Just diagnosed, waiting for answers

CarolinaAmy
CarolinaAmy Member Posts: 281
edited July 2015 in Just Diagnosed

Hi everyone,

I just had my "welcome to 40" mammogram a few weeks ago, and after a recall for diagnostic mammogram, tomography, and ultrasound, I had a biopsy Thursday. On Friday, my doctor and friend called me with the news that it is a grade 3 tumor (8/9 on the scale). I have no other information until I get the appointment with the surgeon and oncologist.

I'm waiting rather impatiently for tomorrow; she was trying to arrange these things late afternoon Friday, so the earliest I'll know when I can see them is Monday.

I have two young children and we had just begun the process of adoption for our other beloved girl, who is an orphan in Ukraine about to age out of their system as she turns 16 in two weeks. Needless to say, this is a bomb thrown into the situation that I just can't wrap my head around. We may well be disqualified if they find out.

I'm glad there's somewhere to go to talk with other survivors.

Amy

~Micah 6:8~

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Comments

  • plumster1
    plumster1 Member Posts: 270
    edited July 2015
    Hi Amy- you are in the very worst part of the treatment process I have experienced so far... The waiting and unknown. I was DX in early June. I saw three Bs very quickly and was able to choose one and form a TX. That was a huge relief! I know getting a plan helped me and others on the boards i've seen greatly. Try to keep yourself busy and not obsess over it (LOL). Use this website to help educate yourself for when the ball starts rolling but don't scare yourself and go to worse case scenarios. You will get through this. Keep us posted! Xo
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  • Gatomal
    Gatomal Member Posts: 483
    edited July 2015

    Today is my year anniversary from my diagnosis. I have finished chemo, two surgeries, radiation, and started on hormone therapy pills. It's been a long year, but you will keep chugging along. I am feeling pretty good considering, and getting better each day (I just finished radiation six days ago). It takes a while to really get your arms around it, it's scary and crying helps! It will be better as you start getting your pathway together. Ask folks on the boards for help. This has been a lifeline for me! I hope it serves you well too. Good luck!

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  • CAMommy
    CAMommy Member Posts: 437
    edited July 2015

    I seems like these things happen at the worst times, if there ever is a good time I doubt it. We are getting ready to move across country when I got my dx. We are still selling out house but it's so hard to figure out treatment when I don't know where we will be!

    It does get easier with a treatment plan!

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  • Gingersnappy
    Gingersnappy Member Posts: 18
    edited July 2015

    Hi. I'm new here, too. Just diagnosed yesterday. Praying for you! Here's to beating this together!

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  • CarolinaAmy
    CarolinaAmy Member Posts: 281
    edited July 2015

    And it gets worse. I just learned last night that it's triple negative. So it's more aggressive, more likely to recur, and isn't able to be treated with hormone therapy. I'm looking at surgery, chemo, and radiation.

    I've pretty much lost my ability to be positive right now. My daughters are in elementary school--my baby starts kindergarten in two weeks. And I'm supposed to be spending this fall and winter traveling to Ukraine to get our daughter.

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2015

    Hi

    I am sure if you go to the TNBC part of the board you will find all sorts of great advice and words of wisdom from people with a like diagnosis…. don't despair--there is so much happening in the breast cancer world. I have two dear friends who were both TN and are just fine now 7-12 years out from dx…..


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  • Tresjoli2
    Tresjoli2 Member Posts: 868
    edited July 2015

    So, like you, I was diagnosed a week after my 40th birthday. I was bopping along, no lump, no suspicion. Like a good girl I went for my annual physical and my doc suggested i go in for my baseline, but understand that the false positive rate is really high. BAM! Three weeks later i had cancer.

    I find that you have to break things into small chunks. Your first "chunk" is getting all your final pathology back. The next chunk will be your surgical decision. This is the darkest hour, when you know you have cancer but don't know what the heck you are.going to do about it.

    I also have two small kids. A 3yo and an 8yo. Your hospital should assign you a social worker...mine had great resources about talking to kids about cancer in an age appropriate way. The American Cancer Society also has tons of resources for talking to your kids. Take a deep breath ,we are here to help you through this. Hugs!!!

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