AUGUST 2015 SURGERY SISTERS!!

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  • AudreyB
    AudreyB Member Posts: 377
    edited July 2015

    Hi everyone!

    I tried to make an appointment with Vinnie today but was told all my surgeries have to be complete and PS has to give the go-ahead that I am officially done (exchange, revisions, etc). I was trying to make an appointment for next May 2016, but I just have to be patient. I am going to order the Pink Perfect nipples from Cure Diva though. I am ordering Bold in Soft Pink. Total cost will be around $210 with the 20% coupon offered for first time purchases. My plan was to get 3D tattoos and also use the Pink Perfects for fun using the tattoos as a template. I have spent my whole life trying to hide my nipples as my breasts were not symmetrical and the nipples were always crooked, one higher than the other. Now I want to show perfect nipples under some clothing. Go figure. Anything to feel normal again. I know you all understand.

    Winking

  • mjh1
    mjh1 Member Posts: 445
    edited July 2015

    39andhip and mkinoly - welcome to the thread.  you are definitely in the right place.  don't be afraid to ask any question you want.  we  are never short on advice and love sharing our experiences in this journey to kick cancer to the curb.  Some you may even get a good chuckle from.

    aviva5675 - great that you posted that list.  I never even knew one existed.  Thanks for reminding us not to forget the husband/partner/significant other.  I did get a good chuckle.  One thing that I will add is if the BS or PS asks you if you want to stay another day in the hospital, say YES!!  By the time they got me up to my room after MX was probably 10 p.m. and I was dischaged the next day by noon because I mistakenly told my doctors that I just wanted to home because I thought I would sleep better....NOT!!  Among the many frustrations we all endure in this journey, not being able to comfortably sleep in the beginning is definitely at the top of the list (especilly those of us who were stomach or side sleepers).

    AudreyB - you always crack me up.  By next May I'm sure you will have the perfect postion to place those nips.  I can just see you now modeling every day with the temps trying to get the best position.  I hope Rob will enjoy the show...Happy


  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2015

    Yeah, I plan on asking for an extra day even if I have to exaggerate pain or whatnot. Insurance hates that but it makes no diff to the hospital because they all get paid regardless of if my bed has me in it or someone else. Unless I feel great after sx for which I'll go home, but who has ever felt great after bmx with TE placements---and those drains! Yup, still thinking about that. Need all the show me how I can get on that ringer.

    Simply amazing. I worked in a very busy surgeon's office as the sx coordinator and have watched him to sxs with no ill effects. Love the medical field. But. Now it's me on the table. Ahhhhhhhh! lol

  • Taloula7615
    Taloula7615 Member Posts: 1
    edited July 2015

    hello

    This is my first post... I was diagnosed on 7-6-15 with stage 1 grade 2 in both biopsy sites in my left breast. My surgery is August 3rd, next Monday... I'm having a double mastectomy.... I can't have my reconstruction for about 6 mo to a year so I can heal well. I have a history of breast infections and I'm diabetic. Im nervous but I think I'm ready for surgery. ??? I would love to see if anyone is going through this around the same time. Hugs to all💕

  • quiltlibrarian
    quiltlibrarian Member Posts: 174
    edited July 2015

    Hello ladies. I just went to Walmart for the plain sports bra no closer. Just pull up ones. Do get a size bigger than you need. You do not want pressure on the arm pit area.

    About staying over night, after my first surgery I had a roommate who snored horribly. I could not be to angry with her. She had broken her leg, and the only time she was not in pain was when she was sleeping. I was very glad that I could go home to sleep.

    One thing that I did read on this site. Is to take stool softeners a couple days before surgery and drink lots of water to.

    When I had my surgery I was given intravenous antibiotics a hour before surgery and during surgery. I don't know if this is standard, but maybe ask your surgeon about this.

    Hope this helps.

  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2015

    I'm kind of weary taking stool softeners a day or two before sx as right now I have no problem going. It's not diarrhea but it comes out fine now so I'm afraid I might create a problem if I mess with it beforehand?

  • justamy
    justamy Member Posts: 532
    edited July 2015

    i wouldn't take stool softeners until you need them. I have had 3 surgeries for BC so far and have never needed them. I would hate to have the other problem when it's not so easy to go to the bathroom alone. Jmho.

