TRIPLE POSITIVE GROUP

I'm not smart enough to play those games!!!! Knit,Purl,Knit,Purl....need I say more????

Debiann, that is a lot of stuff gone very wrong! Weren't they aware they had a fever? Oh man, that's just wrong, but all the papers we sign say there's a chance of problems, up to and including death. I absolutely hate signing those papers, and I have never been given a chance to read them before any procedure, only after, when I am home and coherent, do I read the canary copy. The one time I tried to read it before signing my consent, the doc doing it and his assistant became very uncomfortable very quickly, to the point where I couldn't read, I kept reading the same sentence over and over. But I crossed out and initialed the part about where I wouldn't hold them responsible for injury. I don't recall, but I do think they made me do a new one before proceeding. it was only a biopsy, a year after surgery on this pesky so called re- active node. But he did scrape my rib when he missed. once. he said its like chasing a grain of rice in a bag of jello. I would say, give it a go. Your turn to be happy! and we will all be pulling for you!

I played plants vs zombies, read magazines, watched people. solitaire.

debiann there is risk with every surgery/procedure/treatment. There is risk crossing the street too. Oh wait it it comes. one of my speeches…

What If
Remember the word "if" is in the middle of the word "life" for a reason. As long as you have life you will always have "what ifs". It's your Doctor's job to worry about those "What Ifs"

I am happy to say I will be 4 years NED on July 28th. That was the day of my surgery. 😊😊😊..I'm good for another 6 months...

Hi. Thanks for all the support and well wishes for today. I have been here since 1030 and the herceptin is almost finished. I froze my finger and toe nails right before and during the Taxotere but as soon as it was finished I pulled the ice off! I used homemade ice packs that stayedcold the whole time (hour and fifteen minutes). The idea is stay cold cold correct? Not iced over lol! The Carboplatin was next and that gave me heartburn and gas shortly after it started but better when finished . I did 2 hours of pre meds 2 anti nausea and steroid plus I was on oral steroids yesterday and will be tomorrow too. Tomorrow I take two steroids in the am two in the pm Zofran every8 hours antihistamine for the Nuelasta injection Advil or Aleve and Compazine at bedtime. I stay on antihistamine for 5 days following Neulasta injection. Any of y'all doing this?????

Greta, each round was different for me. I agree that you should keep track of symptoms by "days post-chemo" as well as a rating (1-10) of how they are. Your chemo staff will go over this with you, and it will help them to help you better.

I found that getting a liter of fluids on day #3 and #6 post-chemo really helped me bounce back better. Don't be afraid to ask for it if you feel rough later this week! (Also, if you feel like you need an IV anti-nausea med, they can usually give you that then too.)

I also got a taxotere rash after every chemo. This is pretty common. Go ahead and call your onco at the first sign of a rash. They can call in a 5 day dose of 10-20 mg of Prednisine to knock it out. I suffered way too long with the rash the first chemo. If you see redness or itching, call and report it right away. There's no need to suffer more than necessary.

Gentle hugs

Cool Cheesecake

debian: when did you complete your last chemo?

debian: your hair grew really fast in just 3 months. I hope mine will grow as fast as yours, You gave me hope 😀.

Thanks a lot

Wishing you lots of hair, alice!

My aunt, a hairdresser, gave me Nioxin cleasner and scalp therapy conditioner for chemically treated hair. She said she had some customers use it and not lose their hair. I used it from the start of chemo, but alas, I went bald anyway, however I continued to wash my scalp with it weekly and I used it for the first few months till the hair filled in nice. I don't know if it helped it grow, but it felt soothing on my scalp, especially in the beginning when the hair was first falling out.

I also tried to be kind to my hair when it started to sprout so I didn't break off any new growth. I didn't overwash it. I never bothered with a wig, and only wore a hat or scarf for work or shopping. I stopped covering my head as soon as it had some fuzz covering it. People at work told me I looked like a rock star, lol.

Hi Girls, so much happening here. Some newbies, sadly. But, this is a great go to group and I wish you all a smooth chemotrip.

I have a question..been on Arimidex/generic Teva for 13 months, SE's tolerable, foogy brain, hurty thumbs and bone loss pretty intense. Now talking about/rec the switch to Tamoxifen for a while, then probably back to AI.

I am hesitant as I prefer the devil you know type thing... and the 1st 3 months on the AI were bad. Anyone ever do such a thing? Any experience with Tamox. I am post meno.

Thank you,

Bridget

Where did all the Stage 3 Survivors go? Anyone know where Camilla went?

Lj I am her2 positive with a very small tumor (1.5mm) plus a single focus of microinvasion in my dcis. My her2 is very very strong. (fISH 4.8). I am in Boston and poured over the Dana Farbwr studies on early stage small rumors with no nodal involvement. I had great odds without chemo, but recent research shoes the results with taxol and herceptin are spectacular. So I am doing chemo. My her2 was just too strong not to. I might have made a different choice if I was her2- but I'm not. It's a tough choice. I have had few side effects and work full time. Just some really bad heartburn and some Bone pain.my hair is thinning dramatically, but I cut it short and have no need to wear anything yet and I'm half done with treatment. My period also stopped.

Greta my face is red on the weekends too from the steroids.

Hi Kate!

Some ladies take L-Glutamine to prevent neuropathy. Special K knows about the dosing and all. I, personally, did not take L-Glutamine. I got some mild neuropathy (tingly toes and fingers) while doing Taxol-Herceptin-Perjeta, but it went away once I finished chemo.

Ha ha ha -- yes, students are germy, no? When I was doing chemo, my favorite was the student who kept visiting my office to update me about his mono. Really, I thought, just email me about it!

I am wondering how many Triple+ decide against chemo? I am 58, mytumor was 9mm, high grade(3), Her2FISH 2.2, I had a bilateral mastectomy as I am BRCA1 and there was no node involvement. Any opinions?