Got called back for a biopsy

Options
Kimmer33
Kimmer33 Member Posts: 386
edited August 2015 in Waiting for Test Results

hi

New here, and very worried. Got a call today with results from ultrasound - found a mass they want to biopsy as well as a lymph node. Mass is 1cm. What does this mean? Does a lymph node biopsy mean the cancer has spread? I dont think I will be able to sleep at all. No word yet on when the biopsy is and with Canada Day holiday tomorrow, have to wait longer. Can anyone reassure me? Thanks

Kim

«1

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    Hi Kim-

    We want to welcome you to our community here at BCO. We hope you find the support you need!

    We know it's hard not to worry, but please remember, the majority of these lumps turn out to be benign, so the odds are in your favor! Many times, if the results of an ultrasound or MRI are inconclusive, the doctor will schedule a biopsy to rule out anything serious, as the results from a biopsy will be the most accurate. Sometimes a surgeon will biopsy the nodes just as a precaution, or in the event that cancer is found, having the node results saves the patient from another procedure.

    Try to stay calm, and don't assume the worst! Like we said, the odds are still in your favor that your results will be benign. Please keep us posted!

    The Mods

  • bride
    bride Member Posts: 382
    edited July 2015

    Kim,

    Your radiologist may be looking at your lymph node as a precaution. But even if you do have BC and it has spread to your lymph nodes, that isn't as bad as it sounds. Lymph node involvement is not uncommon in BC but it doesn't mean you have mets in the way most people think of them.

    Also your lymph nodes can provide information about other diseases like infections which may be part of what's going on.

    I know waiting for answers is incredibly difficult. Please feel free to rant, cry, freak out or whatever you need here. We all know the awfulness of waiting. You can get through it. Try to take breaks from your worry. I'm saying just relax -- that's not really possible. But you can take timeouts from the tension.

    And remember, you aren't alone.

    Best,

    bride

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    thank you for your response. I did have a terrible sleep and just cannot believe this is happening. I dont know how to relax with this, I dont know how to not think that it is cancer. I am only 45!

    Kim

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited July 2015

    Hi Kim

    My first biopsy included a lymph node aspiration too and I think I was more scared of that than anything else. I convinced myself I was doomed. To make a very long story short, my biopsy was benign and although my nodes were enlarged, they did not contain any cancer either. Hang in there - the limbo period sucks. Try to stay busy. And by that, I don't mean researching breast lumps online! That's the fastest way I know of to make yourself crazy. I wish you all the best. Good luck. :)

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    Ha, that's cute, yes we do get caught up in Dr. Google and I agree it can make you crazy. Thanks for the info, what did the biopsy show other than benign? And what was the cause of the enlarged nodes?

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    went to see my GP today, just for some answers and reassurance and he said based on my ultrasound resumts, the biopsy would be confirming cancer... So he said to expect that diagnosis. One thing he said is he will call the breast clinic to find out if doing a full lumpectomy is possible instead of just a biopsy. Has anyone had this before

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2015

    I went straight to an excisional biopsy (also called a lumpectomy) and had the lump removed. I instructed the surgeon to go for wide margins, 1 cm or greater. My ultrasound/mammogram/MRI rated me a bi-rads 5 so I saw no value in the biopsy. I am very happy with my decision since the surgeon got the lump out with wide margins. I also had her do the sentinel node at the same time (3 were taken out) and they had no cancer. So I did that, and then moved on to chemo and herceptin based on my tumor characteristics.

    It is different for everyone, but I didn't want to undergo multiple procedures, only to end up having the lump eventually removed since they told me 95% sure it was cancer. And it was. They are pretty good at knowing if it is cancer based on visual characteristics.

    Best of luck, and let me know if I can help in any way.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    thank you Italychick, for responding with your experience. I agree I would rather just have it out if they are that sure it's cancer anyways.

    This is a great forum, I really appreciate it so far. I am hanging on every word from you ladies, as this waiting is killing me. I may have a surgery date tomorrow, apparently i am "fast tracked", so surgery could be within the next week.Will keep you posted.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    oh, Italychick, where was your IDC located in your left breast

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited July 2015

    Try starting a journal, in the found grateful and in the back

    all the info and tests, so if the Dr say this and you know

    the date is this you have proof. Prayers are with you. Debbie

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    hi bride

    What do you mean by saying "it doesnt mean mets the way most people think "? - Regarding lymph node involvement. Thanks

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2015

    my lump was at 2:00 in my left breast about 2" to the side of my nipple.

    Surgery was January 23rd and I have no issues at the surgical site other than scar tissue.