  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2015

    Thanks justamy. I think I'll hold off on being prophylactic but I can see if you have problems going now, I'd do it. I also tend to have the D when I am anxious which I anticipate being next week so I think best for me to not do this. lol

  • Carrie37
    Carrie37 Member Posts: 331
    edited July 2015

    I will be having BMX with reconstruction on August 20. Of course I am getting nervous as the only surgery I have had was my port placement and lymph node removal in February. Not only am I nervous about the physical recovery but also all the emotional stuff that will inevitably come with having my breasts removed. I have been doing lots of reading here on BCO. Thanks for starting an August group

  • mjh1
    mjh1 Member Posts: 445
    edited July 2015

    taloula7615 - Welcome to the thread and to BCO!!  We're honored that you put your first post here.  There are many wonderful threads on BCO that will give you lots of info and advice from your fellow sisters if you don't get the answers you're looking for here.  Some of the most popular are Breast implant sizing 101 where we have our implant whisperer Whippetmom, Exchange City, Fat grafting pros and cons.  Just type in what you're looking for in the search field and it will lead to all different threads.

    carrie37 - Welcome!!  Waiting is the hardest part right now and this certainly is an emotional rollercoaster but we're all here to listen and lend emotional support when you need it.  We've all had days where we just want to vent, scream, cry.  While those days are not fun, there's always someone on BCO that will lift your spirits.

    Artista928 - I'm right there with you in having the big D when I'm anxious.  My stomach was such a mess last year with all the anxiety and stress that I actually that on top of having BC I also developed a serious intestinal problem. SickTired

  • rovnic13
    rovnic13 Member Posts: 26
    edited July 2015

    8/17 grace1366

  • 39andhip
    39andhip Member Posts: 164
    edited July 2015

    Thanks for the input on what to bring/not to bring to the hospital. I'm looking at that long list wondering what I would actually use.

    I do have to say, though, the spray-on deodorant is a good suggestion. After two lumpectomies, I still find putting on deodorant to be painful! Also, I feel like button up shirts are a necessity. I was told to bring a button up shirt to my lumpectomies, and I didn't, because my only button up shirts are my nice work shirts, and I didn't really want to be hanging out in them at the surgery center and at home. This time I went and bought a bunch of shirts at the thrift store and invested in a couple of supportive bras that close in the front. (I also wish I had done this pre-lumpectomy, but I was too cheap.)

    I find it amazing/somewhat appalling people go home a day after a UMX or BMX! Yikes! (though I do realize some people WANT to go home) I am supposedly getting a DIEP recon, so they better not kick me out after 20 hours. The PS said 4 days, or maybe 3, if I feel good. I guess I'll have to see how annoying my roommate is, lol. The only other time I've been in the hospital was when my kids were born, so I'm pretty freaked out about it.

    Is anyone else having insomnia? I seem to have developed a severe case of insomnia that is resistant to Ambien, Belsomra, and melatonin. I hope it is just anxiety, because I was planning on doing a lot of sleeping in the hospital. If not being able to sleep is a permanent condition, I have no idea how I will spend my days post-mastectomy, haha.

  • AudreyB
    AudreyB Member Posts: 377
    edited July 2015

    39andhip, insomnia is the worst. I have been suffering, since diagnosis with all the worrying and waiting for test results, prior to bmx just because I was terrified, and now waiting for my exchange surgery, which I am more excited than nervous about. I also think now my expanders are the main culprit for me tossing and turning.

    After mastectomy, I was able to sleep somewhat, but I think it was my body just saying enough, I'm done.

  • mjh1
    mjh1 Member Posts: 445
    edited July 2015

    grace1366 - welcome!!

    39andhip - well, you're way too young to have menopause be the culprit of your insomnia.  You're about to undergo a major surgery, so no wonder you can't sleep.  maybe ask your BS to write you a script for Xanax, Valium, lorazapam which will help you tremendously to relax and not be as anxious.  Since you'll be in the hospital a few days, I would say the first thing on your list is ear plugs, not just for snoring roommates but those darn beeping IV machines.  Instead of hooking my IV in my wrist, they hooked it up to the vein in my elbow so every time i dozed off and bent my elbow the damn beeping would wake me up.  After about 5 hours of this, I was ready to throw it out the window had the windows opened. Finally, the nurses got tired of coming into my room and they moved the IV to my wrist.

  • 39andhip
    39andhip Member Posts: 164
    edited July 2015

    So do anti-anxiety meds help with sleep? I know I'm super stressed, but I'm a pretty high stress person anyway, and Ambien has never failed me. I was actually worried last night that I was experiencing early menopause... I hear you on the beeping. Before my son was born, I was hooked up to some monitor that kept beeping incessantly - while they were telling me to 'rest up' for labor. Yeah... right. I've already got ear plugs in my bag.

