Need information while i"m waiting.

shorty123
shorty123 Member Posts: 14
edited September 2015 in Just Diagnosed

Hi...i've just been diagnosed with invasive ductal carcinoma multifocal,moderately differentiated.1.6 cm and 0.8 cmm.Er positive,PGRneg,and HER-2neg. Is there anyone here that has been dignosed with the same?And what treatment do you all think i will be given.Just anxious waiting to hear from my BS.

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  • inks
    inks Member Posts: 746
    edited July 2015

    So sorry you have to be here. Treatment may vary from person to person because so much more goes into decisions than just the size, grade and receptors of tumor. One thing is sure though at some point you will have surgery and hormone therapy so you could start by reading up on lumpectomies and mastectomies and hormone therapy for either premenopausal or postmenopausal women. I wish you the best.

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  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited July 2015

    My right-side tumor was similar to yours. My doctors (all of them, including the second opinion I got at an NCI-designated cancer center) said that a mastectomy is advised for multifocal tumors. That's what I had. Because my cancer was node-negative, grade 1, and the tumors weren't near the margins of the mastectomy I was able to avoid both radiation and chemotherapy.

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  • shorty123
    shorty123 Member Posts: 14
    edited August 2015

    Thanks for all the feedback guys. Since then i"ve been doing additional test(MRI/ULTRASOUND) because films and path report are not clear in regards to where the tumors are.BS think the markers might have moved so BS want to take new pic. All i want is to get these things out of me.FRUSTRATED!!!!!

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  • shorty123
    shorty123 Member Posts: 14
    edited August 2015

    Its been awhile since I 've been on.

    This is whats been happening s o far.my multifocal tumors has since grown from1.5 to 2 and the other from 9Mm to 1.3 cm.

    On Thursday August 20th I had masectomy of the left breast with flap reconstruction.my BS. Found 1/18 nodes waiting on the results of the onydx test to determine what treatments.can anyone give me there opinion?

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  • inks
    inks Member Posts: 746
    edited August 2015

    Since your tumors are moderately differentiated it's best to wait for the OncotypeDX results. Did the node with cancer have extranodal extension? If yes then you may need radiation. How old are you? If you are young then chemo is usually a given. Were the tumors in the same quadrant of the breast? If not then again another reason for radiation. I hope you are recuperating well and you reconstruction results are great. Hugs!

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  • shorty123
    shorty123 Member Posts: 14
    edited September 2015

    Thanks summer and Ink. for your replies you guys rock !!!Its been 5 WeekS since mastectomy and diep flap reconstruction.I'm recovering well. Still numb in the breast and tummy but the ps says its normal and it will take awhile to get feelings back in both areas.Got the result of my oncotype test yesterday from np,score is 10.she says its good and my oncologIsT which I see on Tuesday, may not do chemo but hormonal treatment is a must.I will let you guys know when I see her.Oh I'm 50years old on July 14th the day I found out I have this thing that has invaded my body.Married mother of 3 wonderful children ages 24,16 and 10.

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  • inks
    inks Member Posts: 746
    edited September 2015

    Great news Shorty and glad you are feeling OK. It would be interesting to find out what the MO will say about chemo. But it sounds like radiation is out of the picture. Take it easy!

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  • Smurfette26
    Smurfette26 Member Posts: 730
    edited September 2015

    I too have been diagnosed with a multifocal cancer. Right breast. My consult with the surgeon is just a couple of days away now but he has already told me that mastectomy is really my only surgical option. The closer it gets the more anxious I feel. :(

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