer is found? I'm actually ok with all this news, but I don't do well with the unknown. Who does, right? I'm curious what the recovery time is for a biopsy? Is it possible they would do a lumpectomy in this instance? The unknown is no fun, although I do feel quite positive that all will be fine even a worst case scenario.
Any words of advice, experience, wisdom, etc is greatly appreciated!

Trichick1964

Comments

  • Ddw79
    Ddw79 Member Posts: 533
    edited July 2015

    This was similar to my finding last March. After Stereotactic I had an excisional biopsy. I'm not familiar with the incisional kind you mentioned. Mine was very much like a lumpectomy. It's mostly done for dx purposes . In my case, no cancer.. Yet but in the way.


    Recovery was not bad. A little long to feel completely out of pain but I was certainly up and about working and making meals for my family the day after surgery.

    Well wishes for a good outcome. You can pm me if you have any questions about the surgery



  • ballet12
    ballet12 Member Posts: 981
    edited July 2015

    Hi Trichick, after a finding of atypical ductal hyperplasia they do an excisional biopsy, which is done, as you stated, to determine if there is cancer found in the area. If the cancer is found, and they have clean margins, they generally don't need to go in to do an additional lumpectomy. Also, if cancer is found, the procedure that you will have will be called a "lumpectomy". after the fact This is just a matter of semantics. If the procedure is done as a biopsy (to see if it's still ADH vs. cancer) it's an excisional biopsy. If they find cancer, usually it will have been the equivalent of a lumpectomy, so you can call it a lumpectomy. If the margins are not "clean", that is, that there is cancer very near or at the edges of the excised tissue, then additional surgery would be required. If cancer is not found, and it's only more ADH, then they actually don't need to have "clean" margins, although they usually do, because ADH is often less extensive that, say, DCIS. I had the scenario where they found the ADH on the core biopsy and DCIS on the excisional biopsy (which we now call a lumpectomy). I did not have clean margins, so I had two re-excisions (two additional lumpectomies) in order to get clean margins. I also had a previous history of ADH after another biopsy. Best of luck to you.

    With regard to recovery from an excisional biopsy, everyone's experience is different. That's because every body (and every person) reacts differently, and also the amount of tissue taken can vary a lot, depending upon what is needed to be excised. There's also the issue of how someone responds to pain. There is pain and discomfort. Some need pain meds. I just used lots of bags of frozen peas, placed over the area, and it worked well. I've had a total of six excisional biopsies/lumpectomies on that breast over time. None of the recoveries were bad. I had more trouble with the core biopsy (that led to this latest diagnosis), with bruising and hardness that lasted a long time.

  • Trichick1964
    Trichick1964 Member Posts: 43
    edited July 2015

    thanks so much for clarifying, Ballet12. that all makes perfect sense and now I know why sometimes it's termed excisional biopsy and sometimes lumpectomy. I appreciate the info. I've always recovered well from surgeries in terms of pain. I hate pain medication so I'll go the ice and Motrin/tylenol route whenever possible. I'm more concerned with down time as I have a big event scheduled in a month. I can afford a day or two of no lifting/exerting, but beyond that I'll need to consider canceling. I've had an excisional biopsy in the past but it was so long ago that I don't remember what restrictions the dr put on me in terms of lifting, etc. I do remember that I slept off the drugs the day of surgery and I was up and about the next day. I know only the Dr can really give me the info I'm looking for, but I figured if I can get an idea of other's experiences and instructions post op, that will help me in planning and thinking until I actually get in to see the dr.

  • ballet12
    ballet12 Member Posts: 981
    edited July 2015

    Hi Trichick, I had the surgeries on a Friday, and was back to work on Tuesday. I even took dance class the following Thursday (with modifications). I could have probably even gone to work on Monday, but taking the extra day was good. If you can schedule the surgery on a Friday, that gives you the weekend to heal.

  • Trichick1964
    Trichick1964 Member Posts: 43
    edited August 2015

    Thank you for that info ballet12. I'm glad you healed so quickly and I will keep fingers crossed that I do as well. I have a surgical consult next week and oncology consult the following, so now I just hang out and wait. I've made some proactive decisions regarding the event I mentioned. I've decided to reduce my stress and bow out of the event. It's a bummer, but I already feel better knowing I don't have to worry about timing, recovery, energy level, or anything else that could possibly get in the way. Now I can focus on taking care of myself so I heal well and hopefully put this all behind me*fingers crossed*

    Thank you again for your responses. I really appreciate you taking the time ;).

  • Ddw79
    Ddw79 Member Posts: 533
    edited August 2015

    I know it's a bummer not to go through with plans but you may have made a wise decision . It is stressful trying to push yourself at a time when you are healing from surgery. I think you will do fine with your plan in place. I worked the whole time and I could drive right after, but lifting... No wa

  • Trichick1964
    Trichick1964 Member Posts: 43
    edited August 2015

    Yes, it's a bummer, but it's fine as well. The stress was in making the decision. I feel good about it now and know I don't need the added stress. I worry about lifting as well. Thank you Ddw79 for you response :).

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