  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2015

    Ativan works for many. In fact docs rx it for you take before bedtime because it makes you sleepy as well, so it will be out of your system in the am when you need to go to work or something.

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2015

    A tentative "Hello, I'm so sorry you're going through this!" I can't speak to all the suggestions--mine were both outpatient and minimalist--but only that the women making the suggestions know what they're talking about.

    Mih: Oh, sweet deity: the elbow placement for IVs! Hospitals aren't the best place for rest for a variety of reasons, starting with "You're generally pretty sick." But that [expletive deleted] machine didn't help, and I wasn't starting my hospitalization with insomnia issues. (hospital stay predated cancer diagnosis)

  • justamy
    justamy Member Posts: 532
    edited July 2015

    I was so happy to have my port from Chemo still during my stay! They could just do everything through it. I do hate the machines though!

    Re Sleep...Ativan and klonopin are better than ambien for sleep because ambien tends to quit working over time. It's also great to not have the anxiety. They definitely take the edge off.

  • rleepac
    rleepac Member Posts: 755
    edited July 2015

    Hi all. Scheduled for skin-sparing/ nipple-sparing BMX with TE's on 8/18.

    I'm no stranger to surgery but this one just seems to feel different. I guess because my life depends on it and I know there will be at least one more surgery later for the exchange.

    I'm physically preparing by trying to walk every day so I know what my baseline is and I have something to work towards after surgery.

    They tell me it will probably just be an overnight deal. Does that sound right?

    Bekah

  • Nibblersmom
    Nibblersmom Member Posts: 6
    edited July 2015

    Hi everyone,

    I was given an option between a lumpectomy and mastectomy. I chose the lumpectomy. It's scheduled 8/7. (A wonderful way to spend your Friday jk). I was wondering if anyone knew if it was possible to still get PS later after, I want different boobs when this is said and done.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited July 2015

    Rleepac, typically a BMX with TEs is either one or two nights in the hospital. I was asked by my BS if I wanted to stay an additional night. I said yes. I really wish I hadn't, though. The second night brought a CNA who decided I hadn't walked enough (I had IVs in both of my feet until right before her shift started and the RNs were being kind to me) and basically bullied me into walking multiple times during her overnight shift. What an awful woman. Luckily my older daughter (19) was there and walked the halls with me. I would have had a lot more rest if I had gone home.

    Nibblersmom, lots of women have delayed reconstruction, it's definitely a possibility for you.

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited July 2015

    Nibblersmom: i can only give an In all probability, yes as I don't know your circumstances, but certainly my breast surgeon didn't seem at al surprised that I'd want it after my reexcision. The surgeries are different for the two cases, obviously--with a lumpectomy/partial mastectomy, there's a great deal more breast tissue to work with. But it's definitely worth bringing up before your lumpectomy, if only to set your mind at ease. Are you getting radiation? (I'm guessing yes.)

  • Suzy1067
    Suzy1067 Member Posts: 36
    edited July 2015

    Hi all -
    My surgery is August 4th - BMX, super nervous, but, also ready to get on with recovery.  I too have a list, I am trying to prepare for everything.  I've got the button down pjs, mastectomy camisole with drain "pockets" and a couple button down tops - I think I'm ready.  Still seems unreal!  The closer it gets the more anxious I get and worry I've made the right decision.  But, when I think about facing radiation and every 6mos rechecks, I feel BMX is the better choice for me.  Anyone else afraid of the decision making process??

  • justamy
    justamy Member Posts: 532
    edited July 2015

    I think most people who have a choice agonize over the decision. It is a big one. I had the choice between BMX and UNX. I chose BMX and have not regretted it at all. The recovery was not that hard as long as I had pain meds. It is weird getting used to the feel of implants in my chest but not bad. The choice is a very personal one and whatever you decide Will be best for you. You've thought it through...it's just hard waiting.

  • aviva5675
    aviva5675 Member Posts: 1,353
    edited July 2015

    When I had my lx I they reshaped it so to speak, and so had a matching lift/reduction, called oncoplasty, on the other side at the same time- so they would match. That is covered by insurance. Not sure about ps later on for that stuff....

    Ref drains: I found it helpful to also safety pin (around the tube) the drain to my shirt about 8 inches below the incision- kept the line more in place when moving around during the day and less chance to snag.