    My surgeon did an MRI to determine exact size of lump and boundaries, and she also took sentinel nodes at the same time. Also, if you are a candidate, she went in through the side of my nipple so I have a small scar in the brown area of my nipple rather than a scar on the side of my breast. You would be surprised how much they can stretch skin. She took a 3.2" x 3.2" x 2" chunk out, and my scar is about 2" in a circle at the side of my nipple. Now that it is healed, from a distance you can't even see it. That translates to 8 cm x 8 cm x 4 cm in size

    Cancer found in the under arm lymph nodes does not mean metastasis. I think that is the question you were asking.

    Any update on your surgery date?

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    hi Italychick

    I did not hear from my doctor about a date yet so still waiting. Thanks for the info, that may help me sleep tonight, about the lymph node mets, I am really having a hard time dealing with this tonight. I think my mass is in the same area as yours, upper outer quadrant? I actually dont care what the scar looks like, once i have biopsy results i will determine if a full mastectomy is an option. Thanks again, goodnight

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2015

    Kimmer33 if your lump truly is 1 cm. with no other areas, then you would be a great candidate for a lumpectomy which is much less invasive. But it will probably involve radiation treatment to sterilize the breast tissue and kill any stray cells.

    Did they see any other areas of concern in your breast tissue? Lots of women have a lumpectomy with small growths, and I believe 1 cm is considered small.

    Try to not worry too much, you can't do anything until you get an official diagnosis. And there is still a chance it isn't cancer.

  • ClareInChicago
    ClareInChicago Member Posts: 14
    edited July 2015

    hi Kim,


    Like some here may have shared, A lump or mass being found does NOT mean that you have cancer. They will biopsy it to find out if there are cancer cells.

    I have my ultrasound guided biopsy on July 9th. 3.2 mass in the upper right quadrant. It's going to be aspirated then biopsied. I'm actually looking forward to this. I have dealt with these lop sided breast of mine for 6 years. Then one month after turning 40, the mass made its grand appearance (after mammograms starting at age 34).

    You will be okay. It's a good thing that we are getting this taken care of.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    hey Italychick! Yes I have been told there is a 1 cm lesion but told of no other areas of concern. And the hope of it not being cancer has already faded. It's irregular and has a blood flow (based on ultrasound results).

    Hey ClareinChicago! My doctor says that yes, it probably is cancer, only 5% chance of it not being cancer (and i am assuming he is basing that off a birads score, which he has not told me what that is). I have dense breasts and they are full of cysts (so many that the us tech lost count), my left breast is also larger than my right, thinking due to these cysts, (and now the 1 cm lesion) so happy to finally get that taken care of, although cancer wouldnt have been my first choice. Take care

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    Just keeping you all updated, I still don't have a biopsy appointment, so stressing about that a bit. I also feel the shock and numbness has disappeared this past weekend, and feel I can look ahead a bit, and let a new reality set in. But the waiting, the wondering, it's just killing me.

    I have found I've left Dr. Google in the dust, just researching this forum with all of you real people who aren't afraid to share what you've gone through, is almost the best help one could find going through this ordeal. Thank you, I appreciate all of you that have responded to my posts!

  • EvilOlive1973
    EvilOlive1973 Member Posts: 21
    edited July 2015

    Dr. Google is so awful.. According to him I have had about 10 cancers and TB. Please keep us poste

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    Clare, keep me posted on your biopsy July 9. What's your story so far

  • Itzy
    Itzy Member Posts: 46
    edited July 2015


    Kimmer, just reading through this thread, it's been a week now since you got the news that a biopsy would be needed.  My experience of finding out that I needed actually 2 biopsies last March was right after completing an ultrasound and diagnostic mammogram.  The radiologist came in to tell me that I needed both a core needle biopsy on one side and a stereotactic biopsy on the other, and that I would need to find a surgeon.  Perhaps things are done differently in Canada, but I believe you would be better served by concentrating right now on consulting with at least one and possibly two breast surgeons.  A breast surgeon, I believe, is the very best choice to direct the evaluation and further workup of what has been seen on ultrasound.  The core biopsy is performed by a radiologist, and hopefully someone with further training in breast radiology. The breast surgeon is well trained and ready to direct the process of evaluation, biopsy, and treatment planning.  The GP is not.

    After the ultrasound, I immediately went to work locating the best breast surgeon I could find within my network. As it turned out, the breast surgeon I chose and her staff have been wonderful, supportive, and really everything I could have hoped for.  On my first exam, the BS felt the lump in my left breast, which my GP had not just 2 months earlier.  The BS ordered core needle biopsy on one side and stereotactic biopsy on the other.  After those biopsies, an MRI was ordered, before treatment decisions were made. 

    It sounds like you are learning to handle your emotions and anxiety much better, and I suspect you will continue to grow those skills. You can experience an emotional response, see it lose its edge and subside, and then recall that experience to help you deal with it the next time it happens.  I went through lots of waiting for results, waiting for appointments, waiting for next appointments, again waiting for results, before a treatment plan was formulated.  I believe it served me well.

