Her2 Positive Metastatic Stage IV Breast Cancer no primary

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briley856
briley856 Member Posts: 1
edited December 2015 in HER2+ (Positive) Breast Cancer

I would like to find anyone else out there that cannot find their primary. I have been diagnosed with Her2 Positive Metastatic Stage IV breast cancer. They are unable to find my primary. Also the lymphnodes affected are too close to my esophogus and heart to have radiation or surgery. I have done 4 treatments of Chemotherapy and they have done all they can do so now I will do a year of Perjetta and Hercepten

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  • letranger
    letranger Member Posts: 234
    edited July 2015

    I am new and don't know much but could it be that you had a pcr???

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  • AliceS
    AliceS Member Posts: 98
    edited July 2015

    To Briley856--Hang in there--I'm hearing that stage 4 can be treated as a chronic illness and you can go on indefinitely and live your life. Keep us up to date. We here in the community want to follow your progress. Hugs to you.

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  • janabell
    janabell Member Posts: 5
    edited December 2015

    My mother is in the same boat. Started chemo today actually with same drugs as you. She had DCIS with Lumpectomy and radiation in 2012. No problems since until she noticed an enlarged node above collarbone in September. Tested ER-PR-HER2+. Clear mammogram and all other scans were clear as well. We are all in shock... Trying plant based diet and possibly some other integrated medicine if she feels up to it. Blessings to you!!!

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