  • Beasly
    Beasly Member Posts: 10
    edited July 2015

    I have to smile at your list. You are very organized, and if I hadn't read it I'm sure I would not thought of any of it, and just shown up as if it was an ordinary day. There is a lot of great advice in it. I will make a hoodie with an inside cut out today as a matter of fact. Thank you!

  • Beasly
    Beasly Member Posts: 10
    edited July 2015

    I don't have my date yet, but was told that I would hear from them soon.

    I was diagnosed over a year ago as stage IV. It seems like everyone else is getting their surgery right after chemo. I finished chemo in the fall, and I fell pretty good except for some neuropathy. I think there is a bit of debate about getting surgery for my stage because the horse is already out of the barn, if you will. The breast tumor is still there but very small, and my Dr. said she really wants me to have surgery. So here I go.

    My Doc isn't very enthusiastic about reconstruction. On the one hand, she's very optimistic, telling me that I can live a long time, or ten years anyway. When I mentioned reconstruction the first time she said "do you really want to put yourself through that". And I said "well it depends on how long I can live. If I only have a few years, then probably not." No one can say for sure, of course, so I'm going with reconstruction. I should be meeting with the surgeon soon and will continue to look into it, but if anyone has any thoughts about stage IV, please let me know. For one thing, it's in my lungs but only microscopically.

  • mjh1
    mjh1 Member Posts: 445
    edited July 2015

    rleepac - Welcome!! Hospitals these days want you in and out but the final say lies with your BS.  My vitals signs were good after my MX that the hospital wanted to release me the same day.  My family was in shock that after a 6 hour surgery they didn't even want to keep me for observation.  Luckily, I had a great BS who told me I can stay a couple of days if I wanted.  My error in saying I wanted to go home the next day even though I had a pretty swank private room.

    nibblersmom - Welcome!! Many women delay PS for various reasons, so I don't see why you couldn't delay yours unless there's some other medical condition that would preclude you.  If it would ease your mind, maybe try and get a consult with a PS just to see what they say even though you're undecided now.

    suzy1067 - Welcome!! Each of us choose to have either a PMX, UMX, BMX or LX for various reasons.  No one can say whether it is right or wrong becaue it is such a personal choice.  It is a decision that only you will have to be comfortable living with.  Many of my friends thought I was crazy and couldn't understand why I wanted a BMX when I was only diagnosed with DCIS in one breast.  I knew in my gut this is what I needed to do and thank God I did made that choice because it wound up that I had DCIS in the other breast as well that was not seen on tests.

    39andhip - yes,the anxiety meds do help (at least they did for me).  Many PS also prescribe Valium as a muscle relaxer ffor pec muscle spasms when you have implants placed under the muscle even though it's not marketed for that but it does work great.

    dimccleland - any results on the scans yet? 

    Beasly - Great that you joined us.  If you want a recon, I say go for it, unless it really is contraindicated by your doctors.  My mom also was diagnosed with Stage IV last July at age 71.  She had two large tumors in both breasts.  She had a couple of rounds of chemo to try to shrink the tumors so they could operate.  They shrunk enough where the BS (also mine) felt she would be able to get everything and still be able to close.  She had a modified radical in one and a simple MX on the other, all nodes removed.  Was walking the next day as if she only had a tooth pulled.  She finished up her chemo after BMX (no side effects) followed by 6 weeks of radiation (also no side effects except her skin was slightly burned the last week.)  Had repeat bone and PET Scan which are all clear, so she is in remission now.  The doctors are quite perplexed when they thought it was so dire a year ago.  Some say she has an angel on her shoulder.  I and she believe it's all in God's hands.  May God bless you!!!


     

  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2015

    Yeah I thought with doing Bilat mxs that radiation would be out, but surgeon says if they find cancer in the lymph nodes, then radiation it is if you want to be safe.

    I took a lymphedema class that offered free at the women's center in the hospital I'm going to. Learned a lot. Good to learn about it and follow the precautions to try and prevent it because there is no cure, only treatment.

  • Windermeremom
    Windermeremom Member Posts: 16
    edited July 2015

    TALOULA76- I will have surgery the day after you. I also decided to go with a bilateral because I will not be able to have reconstruction for at least a year. I still have to have radiation though because of the type of breast cancer that I have (IBC).

    suzy1067- Your post caught my eye because we have the same surgery date and I am originally from Jacksonville. I am going to Moffitt Cancer Center in Tampa.

    Best wishes to both of you ladies as we make it through the upcoming week!

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