    Best of luck to you.  The process is not fun, but finding the needed answers, incorporating the information, is a process that needs time.  You will prevail, I have no doubt.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    HiItzy, thanks for your response. I dont know who does the actual biopsy, and havent been given an option of selecting my own surgeon, there are 2 that work out of our breast clinic here, so I will get one of those. I was under the impression the surgeon does the biopsy but I dont know these things, i am brand new to this world.

    I honestly dont know how I am going to manage making it through these next 2 weeks, i have a full time job and just dont know how I can focus not knowing anything about my situation. My one glimmer of hope is that if the biopsy is that far away, maybe they arent that concerned? I dont know, just overwhelming sadness hits me throughout the day, i dont know how i can cope.

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    update - biopsy is July 24 and i go for results a week later, July 31. Think of me please

  • Itzy
    Itzy Member Posts: 46
    edited July 2015

    Kimmer,

    I searched for something to explain the workup process in Canada, and found the link below.  You may be able to find something even more specific to your area.  While I only briefly perused it, it does look informative and helpful.  Protocols are different from one area of the US to the next, and no doubt there are differences in Canada also.

    http://www.health.gov.on.ca/en/public/publications/women/breast_cancer/womansguide.pdf

    I am really very sorry for how difficult this has been for you.  Wherever or whatever it is that provides a glimmer of hope, grab onto that and focus your attention there.  I will look onto these boards and hope to hear that you are able to find your way through it all with success.  And FWIW, I believe that is going to happen for you. ♥

  • ClareInChicago
    ClareInChicago Member Posts: 14
    edited July 2015

    Hi Kimmer!

    I will keep you posted on my ultrasound guided biopsy which is a bedtime story and a few hours away (July 9th 2pm). My twin sister is going with me.

    Thank you for updating us and I'm glad you have your biopsy appt! I will also keep you in my prayers.

    Clare

  • 614
    614 Member Posts: 851
    edited July 2015

    Dear Kimmer33 and ClaireInChicago:

    ClaireInChicago:

    Good luck with your biopsy today.

    Dear Kimmer33:

    Good luck with your biopsy as well on July 24. Try to stay positive.  The majority of lumps are benign.  That being said, the waiting and wondering is awful.  The not knowing is extremely hard to deal with and it can be terrifying. 

    I just discovered this discussion board 2 days ago and it is fantastic.  Do not use Dr. Google although Dr. Google is tempting.

    Good luck.


     

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited July 2015

    Kim

    The biopsy I referred to a few posts back turned out to be normal fibrous breast tissue. The nodes were clear, although enlarged. I've had several biopsies since, both core needle and excisional, and results have ranged from more fibrous tissue to fibroadenoma to cyst. For some reason, my breasts were very prone to fast-growing lumps, some of which got very large (my biggest was 9 cm). After my PBM surgery (which included sentinel node biopsy and removal of several additional enlarged nodes), the pathology was varied - more fibroadenomas, multiple cysts, multiple PASH, sclerosing adenosis, hyperdense fibrous tissue....busy breasts, but all benign stuff. I never did find out what was causing the enlarged nodes. Some of them were very enlarged (>2cm). Actually, I had at least one "lymph node" aspiration that came back benign, but with no cells to indicate it was a lymph node. My doctor called it breast tissue that was in the axillary region. Some of the "lymph nodes" that were removed as part of my PBM surgery turned out to not be lymph nodes either, but more lumpy breast tissue. So although it's hard not to jump to worst case scenario, just remember that there are a lot of things that can cause an abnormal mammogram and most of them aren't breast cancer.

    Hope everything goes well on July 24 and that you are able to stay positive and find some peace in the days ahead.

    Best,

    Sarah

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    hi all

    Had biopsy today, it hurt! Now we wait for results. Thanks for all your responses, you are all amazing!

  • sbeddows
    sbeddows Member Posts: 29
    edited July 2015

    Hi Kimmer33. I also had a biopsy this week and had BIRADS 5 with an enlarged lymph node so I know exactly what you are going through. Keep strong and keep calm. Whatever is going on you can and will fight this and come out of the other side a stronger person! I am in Canada too but further east.....I am a control freak but I also realised how much help it was to rely on other people for emotional support.....it is hard to do this journey on your own so reach out to whomever you feel comfortable with. From what I have been told we are in the hardest period now with the waiting and uncertainty. Keep in there!!!! I am literally a couple of days ahead of you in this stupid game and am on here way more than I probably

  • Kimmer33
    Kimmer33 Member Posts: 386
    edited July 2015

    hi sbeddows!

    Thanks for reaching out! I really appreciate it!

    Kim

  • DSW1976
    DSW1976 Member Posts: 118
    edited July 2015

    I Just wanted to reach out to all of you to say sorry you are here going thru this.  It is very scary and no one can tell you what or how to feel and really the onely ones who get it are ones who have traveled it. So you have found the right place.  Hang in there.. 

    Diane

Categories